INSOMNIACS place to talk in the wee hours
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Rosevalley: Thinking of you. Glad you have a memorable trip to Florida. Hope you are comfortable at home.0
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Tonight at the bird feeder. Rufous hummingbird.
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Jazzy, is that from your backyard?
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Frey, did you paint that?
Rose, have been thinking about you too.
Ms. Smarty, beautiful giant bird cage!
Ms. CHEVY, forgot to mention that many years ago I found a single mushroom in one of my large planter pot that looked similar to this
and after a few days, it looked like this with more pinkish color
Scared me to deathwhen I first saw it. I thought it was someone's finger!
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Ms. Sas, I think the glass piece you gave me has dual purpose not only as a candle holder
but also as a holder for mint bits.
It is so beautiful and delicate. Love it! Thank you
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Alright , the better wedding pics taken, of course, by the professional photographer.
A fairy tale wedding:
"Belle" and "Mini Belle" anxiously waiting to walk down the aisle
If the bride is "Belle", then the groom is........??? Yup......the poor guy is the "Beast".
The Handler and the "Mini Beast (ring bearer)"
Oops wrong way-confused and nervous handler, instead of guiding " Mini Beast" to Brandon, the groom, he(the handler) took the little "Beast" to Brandon, his brother.
Flower Girl...Groom chokes in tears at this point at the other end
The Bride and her Father- notice the footwears...they are actually black socks!!!! That is my Dad for you. Hah! He didn't want to show off his "Fred Flintstone" feet and be bare foot like everyone else.
The nameless princes and princesses-Snow White (my sister), Aurora (bride's best friend), Jasmine, Mulan, Cinderella, and Ariel.
The Prince and his princess as husband and wife.
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nice pics lovely
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Hi there Ms. Smarty! It's about 6:00 am there right? Did you get any rest? Waiting for scenic and food pics.........have fun touring the town today.
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LOVERLY trust me, carefully turn the Angel right side up. Glad you love it. Me too.she looks great with your lighting. What are we doing up?
Boyd in your pocket for bx today
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Love the Fairytale wedding Wow! So amazing
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What are YOU doing up so late? It's almost 2 am your time! I am getting ready for bed as I have to be up early to take DD to school early tomorrow for Senior Sunrise. Good night and sweet dreams.
Boyd, in your pocket tomorrow too.
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Thanks everyone so ready to find out but not to fond of the needle aspect.
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So that explains my lifetime insomnia.....
Boyd, got my fingers crossed for you tomorrow. Deep breaths & go to your happy place. I hope you get the results Friday, but unlikely. I got mine in 24 hours, but I don't think that is common.
Smaarty, what a beautiful entrance to your hotel. I loved Dublin, wish I had spent more time there.
Hello to all....
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Rose, you're in my prayers.
In your pocket Boyd.
Love the wedding pictures.
Had a blast with DGS. Took him to the Udvar-Hazy Air and Space Museum out by Dulles airport. Has a hanger with Discovery, Enola Gay, Concorde, you name it and it seems to have it. He wanted to use my iPad to play mahjong on the ride to it and the next thing I know I hear him talking. He is now taking video of the drive to the museum and narrating it. He had so much fun taking videos in the museum. Call me nuts for letting an 8 yo have full reign of my iPad. He asked that I send them to his dad. They are going to put them together so he can show his classmates what he did on his semester break (they go to school year round). Sas, asked him what he likes about the US - toys and our houses (as we have basements here). Didn't have answers for what he didn't like or what he would change. Now to ship off his souvenirs and a couple of toys I had wanting for him that he wanted to take home.
Almost have full range of motion back in the left shoulder. Have a good physical therapist. She's thinking today might be my last session. Just need to work on getting my hand to go across my back. Can get it partially across.
BBL bedtime is finally calling.
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great pics everyone!!
In your pocket Boyd
Wish I could sleep
Almost 2 here and gotta get up at 6:30. Work, then the kids are coming down from Michigan. Everyone needs s cut and color. Maybe we can all nap together first, then have a salon party
Hope everyone is restfully sleeping.
Night night.....I hope
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wide awake and out of melatonin
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Hi Susan... I'm up. hope your group cut and color goes well! Sorry you have to be up in so short a time - hope you get some sleep. Have a great day tomorrow!
