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Should I skip recommended radiation?
I am grade 3 DCIS ER/PR negative and had a lumpectomy. My surgeon mentioned that I needed to take radiation due to high grade. He referred me to a radiation oncologist, whom I met this morning. The oncologist said my recurrence rate is 20 to 25%, and radiation can reduce it to be less than 10%. The side effects include…
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Breast implants
I just turned 43 and was diagnosed with invasive ductal carcinoma grade 3 & high grade ductal carcinoma in situ. Im planning on a bilateral masectomy. Im meeting with my surgeon on Tuesday. Im having a hard time deciding on if I want to get implants or not. My question is how did you decide on reconstructive surgery or…
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DCIS Alternatives for treatment
I have a recent diagnosis with DCIS moderate to high grade. Has anyone else received this diagnosis and chosen to do nothing but monitor the situation? I went from biopsy and ultrasound results with a likely lumpectomy to the MRI results with a 4cm + area and recommendation for a masectomy to remove the 'cancer'. Any…
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lymphovascular invasion or tissue displacement dcis
Just got my final pathology report after BMX, still pure DCIS. My Surgeon said no chemo, no radiotherapy and no tamoxifen. After reading through the whole report, there is one additional comment I don't quite understand: "In one block, at the edge of the tissue and partially within a thick walled vessel, there is a group…
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DCIS Grade 2. Anyone told to skip hormone blockers?
I was diagnosed with a wide span of DCIS, Grade 2. I had a lumpectomy and reconstruction on my right breast and a reduction on my left, clear margins, no invasive detected. My oncologist recommends I do radiation but no hormone therapy. He feels it is not needed and will not change my long-term outcome. I am wondering if…
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DCIS, receptor positive and still on HRT. How risky is this?
Hi everyone. Never thought I would be spending my holiday break talking and researching cancer. Yet here we all are. I was recently diagnosed with DCIS and receptor positive for both ER and PR. I had a lumpectomy on 13 Dec 2024 and was advised I need a further one (scheduled 22 Jan) as they didn't get clear margins all…
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DCIS removed but... gene mutations... now what and family thinks I should be happy
Diagnosed with DCIS (ER+/PR+) in Sept. Had it removed in Oct. Doc talked abt possible radiation and/or hormones even though I'm one of the "lucky" ones- HA! Now I'm positive for CHEK2 and RAD51C w a family history of ovarian and colon cancer (1 + 1). Waiting to hear back from gyn to screen for ovarian cx and sons need to…
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Active Monitoring May Be as Good as Surgery for Low-Risk DCIS
Active Monitoring May Be as Good as Surgery for Low-Risk DCIS Dec 20, 2024 Two-year rates of invasive cancer were similar for women whether they had surgery or frequent mammograms, but more research is needed. Read more…
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DCIS with Isolated Tumor Cell in Sentinel Node
Has anyone had this? My primary tumor is DCIS, and no definite invasion seen from path report. But the one sentinel they took showed Isolated Tumor Cell. The surgeon wasn't too worried about it, said it's treated as negative and won't affect overall treatment plan. She said it might be from biopsy. But I feel uneasy about…
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Treatment options scare me more than DCIS
hello! I am 49 and in October I was diagnosed with DCIS in my left breast stage 0 grade 3. Also, I had an MRI on 11/21 which was inconclusive (unbeknownst to me and my doctors I had an infection at the site of the biopsy I had on 10/15!?) but showed that I may have a lesion and something else in my right breast so I am…
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DCIS stage 0 grade 3 ER + Lumpectomy and Radiation, clean lymph nodes
The Dr. gave me the choice lumpectomy or mastectomy. As she said it was caught early and still inside the duct I picked lumpectomy. Surgery went well, no complications, clean margins, clean lymph nodes etc. Did Radiation and because of the grade AI drugs - Oncologist said 50% chance it will come back. She originally told…
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2 surgeries later...
Was diagnosed with DCIS in September 2023. Was told it was high chance of spreading but was DCIS so not to worry as caught it early enough just to whip it out. Thats where it all started to go downhill. Went in a week before surgery to have a magseed placed to mark the target, the radiographer seemed to be having some…
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NorCal Kaiser Dr Rec??
Hi. I was diagnosed last week with DCIS and I am feeling pretty overwhelmed. I need a mastectomy and I am considering an asthetic flat closure. Does anyone have any experience with a good Kaiser surgeon & plastic surgeon? I’m in the SF Bay Area so I can travel to any nearby Kaiser. I just don’t know which Kaiser has the…
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AWAITING SECOND OPINION
Is there a cancer hiding somewhere in this moderate to highly dense Fibroglandular breast tissue of mine? From Sydney, Australia HISTORY: Age: 36yo Menstruating since 11yo Endometriosis - surgery in 2022. 2 children - 10yo and 5yo Recurrent mastitis infections since the birth of first child. Spontaneous and recurrent…
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Tips for Bilateral Mastectomy with Immediate Tissue Expander AND Implant Exchange
My Breast Cancer Journey from the perspective of a physician/patient/wife/mom of 3 boys and 1 pup: Dec 2022- First screening mammogram (Age 45, no risk factors) found over a 5 cm area of microcalcifications of left breast near nipple, which then led to 4 additional mammograms and ultrasound biopsy. Biopsy showed DCIS, high…
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Anastrozole for DCIS and colon cancer?
