INSOMNIACS place to talk in the wee hours

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  • spookiesmom
    spookiesmom Posts: 8,178

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  • Loveroflife
    Loveroflife Posts: 4,243

    I am jealous! Is that a Sheba Inu or Dingo

  • spookiesmom
    spookiesmom Posts: 8,178

    I don't know, probably a Sheba. It's a cute free app I found, there's all kinds of cute dogs on it.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Mamma Ditto Jazzy---she said it real good. Are you Catholic? Only ask b/c we are so good with feeling guilty about everything. i.e sending matresses away. Killing spiders, and getting negative people out of our lives

    Patty P Yay love to see you. Send me your address please.

    Smarrty, I may not get to it this week. In this stage of life I'm a major major procrastinator.

    Reading a Dan Brown book---lost symbol. I'm udside down on sleeping.

  • Chevyboy
    Chevyboy Posts: 10,258

    I'VE GOT IMPORTANT OWL CHIT TO DO................

    Marching burrowing owl <img class= Maybe this owl is thinking.... You put your right foot in, You put your right foot out; You put your right foot in, And you shake it all about." />

  • jazzygirl
    jazzygirl Posts: 12,047

    MammaRay- women are taught to always put others feeling first. It is why we inherently worry about saying no to things that don't work for us.

    Your friends may still want you to do something for them, so think about what they can do to help you. Run an errand for you, babysit your kids so you and your husband can have a date night, take you out for lunch. People will offer what they think they can or want to do. You can ask for something else if they offer and chances are, there will be something else that works better than the golf tournie.

    It was in the mid 80s here today and it felt like summer!

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Susan try this thread--------lot's of good info-----------read from the beginning

    https://community.breastcancer.org/forum/64/topic/811841?page=4#idx_94

  • Smaarty
    Smaarty Posts: 2,615

    sassy, no rush. That a good book, you'll enjoy it.

    Hey Patty, glad you posted.

    We got to 95 today, airs running full tilt.

    Had the endoscopy done Tuesday morning. Some inflammation that he took samples. Won't know anything for 3 weeks. That means they're growing cultures?

    Going to be house and dog sitting again, so I'll get more quilts done and going to read a book! Show you latter

  • mel147
    mel147 Posts: 291

    Sas - Very, very interesting reading going through all the links you posted regarding PPIs, Flonase, Vit D, etc. Thank you, again for all that. Don't know if I ever answered your question about whether or not they did a culture on DD2. They did not, although I did ask about it at her appt on Monday. Dr. said they usually only do that if it keeps coming back. The interesting thing...long story, but I asked Dr. again about using an antibiotic cream on the rash and she said to have her use the one she is using for her nose to try it and see what happens. With only two applications of that, rash is almost completely gone! The very interesting information in the link about Flonase makes me wonder if the sore in her nose came from that. It's so hard to say because she was off it for a little while and was not using it regularly when all this stuff started, so I don't know what came first. In any case, I hate meds and am always worried about side effects, so I'm hoping her sinuses will improve so she won't have to go back to any of the steroid sprays. The PPI and Flonase combo got her through a really tough spot last year, but I would prefer she not go back to either of them if she can avoid it. Thanks again and again!!

    Loveroflife - It was a steroid nasal spray that DD2 was using. She has not had to use an inhaler, but I did read some things about the inhalers and yeast issues and wondered if nasal spray could have also caused part of this problem. Loved your Double Delight!

    To everyone - I really enjoyed catching up on the posts! All the flower pictures were beautiful!!

    Mom2 mentioned NCIS - Somehow we didn't start with that one, but DH and I love NCIS LA and NCIA New Orleans. We were just looking on Netflix the other day to see if we could watch the regular NCIS and we didn't see it on there, which was a bummer!

    Smarty - glad your endoscopy is over! Hopefully you can get your results soon and get feeling better. Can't wait to see the next quilt!

    Good night, All!

  • blondiex46
    blondiex46 Posts: 2,726

    Mama u have to do what is right 4 u...

    Patty tried to call u again vm full. Glad to see u r ok

    Went on hospice today..know what it mean..it was alot of information.

  • wren44
    wren44 Posts: 8,075

    Blondie, Hope hospice is able to keep you comfortable and able to do anything you want for a long time. They can really move mountains when needed. I've seen people on here who did so well that hospice fired them. Hugs.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Mel, The number one cause of bacterial resistance-------Superbugs------------DOCS caused this-------------Docs resistance against culturing started in the the 1970's . I was there. No clue why docs stopped culturing. . But I was in the transition of culture the 'Whatever',  to just provide the broad spectrum antibiotic.  We are now in the scenario of antibiotics not being able to control bacteria. Bacteria's---that are resistant. Doc's in their arrongance have created this disasterous situation.  Pisses me off. 

    We had great drugs, they were not used rightly by the docs who did Paintball Therapy. Now we are in a mess.

