ER-, PR-, Her2+ Roll call

Hey all! How's everyone doing? My butt is dragging. I can def. tell I am more tired on the 3rd one. But happy to report my platelets were up to 223 on treatment day. They started me on oral mag so hoping it doesn't mess with the tummy too much.

Would love to hear how everyone is doing!

@djschmidt1 that is awesome news on the lymph node and the complete response!!!! I hope recovery is quick for you!! I'm trying to keep the faith for sure, but today has been a somber day for some reason.

Thanks @djschmidt1

I’m glad those platelets are on the up for you! But I’m sorry you’re so tired and just feeling yuckier in general. I hope you feel better soon!

I have a magnesium drink mix I’ve been using at night called “Mela Out.” It’s a little chalky, but it’s natural-ish and also helps you sleep. I bet there’s a lot of brands and versions out there.

I still am still not normal in the GI department, but I’m WORLDS better and no longer relying on medications. And just in time. We will see what round 2 on Thursday brings.
At least I know now what to expect! I’m going to approach things differently and stick to a mostly liquid and BRAT type diet for the duration, this time, and I have things like banatrol here now to help. No forcing myself to eat solid food or things that rip me up this time. I’m super stocked on Imodium, jello, and better than bouillon! And they said they’ll give me atropine on the day of chemo.

@tempusername1 Thank you so much for posting this positive message! I'm pretty much the same as you but know I have at least two axillary nodes. One week post 3rd of 6 TCHP's. Thanks for the pointers too. I haven't spoken with a radiologist yet, but have the surgeon. Praying for PCR!!! Didn't cold cap but am doing ice on feet and hands, chew on ice during T. Glad you are doing well!!

@tempusername1 thank you for sharing your experience, its always comforting to read about good news. ❤️ I’m going to ask for physical therapy.

@aborayis thank you so much! Im feeling better all the time. Headed to radiation and immunotherapy next.

@tempusername1 so happy to hear your good news! Thank you thank you for coming back and giving us an update with hope!

@aborayis congratulations on grandbaby! Life is beautiful!

Hi All,

Not been on these boards lately, However it was my life line when I was diagnosed and going through treatment.

I am 19 years out from a stage IIIC BC wtih pretty nasty poor prognosticators,

I am well living life large and in profound gratitude.

I wish you all a gentle ride down this BC road that nobody wants to go down.

Hey everyone! Hope everyone is doing well! I am so excited to read the past couple of posts from folks stopping by and letting us know they are doing well after BC!!!! I really needed to read that today.

I had to call my cancer center, pretty sure I saw a small amount blood in my stool. The nurse talked with my oncologist and no one seems too concerned at this point. No pain so that was good. I'm scheduled for #4 of 6 tomorrow and unless platelets are super low, still good to go. They mentioned the culprit is most likely Perjeta. Going to ask again tomorrow. Anyone else have this issue? My nose, especially one side will have blood and that happened early on and the later than it has after treatment. Not pouring, just wet inside. They will send me home with the stool card and will monitor it. I couldn't remember eating anything red or purple the couple of days before, but my body seems to not be digesting food as normal. I've eaten a ton of watermelon but doubt that would do it. Super watery eyes have lasted for over a week. Wake up with crusties in my lashes. Ugh!! Ready to get these last 3 over and done!!! Sorry for all the whining again LOL.

@lkc and @minustwo Please know how grateful I am to hear your stories. I literally gasp and then have a long, restorative exhale. You are both so kind, and I’m inspired to hopefully be fortunate to someday pay it forward. Thanks also for the realistic perspective. The worry about the future and scan results is going to be a fact of life for all of us.

@grammie2 Me: Eye crusties… check. Extra sensitive and easily bleeding nasal passages… check, check. One for each nostril. Didn’t have to deal with the possible blood in stool. I hope that turns out ok. And whine on, sister. Who else better than us to bear witness? We all get it. As of tomorrow, you’ll be more than halfway through your 6 rounds, and you will start to feel a whole lot better. Big hug from me.

Hello all! I’ve enjoyed a few weeks with no procedures or treatments as I heal from surgery. My surgery (lumpectomy) experience was a breeze but the lymph node location is the most uncomfortable. I start radiation soon and they reduced from 6 weeks to 4(yay). I start immunotherapy Monday with Perjeta and Herceptin. While my Onc says its nothing like chemo I still dread side effects as I had them all with chemotherapy. I still have considerable muscle pain, edema and neuropathy from chemo and start physical therapy in July for those.

I can say I do feel almost “normal” other than these lingering symptoms.

Hi, everybody. I just had another round of HP infusions. Three more to go. My energy is finally back and I’ve stopped feeling all shaky and buzzy from the Graves Disease. And I had a wonderful realization the other day that my new boobs don’t feel like foreign objects sitting in my body. Yeah, they are mostly numb, but just like the rest of the parts of my body, I don’t constantly notice they’re there. Yay!

@djschmidt1 so glad you are feeling good and that surgery went well!! Our path is so similar so I hope you don't mind my questions. When first diagnosed, I understood that I would be on Herceptin for several months after surgery/radiation. I too am doing TCHP right now. I'm curious if they will add Perjeta for my plan as well. I'm starting to have below the knee swelling and it's lasting longer with each treatment. And I think Perjeta is the culprit. Thanks for sharing your journey!! It's so helpful!