INSOMNIACS place to talk in the wee hours
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so far behind, but thinking of you all
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awww 2X- i love Snoopy! How are you doing?
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JWoo, I'm fine, went to dentist for first quarter of deep root cleaning. I was suppose to had done this 1-1/2 years ago. Told them I'd get back in after my gallbladder was out last March. Then I had a mammogram and we know where that went. So finally got in. Only a little sore. I go see #2 PS on Tuesday, I'm keeping an open mind. Really! I think she'll say that the foobs are ok the way they are then I'll have to change insurance. If she actually agrees to change them I'm wondering if I want to do it sooner than November when I get back from the cruise. They hurt and I think the right one is slipping out of the pocket and heading south! But I'm really keeping an open mind. Really.
Tang, hope you were able to let it go for a little bit, we can certainly drive ourselves crazy. I don't think anyone can turn it off, we just live with our brains and hope for the best.
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Well good morning fellow cancer fighters. I slept better last night except for potty breaks every 2 hrs. 64oz of water daily sure makes one go a lot. A bit queasy this morning. Hope to feel more settled after I eat something. Tangandchris, I was scaring myself a few weeks ago by reading everything I could find online. I had to stop or go nuts. Hope you're doing better today.
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Morning gals! Zirgthol, or what is it again? I know you begin with a Z. I think I called you Zebra once.... This is taxing my brain..... and it is 37 degrees out, so I may not be up to speed yet.
How are YOU doing? Just read things online, but don't think they necessarily apply to what you are going through. I DID find a lot of information about certain things I wanted to know..... BC.ORG has a lot of information also....
At the top of this page, on the left, in the blue.... go to "SEARCH"..... and type in any word you have questions about... You will get lots of options.... I don't think you will find a date on here, but anything else might be a possibility....
It's like if any of the gals had the same question on an issue, you will see that, and the responses they get. You are taking Tamoxifen.... that MIGHT have a lot to do with your sleep patterns. I used to take it myself.... and had the darndest dreams you ever heard of! See, you are new here, so I won't say damndest.... yet.
But we will watch out for you.... so just get lots of rest...... take an aspirin, and call me in the morning.
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Hiya Girls!
Stopping in to wish everyone a good weekend! Reading to ketchup. I have taken this slacking thing to a new level while I can!!
Hope you all are well!
Lynne
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Sas, I am so interested in all the thyroid stuff!! I'm almost positive that a lot of the troubles I now have are due to lack of thyroid function, but getting a doctor on board in this area is almost impossible!
And since chemo,I also now have ear ringing, never had it before, haven't mentioned it to MO because didn't think there was much to do about it, but now I'm wondering if it have something to do with thyroid meds needing to be adjusted! If chemo messes up lots of stuff, then why couldn't it be assumed that it could throw that off also?
Also, no matter what I try, I can not lose weight! and I'm slowly creeping up even a year after chemo!
Well it looks like as of now the vaca is a no go! Seems DH and I can't find something we afford that we can agree on, so I guess this year it's just not meant to be! Maybe something will change! At least I can hope, anyway, as of the last two days, DH is back to being an ass anyway, so why do I bother wanting to subject myself to going somewhere alone with him! Sometimes I confuse myself!
Have a great day ladies!
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Oh, almost forgot...had my 6 month mammo this morning and boy oh boy did that HURT!! Last time it didn't hurt at all, so I'm not sure what's up with that! Anyway, I didn't get called back for further tests, so that's usually good, but I won't see the doctor until the 18th for the complete results!0 -
you guys up north, enerva, Cami, zz, mama ray, you should be able to see the aurora boralis tonight. Unusually sun flare has lit up the skies. Please let us know if it's anything like this.
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Tang Hugs, ATIVAN, chocolate and sleep. Force the sleep by whatever.
