Grade 3 long term survivors
Comments
-
Congrats, ruthbru! My kids have changed and become more mature in the last nine years. I'm happy I've been here to witness that.
0 -
This post is amazing! Goosebumps and happy tears! ❤️
Bumping to resurrect and keep it going.
0 -
Bumping this thread hoping some more people will post. My oncotype was 37... I'm 4 years NED. Just been feeling down lately because of my high oncotype score at a young age. I was also stage 2a grade 3 with a 5cm tumor. So I just feel like my recurrence chances are high....
1 -
I was Stage 2B with a 3.5 cm tumor, grade 3, two nodes positive (macrometastases and extra-capsular extension) and I am 7 years out from diagnosis (6.5 years out from surgery); no signs of the cancer coming back so far.
Best wishes to all
LaughingGull
3 -
I had my 10-year Cancerversary in June. Heck, my MO isn't even monitoring me anymore, though I get my annual mammogram.
3 -
Approaching 7 years this fall. I was stage 1/grade 3/node negative.
Just scheduled my annual oncologist appt and mammogram. The past year has been more about being a caregiver for my husband after his CAR-T treatment for multiple myeloma. I have to remind myself to stay on top of my own healthcare.Buttercup
1 -
I had my last oncology appointment this afternoon. I'm done with treatment after my last bottle of tamoxifen. I'm just going to be an as needed patient. I had him go over the oncotype and peri-tumoral lymphovascular invasion again and basically chemo helps with that at the time but obviously there's no way to predict the future. I will not benefit from continued tamoxifen. He said even if I continue it's only about 1% benefit and the side effects and everything else that tamoxifen can bring could be worse than that 1%. So I will be done with that after this bottle is gone. I asked about the signatura test which is a blood test that can detect if you still have cancer cells in you. He does not necessarily recommend it because of false positives. Sometimes the blood work comes back positive but the scans will come back negative. I asked if I should have my ovaries removed and he said just wait that out and see what happens once you stop the tamoxifen. I still feel like I should have them out at some point. I asked him if I should continue to have MRIs and he said yes but to only do it maybe every 5 to 10 years. He said yearly blood work is fine and then obviously contact him if something happens or comes up. My reoccurrence risk is 10% which is on the high end unfortunately but again he's like I can't predict the future He's like the fact that you made it 5 years though without anything is a good thing.
For a reminder I was diagnosed at 37yrs old, stage 2a and grade 3. Bilateral mastectomy with reconstruction, 4 rounds of chemo and tamoxifen for 5 years. Oncotype of 37 and BCI of 10.
1
