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Topic: tubular carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

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Posted on: Aug 27, 2010 02:15PM

aner18 wrote:

Anyone out there also diagnosed with tubular carcinoma?  I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis.  If you have tubular carcinoma, I am wondering about your treatment.  I had lumpectomy, radiation, and tamoxifen.  I am curious to know if all of this treatment is necessary for this kind of breast cancer- tubular, stage 1, grade 1, 0 lymph nodes.

 Thanks, I look forward to learning more about tubular carcinoma related to treatment plan. 

Dx 12/7/2006, <1cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Sep 14, 2020 03:46AM isee wrote:

Thanks Mountanlover for your kind thoughts....

Two areas of interest were located in my right breast...both not yet 1cm in size... the recommendation of the radiologist is to do another ultrasound and a mammogram 6 months from now.
I'm not super happy with the wait and see, I told my GP who shared the report results with me that I wanted to see my surgeon from my previous breast cancer surgery as he was EXCELLENT...but the doc said I couldn't...when I asked why, he said he had retired. I'm pretty disappointed as I somehow thought that if I ever needed surgery again he would be my surgeon. I have a scheduled appointment with a doc from the cancer clinic on the 22nd as part of my high risk survellance, so I'll ask him/her what they think. I would sooner have anything suspicious removed even though the report says "probably benign"...this is what the report said for my first BC...but my surgeon said..."if you were my wife, I'd want it removed", so he did,...sure enough, it was cancer. I'll post if the cancer doc says anything interesting.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Sep 16, 2020 04:19PM Mountainlover wrote:

Oh Isee, I am sorry the ultrasound was not entirely reassuring. Such findings are common but after a first cancer diagnosis we really do not need the uncertainty! And it's hard to lose a good doctor. The good thing in all this is that you're going to see another specialist soon, who will hopefully put your mind at rest! Keep us updated, and I'll be thinking of you.

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Sep 20, 2020 01:47PM Kaneli wrote:

Hi Everyone!

I was on here looking up info on Lobular BC (Invasive, I believe) for a friend and I decided to come to the Tubular subtopic. I think we are the lucky ones!

It has been awhile since I have been on here but thought I'd give you an update on my Tubular Carcinoma history. First of all, I am about 4.5 years cancer free! I had my most recent mammo (3D) in February and all was great. They did take a little longer to discuss with me and called me in for some extra pics, but they determined that they were looking at scar tissue and there was nothing of concern. As we all know, those hours waiting, dressed in your little smock seem like an eternity. This last time, as I waited, I had myself mentally prepped for bad news and I was already thinking about the breast surgeon I would use (the same one as last time), etc. I think we all can relate to the anxiety of that day, as well as the days leading up to it.

I had my bone density scan the same day. She said there is a little bit of bone loss but my numbers are still excellent for a 65 year old woman, regardless of BC history.I am taking letrozole which really has not been a problem. I do get some night sweats (even in the day) sometimes, but it's manageable. My

MO said I will probably be able to stop the letrozole next Spring, at my 5 year mark.

As far as my lifestyle, I have made a few changes. I try to exercise regularly. I select no hormones added and organic products where I can. I take Turmeric daily and I drink green(iced) tea daily.

I must admit, I still enjoy my wine, but I try to be moderate on that front.

Take care everyone, stay strong and healthy, and God Bless!



Dx 2/10/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 3/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/27/2016 Balloon-catheter: Breast
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Sep 20, 2020 01:54PM isee wrote:

WOW...great news for you Kaneli! Glad you are doing so well...Yes, we are very fortunate that we had Tubular BC for sure!

Wishing you continued health and happiness!

:)

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Sep 26, 2020 07:58AM Mountainlover wrote:

Kaneli thank you for posting, it is so encouraging to read about your positive esperience , letrozole included. All the very best !!

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Nov 25, 2020 05:21AM Aseye wrote:

I was diagnosed with IDC of no special type with tubular pattern growth that went into 20 out of 21 lymph nodes. I dont know the percentage of tubular but it's obviously mixed type.With good prognosis of tubular I'm wondering why it went into so many lymph nodes and what's my prognosis because I guess my tubular is aggressive

Dx 4/12/2019, IDC, Left, 2cm, Stage IIIB, Grade 2, 20/21 nodes, ER+/PR+, HER2- (IHC)
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Dec 15, 2020 05:20AM isee wrote:

Update...I had an MRI a few days ago even though I'm allergic to the gadolinium...I took a benadryl prior to the scan and it seemed to stop any reaction. I was phoned the very next morning to get into see my GP to review the results. Normally I would have to wait a week or so for results. So I knew right away that something was up...

