INSOMNIACS place to talk in the wee hours
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Ok Sept 25 at 12:30, Columbia at Celebration! I'll be the one with a pink plaid dog stroller. See you then!!!
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Oh man Sassy! I did that once also! Was supposed to meet the gals I worked with, and we were all there, just in different restaurants! I ate alone, anyway.... I was so embarrased!
Okay.... We will meet! Anything else happens to come up, just call my cell phone, okay?
And Cammi.... Do you have a CLUE as to what Sass is talking about? And should we be concerned about anything? I mean it sounds pretty technical.... completely out of my realm of understanding.... And she's seeing bats! My girlfriend had a bat once.... Bought him a "bat-house" and hung it in the tree, so he would move his claim on her front porch..... Never saw him again.
Good Luck Tang....! and howdy Peppermint! Good to see you!
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you three who are meeting, eating and greeting, we EXPECT a pic of the four/five of you, that's including the dogs. Have Chevys DDtake a pic.
Tang, keeping fingers crossed that you get this figured out finally. Wishes for the best. Will be in your pocket tomorrow, keep us posted when you can.
I see both PS tomorrow and then make my choice. Hate this crap! Part of me wishes I hadn't lost the weight since that seems to be what caused all the problems. The other part is jumping up and down with glee about how skinny I look
. Can't have everything apparently. The rest of you be good! Or have fun.
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yes Chevy get dd to take some pics to post for the rest if us. So jealous. Bet y'all will have a blast.
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Good Morning! That is all!! (Remember that saying from the Sitcom MASH??)0 -
Thanks ladies. I did take three Xanax in about a four hour period of time and damn, did I sleep better than I had in months - and I woke up to a much happier day.
Kadcyla, or TDM-1, is one of the up and coming things in Her2+ breast cancer treatment. It combines Herceptin with a chemo agent in a way that delivers the chemo directly into the cancer cells. It's been mostly used in the metastatic setting, but the KATHERINE trial, which is currently open to lower stagers who had an incomplete response to neoadjuvant chemo, is currently in Phase III.
Anyway, I just got word that I did get randomized to the Kadcyla arm! Also, that means that my EF (ejection fraction; the rate of which the heart pumps blood) is holding strong or else I wouldn't have been allowed to participate. That is a relief, as I have already had three cardiotoxic agents (Adriamycin, Herceptin and Perjeta).
My mom also came up with a diagnosis for my right side weirdness - a mild case of shingles. It fits most of the symptoms and I certainly am immune system compromised.
And my husband and I are celebrating out three year dating anniversary tonight. Funny that we never celebrated those before we were married, but now we feel like we should take any excuse possible for a celebration!
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Bad, If it's shingles, get to the doctor. They can prescribe medicine that will make it lighter and shorter, but it has to be given at the beginning. It's miserable, so take action now.
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And Bad, if you DON'T have them, be sure you get a shingles shot! I had one several years ago, and so far so good!
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just stopping by... Busy day today
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Okay, so I don't know where else to ask this...so I'm just gonna throw it out hereIf the doctor tomorrow agress that I need a biopsy, what are the other possible scenarios that this is NOT cancer? Just scar tissue that is invading my chest wall...but what about the lymph nodes that are slightly enlarged. PS said 1.8 cm, so not incredibly huge, but still swollen.
Any ideas on what else I could be dealing with? I'm nervous, but I'm trying to stay positive. I just can't imagine that this could be cancer when I just finished chemo! But what else?? I had fluid removed from part of my chest last month that came back negative for infection.
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Tang, your docs, frankly, are hypervigilent at this point. You have been through hell, they know it. They are considering that the hospital & docs are at risk for law suit. They are going to take "care" in the medico-legal sense. If they don't they are stupid. Care should be taken under all circumstances. You document everything. Trust me they are. I have found it interesting over the years of obtaining documents that what I know to be true and what is written i.e last Endocrines notes. Fiction. No complaints. Yeah right.You need a biopsy, plain and simple. Ask that it be sent to another lab for a second opinion, respective of their dx. Call and clear with your insurance ---state this " I'm requesting this b/c there has been so many complications and screw-ups with my case, I want a second opinion on all aspects of my case, unless you can convince me that my care has been without negligence" Saying it that way is going to get everyone's notice.
Have you got an insurance nurse case manager? Most insurance companies will do this. I have found that they will work more in your interest than anyone else.
Tang you already know my opinion. Get a lawyer on board.
You can't change the physical b/c the biopsy is unknown. You sure as hell can make people start jumping through hoops.
Biopsy, asap, no excuses by the docs--get're done. Not next week. This week. Stomp your feet and tell them suck eggs! You have been subjected to enough foul ups.
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i have a doctor appt to check out my skin issues tomorrow afternoon. We have a mini-vacation planned over the weekend and I'm set to start Kadcyla on Monday so if it is shingles I want to nip it in the bud. And I've never considered the vax before because I'm too young for shingles...but I'm also too young for cancer and here I am!
Tangandchris, you really do need a biopsy ASAP but our bodies have been messed with beyond measure by treatment so I am betting on something benign.
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You know an infection will cause swelling also..... and I know lymph nodes will swell with ANY infection, even with a sore throat....
I mean I don't know very much, but it IS a possibility .... I don't know anything for sure, and like Sass says, best to have it fully checked out.... but I'm just hoping it is an infection so we can quit worrying.
Let us know, okay?
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Sass-makes me nervous just reading what you said about lawyers and such......caues me anxiety!! I am getting a biopsy, just a matter of when it will be done. I'm thinking after I see this BS tomorrow she will say in the next week. They are talking surgical or CT guided...anyone ever have a CT guided biopsy?Sorry if I'm getting on ya'lls nerves with this crap. I'm on my nerves too.
