INSOMNIACS place to talk in the wee hours
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Hi, all! Jumping in here...Advil is one I can't take. Was taking it years ago for some foot trouble and next thing I know...big tummy troubles. I also feel like a cortisone shot messed me up around the same time. All sorts of problems started with those two things. I hate taking meds because I seem to react negatively to lots of them!
Went to Relay for Life last night. The kids and I have gone to that many times over the years and always buy luminaries in Memory of or in Honor of some family members. A little strange this year to be on the other side of it doing the walk. Didn't actually stay for the lighting of the luminaries...we were getting tired, but the rest of the night was good. Did some cleaning today and listened to a Ted Talk by Brene Brown. Anyone heard of her? My cancer counselor suggested her talks. Have another one to listen to and will probably re-listen to the first one again. Counselor want me to make a wish list of what I want to do for ME...things that bring me joy...things I dream of doing. Is it odd that I'm happy just hanging out at home and doing stuff around the house? Seems kind of boring, but I don't know if I have a BIG thing I want to do. Will have to think about it more tomorrow. How about you ladies...what makes YOU happy???
Have a good night and take care, everyone
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No need to apologize. Haha can't wait either to see what our wise and clever Ms. Chevy makes of it. Thanks for the suggestion with the vibrator. Don't have one though
FDA should keep an eye on Celebrex. The Cox2 inhibitors can throw the balance of throboxane and prostacyclin off which in turn can lead to MI or heart attack. Honestly, I lost my trust in the FDA. I believe they knew about Vioxx problem but slow to act. It is sad how it all comes down to money
Hi Mel, I am boring like you. I'm Happy staying at home and doing things around the house. I also enjoy watching my girls playing chess right now and trying really hard to beat each other by making silly comments or laying silent fart to distract each other
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All I can take is Tylenol. All the Nsaids give me stomach trouble. I am suspicious that Tylenol isn't safe despite my doctor's swearing it is. I figure that a drug that causes liver failure in large doses probably has some bad effect with frequent smaller doses. I saw one study that said people who took Tylenol twice a week were 50% more likely to die the people who didn't take it at all.
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2nd time- good to hear from you and think of you often. I hope things are better with your husband. I know you have elder care issues going on too. Nevermind your own health. Sending you a big hug too!
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I have persistent and loud tinnitus and have had it since 2003 when I got a dvt in my right leg. The doctor I had put me on a gram of aspirin because she was too cheap for the shots.. Kaiser managed care. They were also the swell folks who told me if "I wanted to see a vascular surgeon for this that I would NEVER get a referral from Kaiser." Just for the record I switched insurance and went to a vascular surgeon who did a stellar job thrombectomy and vein stripping and ligating some funky anatomy! Yeah no issues after he fixed it! Sometimes you have to just bail. ugh.. Anyway after being on the asprin it gave me tinnitus, then the chemo made it worse, then arimidex made it louder... anyway it roars all day everyday. NSAIDS just kill my gut too. I get stomach pain and feel like a drank 4 expresso shots on an empty stomach.. not pleasant. I took celebrex for back pain and it works but I can't take it for long. Motrin also breaks my mouth out in tiny ulcers.. always pleasant.
Lovemy life- What did you used to do before you stayed home with your girls? I think the amount of pain my intestines are causing me means they need a break, sabbatical from digestion. My DH made me this huge salad, broccoli from the garden, spinach leaves snow peas... the works. I asked him if he wanted to kill me? I passed on the salad and salmon and potatoe salad.. looked good, smelled good. But it won't feel good. I ate yogurt. I miss coffee so much. Be well ya'll.
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I guess I'm boring too. I hang around the house, and go to the dog park. Bucket list? No, not really. Eyeore won't fly, thinks cruises are for drunks. Wouldn't be fun to go anywhere with him. I have white sugar sand beaches 10 min from my house if I want that.
Tinnitus, I have a fan by my bed, for hot flashes and white noise I focus on the fans hum, drowns out my static.
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Hello! I suck! I am really pissed at my friends for not understanding what I go through on tamoxifen! I'm not yelling..... just yelling! Waaaah! Where's my blankey?!😳
I know someone can relate in here.
What did I miss?
If you ever wonder, I'm on facebook, Stephanie Cortman.
