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Topic: tubular carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Aug 27, 2010 02:15PM

aner18 wrote:

Anyone out there also diagnosed with tubular carcinoma?  I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis.  If you have tubular carcinoma, I am wondering about your treatment.  I had lumpectomy, radiation, and tamoxifen.  I am curious to know if all of this treatment is necessary for this kind of breast cancer- tubular, stage 1, grade 1, 0 lymph nodes.

 Thanks, I look forward to learning more about tubular carcinoma related to treatment plan. 

Dx 12/7/2006, <1cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Aug 28, 2010 07:58PM MarieKelly wrote:

I didn't have a pure tubular cancer which, as you stated, is rare. I had invasive ductal (IDC) with tubular features. To be considered a pure tubular cancer, the tumor has to demonstrate a high percentage of tubular features - something like 75% -100% depending on the pathology lab doing the testing.  IDC with tubular features is also usually a low grade/grade 1 tumor but exhibiting less than the 75-100% tubular features that's required of a pure tubular cancer.  

But I do understand why you would wonder if so much treatment is necessary for that type of breast cancer. You obviously have a fairly good understanding of the type of cancer you have or else you wouldn't even be pondering that type of question.  Personally, I don't think it's necessary but current standards of care don't really take the very low risks associated with tubular breast cancer into consideration when making treatment recommendations.  

Perhaps when someone is very young it makes a bit more sense to be more aggressive with treatment of a very low risk breast cancer, but I had just turned 49 when diagnosed and was already in menopause. I didn't allow any treatment other than a wide excision lumpectomy and SNB (just one node removed) and honestly didn't have much, if any, reservations about doing so once I got over the initial shock of diagnosis and could think clearly.  But I wouldn't have hesitated, even for a New York second, had mine been a pure tubular. I feel very fortunate that my invasive BC was just a small, low grade IDC with tubular features, but I would have been even more pleased if it had been a pure tubular like yours.Smile

Ki-67 5%. Wide margin lumpectomy and biopsy track removal. Refused radiation and hormonal therapy. Dx 2/22/2004, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Aug 28, 2010 09:38PM tamgam wrote:

aner18- I was diagnosed with tubular carcinoma in Jan. 2010.  I have only met maybe 2 or three other women with same tyoe.  I had been undergoing biopsies and tests for 2 yrs finding LCIS and atypical hyperplasia so when I got my diagnosis I had had enough.  The markers all indicated a risk for bilateral invasive cancer so even though the tubular cancer was not very large I chose bilateral mastecomies with Lat flap recon. Radiation just scared me more than the bmx.  I was just 40 at dx with small children so my decisions were made with them in mind.  It may seem extreme to some but I have NEVER regretted my decisions.  I feel pretty comfortable  and actually think I look great in clothes.  It is an emotional journey for us all but I feel as if one can never do enough because once you get the cancer dx even with bmx we are never really free of worrying about this beast!

Best of luck to you in your tx.

Dx 1/25/2010, DCIS, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+
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Aug 28, 2010 09:55PM every8thwoman wrote:

Hello Aner18,

I too was diagnosed with tubular breast cancer (altho I think mine was mixed).  There is a very good scientific paper entitled: Tumor Characteristics and Clinical OUtcome of Tubular and Mucinous Breast Carcinomas.  Its in the Journal of Clinical Oncology vol. 17 (May) 1999. pg1442-1448.  This is probably the best scientific publication on tubular breast cancer.  

Best,

Every8thwoman

Dx 10/18/2007, IDC, Right, 1cm, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Sep 3, 2010 05:09PM hopefor30 wrote:

I was diagnosed with pure tubular about three years ago when I was 47 years old.   It was very small -- only 3mm -- and was found after I had an excisional biopsy for DCIS.    I had a mastectomy with DIEP reconstrution due to the amount of DCIS.   I did not have radiation or chemo.    I was then put on tamoxifen which I am still on, but I will be switching soon to an AI.

After just over 2 years on tamoxifen, I developed a thickened endometrium and an enlarged uterus.   I recently had total hysterctomy and bilateral ooph. 