Jwoo--Impressive hospital and system. LOL, That's my summary after reading about them for more or less an hour and calling the ER to verify why they weren't a Level I Trauma Center b/c on paper they sure sounded like they met the criteria. They're a Level II, but meet allot of criteria for Level1.......Thanks, the ear thingy shall pass. It'd be nice if the improved hearing stays. I'll take that LOL
Z, hope you're feeling better
$$$444444, I'm reading to mustard
Nettie, study the STTM site. Check out Dr. Rinds site and bookmark. Call around and see if any of the PCP docs do primary thyroid management. I took a shot with my PCP. We never discussed management for the almost 5 years I've had her. May be first try your local pharmacies and ask if any docs are prescribing Porcine thyroid. Particurally, try a compounding pharmacy. A non- compounding pharmacist will know where they are. Based on what I read, some docs have to have their thyroid scripts done at a compounding pharmacy for various reasons. (google for definition, it'd be easier than the definition I'd give you(homework LOL).
Learned on Rinds site, that overtime he used the reverse T3(RT3) less and less b/c he found it inversely related to FREE T3. Inversely means if one thing goes in one direction, the other relate value goes in the opposite direction. So, he no longer uses the test. In other reading though I found, if patients have been strictly on T4 meds (synthroid, levoxyl, levothyroxine, not all listed) it could take months for the RT3 level to go down. I'll let you know if I learn something new on it. Rind, also, has a calculator on how to determine what the labs are saying. It's beautifully simple. It takes brilliance to make something complex seem simple.
Blessings what's the medical word for having the eardrum vibrate like a cymbal. Doesn't happen often, but it's resounding when it happens. Thanks for the hypercusis word. Glad you aren't demented.
super advice about the audiogram pre treatment. Could you put on your to do list for some time in the future to add that to the JUST DIAGNOSED-GET PREPARED thread. I could cut and paste?2nd HUGS
Thinking of you Susan if you are lurking
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Chevy can we tighten up the date that we are going to meet or haven't you been able to tie down those rascally grandsons? Not terribly important right now but if it's doable0 -
Just flying by. Really want to sleep because we have been up for three hours and have been at the airport for half of that. Will soon get boarding call. We are off to Australia for three weeks.
Found out something don't take gabapentin with tramadol. Really spaces me out funny but a bit frightening.
Anyway big hugs.
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Blessings this was on W &F's today. Thought it ironic
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I'll have to second tightening up the meet date if possible?
I just found out about possible in law invasion. They aren't sure of dates either. How is it we went 20+ years without them, then •I• have nice plans.......
If they are here, I'll say fu$ k them and meet the Chevater anyway!
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Okay, I just sent her an email, and told her we are just trying to figure out which day would be best! I really want to know TOO.... Ha! Damn kids.....
Yes Spookie.... we don't do in-laws..... do we? I want to see the dogs..... not any no damn in-laws..... Ha!
It's still only 42 degrees out! I found my bermuda shorts... Or are they called cullotte's? They cover my knees anyway! Geesh you guys are particular! I have a jacket on right now.... been putting garden stuff away..... trying to sprinkle or snow!
Sassy.... it would be best for you to go to an ENT.... They can figure out what is going on with your ears.... Write all those symptoms down.... like cymbals clanging, planes flying overhead, drums pounding, and water gushing!
Okay, so Cammi..... do YOU know what she is talking about? I don't have a clue.... I cannot figure out all this Dr. Rinds reverse TR3.... or NOTHING! Maybe we should pay closer attention....
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Yea for culottes!!!! It's 6:30 my time, 84 humid degrees.
This particular in law is the same one who drove 16 hours straight because we were "supposed" to get a hurricane, and he'd never seen one. He stayed one day and left. So right now there is a low going over south Florida, which has a small chance of developing in the Gulf. I think that's why he's chosen now to come.
And he and wife will pitch tent in yard, since we don't have room inside. Just where I'd like to be in a hurricane. NOT
When a storm comes, sensible people get the hell out!! If it does develop, Spookie and I are outta here, he can stay in his tent. Or swim, or fly.
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You all can just call me ZJ if you like. I just started chemo on Monday...facing a long 14 month journey. Does anyone know if the next round (taxol 12 weeks along with perjeta 6mo., and herceptin 1yr) has as bad sides as the Adriamycin/Cytoxin I am on now for 4 treatment s over 8 weeks? I just feel yucky and wiped, like coming down with a stomach virus.
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I did 4 A/C treatments. Felt like chit the first week, by the time the next was due was pretty sure I'd live, only to do it all again. My worst was diarrhea. No appetite lost all taste, even water. Keep in touch with your MO, they have suggestions and meds to get you through. Now is the time to take care of you, let the dust bunnies do their thing.
