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Jul 18, 2009 03:33PM
I was Dx with mucinous type IDC on June 8th 2009, I am 36. Clinical staging is Stage 2, 2.2cm, had lumpectomy, SNB and axillary dissection on July 13 (five days ago). Wating for final path report, so do not know yet if pure mucinous type or mixed.
Indeed there is not much info specific to this type of tumor, but from what I have found, it is a form of IDC but with some more favorable characteristics. If I can recall where I saw the info, I will post.
At diagnosis, surgeon presented favorable aspects of this type first, so it is certainly something that stuck in my mind. When I met with a med onc pre-op, I really had to push him about the options with this possibly more favorable tumor type. He was all about how agressive Rx usually is for women <40, because tumors are often more agressive. Asked about role of Oncotype DX if node negative, necessity of chemo, etc. I am interested in preserving my fertility as well. Doc did mention that if tumor is mixed type, the favorbale aspects of mucinous type are more or less out of the running. Of course all this remains to be determined and I am trying not to be too anxious about it! Although I have to think the the pre-surg and pre-path period is absolutely the worst. Each step that has given me more information and a plan of action has been so incredibly helpful to my mental health.
Despite the lower chances of node involvement with mucinous type, ended up with SNB and axillary dissection because I had some "prominent" nodes on bilateral MRI. Was then sent for a fine needle aspiration of lymph nodes that was inconclusive (argh!). During surgery one of two SNB nodes "grumpy" (my term) so they did proceed to dissection, and a few of those nodes looked grumpy too. Still holding out hope that they were just grumpy and doing their job and do not have tumor cells in there.
Hang in there,
Age 36, lumpx, dose dense AC + 12 weekly taxol, radsx33, tamoxifen
6/8/2009, IDC, 3cm, Stage IIB, Grade 1, 3/24 nodes, ER+/PR+, HER2-