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Topic: tubular carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Aug 27, 2010 02:15PM

aner18 wrote:

Anyone out there also diagnosed with tubular carcinoma?  I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis.  If you have tubular carcinoma, I am wondering about your treatment.  I had lumpectomy, radiation, and tamoxifen.  I am curious to know if all of this treatment is necessary for this kind of breast cancer- tubular, stage 1, grade 1, 0 lymph nodes.

 Thanks, I look forward to learning more about tubular carcinoma related to treatment plan. 

Dx 12/7/2006, <1cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Sep 9, 2020 05:01AM Mountainlover wrote:

Hello everyone, I have been reading extensively since my diagnosis but this is my first post. I found this topic very helpful and thought I'd contribute.

I was diagnosed with what first appeared to be a 1.5 cm IDC/DCIS in my left breast further to the annual screening (mammo and ultrasound). I'm sure something was there the year before, too (and even earlier) but I guess my very dense breasts made it tricky to see. Anyway, as part of my pre-surgical exams I underwent an MRI with contrast which revealed a number of suspicious masses in the same breast. Subsequent biopsies confirmed multi centricity so the plan moved from lumpectomy + radiation to mastectomy. This was very hard for me to accept, especially since the first BS I saw excluded immediate recon and announced 10/15 lymph nodes dissection "to be on the safe side" due to the multicentric nature of the cancer.

I went for a second opinion and it turned out that despite my multiple masses, as they were all in the same area of the breast sentinel node technique would be possible. The second BS (and the PS in the same breast cancer team) also indicated that a NSM would in principle be possible if I wanted (subject to infra- and post-op confirmation that no cancer cells affected the nipple), with TE placement or direct to implant depending on the state of the mastectomy flap during surgery. It was my choice to go for implants as opposed to autologous flap.

I woke up from surgery with TE, my nipple still in place (yay!) and only 1 node removed, which was a great relief. Surgical margins of the smaller mass (0.3 mm) were very very close but during emergency surgery the next day (due to a large hematoma) the surgeon scraped some more tissue and was satisfied this would be enough. I don't feel so confident but hey...

Histology confirmed 4 invasive tubular cancers ranging from 0.8 to 0.3 mm. Only the largest one, which was close to an approx 1 cm area of DCIS, was picked by the annual mammo and ultrasound. I am still in shock at how ineffective regular screenings can be in case of dense breasts. No-one ever mentioned this to me and having no family history I was blissfully unaware.

Anyway, after surgery I was informed that no chemo nor radio would be needed, but I was placed on Femara. The MO stated that I was "lucky in that this type of cancer is more likely not to return than to return" but AI would still be the plan as they cut the risk of recurrence (MO didn't use the term mets) by 50%. I should add that I was perimenopausal back in 2016 - 2017 when a number of doctors insisted I should take HRT due to my age (45 then). My perimenopausal symptoms were mild and I was concerned about the HRT risks but after a number of consultations I finally started with a combined ER and PR pill. 2.5 years later the cancer diagnosis...

I have looked at statistics online and I know I can consider myself "lucky" in that prognosis is very good with tubular. Still, even if Femara is not a walk in the park, cutting even by 0.3% my risk of cancer-related death in 15 years seems worth to me personally, at least as long as side effects remain manageable. Please don't get me wrong, no judgment here whatsoever! It is still early days for me , so far I have noticed joint pains (for which I try to exercise around 1hr per day and take curcumin) hair loss (I've started Hair Band treatment) and vaginal dryness (both BS and MO were ok with me taking estrogen ovules 1x week . I also add another lubricant 2xweek and all is well so far). BS and MO are also ok with Femarelle (soy-derived) to help with menopause symptoms. In fact, it was prescribed by BS number 1. I cannot help but thinking that if I had a more aggressive cancer they would prohibit it.

Sorry for the long post. Just wanted to say that I am immensely grateful for all the wisdom and information shared in these boards. I hope I can reciprocate at least partly by putting my own experience here.


Dx at 47 Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/14/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/24/2020 Femara (letrozole)
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Sep 9, 2020 02:00PM isee wrote:

Hi Mountainlover and everyone,

I was diagnosed with invasive tubular carcinoma back in 2011 (I have posted on here before about it)...had 2 surgeries to remove it...as they didn't get clear margins the first go around....then I had 16 radiation treatments which were optional...but I decided they were good insurance. I did have my ovaries and tubes etc. removed due to my BRCA2+ mutation the following year. I have gained about 50lbs that I attribute to this surgery and frankly wish I had not done it. I think my risk of ovarian cancer was minimal...but hey, the choices we make...who knows if they are the right ones. I was told that taking tamoxifin would reduce my risk of a reoccurrence by 1% so I declined it. I have been fine ever since...knock on wood. I have mentioned on here that I go every 6 months for a check due to the mutation....it's supposed to be a mammogram alternating with a breast MRI with contrast...but I had an allergic reaction to the contrast so now it's a diagnostic untrasound. I actually have one scheduled for today...my fingers, toes and everything else are crossed hoping for good results.