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Tang, I've assisted on CT guided bx's, and had sterotatic bx which is essentially the same--if not the same. The difference I don't know about is the amount of radiation used.
too strident tang sorry. Ativan
In your pocket today Love you Hugs sassy
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Shingles Knows No Age in a reduced immune state--------herpes varicella is the setup i.e Chickenpox, herpes zoster i.e Shingles is the follower. Any untoward problem with this lay at the feet of your Mo for not getting you properly vaccinated before chemo.
Getting real tired of Mo's and the ASCO industry that doesn't properly protect us all from injury due to the drugs they prescribe. When they know a reduced immune status is a set up for certain preventable problems
Bluebird died b/c of lack of pneumovax before chemo started. Lack of due dillegence lead to her pneumonia that lead to pneumonitis. Her BC didn't kill her--------her lungs did. A simple vaccine administered before chemo could have made a difference in her longevity. She had a fearsome type of brain cancer, but it wasn't the reason she went into the hospital the last time. It was here lungs. They may have not have been an issue if she had the pneumovax.
We need to get pissy about this.
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Definition of bitch for Tang
B right
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H erself
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Definition of bitch for Tang
B right
I ndividual who
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C are of
H erself
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Z, yes, you fit in here quite wellTang, Lovey, you can control the anxiety. Ativan Tang, then Go into attack mode. Survival mode. Do it GIRL
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I was fortunate because right after my BC dx, my PCP sent me to the nurse for a shingles vaccination. I'd already had the flu shot, Tdap, and Pneumonia shots.
They wanted me protected in case I needed chemo. (I didn't, but now that DH is on so much immune-destroying medication, he can't get a shingles shot. I'll have to check on the others.)
Can't remember if I already posted about the Neurologist's appointment last Wednesday, so will wait til tomorrow and look back to see if I wrote anything.
Nighty night, Owlettes!
p.s. 2TA - love the pics.
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thanks Blessings,
Been thinking of FBB, then Sassy's post, this is what I see on FB:
Been so busy, I need to make time to get caught up.
So blasted hot here.got an email Thursday afternoon to get tickets for DWTS - for today or tomorrow (I chose tomorrow). But way too hot (over 100*) to stand on line for at least 3-4 hours in the blazing sun, no shade, no chairs. So the friend I asked and I decided it would be better to skip it (she a trip/wedding coming up and don't want her to get sick), after hours in the sun, it's freezing inside. Will try again to later in the season or next time.
Hugs to all who need (or want) them
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Sas- i hope you sued the chit outta your former employer.
Z- love that acronym!
2nd- that is beautiful. I sure miss FBB.
Blessings- i hope you are having better days.
Bad- my BFF's hubby got shingles at 25, so i would say age is not a factor, though you think about it being for older people. I think that is just an immunity issue.
Smaarty- hanging out in your pocket!
Patty- good to see you again on here.
Chevy, Cam, Wren, Susan, Nettie, 444what, Spookie, 3rd, EVERY ONE OF YOU LOVELY LADIES: (((((((hugs))))))))
wish i could squeeze you all super tight.
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Tang.... just thinking about you.... I had a needle-core guided biopsy, so I don't know if that is the same.... but I could watch him doing this on the monitor... It was very simple, to me anyway, but of course I was just laying there........ eating chips and cheetos.... JUST kidding!
But he took a snip, and then it was over... So they will find out that way..... and just don't worry, if you can help it..... It will be taken care of no matter what.
JWOW, I love that little picture.... so delicate!
I stepped back off of my 2-step stool yesterday, but skipped the first step, landing down on the floor! and escaped with my LIFE! I thought I was on the short stool, but it was the taller one, and this is the SECOND time I have done this.... The first time I fell all over the Laminate..... but it just stunned me, and hurt my whole right side.... But THIS time, I only stepped down onto my FOOT! DAMN! Who knew I had any balance?
I almost had heart failure! You know I only have one good hip left, and I SAH don't want to hurt the good one... NOR the left! It has had about as much as it can take!
I just have to learn how to be more careful..
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Oh wait.... I'm trying to post a relevant picture....
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So always remember to use both steps when getting OFF the stool.... You can't always land right-side up while dropping down to the floor from the top step.
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Chevy!!!!! BE CAREFUL!!!!!!
We want to meet you next week, not be worrying about you falling off stuff. And why don't people fall up? Why is it always down?
One of my dogs fell up the deck. I cracked up. She was deaf and blind and would have been insulted if she knew.
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Chevy and all, I started doing Tai chi a few months ago. Very non strenuous and really helps with balance and focus. They have it at our local senior center but you can get videos online to learn the form. I do one called Tai chi for Arthritis and wow what a difference. Highly recommended by this former PE teacher. OK getting down, carefully, from my soapbox now. Lol. Love, Jean
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Oh,Chevy, glad you didn't hurt your self! We sure don't want you to miss going to Florida!!Tang, I agree with all of the above, even though I find it hard for me to do for my self! Now for a family member, I can raise nine kinds of H**L, but when it comes to me, for some reason, I find it difficult!
Nice pic JWoo and hugs back to you!!
I'll have to post a pic later of my latest "project", but I'll say it involved climbing a ladder, which I hardly ever do!! But so far, no falls, but have come close a time or two with a misstep
One question - every night, when I lay down, I get a "heavy" feeling in my legs just below the knee, it's worse on my left. And it also feels like my feet are trying to go to sleep, but they never actually get the tingling, just a weird feeling, could this be a form of neuropathy? I will ask the doctor next time I go, just wondered if anyone might have some ideas!
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Lots easier said or read than done!! But I keep trying not to worry!
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