    Science is now taking a different approach too. bacterial control.  Still pisses me off, didn't have to happen. Arrogance.

  • sas-schatzi
    sas-schatzi Posts: 15,889


    Okay Mel--------------------I was on a rant---went back an read your post again--------I've slowed down. Flonase can lead to Candida. I brought that link from  dailymed.com. Get them to culture DD 's mouth.

  • sas-schatzi
    sas-schatzi Posts: 15,889


    Blondie- Hospice is good-----------in a do over with Greg-------would have done it months earlier. In his case he still could have had chemo.. I was pissed to find out that this was so..........Lymphoma is different. He didn't have to go through what he did.

  • jazzygirl
    jazzygirl Posts: 12,047

    Blondie- good to hear about Hospice. I think so highly of them and have seen them help many. And I have also seen people go on on Hospice, and do better. This is good news sister. You deserve the best care!


  • Rosevalley
    Rosevalley Posts: 1,664

    Blondie-Yep hospice is a very fine thing. I am sure they will do wonders for making you comfy. Everyone I know says they should have gotten hospice in sooner, Hard to tell when I guess. My Dad died 17 days after hospice started, too late in my opinion. My Grandfather died of NonHodgkins Lymphoma. He complain of back pain and was dead 2 months later, awful. Now they have so many more treatments, back in the 1960's they didn't have as many.

    Just got back from watching Bold Expressive Arts Theater - BEAT. It was a performance at the Deaf school, very LOUD and colorful and cute. DD was performing with the middle school and highschool kids. All smiles and cheers and a good turn out! I didn't bring her flowers nope the kid loves flamming hot cheetos! Did her eyes light up or what, when I gave her that bag! Her big sissy drove down from college after classes all day to watch, brought her a Starbucks. Poor sissy has to be at Starbucks at 6:00am and won't be back home until 10pm. Then she has classes after work- ugh! Her little sister just beamed to see her there - worth it. DH and I gave her gas $. Sometimes it's so validating to have a 19 year old college sister take time off to see you perform at the age of 14. Mom and Dad are good - but Sissy rocks! Hug

  • jwoo
    jwoo Posts: 936

    I just wanted to pop in and tell you all how much i love you.


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    Sorry i have been mia- life is insane for me right now, and i am working through some stuff.

    Happy birthday and happy anniversary to all that have one in the past few weeks.

    I hope everyone is feeling good, pain free, and hopefully getting some rest.

    xoxoxoxoxo

    jeni

  • Loveroflife
    Loveroflife Posts: 4,243

    Mel- Flonase, similar to oral corticosteroid inhalers can cause oral thrust in the mouth.

    Ms. Blondie- Hugs to you.

    Rose, Flamming Hot Cheetos tastes better than flowers. Both of my girls love it too! Your older daughter is such a selfless sweet older sister. Such love is mirrored. Bless your heart for adopting your 2 younger girls

  • mostlymom
    mostlymom Posts: 378

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    Hugs Blondie

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    Glad its Friday at last! This last week has been a pressure cooker for me! My mom ordered from me and has been at me all week about where her order was. I was getting calls 2 or 3 times a day about it. Finally yesterday morning, she got the answer to her order status and everything is fine, but there was no need for her to constantly pester me about her order. I don't have control over that situation.

    So that is part of why I haven't been sleeping so well.

    Temps are supposed to get up into the 70s next week and we are supposed to see one day of 80 degrees.

  • Chevyboy
    Chevyboy Posts: 10,258

    Morning gals! I'm just so bummed...... My gal-friend ever since grade-school had a stroke! And she can't speak! I am just so shocked! I LIVED with her for 2 months about 13 years ago!!! I feel so bad...! Her Son answered one of my emails to her, and told me she is doing really good, but unable to speak.... I am just at a loss........ I've never been around or seen anyone with a stroke who can't talk.....

    And SHE and I are just crazy when we get together! I've emailed him, and asked what I can do.... Or not to do........

    Do you gals know more about this?

    And Blondie.... I'm so glad you will finally get the help and care that you need! THAT is good news! xoxoxo

  • jazzygirl
    jazzygirl Posts: 12,047

    Good morning friends. Happy May and wishing you a beautiful month ahead!

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  • Loveroflife
    Loveroflife Posts: 4,243

    Ms. Chevy, have you come across this one yet? Hope I won't get banned again for this, but will take the risk.

    https://www.caring.com/articles/stroke-prognosis


  • Loveroflife
    Loveroflife Posts: 4,243

    Ok, I am still on. Here is another one.

    http://www.healthline.com/health/stroke/massive-st...

    You can also go to American Stroke Association site.

    I'm really sorry that it has not been a good few weeks for you

  • PattyPeppermint
    PattyPeppermint Posts: 8,950

    hey Blondie. - I am not sure you have the right number for me. I haven't missed any calls and I don't have any voicemails ?? Maybe on your number. Concerned how you are doing ????

