INSOMNIACS place to talk in the wee hours
Comments
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GG me too. LOL
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hi owls. Enerva, I forgot to ask, you are a natural blond or is darker your natural color. Both look good on you!
Dutch, I'm surprise you could push a scooter at all! My GS has one now and they're heavy. He can now stroll around the neighborhood and get some sun. We got him a new doc, the old one wouldn't respond to referral request even when they came from other departments or his case manager. So we'll see how this week goes. He has an appointment for an evaluation for SS. It seems to be moving fast, it's only been 3 months since we applied. They said it would take 3-6 months to hear back from them. If any of you have dealt with SS, would you recommend we get a lawyer now?
Everyone try to have a good weekend. Our last music circus play is tomorrow, Brigadoon, then it's over for the season. BBL.
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Smaarty I think if they get a hold of u soon--IDK I used no lawyer and my family is loaded with them--My Dr. applied immediately with her form and I heard within 3 weeks and that was that. Mybe IL is different or my Dr. explained very well I don't know, but I know people do use lawyers well I don't know what the going rate is too. But u will or should when they decide and if it's in your favor get back pay too. Don't quote me I'm just thinking.
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Hole In One---such worries. Suggestion. All over florida b/c we have so many Blows. There are lots of groups that help each other in the aftermath. AND they do it b/c they are good neighbors so to speak. B/c they may not be a local neighbor but a community neighbor. For example, the churches and the high schools organize the kids and adults to help out for no cost. They, particularly, help us seniors. They might be a source to help. DS and his friends even would just band together to go around the neighborhoods to see who needed help.
Paws, I don't quite understand it yet, but there is a serious connection between iron and thyroid metabolism. If I remember correctly you mentioned you had an absorption problem in the stomach. That would be B12. Haven't said anything before b/c figured your docs were working on it to the best of their ability.
B12 and acid production are somehow intergal to the thyroid. Again, I don't understand the relationship yet. I bought the book and it's on it's way. I purchased it off Amazon It was about 23$. I have learned that I have had thyroid problems for years that were not associated or considered to be related to the thyroid. They were treated as something else. The more I read, the more I'm disappointed in mainstream medicine for not connecting the dots
Spookie one of the unconnected dots is fibromyalgia. The dot goes back to the 70's when TSH became the gold standard for evaluating thyroid.
Blessings, you too
Not for you brain injury, but for wound healing. AND your brain is healing. I know you've mentioned weight before. It's been an issue for me in the last year b/c the weight gain started when the thyroid problem got very serious. Rapid unexplained weight gain and other symptoms. fatigue, hair loss,Chevy, eczema is too. What I found out the very hard way is that dx I got from the vulva bx last summer is a form of eczema. With all the the ups and downs of hormone this past six months. I developed a real problem with eczema of the vulva, to go along with the hands. NO local doc>>Derm, PCP, Endocrin local doc could make the connection. The BIGWIG doc at Moffitt did though. He clearly stated it had to do with the wide swings of hormone in the system during treatment were the direct cause. Local Endocrin when I pushed him on it the other day said no relationship and wanted to know the source. He was not happy when I told him the internet and BIGWIG doc.
Along time ago in Jan. I posted some lists of what the thyroid could be involved in causing. The lists included just about every disease or condition there is. As I went through this whole thyroid cancer thing and the manipulation of the meds. I became intensely aware of many things that were happening physically. As time went on I began to question the mainstream total management. I had to get kicked in the neck to be pushed into looking at it rather than depend on the docs.
I haven't figured out the minimum of blood work that I'm going to ask for until I read the book. The STTM web site ie very good, but in this situation I really want to have a book.
Prior to TSH becoming the gold standard for recognition of thyroid problems docs treated patients by clinical evaluation. That means they treated the symptoms patients voiced. For 122 years before that time, patients were treated with dessicated thyroid from pigs.
What changed was docs started paying attention to lab values. If the labs fell into the normal range, the lab values guided their treatment. Patients voiced problems were put of to other sources or they were told it was all in their head.
Two huge conditions that were said to be all in the patients head for a few decades are Fibromyalgia and Chronic Fatigue Syndrome(CFS). While both have been intensively researched. They are diagnoses by exclusion. By that I mean all other known accepted causes are ruled out. If a source was not found and the s/s's were present a patient was labeled with a diagnosis of fibro or CFS. Research did identify Epstein Barr as a source for CFS. But many many CFS patients were negative for the virus. Both now are recognized conditions with treatment management plans now since the late 90's. But my reading identifies that they were managed by use of desscated thyroid prior to labs being available they are intricately related to the thyroid.
Laboratory values are established by science. As time has gone on science changes the values. Basically, it is a man made value. Man tries to do the best they can through the scientific method. But sometimes they are just wrong in the long run. The values and acceptance of other values then are changed.
