INSOMNIACS place to talk in the wee hours
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Nop ee all good
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Woke up to Princess curled up between me and hubby, under the covers, purring away!
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Sass! Ain't no-body no-where! I saw the new topic, but man, I couldn't contribute anything to it if I tried....
I don't have any problems, and when I do, I try and figure them out as best as I can.... and that means figuring out what ELSE I can do when current meds aren't helping..
I don't have any problems with anyone, and so that means I don't have anything to contribute.... probably.
On another note.... Still cold here! They say snow again today.... The snow from YESTERDAY is still out there! I'm not taking my car out, if it will get messy... Ha!
So we are staying IN!
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Mammaray- I think it is awesome you are getting out to do those steps, finding that maybe it is hard sometimes, but that you are letting go of any judging of yourself. Trying to move your body some every day does help you. We all have to figure out what we can do and how much too.
Are you doing anything beside the steps? Walking? Swimming? Yoga? I find that if a particular thing feels too difficult on some days, I find another thing to do.
There is a post your Post Daily Exercise Thread here if you want to join us there too. Lots of nice ladies there to talk about exercise with and share our challenges around too. Join us if you would like!
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sas love it0 -
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Hey Sassy, I'm just now seeing your post about the new thread. I have been down most of the past two days despite my internal admonitions to suck it up and do something. I started the arimidex last week and it may be that, all the joints that normally hurt (lumbar, shoulders, knees) are screaming, and now the knuckles are chiming in. I've been so fortunate to not have my mother's arthritic hands, and now... I've had to take half a tab of oxy a few times, that article scared the snot out of me about becoming dependent on them again.
But I have got to get some laundry done, running out of even my holey-est undies. (No, autocorrect, they are not holiest!)
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Hi Mags, sounds like you are doing it today! Motivation has been on the back burner for me lately, and have laundry to do myself. Either that or I have to shop for more clothes! I would hate to go shopping commando for more undies.............but I will if I have to
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Mags- if your SEs are bad and interfering with your quality of life, let your MO know. They may need to change which one you are on. I had a good 6 months of challenges on it, my body finally got used to it. The worst were my feet that were so stiff I could hardly walk. They may want you to give a month or so on it to see what happens, as it is cumulative. The AIs have been the hardest part for me, but knowing what you went through with chemo and rads, I know very well you are not up for any more pain.
Arimidex can definitely affect your mood too. But know you have been through a lot this past year and that you are still dealing with all the emotions from it. I know I was numb going through my treatment, a lot settled in for me later that I had to process about everything I went through. I still do sometimes too.
Don't hesitate to get some counseling support if you need it too. This whole thing we deal here with it very hard.
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Thanks Jazzy. Oddly enough I passed my 1st anniversary of official dx yesterday without even noticing.
Fortunately I have so many clothes I can go like six weeks without laundry. My cousin (bless her heart!)has been doing it for me, but she is so busy with her volunteer work that she hasn't offered, and I hated to add one more thing to her plate. I know she'd happily do it, but I waited until I knew she'd be gone most of the day. One load in, another ready, and I may stop there for now. Since I rarely go anywhere, it's mostly undies, tshirts and leggings. Thankfully no more bras
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Despite taking some tylenol for my migraine, its still there! grrrrrrrr!
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Mommy- feel better. The only thing I can do for migraines when they do happen (rare for me) is to go to bed. Can you rest today and get some sleep?
Mags- well, I am glad you cruised through the DX anniversary without noticing. No reason to focus on that, time to look ahead. I hope you get all that laundry done. I have lots of stuff too and can easily go for a month without doing laundry until one day, I have no clean underpants!
I am craving summer foods. Yesterday it was the root beer float, today I had to have a hot dog of sorts. Been craving one of those all week and instead of getting hot dogs, I got some sausages like chiptole and cheddar and did it up with sauerkraut and all the rest. I wonder what I will crave next?
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Took a nap for a bit, it seemed to help.
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glad to hear you are feeling better Mommy. Usually a nap helps take care of the migraine for me too. Just noticed you are getting an exchage on the 22nd. Best wishes.
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What is wrong with you people??? I'm gone one day and already I've missed so much that I'm all screwed up! O wait, I'm pretty screwed up anyway. Please be patient with me on the days I don't take my meds.
Some of you know that I just finished treatment AGAIN (stupid TNBC) and had gallbladder surgery. Well, I have been afraid to look in the mirror because the chemo-face was pretty scary. Anyway, I went to a friend of mine who is a makeup artist. She is a WIZARD!! She got rid of the big fat red carboplatin/gemzar bags under my eyes plus other unwanted ugly things.
