INSOMNIACS place to talk in the wee hours
Comments
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Littlegoats ---the working boxes are a very good way to communicate. Gather information pertinent to the subject, data, then analysis. When I did Members and Mods. The mod with an itchy delete finger deleted three boxes that had "Under construction". (Sorry Chevy, you get so nervous when I mention the banning time --god love you, I know it's cuz you love me). But it truly is a very effective way of working. Info, Data, Analysis. ............... I think it was Blessing or Chevy on the beard urinating thing. ROTFLMAO the first time I read it. Thank Dog we aren't subjected to that as a species.
I agree with you and WREN, there was an angel. It was a matter of a couple three hours. When Phyllysolucky told me I was speechless for a moment(LOL). Her plan is to leave Friday. Couldn't believe we didn't talk till today about immunizations. Biggest screw up by all MO's as far as I'm concerned. Immunizations pre chemo- radiation should be reviewed and Tetanus up to date, pneumovax, shingles. MINIMUM. Maybe meningococcal. MMR review based on CDC reports. It's crazy. Reduce someone's immunity, but not protect them from preventable diseases. Pneumovax prevents attack by 23 different bacterias. DUH. CHIT. Another missed item is the DEXA scan for bone density, another DUH.
Bad sleep last night, but for very nice reason's LOL.
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Nettie I'm glad understand Sa cux my 2 oncs. I think broke all of the rules--I had a few bone scan. and MRI' and still do all the time. But then again how many stages can I go. LOL As soon as they feel anything and I've learned t say nothing I'm in some imaging with without contrast, heart stuff and all that chit, even thos I tell them I already had a pet/cat scan from my Cat--she knows more than they think, remember she found my cancer to begin with.
Oh Susan my DD is a hair person too, but she just does it foor people she knows in the house now. Cutting is actually her specialty, but of course she does dying and foiling--she's the one that would not foil my hair purple or any other of the colors I wanted. Brat, Well I wasn't going to pay for it so it was never done. Brat.
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Don't know about the beard thing. I think some men would do it if they thought women liked it - Eewww. Maybe we can start a trend.
So the box thing is to put something in - anything in that holds the place. Like space your data out until you coalesce it in final form.
Immunizations before rads - had none (though TD was prob. current then - not now). Just now getting caught up with them. Had the Pneumovax. That thing hurt like nobody's business Need to call insurance about the shingles - note to self to do it. I may go with DH to doc on Friday and get TD - not looking forward to that lump/pain - hate them. Never had meningococcal. DD did but she lived in the dorm - made her do it b4 it became state law. How the heck could you get all those done b4 chemo? Isn't there a minimum spacing between? I know PCP would not give me TD at the same time I got the Pneu. Had Hep B immun. when I went back to nursing 2007; refused them in 1985 or so. What's your quibble about the DEXA scan? Missed item in that many docs forget it or what?
Neighbor has had at least 2 recent (couple of years or so) surgeries for scoliosis. She has to be near my age maybe just a bit less but no spring chicken. Still having problems but that's not nec. from the surgery aspect. So has child of other neighbor. She's prob. 40s or so. Fixed her's right up I think. Both done same spec. spine hospital.
Cami - missed you today. Busy day?
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Thinking of all of u, somtimes I feel like a quitter cause I stopped chemo, thought I should have been stronger n delt with it better but I know I made the right decision, the se were controlling my life, my friends n my kids said they would have stopped earlier, 2 1/2 years was a long time n that doesnt inclde the 2 years I was on hormonals yep 5 years ago in sept.
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LMG--all or most of the drugs reduce bone density. All or most protocols use prednisone---big affect on bones. Pre- dexa scan should be a no brainer order in a pre- chemo workup. Missed allot. If there's no baseline how do you know if there's a loss. ASCO- big deal --sets protocols and misses the basics. Hep A and Hep B are on the radar too. But two shots for A, think six weeks, B three --6weeks from initial , then 6 months__probably wrong , but I had us all shot up before it was a requirement. Had to fight with nurse that did DS Middle school admission review. Even though I had the documentation. She didn't believe we would get it before it was required. I'm a big believer in immunizations cuz we had polio--Brother, twin and I in 1952---two years before the vaccine was available. Don't agree with the massive amounts used in the childhood period. Think they ought to look at a different schedule. Saw a documentary on child/infant immunizations---the number is huge. Hard for the immature immune system to work with them all at once. Just think they could adjust the schedule.
