INSOMNIACS place to talk in the wee hours
Comments
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Thanks for the nice thoughts about the $$$$$$$$$$$$$$$$!!!!
I can relate! I am a night owl to start with and then If I have something that needs taking care of I better do it before I try to sleep or it is not happening. I lay there and make lists in my head. Things too like I don't keep a written calendar and didn't used to write down phone numbers. They were all in my head. Now they are all in my phone but I still know a lot of them. I have tried with the calendar. I buy them!! just don't use them.
I have gotten better about slowing down some too. Not easy though! I do find if I can get into a good book I can escape for a while!
Speaking of! I'm going to go catch a chapter now!!
Good Night Owlettes!
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Teka I'm glad u'r feeling better.
OK the color Blue=feeling down, being sad BUT
if u paint a room a certain shade of blue it's calming and restfull, a certain shade of green to, but another shade can mean jealousy, envy----Hmm quite a puzzle to some how colors can be so meaningful.
See Chevy I understood something maybe, a little, or a smidge.
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Cami -gyn exam and cultures. No powder. Powder is a breading ground for bacteria. They just thrive in powder.
After gyn exam and determination of cause, if none found, consider Bag Balm. Still glowing, wish it was a nice glow. Sleepy so sleepy........not liking this---sumpins not right. But back to you.Are they doing an HBA1C every three months?(or at least once a year) You have allot going on. We all do. But the HBA1C can monitor your blood sugar(glucose) over a three month period. It's really cool. The Red blood cell lives for 3 months. The red blood cell attracts sugar(glucose) molecules. The test measure the amount of sugar molecules attached to the red blood cell over a three month period. Nice---would love to read about the person that came up with it.
With repeated infections many questions need to be answered. Is it primary to the bladder? Is it external to the bladder? Is it related to sex? Is it Blood sugar levels, predisposing to infection?
Need to find food
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My guess is related to sex! It's all that cattin' around that was happening here a couple pages back!
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Well Sas there goes my powder theory--But I've had these before and they call it some type of external yeast infection. I've had different treatments with them --one oral and another powder form, its not internal at all and yes I do have all blood tests every 3 months this time I was fine with most low on a couple, and high on the white cells then right after I got the bladder infection. But I do see a urologist after all this calms down, I made the appointment, cuz I always get bladder infection nd always on an antibiotic and I don't know what's wearing me down more. It's gotten to the point where there is a lot of pain in front and towards the back, so I know they're concerned about my kidney and they last longer and longer and the pain gets worse, but I also have the pain from my discs in my back so it hard to tell when one start and the other begin. OK Now I wrote this much to tire the hell out of u'r eyes so now go to sleep Thanks for the powder thing tho.
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Ohmygosh..... how can this thread move so dang FAST?????
No possibility of catching up now...
Love and hugs and prayers to all who need them....
Big high-fives and wooHOOs to all who earned them....
Cami - right after my BMX I got a horrid itchy rash under my foobs and in the, um, folds of my waist. They dx'd a skin yeast infection, probably from the gallons of Cipro antibiotic they pumped into my IV during surgery, and orally for ten days after. The cure was a powder (NYSTOP/Nystatin Topical Powder USP) I put on the affected areas. Worked really well.
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Sunday DH and I cleaned out MIL's clothes from her house. We filled the back of the pickup truck with over 50 TRASH BAGS of clothes. Man, did they stink! And the moths... ugh. I threw quite a few things away. (MIL - 93 when she passed - never threw ANYTHING away.) We kept the bags on the back porch until I could bring them in bag by bag and do some serious laundry. Now I have them sorted into piles, which will be donated to the Hospice Thrift Shop, and to our church's Homeless Outreach. I am SO over this project.
Tomorrow: I take in my regular donation of comfort quilts (made by the church ladies) to Oncology; see my Oncological Therapist, AND - have lunch with a girlfriend!
I know you all were wondering: this is the color of the nail polish I have on.
OPI - "You're Such A Budapest!"
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oooh but does she have any amazing vintage 40's/50's 60's 70's items?? that is a gold mine. and patterns. I am one of those ppl- always looking for vintage clothes and patterns or fabrics. I can't get enough of those decades!
LOVE you polish! and yay for you almost being done!
