INSOMNIACS place to talk in the wee hours
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welcome blueberry
Blondie. - hope you are either sleeping peaceful tonight or out dancing in chairs. Hoping breathing is better and no pain.
Susan love your "it's all good " attitude.
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Blueberry-- welcome, Stick around. May seem daunting at first to keep everyone straight, but it will be easier as time passes
Maddy what a great video. What great friends Gerdi has. I have this pic with DH when both of us were bald. Mixed feelings about it. I didn't mind being bald. It was just hair.
Patty,
Life without pain is very different. There was a post either here or on W &F's, that said after the pain of all the cancer stuff, previous debilitating migraine pain was now more of an irritation. I'm taking quite a bit of license in paraphrasing the post b/c I can't quite remember it exactly. Pain is so friggen controlling. I' m with you. I thought post polio pain was trouble until I met the pain induced by Aromatase Inhibitors. Now back to the pre- AI level pain. It's a different world If the Prius induced hip pain would settle down life would be sweet. But it will in time. How's the Nausea?0 -
Good Morning---
Patty I think the same about my GS, he's 10 already and I think any day now I'll just be a hi-bye type of situation and it breaks my heart cuz he and I have so many long wonderful talks about everything. Oh well
Susan lives about 40 minutes from me and I know cuz when we went to my cousin house my cousin lived a little further than the sign I saw for Lake Zurich and I was in the car and I said OMG Susan live here and my sister say whos Susan? Hahaha she cant get over all my names I bring up. But she still works full time with Stage IV so she's like my hero and is to tired to go on a computer at home cuz she's on one all day. And yes I love Susans attitude and she would be fun to go to for a hair redo.
Patty everyone goes thru so much and yet so differently, I think everyone who comes here is so brve and then u notice a little funny comes out and courage galore (well, not me) I just don't think about it, thats called ignorance--I started here when I was done with surgeries and chemo, so I think it's good to be here during so u know ur not this crazy person thinking WTF is going on.
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I said I drilled the Endocrinologist hard the other day. He is Chinese, very mild mannered. Pressed him hard, very hard. We now have a different plan. After the encounter my mind was pressing me LOL. It was harder on me then I was on him. But came to a moment of insight that was very cool. The question that kept pressing me was why were the docs so adamant that because the lab values of TSH, FreeT4, and T3 were in the ranges they wanted them to be, and yet I felt like shit with head to toe signs and symptoms of hypothyroidism. The labs say I shouldn't be. Two words popped in my thinking. Resistant and thyroid> the Oh Chit moment>>>Thyroid resistance.
Never saw any reference to thyroid resistance, but theoretically it seemed possible. Circulating hormones can only work if they get into the the target. The cells are the target. The cell wall is the barrier. It's been accepted for about 20 years that Insulin resistance is one cause of type 2 diabetes. Insulin resistance occurs at the cell wall. So, why couldn't the cell wall be resistant to thyroid hormone.
Put the search terms in google. Voila! There is research on it. It is not mainstream yet. So, not mainstream that when I asked the ENT doc about it the next day, he knew nothing about it. He's no slouch. We've joked for years since he came to town about how many patients he had. Now 31,000 patients of record. In the area of the thyroid, he basically does the surgery and the passes patients off to the Endocrin docs for drug management. But it was very telling that he hadn't heard of thyroid resistance. He's had to meet all the existing knowledge requirements for board certification in ENT. The thyroid is part of that certification testing.
Only in the beginning phase of learning, but have learned 1. Thyroid resistance at the cell wall level exists 2. The T4 drugs used to manage low thyroid are involved-synthoid, levoxyl, levothyroxine. 3. T4 in the conversion to T3 produces two chemicals, not just one. 4. Both of those chemicals bind to the cell wall receptor. 5 One is good the other bad. 6. The bad one prevents the good one from working. 7. There is a blood test to measure the bad one----have never heard of the test. 7. There is a formula to measure the ratio between the two 8.Use of the T3 drug cytomel bypasses the problem of the bad chemical produced in the conversion of T4 to T3. 9. mainstream medicine isn't paying attention to the bad chemical RT3.