Boyd good luck with the biopsy. Hope it's benign. The biopsies do not hurt and it's over with quickly. Smarty love the hotel!! Post pictures of Ireland. Love the dog yoga post and allthe wedding pictures.. beautiful and different! Lovely to have the ocean as a back drop! Spookie Yoohooo on finally getting the arm pump! Lymphadema is such a pain in the arm!! May this be your ticket to less hassle and more comfort. Chevy love your posts. Love the tea and goat stories and I can hardly keep up with everybody. Enjoyed the pictures and photo of Sass, Spookie and Loverly. Hugs to all I missed.
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hi ladies, glad I found this thread
I did a search on cardiomyopathy and this thread turned up. I went to last page and saw others in my time zone awake too. Anyone have any experience with this? I'm asymptomatic. Initial EF was 64%. Have had high bp. Next echo said 51% and Herceptin was held. A month later which included maybe 2 weeks of heart meds went to low normal or 56% but bp not optimized so H still held. Next echo we all thought would be back to 60s and it didn't move! Now cardiologist wants MRI and I'm freaking out. Meanwhile, although not the best bp is responding to meds. Dr is gingerly managing the dosage to find the right dose.
Since finishing rads on 7/31 I resumed my supplements coq10, acytal l-carnitine. Dr put me on magnesium bec it was just below norm at 1.4. Reading a book by Dr. Sinatra says the 'awesome foursome' are the above mentioned and d-ribose which just arrived Monday. So now I'm on all four. My issue is I feel GREAT! I work out, run, weight train eliptical. So what's with the heart issues? It makes me so sad. I also juice as well and IF.
Read that grapefruit can interfere with my bp meds. And I was od'ing on them between last two echos. So I'm hoping that was the issue and my EF returns to normal. Just not sure how grapefruit affects it tho. My mother said most people advised to stay away from it when on bp meds. Never heard of it, nor did it say on Rx.
Anyway hoping for advice, experience, encouragement. Thanks ladies
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Loverly- your photos of the wedding are awesome. I love the whole thing from the setting, the dog in the wedding, the bridesmaids in bare feet and more. I am so glad the weather was good that day for the event!
Yes, that hummingbird was at my backyard feeder last night. There have been a lot of hummers in the backyard lately, but this little fellow has been dominating the scene around the hummingbird feeder. The rofous hummingbird as an aggressive personality!
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Oh HI miss Mary! Welcome to the Heinz 57 thread...Ha! That means we talk about EVERYthing! You mean you have high BP too? My little didkens Daughter just told me SHE has that too! I mean how do KIDS get it, when us older ones don't? So Doc has her on some kind of meds.... she even read where it CAN cause Tinnitis...which is just one more thing she deals with... so maybe something will help her... Maybe one of her BIG drinks she mixes up?
Also Loverly... BEAUTIful photo's! A fairy-tale wedding for sure.... I love the picture of the two peeking out the window. All of those pics are beautiful memories! WE got married at a JP... couldn't afford a wedding... But it was a "dream" come true for me.
We were only 20... (actually HE was 19, but turned 20, 3 months later)
I had to drive us there, because he lost his license for too many loud pipes.... Ha! Got it back a few days later, just in time to drive up to the Mountains for our honeymoon in a cabin! We were soooooooo young, but happier than I had ever been.... just us two together, in our own little tiny 1/2 of a double, used furniture, and beginning the rest of our lives! Been almost 58 years now...! We are really blessed..........
Loverly! Hah! I'm glad YOU posted those "other" pictures, because I had reservations.... (yeah, I know, hard to believe!) But those mushrooms were just hysterical! I thought "DAMN"! I can grow them WILD!
Thinking of you today Boyd! Best wishes.... okay? We're in your pockets........
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So you know what I just figured out? If you start a long post, and don't want to lose it, just hit "preview" and that much is THERE! Then keep going on, like I just did! I hit it twice, in mid sentence! I am SUCH a genius........... I boggle my own mind sometimes.
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hang in there Boyd
hope all goes well. Still in your pocket Welcome Mary, I have no info to share with what you are experiencing. Hope it's the grapefruit. You actually, I think, aren't suppose to eat grapefruit with most meds. But I could be wrong and our local information gatherer , sas, will have lots of info for you soon...I am sure. She is great.
