INSOMNIACS place to talk in the wee hours
Comments
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LMG--it was definitelt Bluebird. Then changed to FierceBluebird after the brain surgery.
Glad the bug stuff is working, scorpions --uh-uh no way their gone (smiling)
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Thanks ladies. I will send it on, but later as Sas suggested. That will give me time to process, and find the right words to say. I sent a friend request to her FB, hoping that her family will keep it as a memorial page. I am just in shock, really did not expect her to go, and certainly not so fast.
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Crap...I don't even know what to say. my thought are with her family. This is so distressing.
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Hope this is consoling versus upsetting. FBB signed her last post here as Kristine, that was a first. She shared her name in PM's, but not publicaly. Plus, when I got her address in our last call the day before she went in for her last hospital stay, her address wasn't for the public. GolfGirl got her address very shortly after and it was to be shared by PM. Both were a step different in a very short time.
FB(facebook) is different. Point is I think she knew. She wanted all of us to know her by her real name and be damned with anonymity.
Jwoo you'll find the words when you are ready
Hugs for everyone sassy
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Too young and too sad.
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Smaarty, beautiful photo...
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Ladies- what do you think about having 1 or 2 of us gathering real contact info so that we can communicate in case something happens? I am willing to keep a database if that sounds like something that ppl are interested in.
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I'm fine with that jwoo. I understand, when SAS disappeared we were all worried.
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I'm good with that too. I've been really wrecked over this today...thinking about her family and how young she was. She was a bright spot here.sas-i think you are right...she knew.
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Jwoo, I think that's a fine idea, those who are not comfortable, can choose to sit out.
I love that Kristine was open & very honest these last 2 weeks. I truly believe we cannot predict our own behavior until we are living it. She set the bar high with her personality.
She said in her email that she gained strength from us, and loved us all.
Like all of you, she has been in my constant thought process today.
Hugs to all, thanks for being in my life and letting me be in yours....
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OK- i posted a thread- just letting everyone know and adding a template to follow. I do need one other person that is willing to help me- basically, I will gather all the info and send you regular updates (once a month) and if I am out of touch for some reason, then you would take the responsibility of it all. I know it will be a pretty big task, but i feel it is needed.
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Sassie collected the info from another thread. ? With contact info names n phone numers.
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Hey, Mammaray! Welcome here, the company is awesome. Started out as night owls (that's why we call ourselves Owlettes) but now 24/7.
TE's: they suck! Life gets so much better after the exchange, hang in there.
Sorry about the cervical cancer too, this cancer stuff never seems to end, that's why we're such good support for one another. We're also like a little family here, squabbles and all, but it's with love.
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us it normal to have insomnia post op?
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Welcome MammaRay! and Stix!
and yes- once i work up- i stayed up! I think being in bed so long keeps you from sleeping.
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I had surgery yesterday. ... and you would think i would be sleeping now..... never had this with my previous surgeries
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hope you are feeling ok otherwise. my bmx is the only surgery i have ever had (so far) and after sleeping for the surgery, then recovery time for the meds to wear off, i was up- for about 24 hours. i was so tired of being in bed, and it isn't like you actually get any sleep in a hospital when they are in and out of your room every 2 hours. I was also STARVING, so that was keeping me up, and the kitchen was closed for the night. I think one of the nurses brought me a pudding cup or something.
anyhow- maybe by tomorrow you will be able to actually sleep. If you can, maybe get the nurses to get you up and walk around a bit?
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JWoo, love the painting you did. Also, great idea on contact list. I'm still working on building up iron storage, so can't be the one to assist you on the contact list, but wanted to let you know it's a great idea.
Hi Stix and MammaRay, welcome to both of you. Always tough when you can't sleep. You'll find people posting on this thread at all different hours. People here are friendly.
Hi 2nd, hope you're doing well these days and that the folks are settled in. Lunch soon I promise.
Had iron infusion again today and I smell and taste iron, yuck.
Going to try and paint my hanging blue bird that holds bird seed in my backyard this weekend. Keeping FBB close in my thoughts and heart.
Hugs to all you owlettes....
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PawP- are those infusions helping at all? I worry about you!
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Pawprint, mom is settled in, Dad is in shock and is overwhelmed. Thanks for asking. Today is their 61st anniversary and he is so upset. He hasn't seen Mom since we moved her in the 14th, wants to bring her flowers tomorrow. Doesn't know how she'll be, if she remembers him or not. I'll probably be driving out that way tomorrow so he isn't alone. The city has a farmer's market on Saturday, maybe we'll check that out.
Yucky iron taste, but hope it works. How are Annie Mae and Snuggs?
Missing FBB...
Stix, are you at home or in the hospital? Please, try to stay on some kind of pain relief even if it's OTC for a couple days, that may help you sleep if you're not in pain. Try not to overdo either, I know what happens when you don't!
Mammaray and Stix, just jump in, this thread moves so fast at times it's really difficult to keep up.
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2nd- 61st?
that is so sweet that he wants to give her flowers. I hope she is adjusting to the situation, and that he is able to spend some time with her in some way. Alz is another one of those things that just should never happen. Where does all the research donation money go? 0 -
Wow 2nd, your folks 61st anniversary...that's quite a love story. Your dad is such a romantic wanting to bring flowers. They are both lucky to have you so close helping them...but know you must be so drained.