I had done a lot of research and everything points to pure tubular being a more favorable prognosis.   Let's hope so.   I can't say I felt that positive when first diagnosed since i initially thought I had DCIS only.   

Did you have the Oncotype DX test?   I did and my score, although in the low range, was a 16.   I was expecting it to be lower since pure tubular is favorable, but I have seen other women without tubular who have lower scores.   Who knows?    I am now three years post diagnosis and doing well besides the fact that I also had thyroid cancer last year.

I personally feel safer doing the standard hormonal therapy and my onc has never suggested that I skip it.    He does tell me, however, that tubular is low risk, not no risk, but low for recurrence.   I hope he is right.

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Sep 6, 2010 07:14PM aner18 wrote:

Thank you all for your responses.  All great feedback and information which helps me so much.  I so much want to be done with tamoxifen and all the follow up visits, and all the ramifications from treatment.  I am resonating with the fact that tubular carcinoma is low risk, not no risk. I have less than two more years to be on it and then I will be up to 5 year mark.  I think the last of the long haul is difficult, but I have to go through it and make it to the finish line.

Thank you all.  I so much appreciate the posts.

Aner18 

Dx 12/7/2006, <1cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Sep 21, 2010 11:19PM JRae wrote:

I too have been diagnosed with tubular cancer (2 mm).   Currently waiting for test results for Oncotype.  Depending on oncotype score, tamoxifen is being discussed.   Hopefully the results will come in this week.

Dx 7/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes
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Sep 22, 2010 02:27PM tamgam wrote:

Just went to a genetic counselor about BRCA test.  She metioned that having tubular cancer is actually in my favor as it is often not associated with gene mutations.  So, all in all it seems like a favorable type of cancer (if there is one!). Have a good day, ladies!

Dx 1/25/2010, DCIS, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+
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Sep 22, 2010 07:19PM janey47 wrote:

I had tubular carcinoma and had lumpectomy & radiation.  I declined tamoxifen.  I had a discussion with my medical oncologist about it and told her that I preferred not to take it and asked her about the chances of ovarian cancer if I take tamoxifen vs the chances of recurrence of breast cancer if I did not take it.  Turns out the chances are just about equal, maybe a slightly higher chance of ovarian cancer on tamoxifen.  So I said no thanks, I'm comfortable with the risk level, especially considering quality of life issues related to side effects from tamoxifen.

But yeah, when my breast surgeon called with the news that it was tubular carcinoma, she was practically jumping up and down, she was so happy.  :-)

multi-focal, tubular carcinoma Dx 4/29/2009, IDC, 1cm, Stage IB, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Oct 13, 2010 11:25PM JRae wrote:

My oncologist finally called about my Oncotype results.  Seems that there wasn't enough tissue left from my 2mm tumor for them to test.  So no results for me.   My oncologist is not recommending any additional treatment at this time.  He feels the risks of tamoxifen outweigh the benefits in my case.   I'm not sure how I feel.   Part of me says be thankful that it's tubular, stage 1, grade 1 and move on.  Part of me is paralyzed because we don't have the test results to base decisions on.   

Dx 7/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes
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Nov 27, 2010 10:55AM Cocococo wrote:

Hello All,

I had TC T1, NO, MO - 6mm removed via wide local excision. Sentinel node biopsy clear of cancer. Histopathology report stated tubular with tiny spec of DCIS [less than 5% of 6mm]. I am a statistics person through and through. I notice a lot of women don't appear to be and my treating specialists keep telling me I am unusual in this regard. Anyway - my strong recommendation is you ask your specialists for the print out of your stats with/without radiation, with/without adjuvant therapy etc. Its the fastest method I have of not wasting my and the specialists time. Many of these nomograms and algorithms are available on the internet so I crunched all my histopayhology results in before my meetings with specialists so I already had a solid handle on my stats. Bottom line - for adjuvant therapy it could only benefit my survival by 30% of 1% ie., 0.33%. Am I going to have chemo and/or hormones for 0.33% boost to survival? no way especially considering the mortality and morbidity associated with adjuvant therapy was much, much higher. Radiation a little less dramatic - stats showed I had a 95% chance of no local recurrence without RT and with RT, it went up a measly 3% to 98%. So I declined RT as well. The main issue is RT is invariably a one shot deal and in case I had a relapse I did not want to waste my one shot at RT on this cancer. Finally, I recommend you get the ki67 score to check out the cell proliferation index - how fast or slow your cancer is growing, Mine was less than 1% [it runs from 1-100 with 100 being the highest] so it was as slow growing as is possible to measure. The ki67 index assisted my treatment decisions, as did my Oncologist who told me I had the most trivial cancer he had ever seen! And warned me the greatest danger posed to me was over treatment. So yes there are those of us out here who have taken the path of no treatment other than wide local excision, but of course you need to have a solid handle on the stats. 

