INSOMNIACS place to talk in the wee hours

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  • Rosevalley
    Rosevalley Posts: 1,664

    Chevy bless your heart.. cancer does make you feel odd, robs us of our innocence and takes away so many relationships and changes them into something else, which is the most hurtful thing of all. Cancer also physically hurts when it's stage 4.. and may you never ever experience that. I hope some day my 3 kids think of cancer the way we think of polio... oh ya I heard about that in the history books, but no one gets it anymore!

  • jazzygirl
    jazzygirl Posts: 12,047

    I am still finding my new normal with my body, mind and spirit.

    Smarty- I am glad your scans were clear but the pain is worrisome. I hope you won't have to live with chronic pain that cannot be figured out. See what else your doc says.

  • Chevyboy
    Chevyboy Posts: 10,258

    Those of you who are still fighting this.... and ones who are stage 4.... THANKS for being a part of this thread.... I was told one time I could not post on a stage 4 thread.... because I was commenting on SOMEthing.... trying to offer some support.... but I felt sooooooo left out.... I hope we never make anyone feel left out on here.....ThumbsUp

  • Smaarty
    Smaarty Posts: 2,615

    thanks jazzy. I left her a message, she's off today. I'm going out of town to have some GF time. To hell with the body. It's bad enough that the new girls hurt off and on, I'll have to live with that. I just don't need anything else to hurt. I want this year to be "normal"!!! Last year was all the weight loss and restricted diets, the year before that was the boob saga. I know ive had it easy but I just want to be a better me and get on with it.Ok, rant over.

    Mommy, good luck and welcome to the squishy side. Just remember, just because you can, doesn't mean you should. Take it easy for the first couple months.

    Sassy, glad they didn't ban you and I think it's really mean that the mods would not tell us. Some of us would think someone has dropped dead if they stop posting!!

    I have to get busy, stuff to do before I can leave town.

  • sas-schatzi
    sas-schatzi Posts: 15,889


    OOps can I post---Whew things didn't look right.

    Loverly, you are so right. I was banned a second time for about 6 hours. It was an auto thing in the BCO computer program. Thet reversed that one.

    Sue, have you tried Simply saline spray. Running is better than stopped up. Yes--No? Stents in the nose? Never heard of it, but doesn't surprise me. Did they tell you about long term effects. Can it erode? Infection possibility? Hope you are comfy tonite.

    Rosie I was told about the brain tumor the same day as the BC. We did the usual BC stuff>>BMX with TE's>>4 sx's>>1, killer chemo. We watched the meningioma until it started to grow, then out it came. We were pretty sure it wasn't CA, final pathology report it was benign. It was in a bad spot--base of brain over the right eye, near the optic nerve. Glad you read OMG. I used to sit here with my tin hat on. So, funny when DS came home from FSU. He held the tin hat up,  quietly and softly said "Mom what's going on?" poor baby.

  • wren44
    wren44 Posts: 8,075

    I can see it.

  • sas-schatzi
    sas-schatzi Posts: 15,889


    Thanks Wren

    Oooh just wiped out a long post

    Chevy. I've posted on stage 4 technical threads. when I have something technical to offer.

    Smarrty--how uncool of her to not tell you. Did you have Versed yesterday? Numerous times I've been with patients still with Versed doing it's work--amnesia, and docs telling patients results of whatever. It's like "Hey they aren't going to remember" Thanks, about the banning. Yes, them not telling about  a ban is a problem when dealing with people that can take a change for the worse and disappear. We've had it happen---very unsettling.

    Waving to everyone. Thanks to 2nd, and spookie for talking to me yesterday--I needed that :)

  • 2nd_time_around
    2nd_time_around Posts: 14,084

    Sassy, Winking


    image

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Smarrty, Found your post on the previous page. So no versed. The radiologist usually have a rule that all films must be read within 24 hours. Have they done an Endoscopy yet? That's the usual next step. Sometimes docs will do it early before tests are done. Other times they are limited by insurance that says all the tests need to be done first. All the other tests can be normal and then the human eye can see what all the machine and labs can't.

    If the discussion comes up and the doc suggests a Proton Pump Blocker. Think short term not long term use. PPI's can have long term negative consequences. Examples are Prilosec, aciphex, prevacid, protonix, etc. The older group 5H2 blockers have less consequences long term. Examples, Pepcid, Tagamet, Zantac.  Avoid Calcium containing products like Pepcid Complete and Tums.