Hello, I am newly diagnosed with DCIS. Stage 0, Grade 2 and hormone positive. I am about to start my radiation journey soon and with the advise of my breast surgeon, see a medical oncologist after radiation to talk about hormone blockers. I am not a candidate for tamoxifen so it would most likely be Anastrozole (or…
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Just Diagnosed and Confused
Hello all, my name is Tetiana and I’m 37 years old. I was diagnosed with breast cancer on April 30th, 2024. The initial biopsy returned as DCIS stage 0 both ER+and PR+ in two spots in my right breast. One spot was grade 2 and the other was grade 3. I met with the breast surgeon that same week and we chose double mastectomy…
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Single Mastectomy vs double Mastectomy
I am 37 years old and have been diagnosed with DCIS high grade in my right breast. I decided to do Mastectomy but not sure what to do with left breast as I want to keep it. I have a family history of breast cancer. any suggestions?
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DCIS Diagnosed Outside Regular Screening Increases Invasive Disease Risk by 400%
DCIS Diagnosed Outside Regular Screening Increases Invasive Disease Risk by 400% Mar 7, 2024 If DCIS is found before regular mammograms start or in between regular screening, it more than quadruples the risk of invasive breast cancer. Read more…
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Dcis -mastectomy or Lumpectomy/rad
I am 42 yrs old and was diagnosed with dcis grade 2 in my right breast in April. I had a follow up breast mri which showed other suspicious areas that should biopsied with mri. I have the mri biopsy scheduled but I feel like skipping it and just having a mastectomy instead. My MD adviced of the research regarding outcomes…
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Segmental Calcifications (BI-RADS 4) & Biopsy Questions
Hello! I (40F, no family history, no children, no symptoms) got my first mammogram in December and was called back to do another one two weeks ago. I was recommended a stereotactic biopsy because they found calcifications in my left breast. Like a lot of people, I googled my findings and started to have a lot of worries…
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Is symmetry possible with SMX + perky remaining breast?
Hi! I have searched the forum, but couldn't find any posts that were exactly my question. I have been dx with DCIS. As a fun bonus, I probably have body dysmorphia and I am really worried that if I end up at all 'disfigured' in my appearance, I will become significantly depressed. So, my main concern with this diagnosis is…
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Magtrace?
Has anyone here had a magtrace done instead of sentinel lymph node biopsy? I'm scheduled for bilateral mx at the end of this month. They're doing the slnb on my left, since that side has invasive cancer, but on the right where they've found only DCIS the doctor has mentioned doing a magtrace instead. She says this will…
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Just diagnosed... what should be the order of my treatment protocol?
Hi there… I was just diagnosed with DCIS, left breast. I'm not sure what my 1st, 2nd, 3rd, etc steps are - or should be - from here. Here are the medical notes from my diagnosis: Left breast calcifications:- Grade 3 ductal carcinoma in situ, solid type with comedonecrosis. - Numerous microcalcifications are identified. -…
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Diagnosed with DCIS after first mammogram. 32 yrs old.
Hi all. Sorry for the long post but just want to share my story. I previously joined this forum when my mother was diagnosed with breast cancer (age 70) last October. Now…. I have my own diagnosis :( After my mother's diagnosis her hospital offered me a genetic test and I tested positive for a double chek2 mutation. I had…
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Breast Self-Exam, Mammogram Best for Finding Invasive Breast Cancer After DCIS
Breast Self-Exam, Mammogram Best for Finding Invasive Breast Cancer After DCIS Jan 15, 2024 After DCIS treatment, women who develop invasive breast cancer have the cancer found most often via mammogram or find it themselves, rather than during a doctor’s exam. Read more…
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I'm considering a unilateral mastectomy following DCIS diagnosis
Hi. I'm newly diagnosed with DCIS following a biopsy to my left breast. Two areas of DCIS found (located near each other), 8 mm each, 1- ER+ graded intermediate, 1 - ER Neg. graded Advanced. I'm trying to decide between a mastectomy of my left breast or radiation followed by tamoxifen. I'd like to connect with women who…
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Genomic Test Helps Decide Which DCIS Needs Radiation
Genomic Test Helps Decide Which DCIS Needs Radiation Dec 8, 2023 Dr. Seema Khan explains her research looking at the ability of a genomic test to help make radiation decisions for DCIS. The Oncotype DX Breast DCIS Score test is used to help people and their doctors make decisions about whether radiation after lumpectomy…
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Can Certain Younger Post-Menopausal Women With Low-Risk Breast Cancer Skip Radiation?
Can Certain Younger Post-Menopausal Women With Low-Risk Breast Cancer Skip Radiation? Dec 6, 2023 Research suggests that some younger post-menopausal women may be able to skip radiation after lumpectomy, but there are important points to consider. Read more…
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Paget's recurrence?
Anyone out there ever have a recurrence of Paget's? I'm 10 years out from a DX of Paget's and DCIS, grade 3. Had 2 MX. Cancer was on L side. A couple of months ago, I developed this concave circle area on my L chest. Then I developed this very small fine rash on the top edge of this circle. Today I had a punch biopsy of…