INSOMNIACS place to talk in the wee hours
Comments
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But before the snow picture. Dia Dos Muertos (All Saints Day) is the day after Halloween and a big deal here. They have something called the Marigold Parade and one year, I played in a salsa band for the event. Check this out, very New Mexico.
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Wow 4" is a lot for you, isn't it? Like about half your annual total? I'd like that, I hate the mess, and the way low pressure makes me feel.
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I have my first oncologist appoinment tomorrow. Definitely not doing much sleeping tonight. Jazzygirl, that horse is gorgeous and very cool!
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Hey, Loverly you are the drug chick--right? Loverly, anything new on the market for pain that doesn't have Mu receptor turn offs? Very much want pain relief, but can't risk anymore colon. I thought Baclofen was going to be great---chit. Thought about revisiting it with 10 mg in 24 hours. Worth a try. I know the s.e.'s now, for me are euphoria, hopping legs, and no sleep, probably take no more often than two days in a row. It was that third day that got me. Or I could take it every other day. What do you think?
Rosie, Loverly knows........
Spookie YAY A GREAT DAY!! X-mas tree in the box on the shelf waiting for YOU. Look on Pinktober I had a question for you
Chevy I cried, and I reposted it on Pinktober. We are so busy about pinking and pinkwashing, it's beautiful to see these children using pink in such a heartful way.
Susan ,you just made me choke up again. You and DD have such a close bond. Ah hah.............another wonderful thing she was in High school, now she's beyond college, married , and prego HURRAH`.
Jazzy, Rain barrels out? Ohh take pics of all the dessert flowers that bloom?
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Cubbie, Welcome here newbie, Tough things going on. Stay with us awhile and have some tea?
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Thanks, sas, I'd love some virtual tea!
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Cubbie how can we help you? Enjoying the tea? Must find some chocolates to go with the biscuits.................Tsk, could only find these
Cubbie dearie the page turned.... Do go to the bottom right and click on the next page.
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Ms. CHEVY and Susan, you both made me cry.
Jazzy, you probably know by now I'm impatient because of the OCD. I'm still waiting for Rose to post a picture of the dress she made for her daughter.
Ms. Spookie, what did you win and what did you compromise?
Ms. SAS, oh my dear!! Can't pick my brain. It hurts just thinking about your questions. You probably know more about drug than me. Ha! What happened to your colon? Don't listen to her, Rose. I don't know nothing. I'm learning like everyone else.
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Loverly tsk we are having tea, talk of colons Hrmph....Do you have any chocolates?
Cubbie may not know about page turnings. I didn't at first............still must find chocolates
Ah here we go
Have one with your tea? Now tell me what's on you mind?0 -
Welcome Cubbie Bear. Ms. CHEVY will drop in tomorrow morning ( she wakes up before the birds and roosters) to welcome you and change your name.
What you need is spa tea.....
to help relax you....or do you prefer the garden?
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Hi Cubbie- welcome to our thread. I hope your onc apt goes well tomorrow. Were you just diagnosed? Let us know how we can help you!
Sassy- flower blooms have come and gone. We are heading into foliage change and hope to have some good picks of the cottonwoods soon. They turn a lovely shade of gold!
Spookie- yes, our average is around 8 inches but we already hit that earlier this year with El Ninjo rains in May and monsoons this summer. Very wet year for the desert, not seen this since I first moved here and we had wet summers and snowy winters.
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Loverly, doc wanted me to take an ARB because I'm diabetic. I tried an ACE, got some really wacky low bp, have been on 2 bp meds for 30 years that are doing just fine. I said I was afraid of it and wouldn't take it. That my cardio said I didn't need it. Agreed. I won!!!
Had me on Lasix. Was making me nauseous. Going to try something else. Compromise.
Sas, I saw that, first time ever I think.
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BBL. Got to go walk the dog( she is waiting for me patiently) and pick up the girls from swim practice
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Spookie " Sas, I saw that, first time ever I think." context? Sabadell. I need to listen to it every so often.
different version . Love the kidshttps://www.youtube.com/watch?v=y0-2d__wi7k
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Wow, what a proper tea! Sorry I was away a bit, I was making some soup for a late supper.