Coco Dx 5/6/2010, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Feb 21, 2011 10:59AM - edited Feb 21, 2011 11:22AM by isee

Hi everyone,

I am a 52 year old female with a very strong family history of breast cancer. Mother, aunt, sister (at 37 years), great grandmother. My mother and sister had DCIS and are both fine. My sister is now 56.

I was recently diagnosed with Invasive Tubular Carcinoma after several mammograms, an ultrasound, and a fine wire biopsy on Jan. 28th. They initially thought it was either Stenosing Adenosis or DCIS. The sample had to be sent to another lab for confirmation of the diagnosis which I received 13 days after surgery. The pathology report states "The sections show breast containing a very subtle invasive tubular carcinoma...It is associated with many ducts showing DIN1B (so called atypical ductal hyperplasia) and DIN1A (so called flat epithelial atypia)." On Feb. 16th, I had a partial mastectomy (my breast still looks pretty normal) and sentinel lymph node biopsy and am currently waiting for the pathology report that will give an indication of if this cancer has spread ....or remains localized in the breast tissue. I'm confused about the ITC diagnosis...It sounds to me like there is also a lot of DCIS in this breast, but I thought it had to be 75% Tubular to be called TC? Is the prognosis for ITC the same as for TC ...are they the same thing? Any thoughts on this? I'm hoping to get more information early this week. My surgeon said that if we don't get clear margins on the surgery I had on the 16th, that I would have to have a 3rd, possibly a full mastectomy. As of now, he says I will need radiation and if the lymph nodes are not clear, I will also need chemo. I hate the waiting...

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 21, 2011 11:48AM girlsmom3 wrote:

Hi Isee...TC IS an invasive caner ; categoraly. I also have ben diagnosd with TC/DCIS. I had a lumpectomy on Jan 7th but it strongly apprears they were in the wrong area of the breast. I have been for a 2nd opinion/mri and 2 more coreneedle biopsies last thursday, result should come tomorrow. They are trying to *find* it again. My treatment was/is to be 6 weeks 5x a week rad and tamox. I wss told that a lesion so small (7mm) doesn't at all warrant a mx. the answer of got ( a smart ass one if you ask me) is that the TC had to come from somewhere, meaning the dcis was also tubular nature.

my sentinal was also clear. it is not common for it to spread and it usually remains rather small.

my oncotype was 16 and chemo has never, ever been suggested 

falsely diagnosed with Invasive Tubular/DCIS 12/17/10 Stage 1, grade 2, PE+ HER2- 0/1 Dx 12/17/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Feb 21, 2011 12:33PM isee wrote:

Hi girlsmom3,

Thanks for your reply...that all makes sense...including the DCIS component...you must be correct and it must be ductal carcinoma of a tubular nature.

Very sorry to hear that they can't find your suspect spot again. Hopefully they will without too much more poking and proding! Please let me know what your results are.

I'm so glad I found this site...thanks again for your reply and I hope you have a marvelous Monday!

Smile

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 21, 2011 12:35PM Hindsfeet wrote:

cococo...thankyou for your post! It is the voice of reason that I needed to hear. I can't submit to standard treatment of care when my tumor isn't standard. My tumor so far...1 centemeter...IDC, with mucinious and tubular features. They took two small biopsies January 5th. My surgey is March 8th. I am also having a hard time wrapping my head around this type of cancer. Aggressive or radical cancer treatment for a cancer that most likely isn't going to spread or kill me feels like overkill in light of conventional therapy side effects. 