    Gm all

  • spookiesmom
    spookiesmom Posts: 8,178

    Ah chevy, your friend is still there. It will be different now,, but just love her as you always have.

    Blonde, thinking of you.

  • Rosevalley
    Rosevalley Posts: 1,664

    Spookie- said it well Chevy. Be there talk and banter like you always do, which will make your friend smile! She's there - just different, but she will appreciate you! Also it is not unusual for stroke patients to be very emotional, cry & seem to get upset. They can't control emotions as well, so just be supportive. My Dad went through a period where he would talk and it was just gibberish. He looked so surprised like-"where did that come from who said that?" It was upsetting to watch. I just talked about anything.. stuff in the papers, weather, told a story about the kids. I did validate that "that didn't come out the way you thought it should and sometimes that happens. Give it time for your brain to heal." His brain didn't heal. But we sat with him and folks talked and were there. It's hard to see someone like that. (((Hugs)))) for you Chevy. Lots going on in your world. Changes are so hard and growing old is hard.

    Momof2- now you're a sales rep it's hard! Funny your Mom about her order.. made me laugh. I hope your customers aren't all like that! Glad you are healing. Nice to see JWoo slip in! Phyllis- wonderful you got to spend time with DS and get 2 Springs in one year! Jazzy- that post in a clamshell.. cracked up! Sassy I love Dan Brown.. let me know how that one is, not read that.

    Loverof life- Yep Flamming hot Cheetos were a better call then flowers! Ha ha your kids like them too? My youngest just LOVES them. My oldest (age 21) and my youngest (age 14)are adopted and deaf. My biological daughter is 19 and of course she signs well, having lived with 2 deaf sisters her entire life. Poor kid didn't get home until after 10pm and had to be at starbucks at 6am! After 4 hours of that Am starbucks shift she goes to class- long day. She's a good kid, good grades and her little sister was thrilled to have her there. Friends from school were coming up-"who's that?" Youngest DD, " my college Sissy came to watch us perform!" Ohhh cool!

  • magdalene51
    magdalene51 Posts: 2,062

    Sheesh! I take a day off and Owlettes go crazy! Had the longest day in quite a while yesterday, and paying for it today. I had decided to switch PCP's since the cancer clinic opened a family care clinic in the same building, and it took a few weeks to get a first time patient appointment. Yesterday was the day. But what made it long was that I still don't have a car and my cousin drives me where I need to go. Would not have been a problem except that she ended up having a funeral yesterday. For those who don't know, my DC, who lives with us and is 78, is very active in choir at out church. She helps keep the robes and music organized and helps out in lots of ways, including singing. The funeral was for a choir member who also sings with a large chorale, which was sending members to sing with our choir, so cousin had to be there early to get them robes, and there wasn't going to be time for her to come home to get me for my appointment, so I had to go with her. I actually asked one of my rads drivers if she could take me, but she goes to the seniors game day and lunch at church... So I ended up there while I was waiting for DC. Played dominos, had lunch, saw a bunch of old friends and acquaintances, sat and chatted until DC showed up.

    New PCP was hilarious. Apologized for having sudafed brain, we talked and laughed and she listened and took notes, refilled my scripts, sent me for labs, scheduled a bone density test, come back in a month. I was so glad I made the change, especially when they sent me down to my old buddies in infusion for labs and I didn't have to worry about blowing out a vein or whether someone knew what a port was (much less how to access it!). Doc really put me at ease. She wants me to see my orthopedic doc and see what we can do for these joints.

    All in all a very long day for me, though enjoyable. One of the lunch ladies is a BC sister, we shared tattoos. Her husband died the day she had her 3rd chemo... I can't even imagine trying to go through this without DH.

    And I come back to find hootie hoos and jwoos and phyllidoos and all kinds of stuff! Ok that clamshell was rofl funny, sent it to a friend. You ladies are a lifeline.

    Oh, and I followed Chevy's link to heirloom roses, found a Cécile Brünner and I'm going to order it. Local garden shop doesn't have one. Here's the link:

    Cécile Brünner Rose

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    Everything was fine with mom until a bit ago. Another call about her order, even though its on the way! Doesn't she understand that I can't control when the status of her order is updated. None of my other customers have been bugging me about when their orders are coming. Even my hubby who ordered from me is being patient. I feel like telling her that I can't control when it gets there so stop pestering me about it. I even tried to explain that I have had that situation when I have put in orders of my own and it did no good!

  • jazzygirl
    jazzygirl Posts: 12,047

    Mommy- I had a friend long ago who became an Avon representative and had me hold a party with some of my grad school friends. One friend ordered some after shave for her husband and then never heard a word. Since I held the party, guess who was getting bugged all the time about where it was? So I know that pain. I think being an Avon rep is tricky business.

    First bloom from the pink prickly pear out back today!

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