Active Topics

See what others are discussing and join the conversation.

Join a current conversation

Hormone Therapy - this counts as hard!
Shared with gratitude to the original author, Kylie Dahl. Expressing what so many of us feel but aren’t always able to put into words. “No one warned me that this part could hurt like hell. I’m on Herceptin and a hormone blocker, and the joint pain is relentless. Hands, hips, knees, shoulders, back, feet stiff, aching,…
New Protocols
I am a 10 year survivor of breast cancer (stage 1a, ER/PR+, HER2+). Now my 75 year old sister has been diagnosed with stage 1a, ER+,HER2- breast cancer. She Iives in a distant state, so I cannot go with her to all of her doctor's appointments. She saw her oncologist today for the first time and was told she is most likely…
AIMSS: How Aromatase Inhibitors Can Affect Hands and Wrists
AIMSS: How Aromatase Inhibitors Can Affect Hands and Wrists January 13, 2026 If you’re taking an aromatase inhibitor, you may have pain in your hands and wrists. Dr. David Bozentka explains the syndrome. Float RightMediumAccessibilityDelete Bone and joint pain are some of the most common side effects of aromatase…
Doing Well on Aromatase Inhibitors (AIs)
I read a suggestion that someone should start a topic for women who are NOT experiencing severe SEs while taking Arimidex, Femara, or Aromasin. I'm about to start taking Arimidex and when I read about the potential SEs I get discouraged. Maybe others would also like to hear about positive experiences. We would love to hear…
Intermittent dosing of aromatase inhibitors (AI) to improve tolerance in post-menopausal women
An interesting study. I'm hopeful! Abstract P1-12-15: Intermittent dosing of aromatase inhibitors (AI) to improve tolerance in post-menopausal women Clinical rationale: A significant proportion of post-menopausal, patients treated with AI reports side-effects, especially bone pain. In such patients, the difficulties to…
Early Stage Breast Cancer - anyone on Letrozole and Ribociclib?
Wondering if anyone has been diagnosed with Early Stage Breast Cancer and on AI/Ribociclib regimen? I’m going to start after radiation and wondering how your treatment is going and if there are any tips out there! Thanks in advance!
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors
Giredestrant Reduces Recurrence Risk More Than Tamoxifen, Aromatase Inhibitors Dec 22, 2025 Results from the lidERA trial suggest that giredestrant could be a new standard of care for early-stage hormone receptor-positive breast cancer. Read more…
Aromatase Hormone inhibitor “5 year pill” side effects?
Has anyone used these? what were your experiences as far as side effects? cardio-muscular-bone damage?
Anastrozole
Diagnosed in July 2025 with Invasive DCIS Stage 1 Grade 0 - 8 mm. Lumpectomy and 3 weeks radiation. No cancer. Oncologist wants me to take Anastrozole for 5 Years. Side effects are keeping me from not taking the drug. Can anyone share experience with this drug?
Cambria 1 and 2 clinical trials, Camizestrant
Hi, I would like to know if some one takes part in this trials? Is Camizestrant better medicine than letrozol? Are there people who take it?
Looking for others with low risk, less than 2cm, IDC stage 1 grade 1HR+ HER2- on endocrine therapy
Are you like me? What endocrine therapy did you follow or are you following? Pre- or perimenopausal, stage 1, grade 1, low risk, node-negative, no genetic risk, screen detected ladies, let's hear from you! What were you prescribed and how have you changed it up over your therapy? What has worked for you? I've seen four…
Aromatase inhibitors versus tamoxifen
I had a double mastectomy in October of 2023, radiation, fortunately no chemo. I began an aromatase inhibitor, Anastrozole, in January of 2024. At about five months in, I began to experience joint pain. It wasn't bad, just a little annoying. As the months passed, it got a bit worse, so my doctor switched me to another AI,…
Two Hospitals Provided fully two different treatments, I can not believe that
I was diagnosed Breast Cancer , ER+ 90, PR-, KI67-30% Tumor 1.8cm, her2 negative, ALAND lymph notes 3/6 positive found from surgery. stage 2, I have done surgery 07/30/2025. Oncotype score 14, UT Southwester Hospital provided the treatment with T 12 time once a week, and AC 4 times, every two weeks. Radiation 30 days. I…
Sex is difficult
I am finished with right mastectomy and reconstruction and left breast reduction and I'm on Anastrazole for 3 more years. My biggest issue is with sex. We always had a great relationship with sex. It was wonderful. Now I find, I cannot climax. I actually don't really have any pleasurable feelings when he touches me. I use…
Top Breast Cancer Research at ASCO 2025
Top Breast Cancer Research at ASCO 2025 Dr. Eleonora Teplinsky explains DESTINY-Breast09, ASCENT-04, and SERENA-6. Jun 2, 2025 The 2025 American Society of Clinical Oncology (ASCO) Annual Meeting featured five days of presentations and educational sessions on all types of cancer. Dr. Eleonora Teplinsky, a board-certified…
Switching from AI to Tamoxifen - Bone loss
Hi, I just met with a new oncologist after the retirement of my previous one. I have been on an Aromatase Inhibitor for six years with worsening bone loss. Taking Fosamax. The new oncologist suggests switching to Tamoxifen. Total treatment time would be 8 years vs. target of 7 if I stay on AI. Has anyone had or considered…
Tamoxifen vs. Ovarian Suppression & AI
Hello! I am new here, newly diagnosed and trying to navigate all this. I was diagnosed with ILC in June 2024 and opted for a bilateral mastectomy, right breast was healthy. Currently with tissue expanders, waiting for implants in a couple months. Stage 1A, tumor was 1.7cm (grade 2), high ER+/high PR+, HER2-, Ki67 15%.…
Discontinuing Anastrozole
Hi All - In 2024 I had diagnosis of Stage 2A ductal carcinoma ER/HR+ HER2 -. BRCA 2 positive. 3cm tumor no metastasis to lymph nodes. I took an aggressive stance on surgeries, opting for a double mastectomy with nipple removal (January 2024) and then removed my ovaries and fallopian tubes in September 2024. I started AI…
Need help thinking through AI with ovarian suppression
My MO would like me to start an AI and ovarian suppression/removal. I am 42. Onc score was 31 for IDC with lobular component. No nodes. I understand that I do have a risk of recurrence but I also value an active lifestyle. I had no question mentally regarding the mastectomy and chemo. I do not feel peaceful about the…
Has anyone here declined aromatase inhibitors?
I am 70 and recently had a lumpectomy for stage 1 invasive ductal carcinoma, 7mm. No lymph nodes involved. My oncologist prescribed anastrozole but I refuse to take it. I've done my homework and it's a quality of life issue for me. I already have mild arthritis, osteoporosis and thinning hair. I don't need more of that and…