I won't show you a before picture because I think there is already one on this thread thanks to Miss Spookie. Here's the after.

Cripes that's big! Of course my head is kinda big anyway. Hush Chevy.
Phyllis (sorry I'm too lazy to fix the size)
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Wouldn't recognize you on the street!!! Looking good!!!!
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Dang Phyllidink! You really ROCK that look! I had no idea you were that good looking.... Ha! I'll have to behave a little more when I talk to you, right? Wait till Cammi sees this! We are thinking you are all in the jail issued dungarees, with that number, and big Alice on your arm!
And there you are.... all prettified! Good Job girl!
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(curtsy) Thank you! It took half a day for her to take me from my normal Nick Nolte mug shot look, to what you see here.
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That before pic.of you was about a year ago. Do I dare repost it? Would it make you come see us again? So you could beat me on the head
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It's been a good couple days thrifting and searching. 13 glasses---7 water, 6 wine---10$. On replacement.com water 26$ and wine's 22$. Hand blown glass. Delicate as their name. Rainbow by Toscany. Sparkly.
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Hey Phyllisssopretty. What fun. Is it going to be easy to do by yourself? Oh it would have be so fun to do it all together. Facials, and mani/Pedi's and cucumbers on our eyes. Drat wish you weren't so far away. HUGSSSSSSSSSSSS0 -
sas - beautiful glassware! Love the shimmery colors!
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phgraham- wow, what a glamour shot. You look lovely. A nice haircut, some good make up, etc. all make a girl feel good.
Onco-I saw this pic on FB and knew it was perfect for you!
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cutiePhilly, great pic of you. Yes, I think Spookie should repost the other pic.
Have a quilting class tomorrow. Good thing I have everything ready for the class. Just got home from helping to get an apartment set up for a guy who didn't die as planned so good enough to live with assist now. He's 85 and spoil and ornery old man!
I will be having a scan next week. Got some stuff I have to drink prior. Sure it's going to taste gross. Stomach still hurts and nothing is showing on the blood work, all normal and no ulcer. Now to worry about what's going on in there. I've lost enough body parts, already.
Sassy, like the glass, very shimmery.
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philly you are beautiful..love the picture. Frame that baby and hang it up.
Ray..great attitude
14 yrs and now I get lymphodema ....what's up with that..poop
Beautiful 80's today...had to make you smile. Hope cami got to enjoy it
Night night
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Smarty- I hope the scan tells you something to help you know what is wrong. If it is an abdominal CT scan (had a couple of these), the stuff you drink is not too bad compared to other things (like the Golightly stuff for colonscopy). I hope everything goes well and let us know. All these scans leave us scared until we get the results.
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Phillie that is the most beautiful pix i have seen. I agree print it out n frame it.
Going 2 b 80 tomorrow i think, been off chemo since july wonder how it will b
Waiving to everbody
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Dang Blondie, send some of that this way. Been cold out west this week.
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Phyllis- great picture and I like the haircut, cute. The only other photo I saw was of the 3 of you posted a long while back-Sass, and Spookie. I am sure you are most thrilled to ditch your galbladder. I was thrilled to be rid of mine and 4 huge stones. miserable.
Mags- I read that Walgreen article for controlling narcotics. Thankfully I don't live in Indiana. They surely don't do that here. I would cry being jerked around like that. We only use Walgreens and they have never given me grief. You know I wanted to mention that when I took Arimidex the first thing I noticed was tinnitus increase, then I couldn't sleep well, then the joint pain just got worse and worse until I had heating pads in stations around the house and felt like moving was just torture - ground glass in my joints. Then the combination of sleep deprivation, joint pain and my ears ringing away I got terribly depressed. I mean suicidal - major. I don't tolerate NSAIDS, tylenol gave me no relief and the onc would not give me any pain meds. So I quit taking the Arimidex. Within 2 months my sleep improved a little, the depression lifted and the joint pain subsided. I just could not tolerate the SE. So if you want compliance I suggest being very blunt with your oncologist about the amount of pain you live with. I know I have just quit being miserly with the pain meds.. I feel so much better taking them when I need them. I move better, am more interested in participating in things. They don't make me sleepy and they make life bearable.
Wren I love your comment about the pharmacy not carrying narcotics because they might be robbed... like a bank not carrying money because they might be robbed.. logic? No just refusing to treat patients when they need it. Pharmacies like that should be boycotted. Thankfully hospice stepped up!
Mommy-hope your migraine is gone. Hi Patty and Blondie, Jazzy and All... We are taking a 4 hour train ride tomorrow with the kids. Our train will be held up by "bandits" won't that be a hoot! The girls are really excited. Supposed to be fantastic weather tomorrow sunny and 75! Yahoo!
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