DS was PISSEd off when I made him get the meningococcal in 2003 in summer before college. Then a letter came from FSU, saying it was required and we all had to sign a release form if he didn't get it. I was smug.
Yup the box thing with even a period, works. Now nettie and I will be working in a small space. We can see each others notes. Actually it can be used if you want to do a meeting. LOL. Hey I figured how to do the transporter link too. May not be able to do lots of stuff like pics and skyping, but have done some stuff that's unique LOL. Okay that's boasting. Hugs need to cook dinner
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update on the green lamp: jwoo had an estimate so I took it to the ups store today. Glad I didn't take it out of the car! Just the two boxes to put it in would be about $25, total would be $110-$130. So the lamp is staying here and is still in my car. It will probably go to my SIL church rampage sale middle of next month. We thought we'd have the apartment done today but it wasn't to be. Her Pasteur came with a 16' horse trailer and pickup. It was packed with all his kitchen stuff and odds and ends. We have a few things left tomorrow then we are done. YEAH! I hope to never see another place that bad again. Almost three weeks to clean it out and we're not even cleaning it. It will probably be gutted for the next renters.
I see my ps on Thursday and I got new estimate on the boobs from whippetmom. I'll see what he says. She wants me bigger but I'll go a little bigger than I am now. Still don't want to wear a bra!
Hope you guys are doing good. Hugs to everybody!
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I must be having a bad day because I don't think I understand about the boxes.
Also, just came back from a measly 1 mile walk and I'm dying...almost didn't make it back..the pain in my right leg and upper back was bad.
Sas..I'll answer the other questions when I'm at my computer.
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Nettie - I think her under construction boxes - the 2 of them though one now has some of her notes in it - are for the 2 of you to dialogue in or about (since you can't edit her posts). Maybe more one place you can look for her answers. I think that's the general idea rather than have them spread willy nilly through all the posts to search thru. And vice versa you can edit your post and reply back to her.
Got the smelly dog bathed just as it was getting twilight. Had to fight off the skeeters which is not easy with gloved nasty medicated dog shampoo hands.
Yes - Sassy - about the DEXA but I bet most docs don't even think about it unless pt on AIs, right? Get your point completely about the steroids.
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sas...now you are just showing off. Lol. Lol. Lol. Love you girl friend
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cami...I don't do purple either...and I am to old to be a brat...ha ha
Blondiex...whatever decision you make is the right one for you
hugsSmaarty..hope you get some well needed rest !
Chevy..hope you are doing alright, with your friend moving
Luvmygoats , I sure hope it gets cool by you soon..you sound like you understand sas. Lol. I haven't clicked on any of the links...maybe that's where the boxes are
Good night all...sweet dreams
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Is it hot in here or is it just me?
Nettie, lady you deserve some relief from that pain somehow....and some answers.
Blondie, gotta do what's right for you. I hope the se are letting up.
Waving to everyone....Cami. Chevy, Jwoo, Sas....goodnight everyone.
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Hi loves!DD is NOT pregnant. This is a relief, but like I told her we'd figure it out either way. She's 21, I had her when I was 18, little dd is almost 5 and had her when I was 35 LOL.
I'm exhausted ya'll, just plain tired. Being on leave from work and running around to appointments is alot of work, not to mention in this damn heat! I'm having major period cramps the last 2 weeks, like I keep expecting to go to the bathroom and have my period.
I went to a cancer support group at my church Sunday afternoon. I'm still waiting to see the therapist, I've had to reschedule that appointment because of tx. I'm glad I went to the group and I'll go back this Sunday as well.
Little DD's bday is 7/29 (turning 5), her party is 8/2 and I'm stressed out about our lack of funds. My income has been cut in half and I was the one that makes more money.
I'm also still walking around with a drain from my last surgery that was on 6/9!! I go see PS Monday, he said if still draining he will inject something to try and plug it up. It's still going about 50-60 day!
