My Husband, My Life, My Love, My Family, My Cancer
Comments
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Mae - congrats on stable. Sorry about the snow…. April is notorious for nasty weather. Our GD turns 8 on 4/15. 1st birthday was a blizzard - poor godmother got stuck in Minneapolis. Next year was more snow but not a storm. Just grateful that we have no tornadoes, floods or fires.
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Deleted last post, was a lot of details about cleaning mess that really does not need to be here. Long and short, heavily dirty cloths, washed them and disinfected washer and the lint filters.
I napped a bit today, bit of insomnia last night, got some rest, not a full night sleep. Today was OK though. Got my Paratransit booked for Wednesday, the update Herceptin appointment which is good.
I do have to say, I spent so much on groceries on Friday, I believe I need to set a more strict budget and save up for the delivery charge and tip and order from there. I also need to get used to gettting on and off regular bus if I want extra trips or whatever for free. I will see, filled up the smart card anyway for paratransit. I still desire the walking around the mall bit first. I am also getting stuff together for taking out trash on Tues night, I have my fair share of it.
Had some beans and pasta, did not like it too much to be honest and learned that the chicken burgers are not good in the microwave, will fill out pasta if need be with white rice and put the mixture in the fridge instead of keeping bean mixtures. I am unsure about what I wish to do for now, may just take a frozen pasta, crack an egg and add small amount milder garlic, should eat now and be done meals and snack before 7 pm.
I hope everyone had a good day, in pockets for all. I did have a giggle because anyone who remembers Police Squad and the subsequent Naked Gun movies will chuckle since Liam Neeson is playing Frank Drevin Jr. Posting the link to the trailer here from youtube.
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Hi, everyone. I know it’s been a while, and although not everyone places an obituary, I kept digging to see how Sunshine99 was, Carol. I did come across a post on Facebook that she did pass away on February 20th of this year.
I am on hospice going on my fourth month but seven months off treatment. I will make sure that someone knows when I pass so no one is left wondering.
May Carol rest in peace.11 -
kbl-Thank you. I've been wondering how Carol was doing and it's nice to get this closure. Hope you have more good time.
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@kbl Thank you for the update on Carol, I also thought of her quite often. May her beautiful soul rest in peace. Also I hope you are pain free and able to enjoy your family and friends. We are all going to hospice one day and I hope I can be as graceful as you are. Thank you for always being a strong supportive voice on the forum. Hugs♥️
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I echo what Cookie54 said above. Hope Carol's passing was peaceful and pain-free. I really appreciate you letting us know. I think of you often and hope that you are able to enjoy life as much as possible.
For all of the other ladies in the living room, I think of you and check in periodically to see how you're doing, but I have been in a rough patch for a while and not up to posting.
Mel, I am so sorry for what you have been going through and sending healing thoughts and positive energy for your daughter.
Wishing happiness and peace to everyone.
Eleanora
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@cookie54 and @eleanora Thank you. We all have a different path, and I don’t know many who have taken the path I have and stopped treatment altogether until much later, but I have no regrets. I do feel my quality of life has been a bit better off the meds, although it’s still been a struggle as the cancer is moving through. The fatigue never really goes away, but I have been able to do some fun things in these seven months, like going to see waterfalls, and just this past week went fishing with my husband, as he just brought our boat up here from Florida. He caught a 12-pound striper. I was so happy to see him happy.
@eleanora I’m so sorry you’ve been struggling. I hope things can get better for you.
@chicagoan Thank you as well.
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KBL - Thank you so very much for letting us know about Sunshine/Carol. I had not heard anything in a long time and was wondering. I'm just so sorry. May she rest in peace.
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Here is a picture of Carol and her husband that was posted in another thread.
May she rest in peace.
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I am so sorry to hear about our ray of Sunshine, my condolences to her family including family here and friends as well. I know she is resting at peace but does not mean we do not miss her.
KBL, sending love out to you as well and wishing you all the comfort and peace. Hoping family and friends are around and we all send love as well.