Annie Mae needs a seeing eye dog, and Snuggs does not qualify for that job. Seriously, both the fur babies are doing well. Annie Mae still bumps into literally everything, including Snuggs. They both sleep a lot, but they are doing well, thanks for asking.
JWoo, my iron saturation has barely moved up after I think it's been 9 or 10 infusions now. Last week was the worse for muscle aches and tiredness. And my pain medication made me more tired. Ugh...I keep hoping it will climb up faster, 17% saturation and rising. But the taste and smell is gross. It seeps out of my pores. I need to borrow some of Cammi's nice smelling soaps
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Glad the furbabies are doing well, if a little clumsy.
I think we all need to raid Cammi's bath room!
It seems like there would be something else they could do to get the iron to stick. I can't imagine how hard it must be on you. ((hugs))
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Thanks JWoo, yes the back of my right hand is so sore from IV pokes. If this continues much longer I'm requesting a port. I must lack the necessary enzyme secreted by the liver that's needed to help absorb iron. Never had this problem until after BC diagnosis. Coincidence ??? Don't know. How are you doing these days?
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Morning gals! Hi Stix & MammaRay!
You two are just what we needed this morning.... We lost one of our gals, and here you two show up, and it's like someone else we want to take care of!
I can only say, whenever we have surgery, or anything heavy on our minds, nothing works right....
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Oh 2222222222nd! Did you see the Notebook movie with James Garner? Don't go see it.
But it was the most beautiful movie ever..... Her Husband finally accepted the "change" in her... I can't say more.
And seeing my Grandma going through this fast change, just terrified me! I looked it up, studied it, TRIED so hard to get a handle on what was happening to her. But I couldn't change a thing.... just be there... Talk about it to your Dad... if she doesn't recognize him, she might a little later!
I couldn't believe that she "forgot" my Dad and his Sister... Her mind was just slipping away.... and she couldn't help it, and neither could anyone else....I'm just glad your Mom is in a place that understands this, and will help her. Just be there for your Dad.... he needs you to help him understand.
You can maybe tell him "some people get very ill physically, but Mom is just not thinking right... but that's what we are for... just to love her, and understand. that she can't help it.
Little Paws.... thanks for telling us about your little Pups...I'm glad she is okay... What is? Just is....... Like 2222222222nd Mom.
Morning JWow, Sass, and what's this with Cammi? She took another shower, and wants the world to know?
It's like everytime I TAKE one now, I am taking one with HER! Speaking of which..... I gotta jump in pretty quick here.... then go paint part of the back fence... REALLY!
xoxoxoxo Sweet dreams, and good night.....don't let the bed-bugs bite little BB!
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MAMMA RAY !!!!!!!! Sorry to hear the new news...but you know me!!!!!! I gave you your name...lol
Hope to see you around here a lot.
Haven't read through threads yet..have to go back
Hope all is well
Still Teary eyed over FBB.....heart is breaking for family
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good morning ladies.
Welcome stix and mamma ray. Stick around and post often. These ladies are wonderful to talk to. They really get it when sometimes are friends and family just don't or sometimes we just need to be honest with someone who isn't going to melt down when we talk. :-).
Jwoo /SAS I like the list thing but is this something SAS already has ? If so SAS how do I add my contact info ?
Oh my dear 2nd. My heart breaks for you and you dad. He is very lucky to have you there for him. You are a good daughter. I hope things smooth out for you soon though. You have got to be exhausted.
Not sure who all mentioned filling their bird feeders but that got me motivated too. I am doing that this am. Love to watch the birds but have felt to miserable to give a rip about it.
So great news for me. I woke up this am with NO pain anywhere ! First time in over a year. I know I have complained enough about my pain on here , so you prob know it was 24/7. Either major pain or pain med and straight to sleep. Neither is a good way to live. So very depressing My rfa must have worked. Was major sore a couple days and fearful is was unsuccessful but today - wow. Amazing how not having pain can make you so hopeful for the future. I have like a million things to do... Now where to start. If you are up and have had your coffee and feel well enough, please join me. I am turning my music up loud and dancing like crazy I Feel Good. So amazing.
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Welcome Stix and Mamaray. Stix hope things get better after your final surgery. Mamaray sorry to hear about your other cancer, sucks, I wish you well. Funny how men can just turn off the stress, been working on this for years. Look up yoga breathing and deep muscle relaxation. Try them before bed, it may help, also write down all of your worries and plan to worry in the morning, works sometimes. I had been sleeping better before this new diagnosis, but must confess I am taking Trasadone, off label, for sleep I resisted meds for a long time, but as my doctor said, sleep loss has side effects too. Stephanie
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jwoo thanks for the info.. lol. I was outpatient at home when I wrote that message. I finally fell asleep at 4am till 10am But your message brought me some clarity when I had my bmx...I was up the majority of the night at the hospital when I had my bmx... so I guess it is no different.Thanks chevy boy and pepper! Sorry I am using half of some of your user names and EVERYONE else that responded. thanks thanks and thanks
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