My thought of the other day that thyroid resistance could be theoretically possible. It is true. It's been known for quite sometime. The Reverse T3 is a test that can measure the resistance at the cell wall. LOL I'm brilliant, but late too the thought. If orthodox mainstream docs are willing to ignore something that is known and measurable. I can't depend on them to manage my care without me pushing them to do the right thing. That's why I'm ready to embrace going after what my docs aren't embracing.
I didn't want to start a new thread, but think I may have too. Rather would do it here. But the lack of due dilligence is bigger than I thought. But technical threads are just that, very technical and allot of work. Please, bear with me if I just keep it here. At this stage not sure I want to take on the work.
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Tang, I'm so sorry for your loss. My DH's grandmother went that way. She wanted to just sit by herself for a while before coming down to breakfast, and when they checked on her a little while later, she had passed. She was a wonderful woman, and I always like to think she was ready to go and was peaceful.
Smartly, congratulations! You look great, what an accomplishment.
Enerva, you look great, too. You're very talented. How long did it take to make your top?
Cami, you got me with the naughty lamp picture! Have fun swimming.
Pawprint, I hope AAA came and you got on your way. My kids leave the interior lights on all the time, so my battery dies all the time, in really inconvenient places. I carry a portable charger in my car. I've even helped other people out with it. It's super easy to use and not scary like jumper cables. I know jumper cables are not really scary, but growing up my dad would make such a big deal about connecting everything at just the right time in just the right order that I thought I might blowup or catch fire if I did it wrong.
Last night was rough with taxol side effects, yuck. My treatment day is Tuesday, but the SEs hit the worst Friday. I' hoping for a better day.
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Tang sorry about your SMIL's Mother.
DUTCHY GIRL----OUCH
Berry, sorry about the s.e's
UpdateonPhillyinhouston. Started chemo yesterday, She's out to lunch today--literally not figurartively
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Where is the Chevster? Chasing chickens, walking the alleys in search of some contraband. Maybe she ate too many of her pot laced tomatoes....
Peppermint Patty, who hoo on the good news. Wonderful to feel better. I appreciate it everyday.
Paw..aka BD, what a hassle. Good thing you were home, hope the rest of our day goes better.
Blueberry, Taxol is painful, how many more? I think you might of said already..
Big Thank-you to all, all the good wishes for DH, ( who wants out of the house ) and for concern over our flooded basement.
The fans down there blew out the pilot light to the hot water tank. No hot water. Waiting for the guy to come and restart the pilot light. Almost funny .Oh well. Lots of people are dealing with bigger problems.
Tang, sorry for the loss. It's never easy even if its time.
2 weeks from today, I am going on a huge trip. If DH is ok on his own, it will be the one month date past FBB passing.
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HIO, I have 9 more taxols. Where are you going on your huge trip? I hope your DH has a good day and continues to heal well.
Good thoughts and well wishes to all.
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Blueberry, I am flying to NYC with my DD to go to the opening ceremony of the US Open. ( tennis ). We will also attend another day of the tournament. Planning on going to the Sept. 11 memorial, Central Park. I have been to NYC twice, so have seen most of everything already. Most likely go to the Guggenheim or the Museum of Modern Art. Then I will take the train to Washington DC, 3 nights, do as much sight seeing by myself as possible, DD will head to Boston. I have never been to Washington DC, so really excited about it. Also, the tennis will be a blast. I played competive tennis for 25 years. Hope to start playing again soon. I have drugged my feet on getting started since BC. Afraid of getting hurt. A little neuropathy in my feet. Thanks for asking. Oh, I had dose dense Taxol, so only 4 infusions.
Not sure if this will work, you all know I am not a tech wizard. I think this is Phyliss clinical trial.
Ok, someone will need to teach me how to copy the thread & bring it up here. It is under oligometastic thread. Now I have screwed up my iPad trying.
https://community.breastcancer.org/forum/102/topic/767259?page=549#idx_16443
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OMG.....it worked ! , Nope maybe not.....:(
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Oh for God's Sakes! WHO can see that
Cammi? I mean I held my nose up close, and could NOT read that! OMG
Little Gardens.....!!!! You said it, so then I knew! I even put my glasses on,
and THAT didn't help!Ha, ha! GOOD one little Grasshopper!
I was out working in my garden, and things this
morning.... I posted on the older women's, because you know, we are older.... so
I am posting HERE now.LittleDutch pushed a scooter ???? Up hill? For 4 miles?
What are you THINKING?Now wait.... Cammi will say she went out and pushed her
car straight up Lombard Street, In San Francisco, in a rain-storm at midnight.... wearing only
her flannel night-gown. With one hand...... and eating a pop-sickle......Sass.... all my problems with my hands, is gone.....
I guess it started with me using medicine to help Lacee with her hot-spots....