Shanagirl, hope you enjoyed your birthday and tini. In your pocket for the upcoming surgery as well.
Planning laundry, got some dishes to do as well. It is a nice day here, Have to clean up sink so I can have some dishes for breakfast to be made. I slept better last night which was nice. Other than laundry and dishes, probably run a vacuum and possible mop. Got a food channel streaming since I get paid a bit when they have ads. It is a filipino cooking channel on now, there is nice music as well during the video but am able to mute as needed.
Figuring out foods that I am not getting tired off, not sure at this point. Planning to crack a couple of eggs, whisk them up and toss them in a sprayed bowl, use the milder garllic spread and butter. Take an english muffin, tear up and put in the bowl with garlic, eggs and cheese, throw a few beans as well, microwave 4 mins. The muffin heated through with everything elsePart of my issue with food is the seasonings, going back to what I like. I like a heavier seasoning, this tsp stuff does not make me love the food and go from there. Already got rid of the potassium salt I was using and just chill out about it al, season as I feel like. Thinking of eating the last mini pizza, just 400 preheat in the breville, asdd some lentils to the top possibly. Option 2 would be lentils and beans topped with cheese and plenty of sour cream and onion seasoning and heavy handed seasonong, perhaps some rice on the bottom. That sounds good. I will post the ultimate decision later.
I do hope everyone has a good day, in everyone's pocket who needs me and get focus back on tasks instead saying, oh look at this shiny task or that shiny task, bring focus. Work in progress though.
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I did wind up just making some frozen pasta, seasoned more strongly with the sour cream and onion seasoning and salt. The pasta was an alfredo penne with chicken and it was good. Tonight, making beans, lentils, put in bottom of bowl with an egg or two, one if using cheese. Heat in the microwave, let cool and then chop up in the regular chopper, add some cheese to the mix, heat again to melt the cheese and seasoning will be figured out later.
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Intolight - Thank you so much for sharing the picture of Carol. It's always nice to have a face to connect with the writings, stories, etc. That was very meaningful. I always enjoyed her posts and am just so sorry.
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@mara51506 Thank you so much, Mara!
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Good evening sweet ladies (and gentlemen). Storm is pushing threw, but so far not to severe. Bless all the folks affected by this severe weather, family and first responders. Been a rough week, weather wise for sure.
Belated Happy Birthday @shanagirl . You have so much positive spirit in your persona that it is infectious. I hope those scallops were great. One of my favorite dishes. I don't think I've ever had a martini, but it looks "marvelhous, darling". Can't recall who said that.
So very sorry to hear of Carol's passing. Her moniker "sunshine" was a perfect fit for who she was. She bought alot of knowledge and caring spirit to us here and I imagine to others, too. Rest in peace dear Sunshine. I will think of you each time I see a sunflower.
I tried to catch up on 45 posts so Forgive me if I missed an important event or even just looking for support. Love you all dearly and always pray for improvement and pain free days.
Enjoyed a kids birthday party here at our home, as GD turned 11. It was a bit crazy as some didn't know how to swim and we had to have a safety talk first. Moms were great about watching kids like a hawk. DD played the role of lifeguard. The was from Publix, called a Chantilly Lace cake, and it was excellent. For a good laugh, GD asked them to write POOP on the cake. Not only did they do that, they used brown icing to create a good impression of such things. Everyone laughed.
Winkie still here. sigh. She must go home as she still is not eating. I tried, worms, bananas, wet dog food, celery, cherries, outside with hose and of course in the grass. She ate 2cheeries and 2 worms in almost 3 weeks. I am making myself crazy. If DD doesn't come tomorrow, DH will be delivery a huge glass aquarium with Winkie in it. Then I can relax.
In pockets for all and may you find joy in tomorrow.
Laurel
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@irishlove It sounds like your GD have such a fun birthday. I love to hear that kids are still enjoying simple parties at home. Ha and the poo cake is a riot! Oh poor Winkie , you are being such a good caretaker but I can understand your worry. Fingers crossed that Winkie will improve soon.