So, I just want to say to everyone that you are such strong and courageous women. We all have a story and that story helps other people, I love how that works. I don't have the words to express it, but I feel for all of us that are struggling. Some of my stuff seems so petty compared to others, but I know we all have to contend with what we've got.
love xx oo
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Tang, Don't worry about the money. Decorate from the dollar store and play games at her party. I had one party as a child and remember the games the most. No idea what my presents were. Still, I do understand how it is to have income cut way back.
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Thanks Wrenn0 -
Hello, my lovely Owlettes.
I am finding that this traumatic head injury/Post Concussion thing has improved my mood considerably.
Still have some back pain, but even that's getting better since I sleep around 10 - 12 hours a night and nap in the afternoons. (Sorry, just remembered that this was the Insomniacs thread.)
Not falling any more, but not real steady on my feet.
I have no idea what day or date it is, but DH and I always sync our calendars so he lets me know if there is any reason to set my alarm. (NO)
I can be chatty on the phone, then I slip a gear and forget a word or train of thought. Nothing new for me...
I seem to have forgotten all the things I was worried or anxious or mad about, so I guess that's why my mood has improved! If I do get snarky, I'll forget why in a short while. Oh look, a squirrel!
Still praying for y'all in tough situations out there, and sending massive huggage!
xoxoxo
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Howdy doodie owlettes
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Morning gals.... I just gotta go back a second
here... I just kept hearing about you guys talking about goats and peeing on
their beards... and I thought, oh well.... whatever....But then the subject came up aGAIN, and I thought
they MUST be onto something there, and so Google Images DID have that very
happening!Man, I learn all kinds of stuff here!
I will write that down for future
reference...Ha!And Cammi, I know you said something there, but
what is even better, is I understand everything you said! You are just a
whiz-kid! Or else I am!!!!I do my own hair too! I color it, and cut it, and
roll it in hot-rollers every morning.... Needs a color job as we speak! It's
so easy, and a lot cheaper. That's why I started it in the first place, since I
was 21.We didn't have any spare money... so I did most
everything myself.Hi Blondie... so glad your friends and kids are
onboard with you.... it really makes a difference...You know, I would do the same thing, in your
shoes.... and nobody gives us an expiration date....! We take what we get every
morning, and hope for a lot more... and if you have to be miserable in the mean
time, it just isn't worth it!All that matters is .... if you are happy, and
feeling alright and not going through hell, like you have
been.Smarty! THAT is ricockulous, as Cammi would
say! I think that is also one of the reasons that the USPS is in so much
trouble, because of the prices they charge for shipping, AND the Internet with
email, etc!It would be cheaper to box that thing up and buy
it a plane ticket, and send it that way!....
maybe....Nettie.... I don't think I do either, so it's
okay... Do you guys with the "box" thing, mean like what I am doing now? I am
typing like to send an email, but reading what you say, and answering , and when
I am finished, just highlight, copy and paste this, and put it at the bottom of
the thread?Nettie! Did you read what Enerva talked about? I
mean about the Trekking poles? I walk with a cane, and use the same method of
walking, and it really works better than using the cane with each step! Did you
watch that video?And I would, and DID take 2 Aleve, before walking
that far!Susan, I watched a Judge Judy yesterday afternoon,
and that one "older" gal had the brightest purple hair you ever saw! DAMN she
looked silly! I mean my SIL is 65 I think, and HER hair is colored a bright
red! Man, it's like she "GLOWS"...! But whatever! If I start looking silly
like that, I hope you guys TELL me about it!LittleDutch.... YES it's hot here! Is 98 hot to
anybody? Gotta stay in where it is air-conditioned! We drove up to Echo Lake
yesterday, and it was probably about 20 degrees cooler up there... It's on the
way up to Mt. Evans, and it's just heavenly up there! Just can't be outdoors
in the middle of the day.Good Morning Tang! I'm glad she is not
pregnant... and I KNOW you 'de find a way but this just makes it easier... So
sorry about your drain stuff going on!I feel the same way posting here with all you
gals! We ARE all strong...!Oh Wren, great idea! The Dollar store is so fun!
