Join Us

We are 225,737 members in 83 forums discussing 164,196 topics.

Help with Abbreviations

Topic: Covid-19?

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Mar 11, 2020 08:31PM

Yuuki wrote:

Increasingly, it's feeling like the elephant in the middle of the room. So, I thought I would open a thread where we can air our concerns, frustrations, fears, and nervous humor about the SARS-CoV2 virus and give each other support. Do you work, and can you work from home? Kids in school? Are you practicing "social distancing" and to what degree? Are your family members and caregivers doing the same? What are the practical considerations and concerns you deal with on a daily basis? Is there an outbreak near you?

I'm hoping we can come here to support each other, commiserate, and get through it together. It would certainly help me.

Blessings and waves - from 6 feet away - to all of you.

Yuuki

Log in to post a reply

Page 2 of 7 (192 results)

Posts 31 - 60 (192 total)

Log in to post a reply

Mar 13, 2020 06:52AM ErenTo wrote:

There is something wrong with the site when I load it. It drops Italy, Iran and S. Korea and shows a steep decline in cases. Not sure if everyone seeing the same.

Survived an unexplained sudden cardiac arrest b/w surgery and chemo (while attending a chemo info session at the hospital). Code blue, CPR, induced coma, ICU, ICD. Escaped alive with heart and brain unscathed! Dx 12/8/2014, IDC, Left, 2cm, Stage IIIA, Grade 3, 6/13 nodes, ER+/PR+, HER2- (FISH) Surgery 1/12/2015 Lumpectomy: Left Chemotherapy 3/20/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 7/23/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 8/4/2015 Breast, Lymph nodes
Log in to post a reply

Mar 13, 2020 07:03AM MissouriCatLady wrote:

thank you for that link. We have a case now in Springfield, MO, where my dad lives. He drives delivering drugs to hospitals (he is 84 years old) and my stepmom has told him to use alcohol wipes on his hands before eating his sandwich for lunch. Our local college has closed, classes are all online, no visitors to campus allowed. I work with a lot of people who are just beginning to realize the situation is real.

diagnosed at 55, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrozole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP done 1/8/20, complete response to neoadjuvant therapy Dx 10/17/2018, IDC, Left, 2cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2+ (IHC)
Log in to post a reply

Mar 13, 2020 07:36AM MelissaDallas wrote:

The Johns Hopkins site is not completely current. Dallas County, Texas now has five cases and they are not reflected on the map.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
Log in to post a reply

Mar 13, 2020 07:45AM flashlight wrote:

This report is from a local hospital. According to the chief epidemiologist of the Chinese Centers for Disease Control and Prevention Beijing, Zunyou Wu, MD, PhD, the transmission rate of COVID-19 was 1%-5% among 38,000 Chinese people in close contact with infected patients. The rate of spread to family members – the driver of the infection in China – was 10% early in the outbreak, but fell to 3% with quicker recognition and isolation. The overall numbers are lower than might have been expected, and an important insight for clinicians trying to contain the outbreak in the United States.

Patients were most infectious at the onset of symptoms, when they spiked a fever and started coughing, but their ability to spread the infection dropped after that. Transmission from pre-symptomatic people is rare; shedding persists to some degree for 7-12 days in mild/moderate cases, but 2 weeks or more in severe cases.

Dr. Wu said the numbers in China are moving in the right direction, which means that containment efforts there have worked. Essentially, the entire population of China (more than a billion people) was told to stay home for 10 days to interrupt the transmission cycle after the virus spread throughout the country in a few weeks, and almost 60 million people in Hubei were put behind a cordon sanitaire, where they have been for 50 days and will remain "for a while," Dr. Wu said.

It's led to a steep drop in new cases and deaths in China since mid-February; both are now more common outside China than inside, and international numbers are lower than they were at the peak in China.


Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Radiation Therapy Whole-breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Left
Log in to post a reply

Mar 14, 2020 04:52AM marijen wrote:

Underlying medical conditions that may increase the risk of serious COVID-19 for individuals of any age.