@mara51506 I'm always intrigued by your recipe combinations, the alfredo penne with chicken sounds delish!
Finally the sun has arrived in NJ,it's been so dreary the past couple of days. Buster was stir crazy yesterday so he will get a nice long walk today. Thinking of all here and hoping your day goes smoothly.😎
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Irish - Wow, you have been busy. So glad to hear that your granddaughter's party went well. Sounds like it was a lot of fun and filled with 11 year old humor, e.g. the "poop cake".
Cookie - Glad you've got some sun. I can really relate to being so happy to see it after some dreary days. I think the northeast sometimes can be similar to the northwest where I am. We get so much rain and clouds that then seeing that sun is just heaven, and it does inspire a good walk. I think I'm getting my sun tomorrow, but instead of a walk, I'll be at the clinic getting tortured with Faslodex and Zometa needles and side effects. Oh well, this too shall pass. Enjoy that walk!
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Irish, glad the birthday party was a lot of fun for you DGD and lots of eyes on the kids is great as well.
I slept pretty well. Got up to find a large amount of cloths needing a wash, put them all in the larger washer to be more efficient. After this load, must wash my fleecy throw blanket, managed to get some chocolate from an Oh Henry bar that I have so will clean it after the regular cloths. Already done the first vacuum of the day, takes maybe 1 or 2 minutes. I keep the stick vacuum fastened by elastic to a basket that is zip tied so the power bar and stuff inside the storage basket does not fall off the wee counter. Basket holds my bigger chopper, magic bullet and spice grinder. Saves the vacuum from falling as there really is no room in a closet. I also moved a laundry rack from under the sofa to behind a storage box. I can then store more stuff under the couch. I am also thinking I need a smaller chair instead of one useless shelf. Looking to save up for the future and get rid of the shelf and get a chair with two arms so that if I fall in the apartment, I can pull myself up slowly. Have to get back to the whole PT workout. No rush, need to determine how much to save. Paid off one bill for my insurance and am putting that money into savings. I want to see if I can survive on just what I get from disability. Manage shopping in a better way as well. I will see.
I think rice will feature in meals today. First meal will have rice, lentils, black beans and eggs, heated in the microwave so I can chop them up with cheese and reheat until the cheese melts. Will likely use smaller measurements of the rice, lentils and beans to ensure I can eat it all. Will be very filling. Probably use my combined seasoning of kraft dinner cheese powder and garlic, smaller amount, add some salad dressing as a binder. I have gone back to seasoning as I wish and meals taste better to me.
I do hope everyone has a good day and I am in pockets for anyone who needs me.
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I am debating something else to make in the future. Instead of using the seasoning up in the mexican rice, I can still prepare the rice and set aside the seasoning in a container and use as needed. Envisioning adding a mexican twist with the seasoning and penne pollo. It has a base alfredo but can add other things to make it more interesting like peppers, beans and lentils. I might do that first. Prepare the pasta frozen first, let cool and put in a container in the fridge and make meals out of that stuff. I will seel.
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Edit to the above meal listed. Found a box of mexican rice. Decided to put dry contents in a container so I could measure out what I want. I will take the dry seasoning from that mix and put that in an airtight container and treat as a seasoning that I use.
First meal will have just under a 1/4 cup of the mexican rice, preparing that first, step 2 will simply include heating up the frozen pasta. Once both are ready, just mix them up together to beef up the pasta volume. Step 3 will involve 2 eggs scrambled up in a sprayed bowl, add lentils and beans. Microwave that for 4 mins, put this mix in the chopper with some shredded cheese. Comes out the same texture as ground beef. Spoon a bit of the rice/frozen pasta mix and put in the bottom of the bowl, spoon in the egg/bean and lentil mix and add some butter OR the mild garlic spread. Heat til the cheese melts and spoon everything together. Add a bit of the mexican mix from the package and a small amount of my cheese and garlic powder and bind with sour cream, and the tiniest amount of ranch and or caesar. Salt and a sprinkle of the sour cream and onion seasoning and it should be quite good to me. Lots of steps for me but that is good to have a good meal and have some stuff in the fridge to split in a couple of meals.