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Turned out to be a good time for the veggie soup, since the site was down.
Jazzygirl, yes, I was just diagnosed a few weeks ago. Still in that loads of tears phase (it is just a phase, right?). I live alone, so it's good to have people online to talk to when things get stressful.
That's interesting that things have been so rainy in the desert as well. I live in the Midwest, and it's been a crazy year. My basement has flooded twice! Haven't seen it this rainy in 25 years.
Lovely, hope you and the dog had a nice walk.
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Ms. Sas, what did you do to cause the system to go haywire that BCO had to give us all a time out???
Ms. Spookie, hope you tolerate the different diuretic he put you on.
Cubbie, it's a roller coaster ride. I couldn't sleep and eat well at the beginning. Lost about 7 pounds which was a lot for me as I am small frame. I cried a lot at the beginning. The fear of the unknown is the worst. The anxiety was a mental torture. Your mind can take you to a dark place. Try not to let it. I have two girls. They were 16 and 11 when I was diagnosed. I was more worried about them. Didn't want them to be motherless at such young age. I was lucky mine turned out to be DCIS with some microinvasion. Only treatment was surgery. Hopefully, that took care of the beast. Because tumor was ER/PR-, no tamoxifen. Herceptin was not warranted--side effects does not outweigh benefit per oncologist. In a way, I am glad I don't have to deal with the side effects of meds, but on the other hand I really don't have the "protection" the meds provide. Oh well, you just move on and thank God for everyday you are given.
Oh, the walk with Mitzy, the dog,was nice. As a matter of fact, she is snoring right now as I am typing. Haha. We tried this new head collar on her and it works wonder. It works like a halter on a horse. She doesn't pull on the leash anymore. Now I can say that I am walking her and she is not walking me. Ha!! We just got her about 3 weeks ago from the SPCA. She has some issues with with anxiety among others. I came home yesterday to find most of stuffing inside her pillow all over the crate...major separation anxiety. Poor thing. Any of you ladies who know how to help a dog get over the anxiety, please help.
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I lost this big long post.. crud. Radiation went well saw a young doctor who didn't look much over 25, PHD in research and full minted radiation oncologist...wow. Anyway I am tattooed and will get zapped Monday. They will do left shoulder, left hip and right femur. Hope this works to alleviate the pain. Fingers crossed.
Jazzy- loved the photos. DH and i watched that Opra show about Beliefs. They had gorgeous pictures of the desert in bloom and all seasons. I have learned so much. I guess explosive anger has touched many of us growing up. sucks..but is a source of strength later. No Mud no Lotus.
welcome Cubbie. now that you have had welcome spa and virtual tea Chevy will need to give you a nick name. Good luck with your appointment.
Hugs to all who need them!
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welcome cubbie....maybe as in Chicago Cubs...sad they lost, but a great great season. I am from the Chicago area. But you might just like bears...we will see
Going for test tomorrow....ahhhhhh should be used to them...don't you think???
Rossi, hope the rads go well.
I will be in Wisconsin over the weekend for a wedding. So might be off a few days this weekend.
Take care all!!!
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Loverly, Are you using a Gentle Leader? We fostered a pit bull/basenji mix and had to use one to be in charge. She preferred pulling us, but we liked being in charge.
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Ms. Wren, yes!! It's night and day compared to a standard collar. I feltso bad trying to correct her with the standard one. Was so afraid I would damage her throat. She is such a strong girl for a skinny thing
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Loverly, I was curious about those dog halters when I first saw one. They look like a great idea, although I've never had a dog to try one out with. When I was a kid, however, we had a couple of dogs who were bad about pulling on the !east. They weren't large dogs, so it was more of a nuisance than anything else, but those halters look like they would have made walking them much easier.
My dog when I was a kid was pretty anxious, but never destructive about it. I think what helped him the most was time - being able to see that he could count on us. He'd had a couple of different homes before he came to us.