    I just did an extensive search for Dear Brother. I've been at him for years to get off prevacid. Now he's going to have Open Heart. I was trying to convince him this time by sending him all the research. He dismissed it, but it was worth the relook.

    Anyhooows, I had post RAI131, gastric pain since April last year. January, I started Pepcid 20 mg  twice a day.  3 1/2 months. Now evenings only. Will do for another 3 months. Doc wanted me to start last year in May. Retrospectively, it was a mistake not too. Still evaluating whether I need it twice a day. On the Radioactive Iodine---UGh flushing it through the Gi track is the usual. I had a sleep attack that day. The RAI sat in my stomach for 3 1/2 hours longer then it should have.  Self made problem.

    If you want me to take a look at your meds, send the list by PM. A relook at meds is always a good first step. One of my mantras is " just when you think you know something , take another look". It's never failed to teach me something.

    Have a great GF day :)

    LOVE YOU ALLLLLLL

  • sas-schatzi
    sas-schatzi Posts: 15,889


    image

    Back at you Loverly :) sassy

  • Loveroflife
    Loveroflife Posts: 4,243

    Awww, thank you Ms Sas. Like everyone else here- happy you are back.

    Ms. Chevy and Rose, I can't say it any better on how bc has changed all of our lives. I agree, Ms Chevy...you should write a book and have Rose co-author.

    Ms. Smarty, I was told sometimes pain in the stomach can result from muscle pull/spasm....you mentioned the new girls hurt on and off. Did the stomach pain start after your most recent reconstructive surgery? .....just a thought.

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    Feels good to have the TE's out and my new implants in so far. Happy that everything went well and I don't plan on doing anything I'm not supposed to.

  • jazzygirl
    jazzygirl Posts: 12,047

    Smarty- good that you are taking a break to go have fun this weekend. Shifting gears may help. It usually does for me when I am feeling pulled down about anything.

    Mommy- glad you are on the other side of this and feeling relatively okay post procedure.

    2nd Time- Happy Earth Day!

    image

  • luvmygoats
    luvmygoats Posts: 2,484

    That's why Sassy has contacts out there who know what she's up to lol.

    OK I've read back 3 pages. Insomniacs signed me on at page 726, February. I truly don't know why I haven't been on much. I do know that spring is the magical doctor visit nightmare rollercoaster. So between BC and eye doc visits and PCP and dentist and other stuff it's just been ridiculous. Been going to Bible Study which I like but have to prepare for but that ended yesterday until fall. Bad news from all of this is I have to have a repeat colonoscopy in a week (TMI I know but prob. hemorrhoids but doc being cautious). And have derm. visit for itchy dark spot on my scalp. Then I get the pleasure (not) of seeing MO - not my fav. doc. And then I have to find a new optometrist and get new glasses. I dread that expense but I didn't get new ones last year and golly gee these are bad now.

    Who had the cute giraffe picture? The Dallas Zoo has the cutest almost two week old female giraffe. Saw birth live on net and it was televised live on Animal Planet.

    Yay Mommy for being on the 'tother side of that surgery.

  • Rosevalley
    Rosevalley Posts: 1,664

    Mommy Happy Healing and may your new girls bring you peace. I never went that route, but I have been told by others that once they heal up and you get the "ok," that massaging the area prevents scar tissue and hardening. I am passing this along with out any personal knowledge, since I had no reconstruction. So check that out - you probably have! Anyway all the best to you. Relax and heal and play with the kitten.

    Hi Luvmygoats! Happy your back and sorry about the prep and testing.. Glad things are going well.

    Wish Cami would post in and get into it with Chevy since I enjoy their mock battles!

  • jazzygirl
    jazzygirl Posts: 12,047

    Luvmygoats- I had a scaly spot on my scalp for awhile. My PCP said it was nothing, but it got bigger and worse looking so I just went to the dermatologist and it was basal cell. We got that removed last summer and all is well. I hope yours is nothing, but important to get checked out. Sorry you have too many doc apts. June to July will be my zone......

  • Loveroflife
    Loveroflife Posts: 4,243

    Mommy, u out already? Did u have drive through surgery? Did u acquire any drain with the exchange. My PS said I will get one on each side...geez, thanks doc.

    Goats, you are in BSF?

  • luvmygoats
    luvmygoats Posts: 2,484

    Lover - no not BSF. Just local thru my church, Beth Moore studies and others. I'm pretty rural for BSF

  • susan3
    susan3 Posts: 2,631

    sas....asked doc today if this was a permanent condition from the last chemo...he said no, told me to try Claritin d. In my mind (scary place always) doesn't sound right to me. If that is the only place I can drain, I would rather not stop that. Could be wrong, but I am not going to add more meds just cause my eyes and nose keep running. Got enough my body is processing .