So I didn't know I was allergic to the ingredients in that stuff..... but it is
completely cleared up now....Even my allergies.... nothing.....!
Blueberrypie! You said Cammi is swimming? How? She
sinks like a ..... like a ... I can't think what she sinks like, because she
can't swim!Neither can I...... I used to, when I was in Junior
High.... but the ability to float has escaped me! So I am scared. I don't
even take a bath....My Daughter and Grand-son tried to drown me once..... We
were in the OCEAN, and they had this "Boogie-Board" and I got on TOP of it, and
they were holding each side, but I kept wobbling, and screaming and laughing,
and I kept telling them I was drowning, and finally my Daughter
said...."MOM..... STAND UP! YOUR FEET WILL TOUCH THE BOTTOM!!!!!" So I
did.... and that is my heart-stopping story for the day.Good luck with your taxol LittleBlue!
Hiho! Ha, ha! "Pot-laced tomatoes!" That's good! I
was NOT chasing Chickens... Just putting together an Arch, for my garden....
I'll try and post pictures.... but you know how THAT goes!And where to is this trip little Missy? Is it a secret?
Somewhere forbidden? Oh okay.... I just read more.... Take sun-screen, and
an umbrella, and a straw-hat!0 -
Yes, it's blurry to me too, but at least I GOT it here.....
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Yes, this is me at the beach.... some time ago...........
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Chvster, bee u tiful !
We posted at the same time, my trip agenda is above your post...
Dang it, how come I cannot paste & copy? I can with photos.....or copy & paste...lol...
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Hole sounds like a great trip...hope dh is recovering enough for you to go.Blueberry-sorry you are having a rough chemo time ((hugs))
I came her to post something that I cannot say at home, but it is driving me crazy. Here goes....I HATE the way dh crunches ice and slurps his food!!!! ahhhhhh
okay thanks
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Oh I know Tang! But at least he probably has his own teeth? My DH doesn't make noise..... or maybe I just can't hear him..... Ha!
I'm the one that crunches the ice chips.... but I hate when anyone cracks their gum!
HiHo..... you said you "drugged" your feet..... What am I supposed to do..... Just let that go by? Yeah, like THAT'S gonna happen! Ha! So how do you drug your feet?
Just curious.... Like put Valium between your toes? So you will sleep?
So glad you can play Tennis! My oldest Daughter was competitive also! Got lots of Silver plates! I do competitive pole dancing you know!
And usually the only way I can copy a picture, is to get out of AOL and go to Chrome, and then to BC.ORG, and then to Picassa, and copy and paste one of the photo's I have uploaded.... It's like just one of the hoops I jump through!
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Chevy, great garden...love that owl and arbor !!
Holeinone...sooooooo jealous of trip..hope you have a grand time. I have been to palm desert to see that tournament twice, the name escapes me right now. We love it. Never been to a grand slam. Hope you get hot water soon, a dry basement, and a happy healthy husband soon
Enerva..you have such talent...now you have to work on sleeping...lol
Hope you r doing well phillyouttolunch...
Thanks for the updates sas
Smaarty, you look great...I never got a lawyer for ssd. It was really easy, and if I remember right, I had a number to call to listen to the progress, and a person assigned to my case I could call. And I and everyone is allowed to make "x" amount of $ and still collect. So I follow that rule too. It happened in the time frame they said. When you fill out the forms, you put your routing number in, I looked at my account and wondered where the new $ was from. They cut me the check before I got the letter in the mail that I was approved. Was shocked, since this is the govermnment we are talking about . Good luck
Went to the Milwaukee zoo today...fun fun fun...love the zoo. I am tired and in my pjs already, but it was a great day
Hello to all
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SE suck no matter what chemo it is....sassie so grateful to have you here...
Phillie so excited for you....good luck!!
Tang sorry about your loss!!
susan went to the zoo with who, I love the Zoo in Washington DC, cause of the panda's don't go to the philly zoo boring for me
hole so excited for you, NY is something else....twins hate it said too many people....
Patty love good news....
well of course the prednasone is keeping me up, did take one of the twins clonadine, and just did the illegal stuff, hopefully that will work also...
Tomorrow is the big 61 day, whatever, asked the kids if we could do dinner just the 5 of them and me, no spouses or kids, just want to bv with my kids...there are topics that I don't want to talk about not religiion o politics, granddaughters and why dil is an ass, lol, it should b interesting....oh yea not doing hospice MO doesn't thiink I am ready yet, that is a good thing I guess...
see you later....
luv u guys
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Rachael, there are a bunch of strong, smart, silly and wonderful ladies here, and yes, you can do this. Stephanie
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Rachel, hope you are sleeping by now. Try Susan's method and just go with the flow. Hopefully you'll find what works best for you.
Night everyone.