Polls, Announcements, Requests

From the team

In Treatment for Early Stage Disease (I-III)? Join us on Zoom, Tues & Thurs weekly!
Join our weekly virtual support group for all who are planning or going through active treatment for early stage disease (I-III). If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
Connect with others by creating your profile! Here's how.
We know this community is so important, so we’ve made it even easier for you to connect with others. With this update, you can: ✅ Share more about yourself so others can get to know you ✅ Find members with similar experiences using profile searches ✅ Get personalized support and resources from our community team How to…
How to use member profile search to find others like you
Using the information you and others share, you can find others based on: 📍Location (ex: lives in Philadelphia, Pennsylvania) 🌍Demographic (ex. is Black or African-American) 🧬Diagnosis (ex: diagnosed in the last year with stage II, ER+, PR+, HER2- breast cancer) 💊Treatment (ex: has been treated with a unilateral…
Were you diagnosed young (under 45) with breast cancer? We'd love to hear from you!
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
How has a nurse helped you through breast cancer?
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
What topics/experts would you like to see on The Breastcancer.org Podcast?
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
Poll: What's the one piece of advice you'd give to someone newly diagnosed with breast cancer?
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
Your Voice Can Shape Clinical Trials | Participate for $100 gift card!
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…
Managing the Holidays and Breast Cancer - how are you coping?
The holidays can bring lots of emotions — and lots of people. How do you handle gatherings, conversations, ongoing check-ins, or expectations from loved ones this time of year?
Poll: This time of year, what are you prioritizing?
The holidays can be overwhelming — what matters the most to you this year? Take a moment to answer our poll and elaborate in the thread below. Happy holidays to you each, no matter what or how you decide to celebrate!

Upcoming events

Special Meetup: Navigating Grief While Living With Metastatic Breast Cancer
Join grief counselor Kelly Grosklags, LICSW for a special Virtual Community Meetup on the long-term grief that can come with metastatic breast cancer, including the loss of normal life, the loss of friends and companions, and the lasting emotional impact of living with ongoing uncertainty.

View all

Welcome!

It looks like you're new here. Sign in or register to get started.

Unanswered posts

These posts are awaiting responses - can you help?

Check them out