My Husband, My Life, My Love, My Family, My Cancer
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@mara51506 DD set the fire alarm off when she was here cooking. Our dogs run outside into the backyard and try to jump the 6 ft. high fence. It must hurt their ears terribly. We budget for beef with less grease, but honestly the price lately is ridiculous. Had to increase budget for bird feed, too. The brand we were buying was reasonable, but every time I would scoup out seed to fill feeders, the the residual dust would overwhelm me. Not healthy to breathe that in. So back to a better seed that has sunflower, small seed for finches and peanuts.
Did manage to run that weed whacker in the swale today. Our weather is going to be rough with lots of rain, and I wanted the swail cleaned out so the water flows thru the pipes and down to a drainage pond. I also potted more marigolds. DH keeps bringing them home. Not sure if and when to bring some plants in with the weather coming. It was a beautiful day today. I sat on the swing and watched birds and squirrels at play. A mockingbird was attacking a red-tailed hawk. She was relentless. The hawk had a squirrel in it's sites, but the mocking bird was the victor.
Concerned about the severe weather coming which included potential of tornadoes, high winds and flash flooding. So DH is going to grocery store to stock up and I w ill fill tubs and water jugs with water. Have to do a load of wash and then we are set. We have an interior closet that we chose as our safe space. Hoping DD and DGD come over, as I called and don't want them staying in their camper under these conditions. They live about 20 minutes away, but you have to access their camper by going to a remote area and down dirt roads. Lots of huge trees are of concern in their area.
Well Mara, I think it's time to call it a day. To be honest my day starts about 11 a.m. and bed time is usually 2 to 3 a.m. Always was a night owl.
In pockets for everyone's needs and wishing for stable scans and feeling better.
Irishlove
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Morning ladies, I haven't had any news on the last couple of day didn't know there is unpleasant weather coming for many. Sending safe vibes to all here that will be impacted by bad weather. Fingers crossed that doesn't cause damage.
@mkestrel Sending strength your way as I'm sorry to hear you're dealing with progression. May the next line of treatment kick cancers butt!!! Hugs❤️
Hi to all here , may today be a quiet Sunday for all🙏🌺
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@irishlove Yes, I do like the less grease factor myself but if I can only get the greasy kind, I will use baking soda whilst cooking and rinse after. I am using some today, add to the lasagna leftovers with lentils and cheese and microwave those. By the time all seasonings and bindings are finished, I will not notice the flavourless beef from the rinse. I also do not save grease as my fat content as bindings I use have their own fat. Other ideas I was thinking of is taking other veggies and rice to soak up any fat since I am aware we need fat. Oh well.
Stay safe and in pockets for no flash flooding. We have quite the wind going on here but think it is bringing in warmer weather. I do not mind the wind within reason, helps to dry up any rain received and we are in the up and down stuff right now.
Laundry, floors, bed making and possible blankets are on the go. Will get up early tomorrow as need to book Paratransit and make sure prescription is delivered. Probably around 8am so earlier to bed tonight. I slept well last night. Got another MRI this week, no anxiety toward it. I figure if I am able to eat and no symptoms I can perceive, I am OK, if there was more necrosis, worrying would not change that.
I am planning some sort of combo dish to have. Perhaps spray a large dish, add some garlic seasoning to it, crack in an egg, add some lentils, some of the beef some of the lasagna leftovers as well. Small amounts of each. I could also do a tiny amount of rice, I want to be able to finish it up, do not need extra leftovers. Microwave all for about 6 mins since microwave only 700 watts. Seasonings and binders like queso and sour cream to follow. If I have beans left, will add those too. I do like stuff micrwaved as few dishes and easier to divvy up. Option two would be to whip up couple of eggs, throw in the beef and also throw in lentils, some of the lasagna, not a crazy amount. Spray my muffin pan and add bits of cheese to the top. I also would like to check on the condition of my corn bread mix which is in an air tight container just to give an extra thickness to the egg mix. I will post as well if deciding to do that.