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ok- trying to wind down to go to sleep I am getting up early to get a pedi so my toes look great for the RelayForLife tomorrow night. This week brought the anniversary of finding my lump, initial testing, biopsies, and i actually got the call on 5/13 that changed everything . I am enjoying mothers little helpers this week, and will continue to do so for the next few days to get me through this. I am so much less strong than I want to me. Both physically and emotionally. We have lost so many the past few weeks, and I have read some heartbreaking stories of loss. I don't want the man I adore to have to go through that kind of thing. Living with the fear of recurrence/mets, it is almost too much for my wee brain to handle. So sedation it is! And maybe a little wine this weekend.
Looking forward to the relay and seeing everyone, and then Mother's Day my parents are going to San Antonio so meeting them for dinner. My pops has to have more skin cancer sliced off his neck. It never ends. I am just so grateful that I have them still. My world will crumble when they die.
bah. sorry. I hate being a downer, just needed a place to reflect, and I know you ladies understand.
Where is Vinnie these days? hope he is blessing ladies with his art.
Browniefan- I am one too! glad you are finishing up your recon and can hopefully move forward with joy.
Luv, Tang, are you ladies still in one piece?
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jwoo....sorry you r feeling down. You will have fun with the relay. They r so cool. I do have mbc. Came back after 8 years. After the initial shock and having to tell everyone. I must say that I am living a very very fun life since I know it will,be short. I am pretty chemo resistant so I am blowing through them pretty quick. It took awhile for everyone not to be sad and get on board with having fun with me. Death doesn't scare me...but I do feel horrible that those you leave behind will be so sad. But right now we r having great quality time and fun....and that is all I can do. Choose to live fully, laugh often, and enjoy all the moments. Hope you sleep,well...
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way to go, Teka!
Hi1, cute family! Loving those shoulder pads
Dutchie, great new avatar
Woozy, pretty lady, my hair is still curly 17 years later, it's my chemo-induced permanent permanent. Wish I knew about your love for old patterns and fabrics, gave away boxes last year. Still have tons as I always sewed my own clothes.
Nettie, was shopping when I read your rice crispy recipe, got me a big box of cereal. I hear them calling me now.....
Chevy, bee-you-tee-full scarf! You got me started on a new hobby
Sassy, if the $$$ trick works, I need pages of them right now. Sleep attack, nice term. Same as falling asleep mid-sentence?
Woozy, it's always great being on the far side of an anniversary. Think how much better you are this year than last
Cammi, did you ever get a shower and get to smelling nice and purty?
Susan, am so sorry to hear about mbc. You have a great attitude.
Blessings, love those nails! Sounds like you're making progress on the tons of laundry. You're going to make ladies really happy.
For those I forgot to mention, wishing you a great Friday. In fact, that goes for everyone
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Morning gals!
Teka, I read your post in depth, and found the site, and saved it to my "medical info"! So thanks for that! I had HEARD that cells CAN spread, not only through the Lymph nodes, but through the vascular system as well... We're always looking for more info, and the "why's!"
And even though the information we read on this thread doesn't always pertain to us personally, it COULD someday... So I'm so glad you gals post a lot of "stuff" to maybe help us!
Litlegoats... Okay, you are right... I'm not going to look over my path report.... It's been so long, and I barely understood it at the time... But so far, so good.
44444444! Okay, so yes! I can still exercise on my pole AND crochet! Ha, ha! I sent you a PM... So what's taking so long for you to answer? And don't give me all that baloney about "kids and stuff."
Morning Browniefran! Oh? I'll bet your name is Francis, and you love Brownies.... right? Hah! Thought you could TRICK us, eh? Now I think most of us would just LOVE to have our own plastic surgeon, who would fix us all up too! DANG! But geez girl! You have really been through the wringer.... Since 2011???
Just glad you are happy with the work he did on you!
Sassy.... (ohlittleonewhoneversleeps) It's always interesting to read what you post... even though you are sound asleep! Man, your mind is running 25/8.... See that's more than 24/7....! I think we all get "sleep attack's" .... but now we know what they are called...Ha! A "Sassytack"! Yes.... and the "blues" makes sense to me too! But not the "entendre" thing.... Good Lord Girl! Where in the hell do you come up with all this stuff! I would look it up, but you will probably explain that to me and Cammi anyway... Lilshit will just pretend she knows what it is.... I KNOW her! And windmill? Am I supposed to be following your train of thought? I think it's a run-away train.... And I can't keep up... I've fallen and I can't get up....
Now THAT was funny! Because I COULDN'T get up.... well, guess it wasn't so funny at the time... All that went through my mind, was "I'm doomed!" I wanted to cry, but it hurt to much to go through the effort! But that's all over.... almost 3 months now!
