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Topic: Johns Hopkins "Ask an Expert"

Forum: Recommend Your Resources — Book reviews, favorite web sites, products, articles.

Posted on: Jun 5, 2015 03:24PM - edited Jun 5, 2015 03:27PM by Lynn1234

Lynn1234 wrote:

Johns Hopkins "Ask an Expert" is a free site where you can submit a breast cancer question and receive a reply usually within 48 hours. The answers are written mainly by Lillie Shockney RN, BS, MAS. She has been the administrative director of the Johns Hopkins Breast Center since 1997 at Johns Hopkins and has written several books on breast cancer and won many awards.She herself has had breast cancer twice.

There are several categories regarding breast cancer on the site. I have asked several different questions and always received a good reply. Sometimes it's nice to get another take on an issue from someone with experience or ask something that I would be too embarrassed to ask my doctor, etc.

There is a search bar where you can see if a similar question has been asked also. It's a fantastic resource that I highly recommend. The link is below:

http://www.hopkinsbreastcenter.org/services/ask_expert/


Dx 3/26/2013, IDC, Right, 5cm, Stage IV, metastasized to bone, 1/27 nodes, ER+/PR-, HER2+
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Jun 5, 2015 03:30PM Nancy2581 wrote:

I second what Lynn has shared. I have asked a question on "ask an expert" too. It was nice to get a helpful answer. Lillie does get back to you quickly

Nancy

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
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Jun 5, 2015 03:45PM Lynn1234 wrote:

She must be a busy lady, being an author, nurse, speaker, professor and answer all those questions!

Dx 3/26/2013, IDC, Right, 5cm, Stage IV, metastasized to bone, 1/27 nodes, ER+/PR-, HER2+
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Jun 5, 2015 03:47PM Nancy2581 wrote:

I agree! There are tons and tons of questions yet she manages to keep up. Amazing

Nancy

2.8 cm tumor with LVI Dx 6/11/2014, IDC, Right, 2cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 6/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/22/2014 AC + T (Taxol) Hormonal Therapy 1/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/29/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/17/2017 Femara (letrozole)
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Jun 5, 2015 04:50PM ruthbru wrote:

I have also used that site and been very pleased.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 5, 2015 05:44PM bevin wrote:


I've used it and loved it too. Really great concept

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 5/1/2010, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/10/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/10/2010 Breast
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Jun 5, 2015 05:50PM MelissaDallas wrote:

I got good answers too

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor. Dx 5/20/2012, LCIS, Stage 0, 0/0 nodes
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Jun 6, 2015 03:26AM Traveltext wrote:

Here's the link live:

http://www.hopkinsbreastcenter.org/services/ask_expert/

NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jun 6, 2015 06:23AM PatRN10 wrote:

ditto to above but I could not locate the search feature .

Pat: Dx age 52, ER 25%, PR 25% , Oncotype score 23 Dx 4/9/2015, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 5/15/2015 Lumpectomy: Right Radiation Therapy 7/19/2015 Whole-breast: Breast Chemotherapy 10/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 10/29/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 11/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 12/10/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jun 6, 2015 06:49AM Lynn1234 wrote:

It's at on the top right side of the front or home page

Dx 3/26/2013, IDC, Right, 5cm, Stage IV, metastasized to bone, 1/27 nodes, ER+/PR-, HER2+
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Jun 6, 2015 06:58AM farmerlucy wrote:

I also asked a pathology question at CellNetix.com and received a great answer from a pathologist.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Jun 6, 2015 07:23AM Lynn1234 wrote:

That's great to know-I'll check it out!

Thanks,

Lynn

Dx 3/26/2013, IDC, Right, 5cm, Stage IV, metastasized to bone, 1/27 nodes, ER+/PR-, HER2+
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Jun 9, 2015 02:45PM treelilac wrote:

Sometimes if the search function doesn't work well, I also use the browser's search command Find (Ctrl F). A small window should pop up and you can put your keyword there.

Left MX with TE (11/2010) @ Age 42--microinvasion-> stage I (post op). BRCA-. Tamoxifen 3 yrs. Right Pleomorphic ILC (3/2015), DCIS 2 cm, LCIS 8 cm (post op). BRIP1+. Oncotype 11. Dx 9/17/2010, DCIS, Left, 1cm, Stage 0, Grade 1, 0/3 nodes, ER+/PR+ Surgery 11/8/2010 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant Dx 3/27/2015, ILC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- (FISH) Surgery 5/11/2015 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 22, 2019 11:18AM BostonNorthWest wrote:

This site appears to be disabled.

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Apr 22, 2019 11:50AM SimoneRC wrote:

ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy
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Apr 22, 2019 03:59PM Pi-Xi wrote:

SimoneRC, it seems to have been that way since early in 2019. I used to enjoy reading the questions and answers on that site.

Oncotype 12 Dx 4/7/2016, DCIS, Left, 2cm, Stage 0, Grade 1, ER+/PR+ Surgery 7/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 8/3/2016, DCIS/IDC/IDC: Papillary, Left, 1cm, Grade 2, ER+/PR+, HER2- Hormonal Therapy 8/31/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 22, 2019 09:33PM SimoneRC wrote:

That’s a bummer! I am treated there and they are so great! I can ask them if they have any info on the ETA if you want

ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy
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May 11, 2019 12:48PM Pi-Xi wrote:

Sure, SimoneRC, that would be great. Wishing you the best!

Oncotype 12 Dx 4/7/2016, DCIS, Left, 2cm, Stage 0, Grade 1, ER+/PR+ Surgery 7/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 8/3/2016, DCIS/IDC/IDC: Papillary, Left, 1cm, Grade 2, ER+/PR+, HER2- Hormonal Therapy 8/31/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 11, 2019 07:20PM SimoneRC wrote:

Hi Pi-Xi!

Just sent a message to the Nurse Navigator. Will let you know when I hear back from her!

All the best to you as well!

ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy
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Sep 6, 2021 08:50PM - edited Sep 7, 2021 07:39PM by Marcar1

I was dx iDC in right breast, Jan 2021, lumpectomy, 23 radiation treatments. I am on Letrozol. I just had my 6 month, post-treatment bilateral diagnostic mammo and ultrasound. Left breast has developing focal asymmetry. Radiologist recommended birads 3 and 6 month recheck. I am not going to wait six months for recheck. Is it feasible that I request a biopsy now?

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Sep 6, 2021 08:55PM moth wrote:

Marcar1, usually with BIRADS3 insurance will not cover a biopsy. The evidence based approach is a recheck in 6 months. So frustrating, I know.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone

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