Edited, I did do all the steps listed above. Felt like it was too much work but I persisted. The end result was nice, I did use a combo seasoning I came up with of the mexican rice packet, garlic and finally sour cream and onion, put in airtight container and shook it up, added small spoonful of that and a squirt of ranch dressing and a dollop of sour cream. Betweein the 2 eggs, handful of cheese and lentils added to the pasta, it was super filling. When it cools off a bit, will put the rest of the noodles in the same container and do small spoonfuls to go with meat pies or whatever. Turn a less than 2.00 full cost of ingredients based on proportions into multi meals is feels good and was really good.
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Irish - love your GDs sense of humor💩🤣.
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Oh my golly gosh darn truckfest. I am in a panic attack over getting the garbage out, there is some ice on the front step, managed to toss 2 bags outside.I did ask for help I am wondering about asking for help from neighbours. Might stand at the front door and just ask for help. I did manage to salt the front steps
Edit I did see a guy who was kind enough to help me out with putting the two bags out, now just calming down as it was quite a doozy of a panic attack this time. Was not that we had a ton of snow, was just could see some black icy stuff on the steps, side walk was fine though.
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Good evening ladies
after 2 years of back and forth my mom (92) got her house sold last week. She was going to stay in the house until the end of month but they’ve started renovating. I’m in NY now helping her pack out 62 years worth of life. Very glad for my family’s help today bc I’m spent.We leave for NC Thursday to drop her off to my sister. I’ll stay until Sunday to help get her settled and then back home sweet home. Praying for safe travels.
pocket duty for all who have upcoming treatment, scans, and appointments.
Take care allTanya
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I can't sleep, and made the mistake of going online, only to read that the (US) president plans to target pharmaceutical companies next with tariffs. My box of Ibrance says it was made in Ireland. My current copay is $100 each month, but I fear that's going to increase. Argh.
Looks like no sleep at all for me! Perhaps I'll do some dusting, that's a nice calming activity.
I know I can't control these things, and I have no interest in a political argument with anyone here. Just feeling sad and scared.
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Cataract/glasses update for those that care to know:
Healing good. Will see doctor again April 21st and will order new glasses!!! Will arrive 7-10 days later. So ready for a correct prescription. I got "readers" from the dollar store, but they are not really an accurate prescription. Works for short term use- sending a text or typing here- but cannot read anything for long ie a book as they make me feel wonky. And my long-distance vision is blurry too, as I will need continuous glasses as I did before surgery, just not as strong.
Cancer is stable still and go back mid-July for next scans.
Reading along every day. Saying HI to all.
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Glad to hear about the progress with the cataract surgery, congratulations!
Thanks for the heads-up on potential medication tariffs. Will check to see where Kisqali is made, although I'm "lucky" enough to be on Medicare, so not sure it will change my annual Part D charges. Fingers crossed that specialty meds for all illnesses will be exempted.
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Good Morning Everyone☀️
Thank you for all the Birthday wishes. I don’t remember If I mentioned it that DH took me to a restaurant for Lobster. He had a strip steak. we. had a nice time. the lobster was. steamed with Ipswich clams lots of bitter 7 broth ….delish!!😋.
I’m saddened to hear. about @sun-shine -Carol. She’s crossed my mind lot lately. thank you @kbl for letting. us know. you are in my prayers also.
@irishlove sounds like you had a really exhaustingly good and busy time with your GD. & Winkie. Get some. rest now😊. An. Martinis’ are good if they are. made the way I like them. I usually have. the “dirty” martini with 3 olives and a little olive juice. and Kettle Vodka. But there are so many different kinds of martini’s. my DSILwho owns a restaurant and bartends there makes an awesome Expresso martini with a little dollop of whipped cream on top.😋
@mara51506 I always liked to watch Liam Neilson movies, but I’m not much of a fan of comedy movies. I’m more Action movies. the last one I saw was the “Beekeeper”.