Little kids don't care what something costs! I see lots of young Mom's shopping
in there for their parties!Blessings! You sound good! and FUNNY, Ha! Still
have your sense of humor! It's okay.... Cammi and I are on the same wave
length you are...When I was younger.... about 100 years ago, they
dropped me on my head. (The acrobat teachers) I had a severe brain concussion,
with temporary amnesia.... No skull fracture, but I still cannot remember
anything after that.... Just little snippets of all my school years....But after I grew up, and graduated, my head slowly
started "working" again... I don't know what that is called.... could never
find anything that described it... but everything is fine now.... that's all
that counts....Just live for today.... I found that
squirrel!Love you guys!
Morning gals.... I just gotta go back a second
here... I just kept hearing about you guys talking about goats and peeing on
their beards... and I thought, oh well.... whatever....But then the subject came up aGAIN, and I thought
they MUST be onto something there, and so Google Images DID have that very
happening!Man, I learn all kinds of stuff here!
I will write that down for future
reference...Ha!And Cammi, I know you said something there, but
what is even better, is I understand everything you said! You are just a
whiz-kid! Or else I am!!!!I do my own hair too! I color it, and cut it, and
roll it in hot-rollers every morning.... Needs a color job as we speak! It's
so easy, and a lot cheaper. That's why I started it in the first place, since I
was 21.We didn't have any spare money... so I did most
everything myself.Hi Blondie... so glad your friends and kids are
onboard with you.... it really makes a difference...You know, I would do the same thing, in your
shoes.... and nobody gives us an expiration date....! We take what we get every
morning, and hope for a lot more... and if you have to be miserable in the mean
time, it just isn't worth it!All that matters is .... if you are happy, and
feeling alright and not going through hell, like you have
been.Smarty! THAT is ricockulous, as Cammi would
say! I think that is also one of the reasons that the USPS is in so much
trouble, because of the prices they charge for shipping, AND the Internet with
email, etc!It would be cheaper to box that thing up and buy
it a plane ticket, and send it that way!....
maybe....Nettie.... I don't think I do either, so it's
okay... Do you guys with the "box" thing, mean like what I am doing now? I am
typing like to send an email, but reading what you say, and answering , and when
I am finished, just highlight, copy and paste this, and put it at the bottom of
the thread?Nettie! Did you read what Enerva talked about? I
mean about the Trekking poles? I walk with a cane, and use the same method of
walking, and it really works better than using the cane with each step! Did you
watch that video?And I would, and DID take 2 Aleve, before walking
that far!Susan, I watched a Judge Judy yesterday afternoon,
and that one "older" gal had the brightest purple hair you ever saw! DAMN she
looked silly! I mean my SIL is 65 I think, and HER hair is colored a bright
red! Man, it's like she "GLOWS"...! But whatever! If I start looking silly
like that, I hope you guys TELL me about it!LittleDutch.... YES it's hot here! Is 98 hot to
anybody? Gotta stay in where it is air-conditioned! We drove up to Echo Lake
yesterday, and it was probably about 20 degrees cooler up there... It's on the
way up to Mt. Evans, and it's just heavenly up there! Just can't be outdoors
in the middle of the day.Good Morning Tang! I'm glad she is not
pregnant... and I KNOW you 'de find a way but this just makes it easier... So
sorry about your drain stuff going on!I feel the same way posting here with all you
gals! We ARE all strong...!Oh Wren, great idea! The Dollar store is so fun!
Little kids don't care what something costs! I see lots of young Mom's shopping
in there for their parties!Blessings! You sound good! and FUNNY, Ha! Still
have your sense of humor! It's okay.... Cammi and I are on the same wave
length you are...When I was younger.... about 100 years ago, they
dropped me on my head. (The acrobat teachers) I had a severe brain concussion,
with temporary amnesia.... No skull fracture, but I still cannot remember
anything after that.... Just little snippets of all my school years....But after I grew up, and graduated, my head slowly
started "working" again... I don't know what that is called.... could never
find anything that described it... but everything is fine now.... that's all
that counts....Just live for today.... I found that
squirrel!Love you guys!
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You KNOW, I could go back and take out all the exclamation points, but I am having coffee right now, and I'll just leave them out the next time.......... no exclamation point.
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wow. So much going on.
Blondie. The choice is only yours but I have to agree I think I would do the same. What a very tough decision. So very glad your family is on board. Wishing I could hold your hand right now. ((Hugs ))
SAS - you blow me away. Hats off to you. How very lucky of us to have "met" you.