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Feb 21, 2011 02:20PM girlsmom3 wrote:

I am SO in the same boat with the rad/tamox opinions.

Since the first OP was a barn job and most taken out on CNB, without a DEFINATE fins in my last iopsies I can NOT justify treatment. HOWEVER even though it is tubular, there are still instances with mets (bone being the favorite as far as I know) It is not harmless, it still is cancer...maybe like strep throat instead of double pnumonia ;)

The rads terrify me incase of a bigger situation in the future and the tamox, even though I am 100% E (and 75% P) still will send me into a health anxiety whirlwind.

It is so hard to be on the fence. It is so hard to pick a side too. I almost feel as if <i'm damned if I do and be really damned if  I don't. How i wish to the heaven above that my lumpectomy wasn't screwed up :(((( going on 2.5 months with no answer.....i kind of pray that tomorrows reult with show just 1 tiny cell....just so we can continue with a clue as to what step should e taken next. 

falsely diagnosed with Invasive Tubular/DCIS 12/17/10 Stage 1, grade 2, PE+ HER2- 0/1 Dx 12/17/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Feb 21, 2011 07:01PM isee wrote:

This is an interesting study. It is a slight bit more current then the article referred to earlier in this thread and apparently does not agree that chemo is not necessary...unless I read it wrong...

ANZ J Surg. 2001 Jan;71(1):27-31.

Tubular carcinoma of the breast: prognosis and response to adjuvant systemic therapy.

http://www.ncbi.nlm.nih.gov/pubmed/11167594

CONCLUSIONS: Compared to other histological types of breast cancer, tubular carcinoma has a better long-term prognosis. Adjuvant chemotherapy may further improve prognosis and involvement of axillary nodes may not be an indicator for early death due to breast carcinoma.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 21, 2011 08:23PM - edited Feb 21, 2011 08:24PM by Hindsfeet

I know that my tumor also has mucinious features. I do not yet have my fnal pathology report. I read that the mucinious and tubular are very slow growing cancers. They rarely invade nodes or mets. I have read and heard of a few women who have had later stage mucinious cancers...rare! My question is how many women with tubular cancers died due to tubular cancer? Sorry, but I'm trying to see how serious this type of cancer really is. I'm dealing with this right now.

I heard a doc say this isn't the type of cancer that's going to kill you.... hmmm...what does that mean?

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Feb 21, 2011 10:58PM - edited Feb 22, 2011 08:28PM by isee

Well...the way I look at it, any cancer will kill you eventually if you don't take care of business. I also agree, based on what I have been reading, that you won't die of TC of the breast, but if not treated, I would imagine that at some point, it would show up elsewhere in the body, and that could be even worse.

I plan on doing pretty much what my doctors recommend. I don't know what it is like elsewhere, but after my experience so far, I feel very glad to be living in Canada...I can't imagine what this would have cost me so far if I was having to pay cash. I'm also sure my docs are not going to recommend something that I don't really need. The bottom line for me, I want to be treated as they would treat their wife, mother or daughter.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 22, 2011 07:07PM isee wrote:

girlsmom3 did you get your results today?

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 28, 2011 08:55AM hopefor30 wrote:

I would also like to point out that you can always try tamoxifen and see how you react.   You don't have to stay on it if it bothers you.    Although my pure tubular was only 3mm, I had a 6cm span of DCIS  - high grade with necrosis.    I had two different kinds of cancer.    Tamoxifen is also good for high risk DCIS.     You didn't say what the pathology on your DCIS component was...

I had a mastectomy due to the DCIS not the tubular invasive.    I have now been on tamoxifen for 3.5 years and doing well.   The panic before taking it is much worse in some cases than the reality.   I read all the bad stuff and was afraid to take it, but now I am glad that I did.    I did not, however, do chemo or radiation and I am glad to have escaped that. 