During the scan it was noted that there were 3 spiculated nodules the largest being 7mm in size and the two others were 5mm each. There were two enlarged lymph nodes in my right underarm as well. One of the lymph nodes was 2.3 cm in length with eccentric cortical thickening (I gather that is not good). I'm not sure if 2.3cm is very large or not...anyone know?

They have now scheduled me for a breast ultrasound and possible biopsy on December 30th. I wish they would move a bit faster...we have been looking at this now since Sept. and after spending a month in hospice last March watching my poor sister die of a bone metastasis, sorry for mentioning this yet again...I have no intention of going there! Whatever this is, I want it dealt with sooner than later!

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Dec 16, 2020 01:50AM Mountainlover wrote:

Isee, I'm so sorry that you have to go through this, including the added anxiety at having to wait 2 more weeks. All my thoughts and wishes are with you, for a good outcome. Hopefully you have some nice plans for the Christmas period to keep you busy and distracted as much as possible? Lots of virtual hugs , and let us know when you have updates

Ps - unfortunately I couldn't help on nodes size, hope that someone else can answer your question

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Dec 16, 2020 06:03PM - edited Dec 16, 2020 06:10PM by grainne

Oh, Isee, I'm so sorry. What rotten luck. Hopefully the results will be reassuring but if not, throw the book at the damn thing, like you said you would. Of course you are thinking of your sister but you are not her and, even if the wretched thing is back, treatments are continually improving. Agitate, complain and be as difficult as you need to be to get prompt attention. Keep us all in the loop...we will be thinking of you.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 18, 2020 01:50AM isee wrote:

Thanks Mountainlover and Grainne! I'll keep you posted. I hope you are both doing well! Christmas will be quiet here. We have an order from our Provincial government to only socialize with the people who live in our house. So that means the we will not be able to spend Christmas with our family unfortunately. Hopefully next year this will just be a bad memory!
Take care and I hope you enjoy your Christmas!

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Dec 24, 2020 06:07AM Mountainlover wrote:

Thank you Isee for your kind wishes! It will be a quiet Christmas for us, too, but we are grateful as we could travel to our place in our home country. Lots of precautions, a covid test, masks and gels all the time. Still, we could see our closest family (although at a distance) and our hills. Now we can rest for a while. And we'll try to make these days special with take aways from some good restaurants in the area (only take away allowed). All the best and yes, keep us posted!

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Dec 24, 2020 01:22PM isee wrote:

That sounds wonderful Mountainlover! Enjoy :)
Merry Christmas to all!

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Dec 24, 2020 04:02PM grainne wrote:

Yes, a happy Christmas to everyone and a new year that brings hope and joy. x

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 24, 2020 06:46PM Mountainlover wrote:

Happy Christmas to all!

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Dec 30, 2020 04:41PM grainne wrote:

Isee, thinking about you today and hoping all went well.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 30, 2020 06:08PM - edited Dec 30, 2020 06:22PM by isee

Thanks for thinking of me Grainne. I had the ultrasound and the radiologist did biopsy 2 areas that he said looked very suspicious...but also very small. He thought that if they were malignant that they were small enough that he would not think that it would have spread the the lymph nodes. He told me to call my GP today and have him make me an appointment with a surgeon...not to wait for the results. So I spoke to my doctor but he said he is not allowed to make an appointment with the surgeon without the pathology report. The radiologist put in 2 wire markers at the spots he biopsied so they can be found easily....I suspect he is going recommend a surgical biopsy on his report which is why he said to call the surgeon now. So now I'm waiting for results again...apparently it will be about 10 days.
I hope everyone had a nice Christmas and I guess it's close enough to wish all a happy New Year!

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Dec 31, 2020 02:57AM Mountainlover wrote:

Isee I'm still keeping my fingers crossed for you and hope it's a false alarm. At any rate, the fact that the suspicious areas are so small is very good. Please keep us posted and best wishes to all for a good 2021. I can't wait for this awful 2020 to finish!

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Dec 31, 2020 03:00AM isee wrote:

Thanks Mountainlover, I'll let you know when I hear something...I think it will be soon. Yes, super happy to be seeing the back of this horrible year. Really hoping 2021 is a whole lot better!!!