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thanks, Blondie! I used to be blonde...started turning brown in my late 20's. Now I'm blonde again because it covers the grey. I'm in serious need of a touch up; my roots are almost 2 inches long so I probably should have gotten it done before my Lx. But no sense in getting it done when it's going to fall out in a few weeks. That's one upside of losing my hair. Think of all the $$ I'll save not spending $125 plus the tip every 8 weeks!?! And I'm hoping I won't have to pluck chin hair on a daily basis for at least a few months.
Overdid it with the family--only up for about 5 hours and I feel like I've spent the whole day clipping bushes and mowing the yard
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hi, Stephanie! I'm not there yet but I will be in a few months. Sounds like I'll be in for a treat when I finally start the hormones. Yay!
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So now wait!!!!!!!! I saw this scrum, and was just thinking, MAN I'de just like to be in the middle of that, and then I came to my senses, and kept on reading. I saw a practice game of Rugby once, at DU, and I didn't want to LEAVE! DAMN!
And then further reading finds Sass in bed with her vibrator again on her ears! I've TOLD her "Hon, no! Why don't you just sleep on your phone, and have it set to vibrate!?".... We had a percussion vibrator once.... That think would shake your teeth loose... No matter where you PUT it, it was just not a pleasant feeling! And then DH got his pace-maker, and his Doc said "QUIT USING THAT ON YOUR BACK!" "Let your wife have it!" But no, I declined and gave that thing away.
And I'm so sorry about all you gals taking all those things for what-ever it is you HAVE! Dang! I TRY and get you better with campo-phenique, turpentine, Aloe-Vera, Bag Balm, and Mustard Plastars, and you are still sick!
A typing-stutter???? Like I know what that is.
You guys I am so bummed..... I had sent a message to our other friends Daughter.... See, Carol, me and Anna used to all run around together... all through grade-school, junior high, and Anna & I went through highschool together... And we've stayed friends, through all these years...
So we lost touch with Anna, because she had "issues" and after her Husband passed, moved in with one of her Daughter's... We always would call her before this, and meet for lunch.... for YEARS! But then she had her hips replaced... wouldn't try and walk.... then John passed, and she moved into her Daughter's so they could all take care of her... She wouldn't ever call back, so we gave up...
Now Daughter must have told her I wrote about Carol having a stroke.... Anna writes back 2 dis-jointed messages... Now I feel so bad... She isn't thinking straight... doesn't remember us being at John's funeral... She says she enjoys her grand-kids, and G.grand-kids... and she seems to not remember anything... didn't mention Carol's stroke... Geez........... Known her since we were 12.
I guess I'll just write back about what she wrote.... nothing else... I just can't believe this crap happens to us! Maybe too many "shocks" in our lives take away our memories and our brains....
I must drink more coffee now.... and go walk outdoors and thank God for this day......
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chevy--so sorry about your friend. Not only do you have one gravely ill but the other is losing her faculties. That just plain sucks. My gran lived to be 102 but was sharp as a tack until she had a stroke days before her 100th birthday. Her memory went after that. She'd buried 6 of her 8 children but didn't remember the last 3 and kept asking when they were going to come visit her. Heartbreaking to watch.
Haven't slept all night. Bones are on fire even with another Claritin and a Vicodin. I had 2nd burns to both breasts (I can't seem to leave those things in peace!) from a cooking accident 4 years ago and had to undergo skin debriding, including my nipples, and that was a pleasant walk in the park compared to this. I think I may have to call my MO to get something stronger for the pain. Makes me feel weak because I've always had a ridiculously high pain tolerance.
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Good morning friends- lots of news here to read. I am going to go pick up a friend this morning that just finished chemo a few weeks ago and is still having some problems coming through that. She is anemic, and just needs someone to help her with a trip to the grocery store. I offered yesterday and you would have thought I was giving her a check for a million bucks. She wants to go out to eat after, and said we can, but lets take care of the must do's first; the groceries, me taking the bags in to unpack them and put things away for her. We can always do take out too, right? She is so anxious, as everyone is, as she comes through treatment to feel better, but knows it is a "process" for sure. We have talked a lot about that.
Stephanie- welcome to the thread. Living with SEs and also the longer term med protocols is no picnic. I am sorry you are having problems on Tamoxifen. I have been on anastrozole for 2 plus years and live with the SE's daily. I never told a lot of people about the 5 year protocol. But with stiff joints and sore feet, if they comment I don't move too fast anymore, I say it is because of some longer term medication I take to keep my reoccurrence risk down. I am done trying to make people understand who really don't care to anyways.
Rose- oh that salad your DH made sounded yummy, and hard to think of you not being able to partake in it. It sounds like yogurt works. Wishing you a better day today.