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well it's 2:51am and here I am.Lol
Smarty thanks I am not blond lol dark is my natural hair Color but when it was so short I changed to blond just cuz i needed a change lol not it needs a break from the bleach and I am now able to straighten the curls
blueb thanks the top took me around 4 hours. 2 each day wile I watch some TV lol today I crochet a green aqua one which turned out really cute. I hope I go away next year to cancun or some island so I can wear these tops lol
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Morning Owlies. MammaRy thought you left us. Glad you didn't . Good luck with treatment this week. You CaN Do iTty.
Blondie HAppY BIrThDay. Yay. Hope it's fun with the five. Lol' s never know till it's over. We have a zoo in my county Brevard, that has been on a list with San Diego. St. Louis, and Cincinnati. Very small compared to them, but it has to do with a checklist of good animal things. I Should go more often. They have a tree trek thing. I want to try it. You put a repelling harness on and fly through the trees. The wire over the gators and crocs is the one that has me a bit nervous lol. Enjoy your day. Let's do this in a year okay?
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Enerva,remember to post your new handy work. Love seeing it. You make it look so beautiful. I always get so serious. But I do so believe you could get a high price in an upscale boutique. Toronto's Young Street still the hip place to go?
HI1trip sounds fantastic. Doing a travelogue? Like Chriisyb And Alyson? Hope so.
Ally where are you?
2ratio.
Morning 3rd. How you doing after this week's treatment? Any play time scheduled.
Spookie the upholsterer has the chair ready. Lol the whole time has been about one year. I'm now ready to do more projects, and he's ready for his money. No discount with jhoda doing the frame. Gwad it'd be cheaper for sure if I didn't get attached to stuff. Also, no place to put the chair.
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Morning Sass! Good to see you up! Bout Time!
I posted on the older women's thread to Blondie, but I wanted to post it here too.... so I just copied and pasted.....
HAPPY BIRTHDAY BLONDIE!!!!!!!!!
"BLONDIEYOULITTLEDICKENS!!!! We just love you, and are right beside you with all this stuff going on....
Yes.... I remember when my Grandson's were 8... They just put all their love
and trust with you, because that's how they were made, and he is "part" of
you.I just know your kids will understand everything about you
wanting to spend your Birthday with only them.... Okay, but then what about
NEXT year.... Tell them if they behave, they can maybe bring their spouses.....
Ha!I just love that your attitude embraces everything that
you are going through... It's like Okay, things are not what I would LIKE them
to be, but I have to get this laundry done, so I have to take care of
it.....And your thought is, "okay.... CHEMO.... when it hurts bad
enough, I'll go DO it.... but I have to rake the leaves
first."Nope.... we don't judge you..... I just want to be like
you when things aren't looking as good as I wanted them to be...... You are in
charge of your whole life, no matter if it is 1 or 20 more years.... like we all
are.My Husband is going through this somber stuff, like when
we talk about getting a newer area rug for the living room, he says..... "Well,
we just have to wait and see if we are still HERE next year!"So I get on my little high horse and yell, "What do you
MEAN, if we are still HERE? You don't even have a COLD to worry about you are
talking about not even BEING here!!!!!!!!So I AM sympathetic, like when he is hurting, or
something, but NOT when WE get to get up every morning and face another
beautiful day, with no worries!!!!It's just hard trying to be the HAPPY one, with someone
who frets over a hang-nail!And we treasure YOU little Blondie.... every minute we get
to spend with you....Now go iron those clothes......."
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Chevy so glad you joined us this morning. Starting the day without seeing you and Cami post just isn't the same. First thing I do in the morning is look for you and Cami.
WOW talk about a PEP talk I was searching for an old post on the Constipation thread and came across this link that Ziggy posted. It is SO funny, I had to listen too it several times to catch all the words
Dec 21, 2013 11:05AM ziggypop wrote:
http://www.youtube.com/watch?v=8cNRkQJcnUk
A Christmas song for all my crappy friends. Sing it with me now..
there were, five, five, constipated men in the bible...
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Sass! WTH are you talking about?
I found this for Blondie...
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And I have no idea where Cammi is! She must be doing something REALLY important-er to pass US up!
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Chevy WHATTTTTTTTTTttt silly girl. I was searching for an old post for someone that needed help. The post was on the constipation thread. While trying to find it, I came across this old post by Ziggy. I thought the link was very funny. Is that better?
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Chevy -She's partying today I think. But that may have been yesterday?
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Sas. About time that chair is done!!! As to where to put it, move the Christmas tree?
And fibro. On my fibro and PN forums, they say it's being studied from ALL disciplines. I did have the usual bloods run, and of course come back normal. Now PCP says I'm low B12. That's helping a bit. And have sleep apnea. Knew that, re confirmed with home test. Can't tolerate cpap.
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