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Dec 31, 2020 08:52AM grainne wrote:

Hi, Isee. Things are moving at least, and that is pretty reassuring from the radiologist that they are so small, even if malignant. Keep in touch and know that we are behind you and beside you. x

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2021 03:35AM - edited Jan 15, 2021 03:36AM by isee

Howdy all, I hope the new year is treating everyone well so far.

I got the histopathology report today from the biopsy on Dec. 30th. I thought I had them the other day when my GP told me the report did not mention cancer, but that he would refer me to a surgeon (should have done that on Dec. 30th). The new report says one of the biopsy specimens (they biopsied 2 nodules) contains a low grade DCIS. That was a bit surprising to me, but I know it could have been much worse. So now I'm waiting to see a surgeon. Hopefully they don't dawdle. Terrible time to have to be dealing with this...Almost 10 years to the day since my first breast cancer diagnosis on the other side. I'm sure this is a result of my BRCA2 mutation.

I'll keep you posted!

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 15, 2021 08:45AM grainne wrote:

Hi, Isee. I know it's a blow but I can't help being relieved. If it had to be something, then a small amount of dcis is manageable. Scoop it out asap and have done with it. How are you feeling?

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 15, 2021 12:17PM isee wrote:

Hi Grainne, I'm totally fine, thanks for asking. Rather not be dealing with any of this, but it's pretty minor considering other possible scenarios. We are heading off to our cabin on the ocean today for 4 or 5 days, looking forward to the break from the usual. It's only 2 hours by car away.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 16, 2021 03:16PM - edited Jan 18, 2021 12:43PM by Mountainlover

Isee I am sorry the outcome was not benign but I'm glad that it's "minor" at least in the cancer world. I hope things move fast now.

I like to think that you're enjoying your time at the cabin now and have switched off as much as possible. Take care and I look forward to hearing from you.

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Jan 26, 2021 02:34AM isee wrote:

Thanks Mountainlover, the cabin was awesome...some big wave action that is always exciting. We are back home now and I'm just waiting on my appointment with the surgeon on Feb. 9th. I just want this all over and done with. Not happy about having to be around doctors or hospitals during this time of covid. Numbers are not too bad where I live, so I'm hoping that is not also thrown into this mix. Other that that, all good here!

Hope you are all doing well. Take care!

:)

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 12, 2021 04:19AM grainne wrote:

Hi, Isee. Just wondering how the appointment with the surgeon went?

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 12, 2021 02:23PM - edited Feb 12, 2021 02:24PM by isee

Howdy grainne and all, I hope you are all doing well!

Had the appointment with the surgeon on Tuesday the 9th as scheduled. He said he thought the two spots at 3ish o'clock should be removed due to the papillary lesion mentioned on the pathology report from the needle biopsy on Dec. 30th. He said his plan is to do an ultrasound guided fine wire excision/biopsy. The other lesion at 9/10 o'clock he said is a lymph node and he is not concerned about it. In the MRI report from Dec. 9th it mentions two enlarged lymph nodes in the right axilla "that should be examined"...I asked him if he was going to look at the lymph nodes under my arm that were mentioned in the MRI report and he didn't really respond...he started talking about the 9/10 o'clock lymph node. I was pretty nervous so I didn't push it, in hind site, I should have. I certainly don't want any surprises in the future! I think it is very interesting that I might have another "rare" cancer type, papillary...sounds even more rare than tubular!

When I left the receptionist gave me a package of info about preparing for the surgery and said it would be within a month. The next morning I got a phone call from her, they have scheduled the surgery for next Wednesday, Feb. 17th. YEAH!!! Super happy to be getting this done sooner than later. I'm sure it will be a few weeks after that before I get a more detailed pathology and find out if I will require any further treatment. I'll keep you posted...and thanks for your concern!!! Have a great day everyone!


What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 12, 2021 05:48PM grainne wrote:

That is terrific news that you only have to wait a short time. I hope all goes well for you. Keep in touch x

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 13, 2021 03:49PM Mountainlover wrote:

Thanks for letting us know, and good luck with the surgery Isee. Will It be an outpatient procedure? Have a great day, too, and I hope these days are as serene as possibile.

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)
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Feb 13, 2021 04:49PM isee wrote:

Hi Mountainlover, thanks for thinking of me! Yes...just day surgery is the plan. Can't wait! All good here now that I've seen the surgeon.

:)

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 14, 2021 02:25AM Mountainlover wrote:

It's good that it will be a short stay in the hospital. Take care !

Dx at 47, IDC/DCIS, tubular, multifocal Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/13/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/23/2020 Femara (letrozole)

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