Teka! So true! When that happens, you just have to get up, turn on TV, and that will help your brain get off of it's rant, and think of something else! Then try sleep about an hour later
Cammi! Okay, I got it covered! I painted our whole living/dining room a pale/blue/white.... In other words I "ragged" it... It is beautiful! It is very restful, sort of shiny, and I'll never have to paint again! It washes beautifully...! It was a job, but worth it! It's not "smidge'..... I think it's smidgeon...
And yes.... Sassy is right... Talcum powder has been all over the news, involving law-suits.... etc! So just say no to Talcum Powder... on ANYthing! TP is our enemy.... You could probably use baking soda before Talcum Powder... or corn meal.... which IS it?
And 4444444444 has her OWN opinion on WHAT is wrong with you! But sex is our friend.... sex is fine... so don't listen to her....
BLESSINGS!!! I love your nails! I painted mine a real pretty dark blue last night! And don't go sayin' nothin' about me, at my age, with blue nails! I'm living on the edge....
Morning JWow and 222222222222nd and Susan... Hope you guys are feeling better!
Okay.... that's it... have a fun Friday gals! xoxoxo
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Good Morning
Susan I never think about mbc with u, u are so fun and cheery--u'r in my prayers.
Blessing that what is what I took for a while, I couldn't remember the name of it--but when u said it it came to me--Ot's just crap on skin.
Sas was so tired last nite I purposely wrote one of my boring posts so she would fall asleep--I think it worked. Poor thing.
I love real colored nail polish at first I thought Oh I'm getting to told for this but then I thought WTF--I've worn blue-green, purple and of course white, just like I wax my hair the same color with those waxes--everyone thinks I've lost mymind, but u know I have fun. When we go out with my brothers--they are ultra conservative they think I 've finished going crazy--
OK I smell so Purdy--I have on Tova body Butter,, thick but easily spreadable and it's her original signature one--and I save it lot cuz it's changes lately a little so I hold onto what I have--But I felt like using it today and boy do I smell luscious. I think I'll do this Mother's day.
Do we have someone new here>>> Everything moves so fast,, well I don't but everyone else does. I truly hope everyone has a good day today, I'll see how busy I am today--I was yesterday.
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Uhoh, I am way behind. Teka's back! Yay for good mammo. Missed you teka. Cami smells or doesn't smell but she smells coffee brewing and that's a good thing anyway. Phillywhoiscrazyasbatshit had a psyche eval and passed? Well you can say anything on the Interwebs and get away with it I guess. Sassypants, I will write long soon. The days here have been wonderfully beautiful so I wake up and walk out the door & don't come back in till about 8:00 at night, then eat and collapse. It would just be a sin to waste these few spring Ohio days indoors. I will tell you of my crocuses soon...promise. Chevy I DO know what an entendre is, but I'm not going to tell you 'cause you're not being nice. I love you, but I'm not telling you. Jwow - worrying about the mets gets easier as you get a little further out. I'm coming up on two years now & it's only in the last couple months that I have been able to let go of it (for the most part). There's a time (for most it seems) after the 'big' treatments end, that the worry/depression/anxiety.. call it what you will sets in. You have been through a LOT, it's almost if all of the sudden you were drafted for a war and sent overseas and had bullets flying at you been injured and picked up some strange ailments and then you come home & are supposed to be 'fine now'.
Alright, I am going out to play in the dirt & chevy maybe I'll dig up some worms for you, there are some BIG nightcrawlers. Tonight I'm wearing this beautiful scarf. I like it that it's cool enough for this time of year. Blessings, my daffodils are mostly gone now, but lots of other stuff coming.
FBB, will be in your pocket all day today. Chevy insists on bringing her pole so she can exercise and cami smells or doesn't, sassy's glowing enough that we don't need a lamp, 444's doing stuff with balls, blessing's got these crazy fingernails & who knows what all else.. I'm the only one that's normal in here, but we all love you a ton.
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Oh! About TIME you decided to join the party Lilshit! That was a funny name for Phylly! Ha, ha! Kinda cool here.... not playing in the dirt today.... besides it would hurt my manicure!
And don't hurt the nightcrawlers! You KNOW they are good for your soil! Slugs, maybe not... Nor ants!
And YOU are normal? Okay, and there is grass on the moon! Well, probably is....