  • Blood disorders (e.g., sickle cell disease or on blood thinners)
  • Chronic kidney disease as defined by your doctor. Patient has been told to avoid or reduce the dose of medications because of kidney disease, or is under treatment for kidney disease, including receiving dialysis
  • Chronic liver disease as defined by your doctor. (e.g., cirrhosis, chronic hepatitis) Patient has been told to avoid or reduce the dose of medications because of liver disease or is under treatment for liver disease.
  • Compromised immune system (immunosuppression) (e.g., seeing a doctor for cancer and treatment such as chemotherapy or radiation, received an organ or bone marrow transplant, taking high doses of corticosteroids or other immunosuppressant medications, HIV or AIDS)
  • Current or recent pregnancy in the last two weeks
  • Endocrine disorders (e.g., diabetes mellitus)
  • Metabolic disorders (such as inherited metabolic disorders and mitochondrial disorders)
  • Heart disease (such as congenital heart disease, congestive heart failure and coronary artery disease)
  • Lung disease including asthma or chronic obstructive pulmonary disease (chronic bronchitis or emphysema) or other chronic conditions associated with impaired lung function or that require home oxygen
  • Neurological and neurologic and neurodevelopment conditions [including disorders of the brain, spinal cord, peripheral nerve, and muscle such as cerebral palsy, epilepsy (seizure disorders), stroke, intellectual disability, moderate to severe developmental delay, muscular dystrophy, or spinal cord injury].
  • Log in to post a reply

    Mar 14, 2020 07:05AM Reckless wrote:

    We are WFH on an alternate weeks starting Monday, on a split team basis. 50% WHF during week 1, then from the office during week 2. I did not have chemo or rads. But I had lupus and took immunosuppressants for 10+ years, so have a compromised immune system, I think. I am going to ask to WHF 100%. I work in finance in NYC, use subway to commute to work.

    💉💉💉 Dx 3/4/2016, IDC, Right, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 4/19/2016 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/18/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/11/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/13/2017 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Arimidex (anastrozole)
    Log in to post a reply

    Mar 14, 2020 10:06AM etnasgrl wrote:

    I am starting chemo this coming Thursday, so yea....I'm a little concerned. But I refuse to panic or live in fear. (It's not going to do me any good!)

    I do work full-time and my goal is to continue with that while in treatment. To the best of my ability anyway. My job just recently announced that it will begin to get all employees set up to work remotely, but will do it in stages, to fix any kinks or issues that may arise.
    My boss told me yesterday that I will be in the first group of employees scheduled to work at home, due to chemo. She has chosen those in the high risk pool to start working at home first, which in my opinion, is very wise and I so appreciate that!
    She said that they hope to have me fully set up to be remote by the end of this coming week. I'm all for that! I worked from home at my last job, so I already have a home office set up and have the discipline to get work done without getting distracted. Of course, this is temporary, but if I can work from home during most of my chemo, I will be very grateful! This way, I won't have to miss much, if any, time away from my job because I'm not feeling well.

    Other than that, I'm just sticking to the basics.....washing my hands, (what a concept!), staying away from people who are sick, and avoiding crowds, if at all possible. The rest is in God's hands!

    Diagnosed at 41. Diagnosed 2nd time at 45. Dx 11/5/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/11/2016 Whole-breast: Breast Hormonal Therapy 2/17/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/13/2020, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC) Surgery 2/23/2020 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/18/2020 Herceptin (trastuzumab) Surgery 8/19/2020 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
    Log in to post a reply

    Mar 14, 2020 11:37PM - edited Mar 14, 2020 11:48PM by WC3

    I live in a densly populated area but just happened to be out of town when the outbreak there began to ramp up. I do not do well with influenza; it puts me in bed for the duration with a fever in excess of 103F and I relapse or develop pneumonia. Genetic susceptibility I guess. Influenza A landed my mother in the hospital. My WBCs also remain supressed 1.5 years PFC and I have had breathing/lung issues in the past. So anyway I doubt I would be able to weather COVID-19 . I have not returned home yet and am holed up in a 400 square foot apartment with two other adults right now with no toilet paper and 9 days of tamoxifen left. I guess I could have the prescription transfered but I'm not sure that I could reasonably stay here for the duration of the outbreak. It could be months and this virus could stay with us.



    Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
    Log in to post a reply

    Mar 15, 2020 05:58AM flashlight wrote:

    WC3, Do you have to fly to get home? They said on the news that they might be halting some domestic flights this week. You won't be on an international flight. I would do everything I could to protect myself and go home. Being in a 400 sq ft condo doesn't sound healthy either. My brother said when he got on the plane he was given antibacterial wipes to wipe down his seat/tray/knobs. The airlines are doing a better job of cleaning between flights.

    Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Radiation Therapy Whole-breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Left
    Log in to post a reply

    Mar 15, 2020 02:26PM MinusTwo wrote:

    WC3 - Call your doc or send a My Chart and ask for a new 'one time' prescription for the closest pharmacy to where you are. But I'd call the pharmacy first and make sure they have the meds. On the other hand, with no toilet paper already, you're not in for a good time where you are.

    If you are prepared at your house to stay close or inside, I agree with flashlight - consider going home. Domestic flights are really pretty empty. San Francisco to Boston non-stop today had something like 25 passengers. Yes, the airports are a consideration, but maybe one you should think about braving.

    Please let us know what you decide.

    2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
    Log in to post a reply

    Mar 15, 2020 04:10PM WC3 wrote:

    I don't have to fly but I would either have to take a train and a few buses or get a ride. I think it might just be best for me to stay where I am at the moment.

    Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
    Log in to post a reply

    Mar 15, 2020 05:08PM KIDI919 wrote:

    All schools closed in N.Y. until 4/20. Stores are sold out of pretty much all milk, bread, meat etc. I work in a dental office and so far it's been business as usual. Will see what this week brings.

    Dx 9/17/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC)
    Log in to post a reply

    Mar 15, 2020 10:35PM marijen wrote:

    22 min ago

    Jack Ma tweets photo of donated masks and testing kits on their way to US In this file photo, Jack Ma arrives for the "Tech For Good" meetup at Hotel Marigny in Paris on May 15, 2019.In this file photo, Jack Ma arrives for the "Tech For Good" meetup at Hotel Marigny in Paris on May 15, 2019. Bertrand Guay/AFP/Getty Images

    Jack Ma, Chinese entrepreneur and founder of e-commerce giant Alibaba, used his first tweet to post a photo of a massive donation of face masks and coronavirus testing kits.

    The donated goods are on their way to the United States, Ma said on Twitter, courtesy of the Jack Ma Foundation.

    "The first shipment of masks and coronavirus test kits to the US is taking off from Shanghai. All the best to our friends in America," Ma said in his very first post on his official Twitter account.

    According to an earlier post from the foundation, the shipment included about 500,000 coronavirus testing kits and a million face masks.

    The first shipment of masks and coronavirus test kits to the US is taking off from Shanghai. All the best to our friends in America. 🙏 pic.twitter.com/LTn26gvlOl
    — Jack Ma (@JackMa) March 16, 2020
    Log in to post a reply

    Mar 15, 2020 11:26PM marijen wrote:

    More than half of coronavirus cases in France under intensive care are below the age of 60

    More than half of France's 300 coronavirus patients in intensive care are under the age of 60, according to the head of the country's national health agency.

    "We have counted this evening 300 serious cases in intensive care. We have serious cases also amid adults and let me remind you that more than 50% of people in intensive care are under 60," Jerome Salomon said at a news conference on Saturday.

    Salomon did not specify the age range of those under 60.

    As of Sunday, French health authorities said there are 5,423 confirmed cases in the country, with 127 deaths reported.

    That is an increase of 29 deaths and more that 1,300 cases from the day before, according to health authorities.

    Log in to post a reply

    Mar 15, 2020 11:46PM - edited Mar 16, 2020 07:53AM by marijen

    Debunked

    Log in to post a reply

    Mar 16, 2020 03:14AM - edited Mar 16, 2020 03:15AM by MelissaDallas

    Marijen, the info in your post has been debunked and is not accurate.

    https://apnews.com/afs:Content:8635070312

    Ability to hold your breath 10 seconds is not a test for coronavirus

    By BEATRICE DUPUYMarch 12, 2020

    CLAIM: There is a simple self-check that can be done every morning to see if you have the coronavirus. Take a deep breath and hold it for more than 10 seconds. If you complete it successfully without discomfort, stuffiness or tightness it proves there is no fibrosis in the lungs, basically indicating no infection.

