INSOMNIACS place to talk in the wee hours

17917927947967971462

Comments

  • U4iachic
    U4iachic Posts: 50

    Thank you! I'm 41, my daughter is 15. she has been a rock watching me go through chemo and now rads. She's just amazing. You all have been great!

  • sas-schatzi
    sas-schatzi Posts: 15,889

    To All:  Hydroxizine is a dangerous drug. Should have been taken off the market in the 90's. May be good for nausea, but can put you out in a space worm hole. I simply hate the drug. Had too many patients over the years with bad responses.

    Rosie, What not post---balderdash and fiddlesticks. BTW been meaning for weeks to tell you there is a Rosevalley street in Cocoa Beach or south of it. What's the origin of Rosevalley?

    Beatmom whoa Nellie..........We don't see you for months and you blow in without and update. Come on back girl and drop in for a visit :)

    U4, Yes , we are just peaches & cream. Don't let that list I sent you overwhelm you. Just put them in your favs and wander through them as time allows or when needed.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    imageimage

    latest find at SPCA, except mine has a scalloped beaded edge. Jeannette Glass Harp pattern. Picture doesn't do it justice. 2$image

     They're we go. Looks from the 1800's, but was produced from 1940's -1957image

    I wasn't happy with myself. I chipped it I think when I was cleaning it. But not noticeable. A thrif lady recently taught me how to file chips down. Use a paper emory board and just keep working it till the chip isn't sharp anymore.

     

    imageimageimage

  • Loveroflife
    Loveroflife Posts: 4,243

    Ms. Sass is home!!! Oh gosh! Did I just try to kill Marlana? Was not aware of problems with hydroxyzine?Was it the Atarax or Vistaril or both that your patients had problems with? What were the reactions? Btw, thank you for the linksHappy


  • jazzygirl
    jazzygirl Posts: 12,045

    U4- you have a lot going on. I don't live around family either (they are not that helpful anyways), but it is still very scary to be single and far away from folks. I hope you have good support around you with other resources like friends, church, maybe your job. I hope you have people to help you with care for your children too as you finish treatment.

    I am single too although no little ones. There is a singles thread I am part of and some ladies there who are also single moms. Place to talk about life in the single lane. Come check us out if it would help.

    https://community.breastcancer.org/forum/99/topic/...


  • sas-schatzi
    sas-schatzi Posts: 15,889
    Loverly no, no, no...........It messes with the brain too much. Out in the universe type thing. But I also, had many, many patients with no s.e.'s. It's just when they did, it could be from mild to severe. It only takes a few bad experiences and a nurse can get very wary of a drug.
    Your welcome on the links. I sent them to Marly too. Nice resources :)
  • blondiex46
    blondiex46 Posts: 2,726

    Welcome u4....glsd u found us...wonderful ladies here, lol

  • Rosevalley
    Rosevalley Posts: 1,664

    U4 welcome! It's tough being a parent and a single parent is even tougher. Reach out to help where ever you might find it! (((Hugs)))

    Well I almost got out of the house... made it to the driveway, we were going to go to the park basketball..creek walk gorgeous day... My intestines grumbled and cramped and I walked back to the house. DH, DD1 and DD3 left without me. I hope they have fun. My day is prison bound to the bathroom. No coffee, one piece of toast and 1/2 sandwich, diet pop. This so sucks. I should be thin WTH?

    So tell me what's going on in the world? Thank goodness for the internet.

  • Chevyboy
    Chevyboy Posts: 10,258

    Hah! Loverly, what are you doing??? You just tried to knock off Marlana? We musn't DO that.... They really frown upon us when we get too frisky! Besides you would probably need a prescription for that.... but we all know that even the BEST of prescriptions sometimes have a tendency to throw us out of whack.....

    U4.... Your Daughter is just 15? She sounds so sweet to you.... You both need each other.... Now take good care.....

  • blondiex46
    blondiex46 Posts: 2,726

    Rosie can we do anything...HOW ABOUT A GROUP HUG 4 ROSIE....IM IN..

  • MarlanaB
    MarlanaB Posts: 193

    loverly--I'm alive. I've been surgically attached to the sofa (or that could be drool gluing me down!) so I couldn't have tried any meds, good or bad, if I'd wanted to.