What has been known for decades is that many people do not respond to T4 drugs. That using T3-cytomel either alone or in combination with T4 drugs, has a positive affect on resolving symptoms. The driving force behind this has been patients saying they felt unwell and that their s/s's weren't resolved.
Why bother you with all this my dear Owlies. Thyroid problems are common.
Blessings hope you see this
Paws in the reading there was a description of interaction/ effect/affect of iron and thyroid hormone. It would be a study unto itself. I'll keep an eye out for info.as I learn. The minimum that I picked up, was that having your thyroid tested would be a good thing. TSH, T3, FreeT4 and RT3. The RT3 ...your doc will likely look at you like you have two heads and say it doesn't exist. Will let you know as I learn, where it can be done.----------------Found stuff:)
Nettie--------Found stuff on hashimoto's------I've studied the mainstream stuff when I was dx'd earlier this year, this is non mainstream stuff.
LOVE the internet, you plug in search terms and maybe a little comes up. Then a re-look in a couple of days and oodles of stuff APPEARS. This is a link to a web site that is called "Stop The Thyroid Maddness" There is a book available with all the stuff I mentioned above.
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OKAY! All you gals talking about going back to
silver/gray, or whatever....You could always go try on wigs of that "color" and see if
that's REALLY what you want to do...OR you could just wait for all the color to grow out, and
then cut it short!Now me on the other hand have no thoughts of ever doing
that..... at least not yet. I just like the body that the coloring gives my
hair... I just color the same color I have always had, and no-one even
notices....Except one time I tried something special, and in the Sun,
my hair radiated PURPLE of all the damn things! And it was brought up to me by
one of my co-workers! I just said, "Yes I know.... I just thought it was
"different!" Well it WAS, but I THOUGHT it would only have a hint of red....
or auburn! Oh HELL no....! As purple as a ..... okay, what's purple? It was
THAT purple! As purple as a Mardis-Gras mask! With feathers!Yes Welcome Blueberry! I know I probably "met" you, but
I'm trying to remember! Tell me something that we should know about you....
Ha!Cammiwhatisthiswiththeblues! Listen here little
Sister.... You KNOW this will never happen with Joey! You and him have a
bond... a bond that will never be broken. You KNOW how much I care about my
Grandsons! And now they are young men... 25 & almost 28. I was with them
almost every day when they were little... From the day they were
born!I took them EVERYwhere with me on my days off. And we
just grew-up together! "MY BOYS!" When the oldest was 11, my DD sent him to SF
to be with me, while I was visiting my Dad... That trip was the BEST! I got to
show him things that meant so much to me... And he loved my
Dad!We went on a tour of Alcatraz... ate in a fancy
restaurant on Pier 39, and I told him to order anything he wanted! He saved a
spoon.....from that dinner!He still has a little rock from the "wardens house" from
Alcatraz! He remembers everything.... Same with my second Grand-son! He made a
memory note-book of his trip when we went there together... He still has it.
And I talk to them about every couple weeks.Your Joey is with you forever! He might move, or get
married, ...... and no, you can't move in with him.... but he will live in your
heart, the same as you will always be there with him.You will only be a phone call away.... you
know that little grasshopper.0 -
Oh Hey Sassy! WTH you doing up? You are NEVER up this early? I have to go watch the Sun rise.... get back to you later!
You are talking all medical stuff.... of which I TRY to understand, but my little brain is not awake yet...
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Sas what can I say except good thing the Drs. understand u, I try but it beyond my scope of life and words. LOL
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didn't read everything yet, gotta get ready for work. My cushion buzzed my hair off..lost so much I started looking like my aunt, you'd be laughing if you knew what her hair looked like. Time to pull,out the big earrings again. I feel if you don't like it....decorate it !!!!!!!