My poor sister was not so lucky, unfortunately she passed away this past March with bone metastasis. She had DCIS back in 1991 I believe...she was 37 years old and then a new primary in the other breast as well as a reoccurrence at the original cancer site (at the same time) at about 60 years old...5 years ago. She opted for a double mastectomy but refused any other treatment as she had such a bad chemo experience when she was 37.

Personally if I am diagnosed with another cancer, I will be throwing the book at it...I won't risk a metastitsis if there is any chance to prevent it reasonably.

I do firmly believe, that if you are going to have a breast cancer, tubular is the one to have!

Hopefully my 9 years of no more cancer is encouraging to others as well as you Mountainlover! Wishing you all the best with your continued recovery and a healthy future!!! It sounds like you are making all the right moves.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Sep 13, 2020 04:42AM Mountainlover wrote:

Thank you so much Isee for your post. I was moved by your attention...

I am really sorry for your sister. I can't imagine.

But your experience is indeed very encouraging. I was unable to write here for a few days but I've been keeping my fingers crossed for you, how did the ultrasound go?

All the best to you as well!

Dx at 47 Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/14/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/24/2020 Femara (letrozole)
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Sep 14, 2020 03:46AM isee wrote:

Thanks Mountanlover for your kind thoughts....

Two areas of interest were located in my right breast...both not yet 1cm in size... the recommendation of the radiologist is to do another ultrasound and a mammogram 6 months from now.
I'm not super happy with the wait and see, I told my GP who shared the report results with me that I wanted to see my surgeon from my previous breast cancer surgery as he was EXCELLENT...but the doc said I couldn't...when I asked why, he said he had retired. I'm pretty disappointed as I somehow thought that if I ever needed surgery again he would be my surgeon. I have a scheduled appointment with a doc from the cancer clinic on the 22nd as part of my high risk survellance, so I'll ask him/her what they think. I would sooner have anything suspicious removed even though the report says "probably benign"...this is what the report said for my first BC...but my surgeon said..."if you were my wife, I'd want it removed", so he did,...sure enough, it was cancer. I'll post if the cancer doc says anything interesting.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Sep 16, 2020 04:19PM Mountainlover wrote:

Oh Isee, I am sorry the ultrasound was not entirely reassuring. Such findings are common but after a first cancer diagnosis we really do not need the uncertainty! And it's hard to lose a good doctor. The good thing in all this is that you're going to see another specialist soon, who will hopefully put your mind at rest! Keep us updated, and I'll be thinking of you.

Dx at 47 Dx 6/10/2020, DCIS, Left, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/10/2020, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 7/14/2020 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 7/24/2020 Femara (letrozole)
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Sep 20, 2020 01:47PM Kaneli wrote:

Hi Everyone!

I was on here looking up info on Lobular BC (Invasive, I believe) for a friend and I decided to come to the Tubular subtopic. I think we are the lucky ones!

It has been awhile since I have been on here but thought I'd give you an update on my Tubular Carcinoma history. First of all, I am about 4.5 years cancer free! I had my most recent mammo (3D) in February and all was great. They did take a little longer to discuss with me and called me in for some extra pics, but they determined that they were looking at scar tissue and there was nothing of concern. As we all know, those hours waiting, dressed in your little smock seem like an eternity. This last time, as I waited, I had myself mentally prepped for bad news and I was already thinking about the breast surgeon I would use (the same one as last time), etc. I think we all can relate to the anxiety of that day, as well as the days leading up to it.

I had my bone density scan the same day. She said there is a little bit of bone loss but my numbers are still excellent for a 65 year old woman, regardless of BC history.I am taking letrozole which really has not been a problem. I do get some night sweats (even in the day) sometimes, but it's manageable. My

MO said I will probably be able to stop the letrozole next Spring, at my 5 year mark.

As far as my lifestyle, I have made a few changes. I try to exercise regularly. I select no hormones added and organic products where I can. I take Turmeric daily and I drink green(iced) tea daily.

I must admit, I still enjoy my wine, but I try to be moderate on that front.

Take care everyone, stay strong and healthy, and God Bless!



Dx 2/10/2016, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 3/22/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/28/2016 Balloon-catheter: Breast
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Sep 20, 2020 01:54PM isee wrote:

WOW...great news for you Kaneli! Glad you are doing so well...Yes, we are very fortunate that we had Tubular BC for sure!

Wishing you continued health and happiness!

:)

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-

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