Chevy. Have you heard anything about your neighbors move ? Hope she is settling in. Should be lots of hobby activities going on. I bet she will rule the court ! Seriously how very sweet of you to be do kind to her. No wonder we love you.
Cami - so your little Joey is actually 10 huh. Oh that is a sweet age. My youngest ds is 10. Still has little boy fingers and full of snuggles and love but big enough to do all kinds of fun stuff with them.
I got my rfa done yesterday. Was awake all night in excruciating pain :-(. Let time I remember I actually felt worse for nearly a week then bam. No pain. So keeping my fingers crossed this will do the same. Call in to my mo to see if I can increase pain meds for today. Hoping they don't wait Til 4 to call me back. Too nervous to increase if in my own. Last thing I need is a drug overdose esp with my children at home. So I'll wait on mo call back.
Lots of other people have so much going on but I can't remember anything else. So hugs to all.
Hootie hoo
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Just catching up and can I just say that I "repeat" what has been said without actually repeating! However, I did want to ask Chevy why she was "talking" so loud? LOL!! That's what it's called here when someone makes there type BOLD! It means they are either talking really loud or screaming! LOLI've got to go back up and find my "box" and give Sas some more answers! I'm not sure I know how to thank her enough for helping with this!!
And just as a side note, I know we are all aware and it has been said many times here, but none of us have an expiration date stamped so we must live each day to its fullest! I was just reminded again of this yesterday, I dear friend, 62, died from a massive heart attack! No pre warning signs!!
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Oh I'm so mixed up, I was reading trying to absorb everything, then what my Big D came, so I left here, came back started rereading and I still forgot everything==I hate forgetting. Chit
I do know Blondie we all know u made the right decision for u. Shock and Awe them all.
Luv I was here yesterday, but maybe in the morning oh not I do remember Sas and all she was saying, not understanding but Nettie seemed to so that's all that counts.
AWW Chevy I know u miss u'r neighbor, this is an adjustment for u too.
Our weather has changed yet again, it got on the cool side again.
OK I feel my chills and fever coming so I'm going to close for now
BBL
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not so sunny but still nice by the lake
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Peppermint.... I called yesterday morning, but the gal said she hadn't met her yet, but would tell her hello from me.... I will call her SIL today.... I saw her moving a lot of stuff our of their house yesterday.... geez, it's just lonely around here... thanks!
Okay, what is rfa? As soon as I sign off, I'll probably "get" it.... but so far, I don't know....... Sorry you are in so much pain....Dang!
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radio
Frequency
Ablation
My pain doc wants to do it, when I'm dead he can. Not now
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I gotta look that up..... thanks Spookie!
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Spookie I wish I get that offered to me next year. If I don't feel better after my exchange next month. I heard that is the way to eliminate this crap mastectomy pain. There is a tread where a lady explain how it's working for her. If my exchange does not help with my pain then I will ask for this new radio frequency ablation
something tells me I won't have access to it here in Canada. 0 -
Sas, maybe you could explain this to me...It's something I just read on my path report!"No definite lymphovascular invasion identified." What does that mean "no definite"? Does that mean there was a possibility??
Help if you can! Thanks!
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Happy Wednesday to all,
Well, the smarter than you think, is debatable.....he he....talking about my self...
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Nettie ask the doc. If he used the word as a qualifier or simply as a connecting word, only the doc can know. I'm going back to our boxes. on the previous page. Did you do your homework?
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Afternoon everyone. Gotta quite staying up til 1245 am. Makes the day start way too late. But I'm a nightowl by inclination so it's a hard habit to break once I get in it. Have to stop by tomorrow night. DH's doc appt. is 1015 meaning we leave here at 915, that is if I want to go get my overdue tetanus shot. Prob. a good thing with the stuff we have around here to get hurt on.
Wren - I agree with Dollar Store/Dollar Tree decorations, maybe one special from a party store. Pizza, dressed up lemonade, dessert. Games.
Tang - what kind of party does your DD want? Ye ole' internet is the gateway to whatever. I used to have to do BD parties out of a book but I did a fun jungle party once. Limit the # of guests - with a summer BD it's sometimes harder to get enough guests. DD's is mid July.
OK I've seen this on local and national news today. Do not open the link if you are bug squeamish.
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