Smaarty, good luck shopping again....that's the movie I am seeing today too !!!!! About hair. Couple ways to do it. It will take a few years or more since your hair is long. I would not strip it cause it's to long and the bottom part of your hair will prob end up trashed. So you can highlight it for now. When you get enough outgrowth you can start highlighting and low lighting . You would lowlight with the color you have on your hair now. My hubby's cousin wanted to go grey..and I tried a different approach and it worked. We used a semi permanent color that matched what she had and ONlY did the outgrowth at the scalp. We even added some thick conditioner to the formula to weaken it more. These types of colors wash out...so we got a blend every time we did it. She wasn't completely grey, so when her natural outgrowth got about 6 inches, we stopped the semi color and just let it go. If you have a lot of grey, when you get to that 5 or 6 inch point, you can put a few lowlights in of you colored hair color, and then you are done. It will continuing growing perfectly. Pm me if you don't understand
Cami....I even could come out by you and do your hair
Ok..I am going to catch up now
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Cami and Chevy, LOL Lovey's. I'm up b/c I was done sleeping LOL. Already boiled potatoes for salad. Did some researching--yup for two hours already. I'll straighten my docs out. Gwad, i've found out I've been misdiagnosed and managed for YEARS. But now on a mission.
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Susan Morning
what's the best product to make the hair shine?0 -
Sass..... Vaseline! Rub lots of Vaseline into your hair.... And then use Lard.... Lard is good for you... and when you are done with that, use Honey! That's also good!
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OMG Sas!!! All the info about Thyroid!! I have been having issues for years, it runs in my family! I have a cousin that’s had to go far and wide to find the right doctor to treat her and finally found someone that is, from what I understand, getting to the root of everything you have talked about!! However, due to job and finances, I have not been able to travel! But I’m going to print out what you have written and take with me to my doctor next time! Even my chiro insisted that I ask for a bound and unbound complete thyroid workup, but my other doctor didn’t seem to get it!! And the chiro is not authorized to order! Were you saying that the stuff you said do NOT apply to Hashimoto’s??
Anyway, I’m taking this info and asking about it because for some reason, my symptons don’t seem resolved either and 3 different workups all showed that my levels were good!!
Now, this is very strange but since "signs" was already talked about on here, I just had to mention this: I did not get to know FBB as well as most of you! But you were talking about signs and yesterday I was walking on the back of our property with the DH and my DGD, in fact the DGD was the reason, she insisted on going with her Papaw and he doesn't pay close enough attention for me so I had to tag along, anyway, we walked back and forth from front to back as DH is working with the dogs he trains, on the third trip back to the pond, he stops quickly and throws his hand out for me and GD to stop, I immediately thought he saw a snake (yes we do have them back there) but no of all things it was a little blue bird!!! We hardly ever have any kind of blue birds on our property!! And this little bird was just fluttering around! It stayed where we could watch it for a good 10 minutes!! Anyway, just thought I would tell you ladies!
Hope everyone has a great weekend!
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Nettie Loved that you had a bluebird visit
The longer the thyroid issue went on for me, the stronger I felt the current mainstream approach is flawed. Just a short searching time and I find all this stuff from people working on it for years. Re: hashi's --it likely applies, can't say for sure, but if the basic thyroid management is wrong, than I have minimal belief that the more complicated mainstream understanding and management of hashi's is any better. Complete reading of the Stop The Thyroid Madness STTM web page with it's links and reading the book, will help. We absolutely should read the book. There is a second edition. I'll check Amazon for price and post it.OH yes, just since I first posted this morning, I've learned there are a slew more thyroid tests. I'll just throw out a percentage of 80%, I have never seen. LOL, my Endocrin doc has no clue what he's going to be hit with. If he doesn't comply he'll get fired. May have to buy him the book.
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sas..don't listen to Chevy...she's nuts!!!!!! But we all knew that. Lol. Don't know what your hair looks like. If you don't have oily hair or scalp they have lots of " oils" hair products not cooking products like chevy suggested...lol. If you are on the oily side, get the ones you spray on,,,they actually say " shine" on the bottles. If you can't find one, pm me your address and I will mail you one
To work I must go...then for a walk, then the movies...and the bears are on tonight...can you believe that...football already..just got a big flat screen tv...gonna be fun
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Hi, I am behind again lol Today is my b day lol so let's party 🎈
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Thanks on the hair stuff SweetSue. Sounds like a fun day. The Hundred Yard Walk(?) sounds good. Mirren is a wonderful actress. Football YUCK LOL....DH was a diehard fan, so glad DBF isn't. But glad you can now enjoy it on a big flat screen
Chevy so funny girl. Vaseline and lard. Slip slide away.