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Oh I'm so confused--Ziggy is normal now?
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She is to me. Crowded pockets today. Thanks for all the positive thoughts and prayers. Love the avatars and blue nails and happy to see Teka back. Off to get my glow on soon. Have a good weekend!
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Ok, I just read through and I have no idea what I read, it's like my brain was not in gear or something! Dang it! I hate when that happens and now I don't have time to read again! Maybe later! Had a rough night, woke several times with pain in my arms!! Darn tennis elbow crap needs to go away!!
Maybe later my mind will be able to absorb what I read, until then - HAPPY FRIDAY!!
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Cami it's all the Gists' with their own body parts, not paying attention to what the other Gist' are doing.(insert Nystatin powder---that powders good. I'm talking non-medical powders as being a breeding ground for bacteria and fungus --yeast).
Sorry we were talking yeast infection in vulva area, not bladder infection. Ironically everything applies. With the addition for both- culture and sensitivity of urine and vaginal opening. Should have mentioned that above, but here it is now.
Yeast is a bad neighbor. It is kept in check by the other good bacteria. When antibiotics are taken, they can kill not only bad bacteria , but good bacteria(bug) too. That allows the yeast(bug) to overgrow. Elevated sugar(glucose) levels is their nirivana food, and warm moist environment.
Any ways before they give you an antibiotic - try and tell them that you will only take them, if it's based on "culture and sensitivity". Culture --they grow the bug to see what it is. Once the bug or bugs are identified, they then test it sensitivity against all the antibiotics usually used for that bug or bugs.
Bugs can become resistant to antibiotics which means the antibiotic no longer works. Also, there is a rating system-- one drug may be a 1 in sensitivity, another may be a 8. The better drug is a 1. It's more sensitive to killing the bug. 8 would be weak.
What happens too much, is gists order drugs without testing. You could be taking a drug that the bug is resistant too. The drug isn't doing you any good. Bug wins. OR the drug is weakly sensitive to killing the bug. If the bug is strong enough, it can overcome the drugs ability to kill it.. Bug wins again.
Each time you take an antibiotic it affects the whole body. Antibiotics can over time affect the immune system. This is why you want to take a drug that is going to work. Less wear and tear on the entire body and the bug is dead.
Know what bug it is by culturing. Know the sensitivity of the bug to the drug. (lol just made that up it rhymes)
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Chevy and ziggy and everyone else that writes so funny. Needed that.Susan and Woozy the mbc thingy sucks- That's what I meant about finding the music in the blues. I'm not mbc, but haven't stopped doctoring since first phone call. Not trying to make this about me---people that do that are sick. Just saying, I understand. I like the way Maddt2ta put it "it's always great being on the far side of an anniversary." Never thought of it that way--pretty cool.
Maddy--Madd2ta was a typo. I like it.
Chevy ---Don Quiote who was insane, he was famous for chasing windmills because he thought they were the enemy doing wrong. He would chase them to correct the wrong. Kind of like that. Ziggy explain it
Cami "Ziggy's normal now", not going to happen. Besides we are all abbynormal, just some more than others.
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Blessings, ewhhhhh I would have thrown up trying to do that laundry. Nice of you. so many people will appreciate it.Maddt2ta and Woosy(nice pic), The patterns. When I cleaned out my aunts condo, I brought home all her patterns. They were from the 40's thru 60's. Very stylish. I knew they were collectible. DH threw them out. He didn't ask and didn't know. He still didn't get it when I tried to explain. MEN.
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Bluebird you should have a glowing halo around your head by now-----we can glow together in the moonlight, and dance under the stars0 -
Sasthepoet...another hidden skill of our hyper, OCD medical researcher !
Fiercest bird, I got my helmet on, ready for the pocket party. We are with you !
Busy morning Owlettes ! I love reading all your posts & feeling like we are all a big supportive family..
Jwow, you are certainly not a downer...I loved your photo yesterday, you are so young. I am 2 months behind you on the cancerversary, and still in the anxiety fueled fear. My dx is scary & they told me my future was "uncertain". But so is everyone. My PCP told me we are all a phone call away from disaster. I am pushing myself to stay busy, but some days are hard. Feel like I'm a phony....pretend, smile, don't want to upset my kids or DH...I think we are both amazing cause we are willing to talk about this crap!
Blessing...love your nails....great color...you are amazing to do all that with MIL stuff. I would of recycled also, but that is alot of laundry. I am not near the keeper of old stuff anymore.