Also I just wanted to mention I went for my scans on Monday and got the results back on MY Chart the same day. they were “unremarkable” same as previous October scans. no change, organs normal…. that is a relief! 🩵🌷☺️
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Tanya, good to hear your Mom's house sold and that she will settle with your sister in NC. That is great.
sf-cakes, I am so sorry this politcal mess made by one person is causing so much stress for you guys and anyone here or in the country worried about the state of things. I will not say anything except this is the dumbest trade war in history and it is affecting millions of people. I am so sorry and in your pocket for things to quiet down for your country and mine too. I get sh1t from my SIL for shopping Walmart but I just told her it is least expensive and I need that.
I think within reason, if anyone is scared about the world, no need not to share it. I think the only thing would be arguing on the politics in general, whose side a person is on. Posting about feelings and effects on your families are well within the allowable discussion. If I am wrong Moderators will correct. We all have empathy and support for each other.
Candy, glad to hear about sclear scans, that is great and that the surgery has gone well too. It is good to see you.
Well, my panic attack yesterday made me realize that I truly do need to get out more and stop worrying over the tiniest ice spots in the world because the rest of the payment was dry. Almost bought more ice salt but decided to chill, temps above freezing a bunch of the time and just get the heck over my panic. I did actually sleep well, have Herceptin today, rebook of last week.
Having leftovers of the bit of the bit of pasta, rice and beans with lentils and cheese, just need to reheat. Will probably serve some with some with a mini pot pie I think. The meal yesterday was incredibly dense but I am glad of that. Stretching meals and making them useful for more than one thing is good in my eyes and saves some money as well. Have gone through what I like to eat as well. No point buying stuff I do not really enjoy. I tend to do that with things like lettuce or the cabbage salads and wind up not eating them. Will stick with beans and their ilk to make many different meals. Will just make sure if any beans need pick up, schedule several trips. I get all the stuff for the cats through Amazon and have that delivered. I do have ham slices in the freezer that I could and should put in the fridge to defrost as well. Could make some nice sandwiches out of that. Leftovers first, might take a spoonful, add a minipot pie and an egg and heat in the microwave and use ketchup and mayo, treat it as more like an omelet. I will see.
I hope everyone has a good day, in pockets for everyone who needs me.
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Breakfast meal was just OK, got to say foods are not that interesting to me. Nothing particularly wrong and do not know what foods to get instead beyond the salad greens I am not that excited about. Wondering if black beans, regular rice and cheese with some egg is the best way to go, keep it simple stupid saying comes up. Stop with all the frozen stuff, stick to canned things, english muffins etc. I think I pick up the cheap food because it is easy but it is also really boring for me. I do have cans of peas, corn and potato, would need to chop those up as a fine texture would be better. I do not know. I also am wanting a new microwave that reached 1100 to 1200 w because converting the cooking time is less than the best for me. The 700 W either overcooks or undercooks stuff.
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Tanya,
Glad family is helping you. That sounds like an enormous amount of work and I imagine it is quite bittersweet for your mother to leave her home after so many years, even to move in with your sister. Best wishes as you continue to prepare for her move and prayers for safe travels.
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@tanya_djamila It is totally exhausting cleaning out homes physically and emotionally. Glad your mom will be residing with your sister safe and sound. Safe travels, i hope it all goes smoothly.
@shanagirl Congrats on unremarkable, music to our ears!!
@mara51506 Sorry you had a bout with anxiety with the ice. It’s totally understandable with the falls you’ve had in the past. Happy to hear a lovely neighbor helped you with your trash. Good does still exist in the world.
Hi to all here, thinking of Mel and family. Prayers for all here, have a restful evening ❤️
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