INSOMNIACS place to talk in the wee hours
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Thanks Spookysmom. I will let sleeping dust bunnies lie for sure. I took an anti anxiety pill in the middle of the night last night. Was having feelings like going down a roller coaster. It helped and I actually feel a, touch better now 5 days post chemo. Tis really starting to look like fall here in the Hudson Valley. Hope everyone has a good day.
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zjrose, I know very little about the targeted therapies. Does not sound like they cause the horrific side effects that the chemo drugs do. Cami, ( posted right above you ) is the only one of our group that I can think of that is Her +. There must be others. I started A/C one year ago. Are you getting it every 2 weeks? Did they explain that it is cumulative ? Rant & whine if you need too, it is still fresh in my memory. I had to really dig deep & tell myself, just get through this day. I lost weight, could not eat.
Blessings, great to see ya post. So sorry you are healing slower than expected. Have you thought of, or been offered art therapy? The best part of my job at school was getting to create silly art projects. We cut & pasted silly faces from magazine photos of food, water, bugs, whatever.
I think I might of said this already ( chemo brain, I still struggle with it ) but, I did read an entire book on my big trip. That seemed like a milestone. Of course it was a easy read.
Ok Sas & gang...I skipped over most of the ear ringing talk. I occasionally get that, I am scared I could bring it on by reading about it. I have bad ears, lots of scar tissue.
Cami, big smiles for you. Wonderful to meet new friends. Have fun.
Sas, Phyillisintx, do you hear from her? Tell her hello & we miss her.
Chevy, just when Denver is getting heavy frost & light snow you will fly to tropical Florida... Ah....q
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HI1-phyillyinhouston had chemo last week . Then again this next week. Ct next Sat and bone scan next Monday. Off day today-she's not feeling well. Told her. Short call b/c of the way she was feeling.
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hey ladies. Been reading what everyone is up to but too lazy (sleepy) to post. Finally got my lil sis and her family to leave. It was a wonderful time but so very exhausting. Went to reg scheduled mo visit yesterday and brought up the tired issue. Checking thyroid since I haven't had a change in synthroid doseage in over 2 years. Hope to find the answer soon. Hate sleeping away my life.
Hugs to all.
Hootie hoo
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Read ask about the ear ringing, I have it now, I think caused by chemo, like someone said, mine is worse when it's quiet.
This is what I did today. Went to The Pink Dress Run. This is me and my MO.
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It is unseasonably cool here but yikes! Hell might even be frozen over if this was actually today's temp.0 -
Nettie! That's WHO? Damn girl! And what is MO?
Sassy and Spookie..... Okay DD called and said for YOU guys to pick a day..... either Thursday or Friday..... Okay? And what time? And she said it is right next to where we always go.....
Isn't it too hot there for the pooches? Or, never mind.... y'all are probably USED to that by now.....
She was wondering who would pass out first, us or the dogs! She and her Sister will shop around, while we have lunch....
Sass, isn't Phylli in that control test or something? Let us know.....
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thurs would be better for me. Let's see what Sas says. Spookie will be in her stroller, it has a cover to keep sun off.
12:30?
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Chevy, that's my medical oncologist.
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Nettie, he looks good in pink! (And fun!)
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Yes, he's a really big supporter, very involved with community awareness.
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omg I am so behind lol
Ok so went to my favourite store home sense and saw these lol
Had to share
Ll try to go read the pages I missed
Sending u all hugs
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Lurking
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Morning gals! Okay Spookie.... It's good with me.... Thursday at 12:30? See what Sass says..... after/when she ever wakes UP! I'm getting my clothes laid out, to see which ones I'm taking.... I have a lot of new pretty tops that I bought at Ross! Geez, I love that store..! I'm usually packed 2 months ahead of time.... Ha!
You will be most amazed.... ! Me with my tops and Bermudas.... NOT flip-flops though... I person could break their NECK with those things..... oh never-mind.
This is a dilemma... Crocs or sandals.... I'll bring both.
It's warming up here.... !
Hello Lurker! You doing okay?
Oh Enerva.... Sheesh! I thought that was my yard for a minute.... Ha! I love that kind of stuff... I've been putting things away for Winter.... Seems like Winter lasts a LOT longer than Summer around here.
Okay Nettie.... what IS he? 12? I guess if he can see YOUR chest, you can see HIS! Ha! For a minute there I thought he was a perv in drag.... Except that pink hair is rather cute....
If he is YOUR friend, he is ours.....sort of.....0 -
Well I must say a at first sight, it was a little disturbing. Lol. But I love how he is involved with the breast cancer community and awareness.
Also really like him as my doc.
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Chevy, You do know that crocs makes sandals and flats? There's one open toe lacy looking one.
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lurking too, many pages behind
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Wow, we've been quiet today or I'm missing something
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Ya, what Nettie said. It's been really quiet.
