TRIPLE POSITIVE GROUP
Comments
-
Yeah, it was cortisone. the trigger thumb developed after a few months of arimidex last year, then i got a month break, and he started me on tamox. was ok for awhile, then here comes the trigger thumb again, and to a lesser extent one of my other fingers. luckily, i am left handed, but i do depend heavily on my right hand too. does the shot start working slowly? i mean it feels better all ready, but is this as good as it gets? how's that work. i dont think i ever want another one, thank you very much! i can't believe you got one in your knee! i would run away and climb a tree! i am just so angry to think my bones are a mess. i worked very hard to keep them in good shape. i know i will stop being so mad about it, soon but-
0 -
kathec - the injection I received was a combination of lidocaine and cortisone so it had a fairly immediate pain relief effect, and then a longer acting anti-inflammatory effect. I was cautioned against doing too much too soon - some people are so excited about being able to move pain-free that they cause another injury. I do know several people who have had surgery on their triggers, and it is very successful - my first one happened after 6 months of Femara on the thumb of my dominant hand. I wrapped it in trainer's tape (flexible and sticks to itself) and immobilizing really seemed to help. I couldn't cut with a knife or scissors, or hold a pen - it was a real problem. I switched to Arimidexand after a year developed the other triggers, so I decided to switch back to Femara since it is the drug favored by my MO. This time it is a generic from a different manufacturer and so far, I have no new triggers. Knock on wood, it has been about 8 months. I hear ya on the bones, I was worried I might start crumbling - I hope the Prolia does its thing for you, with no SEs!
0 -
0
-
Mike, Mike, Mike, Mike, Mike!
0 -
Guess what day it is? Huh? Go on guess?!!
0 -
Called the doctor about my EF. Everything is fine, the 55% is correct. The nurse had no idea what the 46% was, her report said something like, "Normal heart function, EF 55%". Why they didn't send me THAT summary and not just the sheet with the random numbers on it is beyond me!
0 -
Cami, you're a serious nut! I almost spit my water out of my nose when I scrolled down to your picture!!!
Twin, never panic over a lowered ejection fraction. First, there is a lot of human interpretation in the calculation of results, so values can change just by having different doctors read the same images. Second, you're still on Herceptin, right? I went from >70% down to 50% and they gave me a nice 6 week herceptin vacation. If that happens to you, don't worry too much. Once I started to feel better on my drug-free vakay, and was walking around more, I bounced right back up to 65%. It's all good, you are young, your heart is happy :-) And remember it is a muscle, so the more exercise we do, the better the ejection fraction. It is always treatable until you start cruising into heart failure.
I'm wondering when my next dexa is. I think my MO said after 2 years of Arimidex. Does that sound right? I need dental implants, so I'd better get moving before they start threatening me with bisphosphonates...ugh.
0 -
pbrain - did you have a baseline dexa prior to treatment or starting Arimidex? Your next one should be two years from the date of the last one, not necessarily 2 years into Arimidex. Also, if possible try to have it done on the same machine each time you have one - apparently there are some calibration factors, so they recommend consistency for true results.
0 -
pbrain, yes I am still on herceptin, hence why I FREAKED OUT when I saw that 46% {which was not the real number} because, of course, I don't want to take a herceptin holiday. Granted, my nearly passing out was probably a bit of an overreaction to something that happens quite often. ;~) Thankfully, my actual EF is 55%, which is what it has always been, which is interesting to me since I AM a runner I thought it would be a bit higher. Weird.
I am now dealing with my first regular ol' illness since diagnosis, which I am SO thankful didn't happen during chemo/ surgery! It seems to be some sort of mild bronchitis. If the boys didn't also have it, I would have already convinced myself that after only 12 radiation treatments I have radiation pnuemonitis {sp?}, haha. That's just the kind of neurotic woman I have become.
0 -
....maybe i am being a little neurotic, here, too, but today during the nuclear imaging bone scan, they did all of me, and then went back and did two more areas, after bringing the plate closer, and i mean real close, and did it much slower that time. and then when i wished him a good evening, it was almost 5:00pm by then, he wished me good luck..... i dont know why he would do that. i asked when my doctor would have the results, and he said tomorrow....brrrrrrr. toldja i
wasam, neurotic. ok, night all, i' will check in later, maybe someone will talk me off that edge0 -
Camille, you're outrageous! Where are you looking to find these photos??!
Twinmama, glad you got that all sorted! I have an ECG every 12 weeks, and although I'm always at 65% (yay!) I still worry every time. Luckily the cardiologist gives me the results immediately to take with me to my onco - the appointment with him is always scheduled directly after - so I don't have too much time to panic!