Chevy- I am truly sorry about Anna and Carol both being so ill. I am glad you are keeping in touch with everyone still.
I hope everyone else here is doing okay on this Sunday and wishing everyone a peaceful and pain-free day.
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Geez I never had a percocet in m life until my mastectomy and chemo. They didn't bother with vicodin. One and it took the edge right off. I would ask for that especially with the neulasta shots! I had ACT and adramycin is just evil- makes you feel like you have been hit by a bus. CT is hard enough! I hope you rest up and on the lighter side of losing your hair...it's summer and you live in a place where it's warm! Plus it was wild when my hair came back in - you never know what you will get. I had stick straight ash blond hair that came back grey and curly! A perm from within! Now you know something is strong when you get a perm from chemo. It was kind of fun having curly poofy hair. I liked it! Being bald was cold, but I live up North.
Spookie- I hear you I used to want to travel all over and now I don't. No cruises for me, I get sea sick snorkling... got back to the beach and puked twice. Pathetic. It was fun but I don't need to do it again. You do have the most gorgeous white sandy beaches and blue water and lots of birds. Why leave?
Chevy it's heartbreaking to see good people lose their personalities and memories. I watch it with my Mom. Fortitude for you! You are lucky you are upbeat and engaged in many things; It keeps folks sharp and able. I hope your two friends find their footing. Carol is lucky to have you. Gratitude is a wonderful quality to have, makes everything better. (((hugs)))
Welcome newbies! Be well everyone.
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No leg or underarm shaving for a while either!!! That's really strange.
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Marlana, If you get the pain down, take the pain medicine as prescribed. It's a lot easier to stay out of pain than it is to get out of pain. Don't worry about taking it as prescribed, the danger is when you start taking it for fun.
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Bummer - just lost my post! Not sure what I did!
Loveroflife - Glad you are enjoying watching your girls hang out together, even if it does involve silent farts!! Lol! I remember my brother and sister doing that, too when we were kids. I truly do just enjoy being at home!
Spookie - I think you have it made with white sugar and sand beaches so close! DH keeps talking about moving to Wilmington...some days I think it would be fun, some days I just want to stay here! I don't think I'd enjoy a cruise, either. Like to keep both feet on the ground - guess that's why I don't fly much, either. Good idea about the fan. I have that constant whirring in my ears, too...worst when going to bed at night - a fan is a good idea for some white noise. Of course I notice it NOW since I am thinking about it...must change subject!!
Stephanie - Welcome!
Marlan - Hope you can get some rest today after doing all the yard work
Chevy - very sorry to hear about your friend, Anna. That is very sad
Jazzy - hope you have a nice time helping your friend and having lunch with her!
Wrenn - I have to say, I'm suspicious about Tylenol, too. I try to get by taking as little as possible, but that is the one I tend to use, too since I have so much trouble with the other ones.
Blondie - Hope your trip to FL is wonderful!
Sas - love the glassware and the big hug pictures!
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A former co worker ate Tylenol like candy for pain, over a long period of time. Now she's on a liver transplant list.
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Spookie- dang. I know the pain killers can crap out your organs. I avoid them unless I really need them.
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It is scarey! She did this for years apparently. I guess it's ok for a few days once in a while.
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Spookie I was astonished when I met the first couple of patients who landed on dialysis after using ibuprofen over the recommended doses and for years. Then the first of social drinkers who couldn't take Ibuprofen because it hurt their stomachs, so over did it on Tylenol- which if you drink consistently... toasts your liver. Yep headed off to transplant land. These were young well educated people too. Just because it's OTC doesn't mean you can pop like candy. All of them were so surprised..."but it's just over the counter stuff? How could this happen?" Read the directions and dosingon the box..hmmm.
Well I made it out of the house for 3 hours and didn't need a bathroom!!! I took DD1 and DD3 to clay Sunday to make something for Dad. We had a nice time. DD1 was totally into it. DD3 smashed her clay and restarted 3 times before getting the results she wanted. In all very fun and theymade some very cute pieces. It was also fun to see all the other kids and their parents making things, talking and creating, telling stories about their art. What a hoot. I very much enjoy activities like these. Lovely day here just picture perfect!
Hope you are all having a good Sunday.
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Rose- yay for a successful outing!
I think people don't take much personal responsibility for things anymore. No one is going to lord over anyone and monitor their med intakes. Young people also think they can break all the rules and get away with it. I know, I was young once too!