    AP'S ASSESSMENT: False. Medical experts say that the test would not provide a clear indication of whether someone has the novel coronavirus.

    THE FACTS: Social media users are sharing the false claim on platforms that include What's App, Twitter and Facebook. The claim, which has three parts, first says that if a coronavirus patient goes to the hospital too late their lungs will experience 50 percent fibrosis, scarring of the lungs that restricts breathing. It goes on to suggest the 10 second breathing test, finally stating that drinking water every 15 minutes will kill the virus.

    Social media users have falsely attributed the claims to Japanese doctors, Taiwanese experts and even Stanford University.

    Lisa Kim, Stanford Health Care and school of medicine spokeswoman, said in an email that the widely distributed breathing test claim did not come from Stanford University. Despite medical experts and even the World Health Organization debunking these claims, social media users continue to share them on and off social media.

    Dr. Robert Legare Atmar, an infectious disease specialist at Baylor College of Medicine, told The Associated Press that there is no clear evidence that coronavirus causes 50 percent pulmonary fibrosis.

    Experts also said that the 10 second test being shared online would not be a reliable way to determine whether someone has the virus.

    "This approach may be helpful in identifying persons with more serious lung disease," Atmar said. But it will not identify persons who are infected and have mild to no symptoms."

    There are many things beyond coronavirus that could lead to restricted breathing, including asthma, anxiety or heart disease, said Dr. Gregory Poland, head of vaccine research at Mayo Clinic in Rochester, Minnesota. All could make it difficult to hold your breath for 10 seconds, he said.

    Throughout the coronavirus outbreak, the World Health Organization has continuously updated their social media platforms to debunk false claims around the virus. The WHO Philippines Twitter account on Feb. 7 knocked down the claim about drinking water to avoid getting the virus.

    "While staying hydrated by drinking water is important for overall health, it does not prevent coronavirus infection," the WHO post stated.

    ___

    This is part of The Associated Press' ongoing effort to fact-check misinformation that is shared widely online, including work with Facebook to identify and reduce the circulation of false stories on the platform.

    Here's more information on Facebook's fact-checking program: https://www.facebook.com/help/1952307158131536

    LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
    Log in to post a reply

    Mar 16, 2020 04:21AM flashlight wrote:

    WC3, Good luck to you. My niece took the train to come home from college and she said it wasn't full. Amtrak is going to cut more trains this week. My daughter is a teacher and they told her it might be 6-8 weeks, not 2 weeks before school restarts. I hope someone in your group can go out and get supplies for you. I went to Costco midweek and was able to get everything I needed.

    Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Radiation Therapy Whole-breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Left
    Log in to post a reply

    Mar 16, 2020 05:14AM exbrnxgrl wrote:

    marijen,

    What is the source for your Coronavirus info? As MelissaDallas says, the breathe hold test has been debunked. I live near Stanford University and we get a lot of medically correct info from their medical center. They did not state anything about a breath holding test. This brings into question the veracity of everything on the list you posted. Please verify sources before posting

    Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
    Log in to post a reply

    Mar 16, 2020 07:05AM santabarbarian wrote:

    My understanding is that the way you get it is through the respiratory system. It can survive on surfaces and fabric for some days.... so you have to be careful about what you touch, and then touching your mouth nose or eyes. So if you keep not touching your face except w clean hands, and sit by yourself so not exposed someone's cough, you are pretty safe.

    WC3, if you went on a train, and you wiped down the seat, arm rests, tray, etc with an alcohol wipe, then your immediate area would be made pretty safe.

    If I needed to travel, would do this and wear a mask and my eyeglasses (to remind myself not to touch my face). And then handwash a couple of times during the ride. And wear gloves or carry a few paper towels for any bannisters, rails, etc.

    Then when you get home, shoes off on front porch (spray shoes w antibacterial spray). and put your clothes in laundry , then wash your hands and shower....... so on the small chance you got something on your clothing, it is not spread around your house.

    If you can lay hands on a zinc losenge those are helpful to defensing against a virus. Good to bathe the throat. I have none of those but I have zinc capsules. I am putting about 1/3 cap in some hot ginger tea and gargling with that.