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Jumping in to ask how many Xanax are too much. I will probably find out where I'm randomized in the Kadcyla trial tomorrow. If I'm in the Herceptin only arm I'll just drop and do the Halaven trial instead (guaranteed to get it) but I really want Kadcyla and ugh I would feel bad dropping. I'm also worried about my EF dropping too much to do any trials (from pre-chemo ECHO to June MUGA it dropped 13%) and my right side is bugging me. Onc felt my liver and didn't feel anything concerning but still stressed.
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What is Kadcycla? Never heard of it.
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Zj, it is a chemo or a targeted therapy, generally used in stage 4 cases, I think. I could be wrong, now it is in several trials. I would jump at the chance to be in one of those trials. I will say something to MO, but I live in a rural area. .
Bad at usernames, no idea how much is too much, I have taken 3 in one day..., very small dose. Some days I would like to take a whole lot more, but I know they will not get refilled, so I try to be very careful & conservative.
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OH MY DOG!!!!!
Was in KMart last night. They have Christmas trees on display already. So not ready for that!!!!
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Morning Glories!
Okay Wren, I have some of those crocs... With little
holes in the top... Like Mary Janes! Quite appropriate for my age..... NOT!
Ha! But that's never stopped me yet....22222222222! I love those shoes! No... I don't have any
of those.Oh Bad! Let's just call you Bad! Okay, my expertise in
this area is rather lacking....I've never had a Xanax... so I don't know... Nor do I
know what EF is... Or even Muga.... I don't know why I'm even HERE! Ha, ha!Sassy and HIO.....and few others know this stuff, so just
hang with us... And I like your "bad at user names" stuff...Oh Yes Spookers.... I've been noticing all kinds of
Christmas things on display! That's supposed to get us "in the mood" you
know.... to spend money.So is everyone on vacation or something? A few of us need
some expert advice on here, and you guys are AWOL?0 -
Good Monday Morning Owlettes
Chevy and Spookie Thursday September 25th, 2014, Columbia restaurant in Celebration Florida, 12:30pm If that's right . It's on my calendar.
The outdoor eating area has a covered roof and shade Weather each day is getting nicer to be outdoors at that time of day.One time Badger and I met for lunch. We were a little loose with the specifics. She sat in one Cracker barrel and I sat in another one miles away. Thank goodness we both had cell phones. It cut into our visit time, but we did finally get together.
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Bad @ User, Hi welcome here
Truly the legal answer is ask your doc. Generally, they will tell you to take one more in if one doesn't work. I'm not a fan of Xanax. It is widely prescribed. Over many years, I've seen people have more problems with it than the other benzo's. I prefer ATIVAN. Totally clueless about most Chemo drugs. LOL I hope to stay clueless, if you get my drift.Bad, talk with your cardiologist. There are drugs that have a greater positive affect on cardiac output then others. Coreg for one. There was another one that came to market recently, but I forget it's name. DH's EF dropped from near a 60 % to 20% after a significant increase of his Statin drug(2004)
With Coreg, his EF came back up to 50%. It then dropped to 46%(2009-2010) after his first round of chemo. Which then changed what choices he had for the next chemo.
Have no idea if EF has any hope of being improved by use of "positive Ionotrope" drugs after chemo.. LOL, Ah used to have to teach this stuff. Haven't used that word in along time. Means contraction. A positive ionotrope drug improves contractibility of the heart and a negative ionotrope decreases the contraction.
So, specific question for the doc is "Is there a Positive Ionotropic dug that will improve cardiac ejection fraction after chemo?"
I'll throw that question at google and see if it pulls anything.
Well, I love the computer. There has been a new patent application for a identifying a chemical for inhibiting Myosin Binding Protein-C. But it's in early mouse research. Not to human trials yet. It's would be a new class of drugs, if I read right. If it is, it will be as revolutionary as the beta blockers were in the 70's. Doesn't help us at the moment, but will in the future.
Bad, check back here still looking
Found and article on Coreg generic carvedilol and an Ace inhibitor use in improving mild dysfunction , my browser is giving making me crazy about not being able to copy links. Sorry.
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Good morning everyone!Hope everyone has a good monday and week ahead. Tomorrow is my appointment and I'm taking loads of papwerwork with me from all my docs. I have to drive to downtown Dallas, not looking forward to that.
Anyway, just checking in. It seems kind of slow around here lately....sometimes it is just that way.
love and kisses everyone
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Hi Tang in your pocket for tomorrow.
It's slow, but we have been going like a bat out of hell for months. That level of activity had to slow down sometime. Expected
just didn't know the "when". 0 -
good morning ladies. It has been quiet on here.
Hootie hoo
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Hootie hoo back at you Peppermint--have a great day
Waiting for all the grass cutting guys and pool cleaner to leave so I can swim. At least that's the excuse for this hour 2ta and enerva-and HI1 and Smarrty---I even did split scree to make sure I didn't miss anyone. Soes to go ya! Hootie hooo to you too
Littlegoatsmissy where are you?
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