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Things I never knew about breast cancer

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  • JuniperCat
    JuniperCat Member Posts: 392
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    Thank you so much, Traveltext!

  • murielwhite5
    murielwhite5 Member Posts: 55
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    Hi everyone, Another thing I have learnt about BC is that the ladies with lower stages/grades need to be VERY observant and advocate for themselves. Far to many doctors and specialists keep telling you "Well you are worrying about nothing as you are a low risk" As we all know there are many ladies on this forum who started out with stage 1 and progressed to stage 4 Be vigilant but enjoy life every day!!! Best wishes to you all Love Muriel

  • traveltext
    traveltext Member Posts: 1,051
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    Thanks Murial, so do the gentlemen with lower bc grades/stages.


  • murielwhite5
    murielwhite5 Member Posts: 55
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    Hi Traveltext, Sorry I didn't mention the male populations who develop breast cancer. All the best to you. I have had fun doing this post!! Best wishes Muriel

  • traveltext
    traveltext Member Posts: 1,051
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    This is a fantastic thread Muriel, good on you for starting it.


  • sunseta1969
    sunseta1969 Member Posts: 5
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    This is such a good thread. I didn't know that ongoing pain could be an indicator of mets. I also didn't know that 2 different radiologist would say different things. I still don't know if I have mets but hope to find out on Monday. I also learned that these boards are a source of great comfort. I went through my breast cancer reading these boards. Not posting very much. And eventually stopped even reading them. Everything went so fast and relatively easy for me. I think I thought I didn't belong anymore. Now I am faced with possible mets and I find myself back here reading and trying to reach out to people again. There is so much knowledge here and so many people that genuinely care. I think I was probably a little too selfish my first go around and being faced with it again (possibly) I find myself turning back to the same boards that helped me so much the first time.

  • murielwhite5
    murielwhite5 Member Posts: 55
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    Hi Everyone out there Thought I would breath some life back into this subject as quite a few people quite liked it. Thought it would be better to say something rather than just say BUMP. Hope everyone out there is doing well. Best wishes Muriel

  • traveltext
    traveltext Member Posts: 1,051
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    Good idea Muriel.

    I never knew that 28% of men who get breast cancer go on to develop prostate cancer as a second primary.

  • murielwhite5
    murielwhite5 Member Posts: 55
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    Hi TravelText, I didn't know that either!!! We are so clueless when we start with this 'journey/nightmare/or whatever! 2 I am still not good myself, have had neurological symptoms since last March 2016. Still don't know if its to do with breast cancer or something else. Went from a very fit person to one who shuffles along with a walking frame and disabled sticker!! See my fourth Neurologist at the end of May and hoping for some answers. All the best to all of you out there. Muriel

  • traveltext
    traveltext Member Posts: 1,051
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    Murial, it's a great shame that you have suffered lost mobility. I've never heard of this in relation to Stage 1 BC. Let us know what your latest Neurologist thinks the problem is.


  • brutersmom
    brutersmom Member Posts: 895
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    My dad had prostate cancer. He had one dose of chemo and lost his ability to walk. He gave up after that. That was one of the reasons I chose not to do chemo with a stage on breast cancer even though it was grade 3. All but one of my cancer DR's supported my decision. The one that did not was the primary MO. I fired him. Cancer is such a tough disease to know what is the best treatment option for our situation.

  • murielwhite5
    murielwhite5 Member Posts: 55
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    Hi Brutersmom, Solteo and Traveltext, Thank you for your replies. My problem may or may not be related to my BC, trouble is no one seems to know!!! Very frustrating and I am hoping for some news at the end of the month after seeing the Neurologist. I will post again there with any news/outcomes. Best wishes to you all Muriel

  • marijen
    marijen Member Posts: 2,181
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    Bum

  • steveadog1
    steveadog1 Member Posts: 1
    edited July 2023
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    Hello! I've IDC (tiny) - almost three weeks since lumpectomy and sentinel node excision. Negative on that. I'm estrogen and progesterone positive and HER 2 negative. Plan is to have radiation and hormone therapy. Anyone get oncotype results that caused them to need to add chemo? And if so, before or after radiation?

  • traveltext
    traveltext Member Posts: 1,051
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    Sorry for the diagnosis. Pleased for you that it's been caught early. Did your oncotype score indicate chemo?

  • exbrnxgrl
    exbrnxgrl Member Posts: 4,843
    edited July 2023
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    steveadog1,

    I am sorry to hear of your diagnosis. This is a very old thread which had been inactive for about 5 years prior to your post and it deals with a very different topic than your current concerns. You will likely find more active participants, and threads aligned with your concerns, if you check out threads for IDC or the stage you’ve been dx’ed with. Here’s a good place to start and don’t forget to check the date of the last posting. Take care.
    https://community.breastcancer.org/en/categories/idc-invasive-ductal-carcinoma