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Paget's recurrence?
Anyone out there ever have a recurrence of Paget's? I'm 10 years out from a DX of Paget's and DCIS, grade 3. Had 2 MX. Cancer was on L side. A couple of months ago, I developed this concave circle area on my L chest. Then I developed this very small fine rash on the top edge of this circle. Today I had a punch biopsy of…
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Newly diagnosed DCIS
Hi all, I am newly diagnosed with DCIS and have had a few dismissive and unsupportive responses to the news from family and friends. Wondering if others may have also experienced this in regards to DCIS and how they have managed it please? While I understand DCIS may have very positive outcomes, it is still overwhelming…
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MSK Plastic Surgeons
Hi! Newly diagnosed with DCIS in my right breast. It is in my entire breast and my breast cancer surgeon who is at MSK said i need a mastectomy. She has recommended plastic surgeons within the hospital but none of them have any before and after photos I can find. Also, i can't make more then 1 apportionment at a time to…
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Re-excision and surprise DCIS near ILC tumor
Hi friends, I had lumpectomy surgery last week and rec'd pathology back. Some mixed news! Good margins on the 5 mm tumor, and no lymph node involvement! That is wonderful news! However, they found DCIS in one of the margins. Surgeon recommends removing that, too. Maybe about 1 mm in size. She said some people radiate that…
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Lumpectomy after bloody discharge
hi all. im looking for anyone to shed light on my risk with the following. im 41. two years ago i had a lumpectomy for what turned out to be a fibroadenoma. just had another surgery to remove a duct that was seen to be dilated with a lesion on ultrasound. i had bloody nipple discharge with this. my pathology reports showed…
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Follow up MRI
I was diagnosed with symptomatic DCIS (palpable lump). Do these MRI results sound like it’s pure DCIS? Any signs of invasive components based on these results? My surgeon wanted an MRI done and said I would need at least one more biopsy because she suspects invasion… Results: Contiguous T2 hypointense clumped ring non mass…
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Possible Recurrence
I was diagnosed with Stage 1 IDC and high grade DCIS in August of 2022. I had a lumpectomy to remove both spots in September and additional surgery to get clear margins on the DCIS in October. I had 4 weeks of radiation and I am taking Letrozole since the IDC was estrogen positive. I had my first mammogram this week and…
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DCIS & pregnancy?
Hi. New here and just diagnosed about 2 weeks ago with DCIS in left breast, 5cm, stage 2 with comedonecrosis. I have been trying to have a baby for over 3 years (just turned 40 this year) and was pursuing IVF before my diagnosis. It appears that my IVF treatments have been fueling the DCIS (estrogen positive at 81%,…
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Should I be concerned about the bad impact from compression as ABUS imaging is extremely painful
I did the breast ultrasound screening a few days ago. The breast ultrasound screening was *extremely* painful, much more painful than mammo. In the breast ultrasound screening, I felt that the compression was too much. And I felt so painful that I had to make a tight fist and make a sound. I told the lady I felt very very…
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I have Questions....looking for answers
I just found out that I seem to have extensive DCIS with multi focal microinvasions and a positive lymph node. None of my mammograms picked this up and I have them every 6 months. The MRI I just had didn't show any of it. This is a result of a second lumpectomy. I have decided to have a double mastectomy since my cancer…
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DCIS with microinvasion
Hello Everyone. I am 48 and just diagnosed with BC on April 19th. I have been having diagnostic mammograms for about 5 years (twice a year). Ladies at the breast center say I have "busy breasts" cysts, calcifications, etc… Mammogram in March came back as a BI-RADS 4b for a lobulated hypoechoic lesion with internal blood…
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Waiting is the worst….
This is my first post so I apologize If I’m doing this wrong. According to biopsy results I have both IDC and DCIS. Lucky me. 🙁 I met with surgeon, medical oncologist and radiation oncologist yesterday, but nothing can be decided until MRI is completed and HER2 results come back. I’m a mess and don’t know what to do with…
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32 - Chek2 mutation - Diagnosed with DCIS.
Hi all. I posted my full diagnosis thread in the “Just Diagnosed” forum but thought I’d come over to this forum as well for some perspective from younger folks. I’m 32 years old, no children. I have two Chek2 mutations which is very rare and under researched. ( I got a mutation from both my mom and my dad ). My mom was…