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Roses--congrats on getting out!
Still drooling on my parents' couch. Good thing it's leather. Dad helped me wash my stinky dogs today--it took 45 minutes for both dogs and I needed a 3 hour nap to recover. Going to try to drive the 6 miles to my house after dinner.
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Marlanb- sounds like some of the worst part of the first treatment has hit. I am glad your father helped you with the dogs. You need lots of rest. Hope you move through to feeling better soon.
Are you also working (or trying to as you feel well enough?)
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Just stopping by to say hello. Worried about all you gals that may live in the flooded areas. Texas, especially looks so bad. Out here we have heat and drought..yuck.
My fur babies are doing well. My blind , Annie Mae had to have fatty lumps removed, but thankfully no cancer cells were found and she recovered well. My little mixed fox terrier rescue is still scared of almost everything , especially flies
) she will run in the yard chasing lizards, but if a fly buzzes by she runs and hides.
I've been looking at DIY backyard landscaping ideas to deal with the drought. Don't want to go all dirt because the dogs like the grass in the backyard. Pebbles get hot and my HOA hasn't approved artificial turf. Looking at installing pavers. Doesn't look too difficult when I watch those backyard makeovers shows
My health has been good, thank goodness. Last year I was so anemic. I've started watching diet and supplements carefully so hopefully I'll keep my red blood cells up.
Lots of new names here. Hello to all of you. Hugs to all....
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Just stopping by to say hello. Worried about all you gals that may live in the flooded areas. Texas, especially looks so bad. Out here we have heat and drought..yuck.
My fur babies are doing well. My blind , Annie Mae had to have fatty lumps removed, but thankfully no cancer cells were found and she recovered well. My little mixed fox terrier rescue is still scared of almost everything , especially flies) she will run in the yard chasing lizards, but if a fly buzzes by she runs and hides.
I've been looking at DIY backyard landscaping ideas to deal with the drought. Don't want to go all dirt because the dogs like the grass in the backyard. Pebbles get hot and my HOA hasn't approved artificial turf. Looking at installing pavers. Doesn't look too difficult when I watch those backyard makeovers shows
My health has been good, thank goodness. Last year I was so anemic. I've started watching diet and supplements carefully so hopefully I'll keep my red blood cells up.
Lots of new names here. Hello to all of you. Hugs to all....
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hey ladies. It's Sunday evening already. Ugh. Where did the weekend go ? It rained all weekend - boo. Well I am thankful we are not flooded and swimming like in TX. I've somehow got my days and nights mixed up. Friday night I was up sll night in pain , so sat night up all night since I slept all day. Today I slept like 4pm to 9 pm do ill probsbly be awake all night again. Boo. If it wasn't summer break for my boys it really wouldn't matter. But it is and I really don't like sleeping during the day when they are home they are plenty big to fend for themselves but they slways worry about me when I get a nap. During school I would get up with ds's and dh and get them all off then back to bed. Plus an afternoon nap so I can be as energetic as possible when they get home. But now summer break I have to figure out a new plan.
I finally caught up on all you guys have been up to but can't remember to post to all. So hugs and hellos all around.
Hootie hoo
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pawprint--I'm in the same boat for yards. I have mostly dirt and concrete in my backyard but it gets a little messy for the beasts when it rains. My "little guy" (75 lbs) loves jumping in puddles and my GSD can't stand to get his feet wet. I'm thinking about the artificial grass in the backyard--it's not like the HOA jerks can see over my fence any way!
Jazzygirl--Saturday night and today have felt the worst so far but I'm starting to feel "normal" tonight. I'm tentatively scheduled to go back to work Tuesday but not until 4:30 PM 🎶Because I like the nightlife, I gotta boogie...🎶. I may re-evaluate that Tuesday morning..
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Patty me2 slept from 7 to 11 now up
Another boring wek. Bb game tomorrow. Boys play but don't a as k me 2 go, guess i am embarrassing to ttheir friends. Watchingg murder she wrote..
Have a good week
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Well, 2:55 AM and I can't sleep so I thought I'd see what the night owls do for fun. I had surgery 4 days ago and slept so much since thst now I'm wide awake. I tried watching tv, but the cat seemed really bothered, lol.
Hi Blondie, we're kind of in the same neck of the woods. I live in the Lehigh Valley.
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Having problem with getting my thoughts down into writing...need sleep. Struggle with finding the right words. Will try again tomorrow.
Hi Debiann, hope someone will come along to chat with you soon. Gn
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