EDIT doing up the eggs whipped up, got beef, lentils and bit of lasagna to put in along with just a bit of the jiffy cornbread mix I have to thicken it up. Will fill a muffin tray, less than half full and then just eat all the egg bites. I will add salt before I put in. Also thinking pancake mix add to eggs pre whipping would give the egg extra body as well. Looking to add some of the diced potatoes to it as well and check on peppers. Seems a lot but if there is room in the magic bullet, no problem doing it all. I will use some sour cream to create a nice whipped mix. Bake in greased muffin pan on 375 for 20 mins in breville oven.
I hope everyone has a good day and in pockets for everyone.
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Uggghhh just lost my whole post to @mkestrel , @mara51506 @irishlove & @keywestfan ……. Sooo well, I wont repeat everything just well wishes to you all here . Ihave been really a lazybones yesterday and today. So I’m going to get off my butt and go get ready to meet my DD & SILat their restaurant to have a nice dinner celebration of my sweet DH’s birthday. He’s 75 today and healthy as a horse, God Bless him♥️🥰
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Happy Monday ladies
I hope the weather hasn’t caused too many issues. We’ve had rain and warm weather. Super high pollen. I haven’t cut back all the plants that got frost bite and I’m waiting for my son to help. Probably next weekend. I’ll tidy up the flower pots.
Mkestrel sorry to hear of your progression. I’m with Irish love and hopes the next line of treatment is tough enough for the cancer but easy on you.
Shanagirl Happy birthday to your DH!!!!
Irish love you’re inspiring. I’m so glad you’re planting marigolds I can smell them through your post!
Mara good 😊 vibes for the MRI do you take anything before going InThe machine?
keywestfan welcome to our thread. You sound so vivacious and full of vim and vigor. My mom is 92 and energetic but knee arthritis is finally slowing her down.
cookie54 I’m with you limited news watching but I did watch weather report.Waving hello to everyone.
Tanya
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@tanya_djamila I was thinking of you when I was visiting my brother in St. Pete a few weeks ago. If I had had my own car, I would have tried to meet you for lunch or something. (I guess with Ramadan, lunch would not have worked). It was very hot and pleasant-now I am back to snow!
Best wishes for everyone. I am on Orserdu and Ibrance now. Hope that the combo is working. I am losing some hair and have lots of muscle aches but hoping it is working. Hope that others' new treatments are also effective.
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Happy St. Patrick's Day to all. We are going to try to get a seat earlier so the corned beef and cabbage is still available. Seem to miss out most years. @shanagirl Hope you and your family enjoyed your DH's birthday. It's so great to have a family owned restaurant. Just as long as you don't have to do the cooking or dishes. lol
@mara51506 Mara you sound so good that I just know the MRI will be unremarkable. You take such good care of your health, home and kitties, plus friendships too. So glad you aren't worried as that takes joy out of everyday.
To all the gals that changed meds, wishing you a quick response and zero side effects. Please Lord let there be healing. believe in miracles. When I was first diagnosed, the hospital sent hospice to my house. Every medical person that dealt with me never made eye contact during that period of time. I told the MO I just wasn't ready to deal with the news. It took me 2 weeks to come to terms with my diagnosis and I prayed I wouldn't need that hospice program.
MO started Ibrance and Fulvesterant along with IV bone recasting (can't recall name as I'm on Xgeva now). Some of the SUV values were as high as 17. Cancer was in my lungs (pleural effusions), bones chest wall and lymph nodes. It has been a difficult journey, especially with MS. Within 3 months that awful looking scan was slowly improving and now I am in remission. I can't believe it and neither could the Hospitalist, as I bumped into him recently. My miracle as it's exactly 3 years since MBC entered my body. Guessing I'm here to continue to work on my relationship with DD and DGD. I am truly blessed.
Well the bad weather hit, plenty of severe thunderstorms, a few tornado watches and much needed rain. No flooding. My son in Charlotte and sis in PA were under the same weather pattern. We all made it thru unscathed. I hope you all did, too.
In pockets for all your scans and needs, too. Here's to a lovely green day.