    U4iachick--welcome. I joined about 10 days ago and all the ladies have been welcoming, encouraging and empathetic. I'm a few years older than you and no kids but we all have BC in common. I understand the paranoia. I've got benign fibroids so I'm always feeling myself up! Long before I was diagnosed, I was starting to irritate the fibroids so I have to limit myself to one check per week. I have a friend that's a BC survivor that still does not self-exam at all because she's afraid of what she'll find. Not for me but the point is we all have our ways of dealing with that fear.

    Really bad morning for chemo day +3 but I'm starting to feel somewhat human again in the afternoon. Thank God, no more neupogen for this round.

  • sas-schatzi
    sas-schatzi Posts: 15,889


    Image result for free image group hug

  • sas-schatzi
    sas-schatzi Posts: 15,889

     


    Image result for free image group hug

  • sas-schatzi
    sas-schatzi Posts: 15,889


    Image result for free image group hug

  • Loveroflife
    Loveroflife Posts: 4,243

    For Rose, and you too Marlana, and Mamma Ray ( like your new avatar), and Ms. BLONDIE, and where is Patty?

    image

  • jazzygirl
    jazzygirl Posts: 12,045

    I am in on the group hug! Count me in.

    Rose- I am sorry that you were not able to go. So frustrating. Whenever I have GI issues, I always feel like I crap out about 20 pound and never see the scales move much. WTH is right. Hugs sister.

    Loveroflife- I love that pic. I just saw a cool clip on the local tv about a lamb who became BBF's with a golden. I found it on YouTube. So cute....

    Stormy and Tammy

    I have been lazy today, but getting my act together to go listen to outdoor jazz tonight! Rose, I hope you can enjoy an evening outside at least.

  • MarlanaB
    MarlanaB Posts: 193

    imagethanks loveroflife and jazzygirl!

    I'm in but I went for a rugby scrum since I'm trapped on the sofa flipping through every channel on my dad's direct TV sports package.

  • MarlanaB
    MarlanaB Posts: 193

    cousins are coming in from out of town so I'm trying to at least get myself into the shower. I probably should have passed on the visit but his mother was my aunt that had BC at the same age I am and I want to ask questions to which my mom doesn't remember the answers. My aunt was a 10 year survivor before being diagnosed with stage iv pancreatic cancer in 1993.

  • Loveroflife
    Loveroflife Posts: 4,243

    Ms. Sass, even Claritin, which is like a sugar pill for me and my kids, makes both my friend and her son very irritable. She notices that her son has a hard time controlling his temper whenever he is on it. Certain antihistamines at high doses can cause psychosis. I understand that all drugs have side effects because they are foreign to our bodies. Different people react differently to drugs and if you take multiple drugs, you have drug-drug interactions to consider.

  • sas-schatzi
    sas-schatzi Posts: 15,889


    Loverly, That's why I said what I said. A phrase I embraced  now 15 years ago was " all drugs have consequences". I lost part of my colon to Celebrex. Doctor approved by a rheumatologist, neurologist, PCP, gastroentrologist. I don't count the orthopedist b/c their cutters---no clue about drugs. Rare a surgeon is truly well versed in drugs. They work on automatic. All that approval it would seem someone of them should have known that I should have never been prescribed the drug. Especially the GI doc. History of diverticulosis and one bout of diverticulitis on all their charts.  At the time my chiropractor left town on a Harley to see the world. I figured --do the right thing. Make sure my life long Post Polio pain was just post polio pain. Reasonable. The Chiro seriously took care of the spine pain. How does that figure into Post polio. Not all the muscle groups are working right, puts extra work on the spine. After all that doctoring and my own research. I took Celebrex.

    What never popped in my google search was the Black Box Warning(BBW). The Cox 2 inhibitors were new at the time. Not exactly sure it was there when I started Celebrex. Anyhoos at a point I went to the old trusty Physicians Desk Reference(PDR). BBW: Not to be used with anyone with a history of ulcers, nasal polyps, diverticulosis, diverticulitis, has been known to cause spontaneous gastrointestinal rupture. I just stared at it. Yes, I was a nurse. Until the internet the PDR was our drug resource. I skipped it. Besides I had all these ologists telling me it was okay.Collectively, they're was maybe better than a 100 years of education and practice. I trusted.

    Lesson learned: Just when you think you know something look again. It was an old mantra.  Gained a new perspective when I had to apply it to myself.

  • 2nd_time_around
    2nd_time_around Posts: 14,084

    hi ladies! Just stopping by BCO to read PM's, let you know I'm still alive and kicking. Thank you to those of you thinking of me, especially those who have kind words. I love reading the posts on my (cheap) phone, doesn't show images, so I'm missing out. Officially 25 pages behind, will never catch up.