    On a vent...yes I am going to vent.....ahhhhhhhhhhhh insurance agencies. They have paid everything, always, not ever an easy process, phone calls and stuff, every time , but at least they pay. I get pet scans every three months. The hospitol got rid of their position of the person who handled Med/insurance stuff. It has been now outsourced. Doc has no idea who it is or where they are. They have declined part of the last two scans and it's in appeal now . The part they won't pay is the reading of the test by the radiologist. I told the head nurse today, the insurance company just wants my medical forms attached to the pet order. She told me today she doesn't have time to do that for everybody. This is where i pass the baton to my hubby and somehow after many phone calls it gets fixed. Communication shouldn't be that hard.

    I don't cry much, but I had a good one today. Had to wait in the parking lot till I commed down.

    And.........what is up with lymphadima .....thought I could talk to doc, get a sleeve, call it a day. But noooooooooooooo, there is a different doc I have to see to be evaluated and then get a prescription and then go somewhere else to get fitted. All you with lymphadima know this already. I had no clue. I said to the nurse, you see my arm, you have known me for 14 years, write a script and let's be done with this. Nope, everybody has a specialty . I want to go back to the docs making house call days...lol

    Ok I am done. Got my pjs on already and going to pull covers over my head.

    Ok I am not done....construction still isn't done, more things came in damaged and one thing is lost somewhere in shipping. And as a side note, my mom took me off all her bank stuff and house and it's all going to my brother. I honestly could care less where her money goes, but I didn't have to be taken to the bank to sign off on accounts I had my name on. She could have done a land trust and rewrote her will tocut me out without me knowing...it was mean the way it was done. All because my brother has always lived with my mom, and when she is gone she wants us to take care of him . There is nothing physically wrong with my brother. He is a loner. And chooses to be that way. He doesn't like people .so my mom wants him to live with us when she is gone so he is not alone. So I am beings punished for something I dont agree with and my brother has no idea she is working this behind his back.

    Wow, my floodgates are open...sorry...ooopppps, someone doesn't like sorry....sorry...lol

  • jazzygirl
    jazzygirl Posts: 12,047

    Susan- wow, you are having a bad day. Sorry about the crappy medical system and that your family is being so hard with you.

    Hugs sister, wishing you a peaceful evening and better day tomorrow.

  • susan3
    susan3 Posts: 2,631

    thanks jazz...it actually was very healing just typing that out and getting it out of my head :)

  • spookiesmom
    spookiesmom Posts: 8,178

    wow Susan, chit ful day! Hope tomorrow is better.

    Goatie, I couldn't resist.

  • spookiesmom
    spookiesmom Posts: 8,178

    nurse ??????

    Was reading on the ADA how ACE and ARB meds are NOT recommended for prevention of diabetic kidney disease in pts with normal bp. That would be me.

    Then it mentioned UACR(.30 mg. what does that mean???

  • luvmygoats
    luvmygoats Posts: 2,484

    Susan - ((hugs)). Glad you feel safe to vent here. BTW very glad that tornado missed you recently.

    Heck Spookie what is an ARB? I know ACE is ACE inhibitor. UACR search gives me urine albumin/creatinine ratio. Is that something on recent lab work? Don't know what the # you included means either.

  • jazzygirl
    jazzygirl Posts: 12,047

    I just have to say this, sometimes when I feel that everything is wrong with me, I watch the Judge Judy show at the end of the day and feel so much better about life.

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    This time there are no drains involved. PS says I can start showering on Sat. Love it when its a day surgery, much easier on the mind and body.

  • susan3
    susan3 Posts: 2,631

    oh jazz...you make me laugh...thanks.

    I am a three day person.....no matter what happens, in three days the world is a beautiful place again. Can't explain it...just how it's always been

  • susan3
    susan3 Posts: 2,631

    I know Ray....wasn't that a surprise...and not one of those good ones

  • jazzygirl
    jazzygirl Posts: 12,047

    I heard there is crazy weather from Texas heading on east. I hope everyone stays safe. Spring and tornadoes......

  • luvmygoats
    luvmygoats Posts: 2,484

    Hey Jazzy. How long were you not able to wash your hair after the basal cell removal?

    Yes, spring in Texas. Pollen and tornadoes.

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