Thanks for sharing your experience with me - I guess my feelings are pretty normal. I too have lost weight with this diagnosis. Sometimes I just don't feel like eating. Sleeping has been rough. Lots of bad dreams.
Rosevalley, thank you for the welcome. I hope your treatments go well.
Susan, yes, I did pick the name because the Cubs were in the middle of their playoffs when I signed up. They did so much better than I expected this year, they are a young team and I didn't think they'd go so far into the playoffs. Very exciting and a nice distraction under the circumstances. I will miss baseball season.
I hope your test goes well. A weekend trip for a wedding sounds like fun.
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Cubbie, hope you had some zzz. Best wishes with the doctor appointment. Hang in there.
Ms. CHEVY, I am up before you again??
Susan, hoping nothing but favorable results. Have fun at the wedding
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Cubbie: to answer one of your original questions--I promise nothing about future emotional upheavals, or lack thereof, but that initial storm of tears, whatifs and brain gremlins does start fading as you progress through the process. Though that said, sometimes external support is needed!
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Ms. Sas, could you please clarify your question on the Mu receptor for me?? Sorry I am slow and don't catch on right away. What happened with the colon? I can try and pretend to be Sherlock Holmes. Ha! Regarding baclofen, I guess the only way to find out is to revisit it. Is it worth the trouble?? Only you will know. You are probably one of those rare people who have a special way of processing drugs. I hope the decrease in dose will help with the spasm/pain with tolerable side effects. I hope what you experienced was not the beginning of mania. I was going to say you are brave for wanting to test the water again, but I think I understand why you need to. Hug
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Cubbie, Queenie is right.
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Morning gals! Yes I'm up! And the rest of you guys are probably still sleeping... "hopefully."...
CUBBIE! I LOVE that name... Is that your "real" name? So I'll bet your family of bears named you that.... In FACT! I myself have a "cubbie" in my bed.... DH gave him to me a few years ago, and I just feel "safe" with him there....
DH has been relegated to the other bed.... but sometimes he comes in with me, and I love it... With my sore hip, and him tossing and turning and raising hell in the bed, it's just best we have our "own" spaces...
Getting back to what you were saying on another thread.... I miss my Dad too! He passed away Jan 1 2009... and I still miss that little chit..... See, all my life he was lost in his drinking.... And not the nicest guy.... But they moved when I became engaged, so all their problems, etc. were gone from here.... But it wasn't until after Mom died, did I learn what a great MAN he was! Sure he drank and made our lives miserable, but if Mom could take him, that's all that mattered... But when we lost her, he slowly changed into the sweet, caring Dad I always wanted...! I learned to love him.... even though he drank.... but I learned to accept him for the way he was...... He mourned my Mom something awful! He would call me 2-3 times a day, just wanting to talk about her, and cry with me..........
So that last year of his life, I made lots of trips to California to be with him..... We would sit and laugh and talk and he was my sweetest "best friend." But he started going down-hill... When I look back on it now, I don't think he wanted to live without her.... and I couldn't go back to be with him all the time!
I tried so hard to help him... he COULDN'T live at this altitude... That smoking and drinking just wasn't NICE to him after awhile........ I think he mostly just gave up.... and it's like he died of a broken heart, only a year after we lost Mom.... At least that's what I think......... But you will always think of your Dad... I didn't like him when my Brother and I were little... But I learned to love him, when I knew he loved me...........
Just cherish your feelings you have for your loved ones.... I wish I could just talk to him once more......... Okay.... now I'm sad.... BBL
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Hi Cubby!!
NOOOOOOO Chevy can't be sad. Not the Colorado early chirping bird!!!
Sas, what you said on Pinktober.
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Thanks Queenie and Lovely. I'm sure it is never easy, but I hope I can one day sleep better and enjoy things again. I did manage to sleep off and on, but I still feel tired. Thank you for the wisdom and support.
Chevy, I'm glad you had some good times with your Dad. I always feel kind of sad when people say they didn't have the kind of Dad I did - I'm sorry that they missed out on that. Thinking of him and the good times we had when I was a kid, helps at night when I'm scared and lonely.
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