Teka....congrats...nice to have that over...
Cami, sheesh girl. We need to get you back to almost normal...lol..sorry those stinkin infections are wreaking havoc in your private parts...
Lilshit & Chevster, you 2 with your worms...I love that we have the flower, digging in the earth bond. I have huge flower beds, some gone wild, lots of perennials. Always buying more, move this, thin that out.
Big weekend, don't laugh, ok go ahead...I am modeling in a fashion show tonight, golf tournament tomorrow. In charge of table decorations, niece coming & staying at my house. Weather is crappy, windy. Sounds exhausting, huh! Trying to not over think everything, and just enjoy the moment.
BBL.....
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Golf Girl what fun. PARTAY. We'll all be with you cheering you on as the Hostess with the MostestVertigo's back, YAY, I get to take rollercoaster rides without paying
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bahahahahha! I thought there was a ROCKET party! Now I find out it's a POCKET party. Crap. Our CASA program is having a Night Disc Golf Tournament this weekend. They have glowing frisbies and put glow sticks on the goals/holes. A rocket party would have been sooooo COOL! But that's okay. I will pocket for the Bbirdie with the rest of you. I will bring the frisbies and glow sticks.The therapist did NOT say that I passed the test. When I asked about what he was sending to the insurance busybodies he said stuff like "she's an independent cuss". I just looked at him and said "you say that like it's a bad thing". THEN he said "and she has no problem questioning her medical providers and changing doctors if they do not agree with her." Again I looked at him for a minute, then said "it's called Advocating For Yourself and do you mean like right now??!!" I only said two or three things that made his eyebrows shoot up. Anyway it worked out okay, they left the door unlocked and I got back home in time for our volunteer meeting.
sassy - sorry about your vertiginous episodes. That's what you use to explain to people why you are lying on the floor of the grocery store, right?
Woozer - sorry things look bleak today (or yesterday). I was weirded out on my first anniversary of my diagnosis. March was my anniversary of my recurrence diagnosis and it was a piece of cake! Well sort of. I did think about it but it didn't stop me from napping or anything. Anyway, just trying to say that it may get easier. So sorry about your dad. I'm glad he has your mom to do the doctoring when he gets home.
I'm off to the nursery to see what kind of plants that I should buy. I need the kind that will die a slow death, not an overnight death. I'm not so good with plants.
P
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phylisswiththebrownthumb.....you are a funny shit !
Is it warm enough for night golf? ...I am panicking about playing in the cold wind....next week in the high 70s....YEEHA !
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Phylly, You'd love my son. He runs a rocket shoot on Thanksgiving morning and New Year's Day. Everyone builds their rocket in a class, then they have a party to shoot them. At least he never did this in the basement when he was young. He likes to windsurf so lives in a windsurf mecca and likes to play so owns a hobby shop.
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wren - He sounds wonderful. He should come to the rocket pocket party! ....um that's different from a pocket rocket.0 -
Wren u'r son sounds like a hoot--How much fun he's having with his life--Wonderful,
Nettie don't feel bad about understanding, remembering or catching up--just come on in whenever u want.
OK Phyloalmostnotinsane===they did let u out into the world again. Wow they must be liberal thinks or no thinkers at all.
Sas I understood most of what u said==YAHOO----why did my typing go like this???
Anyway how are u going to do that all tomorrow with Vertigo, u won't have James Stewart to help u, u know that. U do way to much for all u'r body is going thru. But I do know u'll do it and it will seem easy for others to watch u.
OK BBL
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been catching up and snooping in. SAS, sorry for the roller coaster, unless you like that. Don't think so. Hope everything goes well this weekend and have a happy Mother's Day. I get to spend the morning with my MIL, yeah
Oh well. This one is better than last years. Had to tell my mom about the BC the day after. Everybody else knew just had to get it over with her. Got to go make myself a bra now. Got it started but pretty sure its not going to fit right. Got to finish most of it so I can see where to fix the cups. I'm flatter but broad so not normal pattern piece. I'll get it figured out.
Not to brag but lost 12 lbs so far. Yesterday was bad, wanted to eat anything sooooo bad. Made it through, so I'm good.
You guys take care and be good in FBB pocket (or not).
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Phillycrazylady, yes, it's a very good excuse for falling all over the place. It's been gone awhile. Remember when it started, DBF and I knocked heads in the middle of the night. This onewasn't as complicated, simply sat up and went on a ride down the coaster.
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