    It could be a few months before we are out of this extreme caution time.

    pCR after neoadjuvant chemo w/ integrative practices; Proton rads. Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
    Log in to post a reply

    Mar 16, 2020 07:39AM MissouriCatLady wrote:

    Kansas schools are closed.

    WC3, my heart goes out to you without any toilet paper. I hope you can make it home safely.

    Our son lives in Portland, Oregon and is off work from driving a school bus. The Fortune 500 company I work for appears to be making preparations for closing as well. It is rather scary to think of how folks will be able to pay the bills in the coming weeks.

    I'd like to share some tips on anxiety, in case anyone else is feeling the stress.

    https://www.theguardian.com/society/2020/mar/16/coronavirus-health-anxiety


    Here is some advice that may give some comfort to those of you who are struggling:

    1) Avoid the (health-related) news. We all want to keep up to date, but when you have health anxiety the need to check and read the latest updates can become compulsive, feeding the anxiety. Try having a news detox, or allocating yourself a time limit for reading or watching news. If you're really worried about missing something crucial, you can always tell friends and family to contact you in the event of an emergency situation in order to keep you informed.


    2) Try not to seek constant reassurance. Seeking reassurance can make you feel calmer for a little while, but in my experience, it is always temporary. Your brain creates a feedback cycle where you become increasingly reliant on reassurance, which only serves to reinforce the anxiety. It's natural to want your loved ones to tell you things will be OK, but when you start needing that reassurance several times a day it's time to take a step back.


    3) Introduce an absolute ban on Googling symptoms. Dr Google is not, and never will be, your friend, especially not when you are a sufferer of health anxiety. Nor will message-boards and forums. Try to remember that people visit these places when they have reason to be concerned. Once you start understanding it's a skewed lens, you'll be better able to put things in perspective


    4) Try a countering technique. This is a CBT exercise which involves giving a persistent thought the courtroom treatment, by confronting it with a rational counter-statement. For example, if your persistent thought is something like "Everyone I love will die from this virus" you can counter it with factual statements such as "Actually, most people who get Covid-19 are likely to make a full recovery, and that's assuming mum, dad and my little sister will even catch it at all." As my mother always says: "just because you think something, doesn't make it true."


    5) Do some exercise. Even if it's just star jumps in your bedroom, or shaking your body parts like you're in the warm-up section of a hippie acting class, exercise will help get the adrenaline out of your system and channel the panic elsewhere.


    6) Breathing and grounding exercises. From guided yogic breathing to using a strong smell (I favored lavender oil), grounding exercises can help bring you back to reality. I also found bending over to touch my toes and then very slowly standing up starting at the base of my spine to be beneficial, as it centers me. You can look for examples online, but sometimes, something as simple as sitting on the floor can help.


    7) Allocate yourself a daily "worry period". Give yourself half an hour to worry about this to your heart's content, and then you have to go and do something else.


    8) Treat yourself. Anything that will give you a little boost can help. It doesn't need to involve spending money: you can also cook yourself something nice, have a hot bath, or listen to a song you love.


    9) Remember that your anxious state isn't permanent. When you are in it, anxiety always feels as though it will never end, but it will. It's hard to remember this, but do try. I genuinely thought that I would never recover, and now even though we are in a public health crisis, I feel calm and have things in perspective. It's a worrying time, and many of us, myself included, will have loved ones who might be showing symptoms, but the tendency to jump to the worst case scenario very rarely reflects reality. Be kind to yourself. It may be a bit cheesy, but this too shall pass.

    diagnosed at 55, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrozole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP done 1/8/20, complete response to neoadjuvant therapy Dx 10/17/2018, IDC, Left, 2cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2+ (IHC)
    Log in to post a reply

    Mar 16, 2020 09:37AM Moderators wrote:

    And please take a look at our article as well. We will continue to update: Coronavirus: What People With Breast Cancer Need to Know

    To send a Private Message to the Mods: community.breastcancer.org/mem...
    Log in to post a reply

    Mar 16, 2020 09:59AM ruthbru wrote:

    Now might be a good time to contact your senators and ask that they pass the CoronaVirus Response Act that has been sent over to them by the House of Representatives, and that President Trump has already promised to sign.