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Mar 9, 2011 02:32PM girlsmom3 wrote:

Hi isee...i am NEGATIVE all the way around.....mri and both core needle biosies....not one single cell....the result is Fibrosis NOT tubular!!!!!! next step, the lawyers office when i get my strength back from all of this.

falsely diagnosed with Invasive Tubular/DCIS 12/17/10 Stage 1, grade 2, PE+ HER2- 0/1 Dx 12/17/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Mar 10, 2011 02:10AM isee wrote:

Hi girlsmom3,

Thanks for the update....very happy to hear that you don't have BC ...really sorry to hear that you had to go through all this though. Frown

I'm still waiting to hear my pathology report...tomorrow is my big day. Been waiting about 3 weeks!

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Mar 16, 2011 09:41AM Cocococo wrote:

Evebarry  thank you for your kind words. I should have added that I take my Survivorship Planning very seriously and I am on a strict regime of a breast coil MRIand ultrasound [no radiation involved] at six months, full physical with very experienced breast surgeon [his breast exams are intense and strange and almost as strong as the compression from a mammogram] and a mammogram, with out without ultrasoud. I spread these visits out over a 12 month period. I am resigned to or accepting of the need to keep up this regimen for at least next 5-10 years and possibly the rest of my life. Mammograms have - to my mind- unacceptable failure rates especially in dense breasts like mine and are less sensitive at picking up invasive cancer compared to MRI. MRI more sensitive at detecting invasive cancer BUT less sensitive with other types. I keep an option for CTscan up my sleeve in the highly unlikley event I get mets - I wasnode negative BUT there are rare cases of mets developing through other systems in the body and by-passing the axillary lymph nodes. Each CT scan is the equivalent to 2,000 xrays so I am not going to expose myself to that without serious justification! Many Drs support physical exams as the main follow up BUT most specialist tell me the lump has to be 1cm or more to enable them to feel it and I don't want to wait till its 1 cm for it to be detected. Also, after the manual breast exam  from the highly experienced breast surgeon,I realise NO manual breast exams ANY other Dr had performed on me had been anywhere near as intense or thorough. I would not rely on a GP for my breast exams nor even an inexperienced surgeon. I have seen recent research to the effect that the women with BC who survive the longest have one characteritic in common - highly experienced breast surgeons. I also feel doing breast exams myself is practically useless although I know there is this empowerment movement encouraging us to do it. I simply don't have the skills although obviously I keep a close eye on any changes. Bottomline - whether you have Tubular carcinoma or not, and irrespective of the treatment you opt for, as breast cancer survivors we must take control and insist on active follow up to ensure survival.
Coco Dx 5/6/2010, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Mar 16, 2011 09:48AM - edited Mar 16, 2011 09:51AM by Cocococo

Evebarry  if you log on to Adjuvant online as well as other breast cancer survival calculators such as those on the Livestrong Lance Armstrong site, you can input your histopathology results and come up with stats, pie charts, graphs etc about all sorts of things including overall survival [OS] , cancer free survival and disease free survival. My stats were with tubular BC and other features I had, I had a 5% chance of BC recurrence in next 15 years . My BC death stat was 1%. I well qualified Swedish Radiation Oncologist calculated it separately for me and came up with 0.87% so that is pretty consistent.

Another way of analysing it using these tools was to see how long with BC cut off my life - answer was around 9 months so instead of dying in 31 years, I would pop off at 30 years and 4 months. The IF about all this is of course if I have no mets. You can slice and dice the stats in these various sites in many chilling but interesting ways!T

Coco Dx 5/6/2010, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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May 17, 2011 06:54PM peppopat wrote:

I  have tubular  and didn't take care of  it when  I  should've.   Not  my  fault.   I  blame  my  PCP  doctor  and radiologists  for  calling all  wrong two  years ago  EVEN THOUGH  I  HAD A VERY  OBVIOUS PALPABLE MASS.   Now,  the tubular  hit one of my nodes  so  all the so-called  good  news  about having pure  tubular is  way  overrated.   I  just  finished having the lumpectomy  Apr 2011  and will most  likely start Rad next  week.
Abnormal MRI: Mar'09, Dx: Aug,'10 DCIS w,Grade 2, ER+99%/PR25%+ HER2+, then 4/20/2011, lumpec, w/SLND Pure Tubular confirmed, HER2 status NEGATIVE, 1/3 node+ for micromet, Oncotype score--28, no chemo, no rads--thank u very little Dx 8/6/2010, IDC: Tubular, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 4/27/2011 Lumpectomy: Right Dx 6/1/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 8/31/2017 Lymph node removal: Right Hormonal Therapy 9/3/2017 Femara (letrozole)
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May 18, 2011 01:32AM - edited May 18, 2011 01:38AM by isee

Hi peppopat,

Really sorry to hear about your situation....what did your docs tell you two years ago and how could your HER2 status change?

I meant to add my diagnosis to this thread but guess I forgot...so here it is at the bottom of my post....I had my 10th of 16 radiation treatments today. My radialogical oncologist is having another look at my risk assessement to see if I can get away without Tamoxifen. I am a bit concerned about being under treated if I don't take it...and after reading that you are node positive peppopat, I'm even more concerned.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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May 29, 2011 08:16PM - edited May 30, 2011 10:12AM by peppopat

Isee,

My  Doctors  have  not  talked to me about  how HER2  goes from positive to  negative  when it  becomes invasive. Most DCIS  is  usually  positive.  I  have not  seen a medical  oncologist  or radiology oncologist yet that  could explain that to  me---BUT SOON.

If  it's  any  consolation to you  about  my 1  node positive  for PR  and Keratin  (The 99%ER+  just  disappeared altogether when it  hit the node--  so  go  figure),  my  surgical oncologist does not believe I  need a  completion axillary  so  I'm  happy  about  that.   I  came to  find out  that even having positive node or two  is not the end of the world.  Keep  in mind,  my  BC  is  not IDC,  it's  TC   (Tubular Cancer)  which is supposed  to a favorable subtype of  IDC  but only time will tell.  Good luck  to you  and don't  worry  too much.

Abnormal MRI: Mar'09, Dx: Aug,'10 DCIS w,Grade 2, ER+99%/PR25%+ HER2+, then 4/20/2011, lumpec, w/SLND Pure Tubular confirmed, HER2 status NEGATIVE, 1/3 node+ for micromet, Oncotype score--28, no chemo, no rads--thank u very little Dx 8/6/2010, IDC: Tubular, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Surgery 4/27/2011 Lumpectomy: Right Dx 6/1/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 8/31/2017 Lymph node removal: Right Hormonal Therapy 9/3/2017 Femara (letrozole)
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Oct 9, 2011 09:13AM - edited Oct 9, 2011 09:14AM by Cocococo

Hello Peppopat,

Its been a few months since your post and I was wondering how you were faring? Also wanted to comment:

1. when I said TC is favourable I did not mean TC that is left alone or untreated.  If its TC it is invasive cancer so not having it removed would be a very risky  move. I meant and I think most reseachers mean TC is favourable when treated. The extent of treatment required/recomended/desired depends on a host of factors. I listed my considerations when I accepted Oncologistsstrong  recommendation for no chemo and no hormonal or other adjuvant therapy. Radiologist still recommended I have radiation but after rewviewing all the stats and facts said he perfectly understood why I might chose not to have it as the benefit was so slight in my case. Other more advanced TC may have stronger stats in favour of radiation. I have not encountered anyone thus far who has recommended zero treatment for TC. 

 2. It is not unusual for HER2 status to change. A number of researchers are recommending that the test be done as time goes on for this reason. Also, it is always possible for the original HER test to have been wrong. Theories about why HER status change vary but some think the treatment itself could cause this change while others think it may be a variant on the way particular cancers evolve. Another theory is that being unwell or run down could make this happen.  

Coco Dx 5/6/2010, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Oct 10, 2011 02:59AM - edited Oct 10, 2011 03:04AM by isee

Hi fellow ITCers. I just got the results of my genetic testing. I do have the BRCA2 gene mutation.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Oct 18, 2011 08:31AM hopefor30 wrote:

I had pure tubular as well -- my BRCA was negative.

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