I can't speak about your other chemo, somebody prolly can.
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Just thought this was
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Chevy naw you don't need to pay attention.:)
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Sassy - eardrum vibrating like a cymbal? Hmmmm ... is there noise? Tinnitus can take on many forms. Sounds can range from a teakettle whistling, a high-pitched EEEEEEEEEE sound, ringing, hissing, static, crickets, screeching, sirens, whooshing, roaring, pulsing, ocean waves, buzzing, clicking, dial tones and even music. (I think one of my friends on the Meniere's board had cymbals clanging.) There is also pulsatile tinnitus, where the noises get louder and softer according to your pulse.
Here is an interesting website that describes the sounds of tinnitus, but I have to warn you: the sounds are LOUD. With your hyperacusis, you may run screaming out the door. http://www.ata.org/sounds-of-tinnitus
RE: having a baseline audiogram before chemo... please feel free to copy and paste what I wrote, onto the thread you mentioned.
I have a really hard time keeping up with BCO, and often do not post for long stretches. Mostly I lurk, reading is difficult, and I forget what I read. Hoping that improves.
Hugs to all you Owlettes!!!
xoxoxoxoxo
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Couldn't go to bed without sharing this with y'all...
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Blessings what fun there's a story. I think it was two maybe three years ago. I was awakened by music. Glenn Miller horns, OH they were loud. I looked at the clock 8:50 am. Walked out on the deck and thought how rude, this time of morning. Somehow realized that it wasn't the neighbors. Ah-Hah, I did as I do. I threw it to the computer, keywords" Tinnitus and music". Came up with an article written by Bauman. His original article of 2004 was pulled. Now did a relook and he has done further publications and his term Musical Ear Syndrome(MES) has become widely accepted now.http://www.hearinglosshelp.com/articles/mes.htm
Back to my two hours that day. Glenn Miller horns OMG, loud very loud. Then started to dissolve. It was thank god!. It went to a different tune, kind of jazzy like I thought. The music went away at 10:50 am. Okay. Just hoped it wasn't the beginning of a NEW thing.
Then about two weeks later, I have the music channel on Jazz. Unusual. Usual choice is Soundscapes. I hear this sound, OMG, rush into see the title, Louis Jordan, Caldonia, 1945. I then searched the history. We are so blessed to have the internet and YouTube. One reporter called it by a new term______ Need to find it ---now another search cuz I forget, but it was attributed to the 50's and it was used to describe a change in music associated with the 50's music.
LOL, remembered it
. There was a reporter that described this tune of Jordan's as "Rocking and Rolling". It's attributed to music in the 50's, but the first use was to Jordan's CaldoniaI searched endlessly to see if I could have been exposed to it through old movies. Nothing connected. The sound I heard was and instrumental. All that's available is with voice and instruments. If you listen to the link, Stop when the vocals start
http://www.youtube.com/watch?v=5LxmxVFoyOc
Now for the cymbal sound. When it occurs the eardrum feels like it's vibrating. That's a very unique feeling. As if a thin sheet of metal were hit and it wobbles and makes a sound. Very different from the sounds in my head. Some plausibility, it is associated with an acute barometric change. Plausibility, is b/c I am sensitive to barometric changes. But it has occurred when no known barometric change has occurred.
Blessings, understand the reading thing so well. Seven closed head injuries, Not good. Used to read always. Couldn't just watch TV, had to be reading at the same time. Now, nada. Books, can't hold on to anything. I know your bummer, b/c I share it. It SUCKS.
BTW almost all the falls related to the head injuries were due to a weak right ankle. My joke "If you hear that I've died of a head injury, know that it was my right ankle that killed me"
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DH has the 4 tenors singing all the time. I have static.
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WTH? You guys are up talking about WHAT? Hell, I have HEARING aids, and I don't get THAT much action! And it's only 37 degrees out there! Like that matters, when you're in the house.