Irishlove
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Happy St.Pat's to all🍀! I'm just so tired from this switch to Xeloda right now, that I can't really post much more. Also having computer problems and having to do everything on my phone for now. I'm not good at that at all; really like and need a full keyboard. The good part is that the Xeloda seems to be working initially at least. Tumor markers are back in the normal range and onc is calling this "an ongoing impressive response". It's bittersweet of course, because while I'm thrilled to see this fabulous initial response, I can't help but wonder just how long it might last. Scans next month .
I didn't realize so many other have moved on to new drugs also. Good St. Patrick's Day luck to all with these new regimens. .May we all get years and years from these new lines of treatment.
Missing the old family St. Patrick's Day celebrations over the years. My mother always made corned beef and cabbage every year, and I too made it for my husband, kids, and friends for years and years. It's just me now, so pretty much just another routine day anymore. I also learned years ago that no one in Ireland ate corned beef, and that it wasn't authentically Irish - probably just another Irish American thing. Oh well, it's become it's own tradition for whatever reason and I miss sharing it with friends and family.
Wishing everyone here a wonderful day!
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@irishlove I do not have any particular concern about the MRI, it is going to show what it will even if I decide to worry about it. It will be a short appointment and in the late afternoon into evening when I am picked up. No symptoms to worry about either. I am noticing that my reaction time to falls is improving, my ankle strength gets worked on several times everday, do it from the bed. I am sometimes a bit wobbly but able to stand up. I do use the step bench as well. Take one leg, step up and lift other leg and do a hamstring curl after. Usually 3 per leg. Helps my stepping strength.
No plans today, I was up late yesterday because got hungry and ate after nine o clock then decided floor needed mopping, it does look better, mop is still out so after sweep and quick vacuum in living room, will just run it around again.
Laundry will be done, mobile games for some budget boosting as well.
Got some ramen and chick peas heating up on the stove, already used the flavour pack, some taco and some garlic salt flavouring the noodles. I will soon turn off and cover with a lid. I will make a meat pie or two in microwave to go with it. Serve noodles on the side or over top. Put some sort of mayo on it. Later today, make an egg on english muffin.
Other than that unless something fantastic happens meal wise, I hope everyone has a good day and in pockets for all.
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Happy St Patrick's Day to all who celebrate, hope your enjoying some nice Irish treats!
@mara51506 Love your attitude regarding MRI, as usual a great perspective! In your pocket always💕
@threetree I wish you weren't dealing with such fatigue on Xeloda. Glad your numbers are going in a positive direction! I hope somehow your fatigue improves and you can enjoy your day a bit more.
@irishlove Hope you got your Irish meal today! I do enjoy irish potatoes, I use to make them with my daughter when she was little. Easy project to do with the kids. Glad you dodged the bullet with the weather. We had some crazy winds all night, it ripped my flag pole right off my siding lol. As the old folks used say March is in like a lion and out like a lamb, fingers crossed.
@chicagoan In your pocket with your new treatment, may it kick cancers tush!
@tanya_djamila Looking forward to getting in the yard soon to do spring clean-up . Hope your weather cooperates too!
Started my Ziplock bag seed sowing today, quick and easy. I had success with it last year so hopefully again this year. This year I planted, Zinnia, Daisy's , Marigolds, Cosmo and Nasturtium, we'll see how it goes… Loving the longer days even though it's in the 30's today I still enjoy the later sunsets. Hi to all, in your pockets for appts and struggles. May you have a peaceful evening.
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@mara51506 You sweet gal are a true warrior, IMHO. You just keep marching onward and have control over your daily challenges. I admire you greatly.
Hi lovely ladies and any gents that visit but don't post. Hope everyone is having a good evening and for those that changed meds, especially. It's great to hear a MO say the patient is a super responder. May that response last ages.
Found our corned beef and cabbage still available at our usual diner. My grandmother cooked it yearly, too. It was a little tough, the potatoes and cabbage were great. We had to eat outside as the "joint was packed". It was so loud inside also. DH bought me ear plugs but I'm kinda embarrassed to use them. I develop sensory overload at times, due to MS. To make up for the tough corned beef, DH treated me to the best burger eatery, plus cheesy fries and a milkshake for dinner. It was a wonderful day.
In pockets for all your needs and may you have a pain free good day .
Laurel
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