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Happy Birthday Enerva!!! Hope you have a wonderful day!!0 -
Smarty thanks for the video, it made me cry
It is so nice for those ladies to show the support
My sister and brothers did that for me
I am so glad my hair is back to length I can now make it straight lol I changed the Color today now here is the new me.
Yesterday I got my sister s pathology report and it's just like mine
stage 3, grade 3 also nodes involved 4 out of 9. ( not celebration for my bday but just glad to be here today. That's about it )0 -
Enerva, you are beautiful and your hair is growing out nicely!! I could only wish mine was half that long! I think I'm cursed with slow hair growth, also think this can be partly attributed to the Thyroid problems!0 -
Sassy - If you took Chevy's advice for your hair care I think every critter or bee is town would be nesting there.
Happy Birthday Enerva
Off shopping. It's tax free weekend with enticing sales. BBL. Only supposed to be 104 today.
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Happy Birthday enerva!!Glad you are here for your sister ((hugs))
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Envera, awesome photo, you look so young !
Have you seen these before? Thai sky lanterns, we let these off on Xmas & New Years.
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Happy Birthday Enerva!!! Par Tay on!!!!
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HAPPY BIRTHDAY ENERVA--------YOUR BEAUTIFUL
LMG your so right, I forgot the honey. Do you think she was setting me up for a HIT?
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Happy Birthday Enerva...you are gorgeous and I love your hair. So how old are you today? I hope you find time to celebrate 'you' today. So sad to hear about your sisters pathology report. I'm glad you are there for each other.
Chevy, you crack me up talking about the time you had purple hair, and then telling sas to use Vaseline, lard, and honey to make her hair shine. I needed that laugh this morning. You asked about the furbies, and they are doing fine working hard on their naps right now
Nettie, I love that you saw the little blue bird. I love the "signs".
Cami, you have such a warm caring relationship with your grandson. I agree with Chevy he will always feel close to you and remember the 'things' you do and talk about. So you are kind of close by where Susan lives. She can do you hair....I am jealous.
HiO, unbelievable! All the money we pay for homeowners insurance, and to hear about the weird exclusions. Ugh! So if a pipe brought inside the house, you would be covered, but if water from outside comes in you are not covered? Just sucks!
Had my labs yesterday, only some results have come back. Iron saturation is up to 26 now. Ferritin, and tumor markers not back yet. Urea/Crea, white blood cells, both slightly elevated. Calcium low.
Hugs everyone....
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HAPPY BIRTHDAY ENERVA
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Thanks you all
you guys are so sweet. Remember I am one of the crazy ones who refused tamoxifen and other hormone treatment so I am sure that's why my hair is growing cuz i am free of the meds now lol
Don't worry your hair will come back
Love you all
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Enerva U'r hair looks gorgeous and so do u.. Wow what is this everyone is so beautiful. I'm sorry for ur sister, my sister too have the same stage and around the same time. It stinks. But she's still working full time bless her heart--she always been the tough one.
OK now there is proof, haven't I always said don't listen to Chevy she knows not what she's saying.
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Thanks for the welcome!
Chevy, I'm not sure you would remember me from last time... I barely remember sometimes. Chemo has stolen my brain and won't give it back. Sas helped me with wound healing stuff when I was here. Thanks, Sas, you helped me understand what the docs were talking about. And, Chevy, you or maybe Cammi called me Blueberry buckle.
2nd, that video was so sweet and made me cry. Those ladies are all beautiful, hair or no hair. I am among the no hair these days. It's no so bad really.
I'm so sorry for the basement that flooded. Stupid water, it never goes where you want it or stays out of where you don't want it.
A big happy birthday to beautiful Enerva!
I'm right with you, Lovemygoats, headed to 104 in north TX today.
I hope everyone has a pain free, happy day!
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happy Burthday enerva
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HAPPY BIRTHDAY ENERVA