I've a lot going on at the moment. On Monday, I spent the day in hospital - not my usual one, but the one where they're going to operate on my back. I had a bone scan; the first since July 2012. Now it tends to be pet scans and MRIs. It showed that things are more complicated than they thought - of course 😞! It couldn't be simple, could it?!
Apparently my tumours are blastic not lytic as they thought, so there's very little room to cement. The surgeons going to try anyway, but he now reckons it won't do much for the pain. They now know that they can only do T2, C1 is impossible. He also discussed rads by injection straight into T2, but he's not sure. They're discussing me today so I'll know exactly what they're going to do when he rings me tomorrow. Either way I'm going into hospital next Thursday because he says they have to do something........keep your fingers crossed they come up with some good ideas!!
Nicky
0 -
Nicky j,
I'd cross my toes if I could for you. You are in my prayers as are those Dr's so they come up with a great plan.
Hugggggs
Vivian
0 -
A very interesting article re vitamins & supplements during treatment
0 -
Kath I surely hope all scan are good, but I do know sometimes they don't get the proper picture somehow and they might go over certain areas. for a better reading. Let us know OK
Hi Nicky, I know u'r planning so much but I always missyou--now they found some more things for complication. I'm sorry--I hope they can get a good plan going for u to ease u'r pain.
Ashla u never cease to amaze me--u always pop in with some thing to read.
I just want to say I read this post everyday, but let's face it I have little to add for info so I might not post often, but I pay attention to how everyone is doing.
0 -
kathec don't let scanxiety get the best of you. Might be you got the scan trainie and s/he wanted to be sure.
Damn Nicky I really hope the come up with something that will reduce the pain.
camillegal you always have something to add. Most importantly you make us smile.
0 -
kathec - hoping they were just being thorough and it is nothing more.
nicky - hoping there can be a plan to address the issues and reduce your pain - seems like there shou9ld be something that can be done - hope so!
0 -
nickyj, hoping th best for you, that the drs can fix you up! i think they do a better job than they think they can, so they try not to get your hopes up too much before.
thanks, lago, and special k, and cami. its just that i have been complaining of pain for a very long time, and so finally they look. i am just not ready for any bad news yet. but the man wasn't a trainee, he looked very seasoned, and was alone. it was just when he wished me good luck, it freaked me out a bit...
0 -
Nicky ~ Really hoping they can get things sorted so that you can have some relief of pain. When is the surgery set? Or is it set?
Kathec ~ I have found that a lot of the techs say "good luck" after an appointment, regardless of what the appoint was about or revealed. Here's hoping this guy was just being thourough and that his "good luck" was just habit.
0 -
kathec
Please don't worry, not good for you.
My echo person told me good luck when they left room for me to change. ... I have also heard it before from others .
Vivian
0 -
Kath thinking about it my techs all hugged me and said good luck--so If they don't hug u u'r fine.
0 -
haha Cami! LOL
Kathec, I think maybe they use good luck to everybody so they don't accidentally say something wrong. Here's hoping that's all it is.
Nicky hope hope hope they find something that will help you out!
To all, Much Love. Stay warm, and don't hurt your back shoveling! LOL
0 -
KathyC Is that ur real pic?
0 -
goutlaw, its a painting of my back that i did about five years ago. i was feeling very strong, and asked my boyfriend to take a picture for me, so i could paint it. always wearing jeans & a ponytale, such a tomboy!
cami, thanks, you made me laugh.
my tech who found it on mammo, & ultrasound? he was from like india, or something, and he ran into the room saying, 'you have cancer! you have cancer! you know what? it cracked me up later, to think of him. i kind of suspected more than a little that it was, going in there. But later, more & more, i appreciate his simplicity and forthrightness. other than that, i think i have an exquisite sensitivity to words, especially nuanced ones, that are more open to interpretations. i'll try to get better, and tame my imagination!
0 -
kathec, I don't know whether to laugh or cry reading about your tech running in like that!
Twinmama, the surgery is set for next Friday. All we need now is to find out exactly what they're going to do!
I'm waiting now for the phone call to let me know. It's going to be a long morning!!
Nicky
0 -
0
-
Awwwwwww! Happy Valentines day Camille, and all you other wonderful women!
Hope you all have a day filled with love, laughter and joy xxxx
Nicky
0 -
Nicky I hope u'r feeling better day by day.
0 -
0 -
Lago hope thats Sugar Free lol
0 -
Eating to many of the the sugar free will give you the big D. So maybe not
0