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Spookie, are DH 's tenors a nice tune? Initially my tinnitus started with a rhinovirus( nose cold), I had the roaring and crickets/ frogs. For a year it was hell, but each month it got just enough softer that suicide was taken of the agenda. When I went to the ENT initially, he put both hands on my shoulders and said " There is nothing that I can do for this, it is b/c of your hearing loss, the brain is filling in the absence of sound with a noise". Odd. Asked why he was so intense. The year before an ENT doc was shot and killed by a patientNow most recently softer crickets and frogs. There have been a few days since 1998, that there was silence. AH tttttttttttttthey were so appreciated. No rhyme or reason to those days. Tried to figure connections b/c I of course, would repeat them. I'll go with the lower summers eve crickets. Today, no tinnitus in the left ear and really soft crickets in the right ear.
Blessings, FYI through that search a couple three years ago, came across an article that described how to RESET your tinnitus level. At that point, it was loud so figured I'd try it. The article described using another vibrating source. I used my vibrating bed. Put the ear side flat on the bed with vibration on(bed has an auto shut off - I think 1/2 hour). Fell asleep. In the morning the level was softer. Sometimes gone in one ear. Oddly, realized it was the up ear not the ear next to the vibration. Done it many times when the noise got loud---whatever roaring, cricket sand/or frogs after a rainstorm, the noise of a subway. But since it wasn't always the up ear.. just as tinnitus isn't constant, the resetting wasn't a constant response, but it did make a change. Any change from loud was doable.
Once or twice used the hand held back massager, placed it on the mastoid area behind the ear.
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Chevy are you working on your morning wakeup report Yay I love them. Then when Cami chimes in, I'm in LMAO heaven You two are better than Abbott and Costello, Martin and Lewis, Rowan and Martin, Kermit and Monster. Make our day!Alyoop have a great time in Australia! Hope you see Chrissy
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Okay, so tell us again Sass... You did WHAT with the massager? You are so creAtive! Who knew? And what's this about your crickets and frogs.... and a rainstorm?
Cammi, did you hear that? I'm not sure if I should get involved with all this goings on..... Here, I have my Bermuda shorts all ready, and she probably won't even be able to HEAR me with all that noise going on....
Maybe I should lend her my hearing aids? I have ringing in my ears right now..... always do..... even WITH my hearing aids.... The only time I don't, is when all the other sounds are LOUDER than what I have going on in my ears.
I have crickets too, but they are in my yard.
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OH Chevy, I'm so blessed to have you in my life. So blessed. You make tomato soup out of garlic LOL0 -
Good Morning Ladies---OMG I can not keep up--between m computer and me we are pretty much useless.
Nettie don't read anything, I know this isn't a popular stance to take, but if u must read read the oldDick and Jane books and find out why he was named Dick. That'll keep 'r mind busy.
Ears, oh ears--mine ring or I have ocean sounds all the time they take turns, u'd think the cean would be soothing but it feels like my head is blowing off--keep TV on all the time it helps. But my sister and I have had this for years, my mom had it too. So I don't really think about it unless I'm thinking about it.
I've been so crazy busy doing odd things. I just can't keep up.
Chevy u know Goldie from the other thread--well she's coming to my house today long with one of the other gals (I don't think u know her) So we've been back and forth with who, how and when nd another one from Ohio wanted to come but she can't mke it. So between phone calls and PM's that's what I've been busy with, plus being excited and nervous cuz I'm not a good hostess anymore and they are both so young and I'm much older they know tht, but I'm a mess all the time so I have to comb my hair today. This is a big deal for me. LOL And it's funny cuz Goldie and Leslie my DD1 have become friends on FB so they talk all the time, I don't even know what they talk about but they are much closer in age. hahaha So I don't know if we'll go out for dinner or just order pizza cuz u don't get Chicago pizza's in AZ like u get here. Whtever they want to do, but I'm excited and it's been days of msybe she can't or maybe she can then the other gal is from Indiana and she'll be in IL for a shower today so she'll ome after and she's younger.
I was busy with work too I am not a multi-task person, u see back in the day when Chevy and I were strippers full time that's all we did we just stripped without a thought, now I have to think and it's to late to start.
I didn't read the last 2 pages so I'm not caught up, but I hope everyone is doing OK--I'm usually on here much more so as soon as I get orgsnized again I'll be on regularly cuz I have to keep an eye (just one that's good) on Chevy she tends to embellish things she says or just doesn't make any sense like me.
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