    Ipad is operating in slow motion mode, taking forever to type this out. Probably would be easier to write up as a word document, then C&P here.

    Anyway, life is finally, slowly starting to look a bit better. More details when I have more patience with this iPad..

    Hugs and love to all!


  • sas-schatzi
    sas-schatzi Posts: 15,889

    OHHHHH 2nd glad you came................

  • Rosevalley
    Rosevalley Posts: 1,664

    Howdy! 2nd time around! Glad to hear you are doing better! Come back in more often and tell us how you be! Take care of yourself Marlana because the fatigue after CT is wicked and creeps up.

    I had a persistent nasty case of plantar facitis years ago that the doctor wanted me to take Viox and I flat refused. My Uncle took Viox for his shoulder and later had an unexpected fatal heart attack. It made me wonder if they were at all connected since his cholecterol was great, he was thin, fit, active, low BP and here he just dies suddenly at 65. what role might that drug have played? Terrible what happened to you with celebrex, Sassy. We self medicate with so many things and think they are harmless.. not really. OTC meds can be very dangerous. As Sassy pointed out you can kill yourself over drinking water! Most doctors don't know enough about the drugs, just read off the screen and go.. hmm. No wonder either look at the sheer volume of drugs... insane amount of information.

    Thanks for the groop hug.. my gut is not happy these days. I wonder if just not eating for a while would calm the intestinal tissue down. Just do juice and water and nothing else. (((Hugs)))) back at the tribe!

  • spookiesmom
    spookiesmom Posts: 8,178

    I wanted to take Vioxx, but wasn't allowed because I was "too young". So then it was determined my age and problems were no longer an issue, I got the rx. Stuff worked great!!!! Then they pulled it off market. Back to pain. I tried ALL the rest. Each one made me feel like an elephant was sitting on my chest and I couldn't breathe.

    What actually helped the most with that pain? Retirement.

  • Loveroflife
    Loveroflife Posts: 4,243

    Oh crap! So sorry about your colon Ms. Sass. Things do get overlooked by our doctors. We just have to be our own advocate. Yes, we have so much to learn. We do take a risk when we put any chemical in our system. I am still having tinnitus from the Keflex I took a few weeks ago. Never suspected it because it is not one of the commonly reported ototoxic drug

  • Loveroflife
    Loveroflife Posts: 4,243

    2nd, good to hear from you too. I have a hard time typing on my phone too. My daughter just told me it's so painful to watch me type. I miss you posing on warm and fuzzy.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Loverly, I was in my mood when you first wrote about your tinnitus.Sorry, wasn't up to responding.  I've had it for a very long time. (Crips I have everything). The first year was a roar. It changes all the time now. 1-2 years ago during an irritating period of loudness, I googled it.  Found material on how to reset it. There's fancy stuff and expensive stuff out there, but the cheap way is I turn on my vibrating bed and rest the side of my head on the bed- no pillow. I sleep that way. Of course the bed goes off after I sleep. If I don't fall asleep, I turn the bed back on. In the morning there's a difference. I tried the back massager---different ways over mastoid, over ear, front of ear. it didn't work as well, but was better than nothing.  Google has lots of info. But since yours is new onset, that's an unknown. But, conversely, if you try to interfere with it early it may do better than letting a pattern develop. There has been recent news, very recent about new research re:tinnitus. It's changing accepted ideas...........I was in a mood......ignored it.........Google:new research on tinnitus 2015

    Good Lord, I hate to see what Chevy will make out of this>>>>>>>>>>>>>>>>>>>>>>>>>

  • Loveroflife
    Loveroflife Posts: 4,243

    Rose, try coconut juice(not milk) for electrolytes and fluid replacement and easily digest food like rice porridge cooked with chicken broth and fresh ginger

  • sas-schatzi
    sas-schatzi Posts: 15,889


    Vioxx was taken off the market b/c of it's stroke/ heart problem. I was surprised that the other Cox2 inhihibitors weren't taken off the market too because they're were complaints about them too. Not as badd as Vioxx though. Meloxicam and Celebrex are still on the market.

    http://www.npr.org/series/5033105/vioxx-the-downfall-of-a-drug

    Guess you call that a typing stutter.------inhihibitors

     

  • blondiex46
    blondiex46 Posts: 2,726

    Sassie thinking of u

    2nd...thanks 4 checking in

    Mar, sorry...thinking of u also

    Welcome 4 the hug...