Didn't sleep long, but feel ok this morning. Kids will be here by 10 this morning.
Hi everyone. Hope everyone can have a great day today.
. Pain free and fun. XXOO0 -
Welcome Mary, post your question on the thread linked above. You will find many knowledgeable ladies on herceptin there.
Good luck to you.
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Yea, it's true about grapefruit and bp meds. Sas will have the explanation if and when she wakes up. They don't like me. My EF has gone down too, I blame adriamycin.
Loverly, the pics are great!!your dad looks like any other tourist around here!!
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Thinking of yo Boyd. Hugs!
Love- Those wedding photos are so pretty. Love the ladies dresses.
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Morning Owlies, Ah such faith. I know some stuff, other stuff I don't.
Mary hello. Sorry, you are having trouble. The easy part first. 1.Grapefruit/GF juice interacts with so many drugs that it's simpler to not use it while taking drugs than to figure out which ones it does interact with. 2.You are taking supplements. I would suggest that you only take supplements if approved by your docs. Anecdotal recommendations of chemicals has no value and can be unsafe. Granted the pharmaceutical drugs have problems, but they have at least gone through testing to determine lot's of things about them. Chemical makeup, action within the body, side affects, drug interactions, and safe dose/route.
The major reason supplements aren't tested is it can take billions to bring a drug to market to be patened(sic). Most supplements can't be pattened. The place to look for supplement info is NCCAM a division of NIH. National Center for Complimentary and Alternative Medicine division of the National Institute of Health.
Your own phrase I'm od'ing on them. Girl be careful.
In order to deal with the heart, you must have a cardiologist. Please, make them aware of the supplements. The phrase describing taking too much is slang "The more is better theory". Not true. It can damage and or kill. Not the goal.
My guess is you are on Coreg/caravidol. There is a newer drug on the market, but is cost prohibitive. Coreg has stood the test of time and now is very inexpensive. Either way you are likely on a Beta Blocker. Perhaps an Ace inhibitor, most common Lisinopril. That combo is universally used. Plus, a diuretic(variable). A diuretic like HCTZ is usually the first line drug in new onset Hypertension--HTN ( sustained elevated BP), but your situation is different, it's drug or rad induced HTN. None of these drugs influence magnesium-Mg. Again supplement amount should be directed by your doc which is what is happening.
You're EF change is early. It did show some response to medicine. GREAT. You're docs have associated with your Herceptin and are watching that close. Also, great. The EF at 56% is in the normal range. What the change indicates is your heart is being affected by the drug. I know you understand that. Hopefully, the docs have told you that sometimes the heart doesn't recover. Your exercise and comfort won't be affected till the EF is lower. Generally, below 50%.
From here on out you should be under the care of a cardiologist for life. Bummer, but true.
If you PM me your drug list I will put it through my drug checker through Genelex. You could get a subscription to it for around 24$. Great when you add a new drug to the soup to see how it works and interacts with your other drugs.
As Debiann suggested going to the Herceptin thread is what you need to do. The reason I spent this much time is I hope I was able to help with what I do know. Chemo drugs are not in my repertoire. Be careful about taking and doing anything not approved by your cardiologist. Those heart cells once damaged may not recover. Always put safety first Good luck
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Mary, Google alternative and complimentary medicine and Germany. They are in to research. Haven't looked at them in a long time.
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Good morning lovely ladies!
Susan, hope you have good visit with the kids. Hope sleep deprivation won't cause any of your clients who need coloring today to walk out of the salon with rainbow hair.
Rose, I can't keep up with the ladies either.
Jazzy, saw this when I had a stroll on the beach
Sunset yoga
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Welcome Mary! Don't have enlarged heart and grateful I don't have to do Herceptin as I am also Her2+++. Furanocoumarins, compounds found in grapefruits, can block the break down of drugs for elimination from the body. Norvasc and Cozaar,other blood pressure meds, some chemo meds, and even Herceptin can be affected by grapefruit. Some BP meds don't work as well in certain ethnic groups.Hopefully, your EF will go up soon.
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Loverly, getting closer
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