    "Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
    Log in to post a reply

    Mar 16, 2020 10:54AM - edited Mar 16, 2020 11:14AM by Murphity

    Welp. I am newly-diagnosed and in a coronavirus hot zone. As in, people one mile from my house have it. People at my work have it. Recently found out I am HER2 positive and am wondering how safe it is to go on a biologic (herceptin) now. Waiting to hear back from oncologist. Mostly just venting because I have these two awful things going on at the same time. But would also be interested in hearing your experiences if your doctor has altered your treatment plan due to coronavirus.

    For those of you not yet effected by COVID I would strongly suggest to have your workplace start making remote-work preparations now, if that is an option for you. Our company delayed prep and it caused a lot of problems.

    Dx 2/28/2020, IDC, Left, Stage IA, ER+/PR+, HER2+ (FISH)
    Log in to post a reply

    Mar 16, 2020 11:18AM Yuuki wrote:

    Hang in there, Murphity, and you are welcome to vent here. I have cases close to me, too, and the number is rapidly increasing even though we’re not (yet) in a hot zone. Some of the diagnosed are healthcare workers and university students, and since it seems only very ill people are being tested, this suggests it’s pretty widespread.

    I know a number of people whose workplaces have gone remote, and others that could but so far haven’t. I think they are waiting for an order, even though we all know what to do. Hopefully they will act while there is time to make a difference.

    This community is one way we can support each other, and I hope we can exchange ideas here to do that as we move forward. I think Santabarbara is right...this could be a while.

    Yuuk

    Log in to post a reply

    Mar 16, 2020 11:37AM marijen wrote:

    First participant in coronavirus vaccine trial given dose

    From CNN's Michael Nedelman

    A novel coronavirus vaccine trial in the US has now given a dose to its first participant, the National Institute of Allergy and Infectious Diseases announced Monday.

    The study aims to enroll a total of 45 healthy adults over a six-week time frame. Each participant will receive two injections about a month apart in varying doses.

    The study, which is a Phase I trial, is meant to establish that the vaccine is safe and induces a desired response from participants' immune systems. Proving that the vaccine is effective in preventing COVID-19 infection, however, will require follow-up studies involving many more participants, which will take many more months, experts say.

    "Finding a safe and effective vaccine to prevent infection with [the novel coronavirus] is an urgent public health priority," NIAID Director Dr. Anthony Fauci said in a statement Monday. "This Phase 1 study, launched in record speed, is an important first step toward achieving that goal."

    The trial is funded by NIAID and run out of the Kaiser Permanente Washington Health Research Institute in Seattle. The vaccine, which uses genetic material called messenger RNA, was developed by NIAID scientists in collaboration with the biotech company Moderna.

    The agency credited the speed with which it stood up a Phase I trial to its prior studies on related coronaviruses SARS and MERS. Scientists had previously worked on an experimental MERS vaccine targeting a protein on the virus' surface, which gave them a "head start for developing a vaccine candidate to protect against COVID-19," the statement said.

    Log in to post a reply

    Mar 16, 2020 12:18PM BevJen wrote:

    One of my neighbors circulated this article in our neighborhood website. It's long but very informative, so passing it along. Very statistical modeling heavy.

    https://medium.com/@tomaspueyo/coronavirus-act-today-or-people-will-die-f4d3d9cd99ca

    It definitely explains why we need social distancing and how it will affect overall events of covid 19.


    Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/5/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Immunotherapy Keytruda (pembrolizumab) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy
    Log in to post a reply

    Mar 17, 2020 09:53PM - edited Mar 27, 2020 08:12AM by SerenitySTAT

    This Post was deleted by SerenitySTAT.
    "Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
    Log in to post a reply

    Mar 17, 2020 11:43PM marijen wrote:

    It doesn’t sound to me that the US is going to be asaggressive about testing. I hope I’m wrong.

    Log in to post a reply

    Mar 18, 2020 07:48AM - edited Mar 27, 2020 08:12AM by SerenitySTAT

    This Post was deleted by SerenitySTAT.
    "Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
    Log in to post a reply

    Mar 18, 2020 07:50AM - edited Mar 27, 2020 08:05AM by SerenitySTAT

    This Post was deleted by SerenitySTAT.
    "Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva

    Page 2 of 7 (192 results)