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All TopicsForum: Breast Reconstruction → Topic: TE/Implant OVER pectoral Can exercise, comfortable &NO RIPPLES!

Topic: TE/Implant OVER pectoral Can exercise, comfortable &NO RIPPLES!

Forum: Breast Reconstruction — Is it right for you? Discuss timing and various procedures and techniques.

Posted on: Oct 20, 2015 12:47AM - edited 5 hours ago by macb04

macb04 wrote:

I want to put this out there as an option for implant reconstruction. Initially I had uni mx and delayed reconstruction with a TE put under my pectoral muscle. Hated, just hated it. Was painful and crampy for all the muscles of my chest. No strength because my pectoral muscle was cut. So bad I couldn't open a bag of chips. Was slowly inflated, while waiting to do DIEP. Changed my mind and did fat grafting 3 times with an inexperienced PS who took out my TE. Had infections twice and lost a lot of my grafted fat. Got a new , better, forward thinking PS who agreed to putting a new tissue expander OVER my pectoral muscle, with no cutting of my muscle whatsoever. In August 2015 I did implant exchange, to a 420cc Mentor Anatomic Implant. Then had breast lift of right side for symmetry in September 2015, about 4 weeks ago.. Plan nipple reconstruction this December, with areola tattooing in late spring with Vinnie Myers.

Looks pretty good, have a very realistic, custom made prosthetic nipple that I wear every day until I get the reconstruction done. Made by Feeling WholeAgain.com. Really nice guy named Paul created it for me. Used to be called Custom DSE.

Using Embrace Scar therapy system for the next 8 weeks on the vertical lift/breast lift incision. Hope it will minimize my scar. I will update how that goes.

Important point, had 5 weeks rads, had rad fibrosis. Got Hyperbaric Oxygen therapy in conjunction with fat grafting which healed my skin almost back to normal. Despite these setbacks I was still sucessful at Implant reconstruction. Realize is still early days. Plan to keep taking Pentoxifylline and vit E for a long while yet to prevent capsular contracture. Not perfect, but enough to make me feel nearly whole. Plan to go back to my gym and change in the locker room like a normal woman again, instead of hiding and changing in the toilet.

UPDATE : List of Plastic Surgeons doing OVER Pectoral Implant Reconstruction , ( Prepectoral Implant Reconstruction ) [This list will be duplicated in a new thread]


WEST COAST

Dr Bryan McIntosh -Bellevue, WA

Dr. Hakim Said - UW Medical Center, Seattle, WA

Dr. Jonathan Hutter -Valley Hospital, Renton, WA

Dr. Mark Tseng - Multicare, Auburn, WA

Dr Reid Mueller - OSHU, Portland, OR

Dr Kamakshi Zeidler - Campbell, CA

Dr Karen Horton--San Francisco, CA

Dr. Charlotta Lavia - Los Angeles, CA

Dr. Michael Halls--La Jolla, CA

Dr. Kamakshi Zeidler - Campbell, CA

Dr. John G. - San Diego, CA 619-222-3339.

Dr. Jyoti Arya - San Diego, CA

Dr. Charles Tseng - UCLA ; he's done 35 pre-pecs

Dr. Lisa Cassileth - she's done 3 pre-pecs as revisions, Beverly Hills, CA

Dr. Leif Rogers - 3 pre-pecs, Beverly Hills, CA

MIDWEST/CENTRAL/MOUNTAIN

Dr. Julie Park - University of Chicago Medicine, Il

Dr. William Dougherty - Santa Fe, NM

Dr. Minh-Doan T. Nguyen, MD, Ph.D -Mayo Clinic, Rochester,MN

Dr Steven R Jacobson - Mayo Clinic, Rochester MN

Dr. Bruce Chau- Berkley, MI

Dr. Marissa Tenenbaum - St Louis, MO

Dr. Richard Hainer - North Oakland Plastic Surgery, Rochester, MI

Dr Michael Bateman - Denver CO

Dr. Hardy -Northwest Plastic Surgery Associates, Missoula MT.

Dr Jeffrey Lind II - Houston, TX

Dr. Danielle LeBlanc - Ft Worth, TX

EAST COAST

Dr. Lawrence Glassman - Nyack Hospital, Rockland County NY

Dr. Andrew Smith - Rochester, NY

Dr. Tzvi Small - Valley Hospital , Ridgewood NJ

Dr. Joseph Woods - Piedmont Hospital, Atlanta GA

Dr. Samir Rao - 3299 Woodburn Rd Ste 490 , Annandale, VA 22003

Dr Mark Venturi - McLean, VA

Dr. Thomas Hahm - Charleston, SC

Dr. Kevin Delaney - Medical University of South Carolina (MUSC), SC

Dr Jason Ulm - Medical University of South Carolina (MUSC), SC .

Dr. Michelle Roughton - UNC Chapel Hill, NC.

Dr Justin Sacks - Johns Hopkins, Baltimore, MD

Dr Kent Higdon - Vanderbilt Medical Center, Nashville, TN

Dr Davinder Singh - Annapolis, MD

Dr. Eric Chang - Columbia, MD

Dr. Joanne Lenert - Washington, DC

Dr Hilton Becker - Hilton Becker Clinic of Plastic Surgery, Boca Raton, Fla

EAST COAST CANADA

Dr Mitchell Brown, Toronto Canada

RESEARCH LINKS ABOUT PREPECTORAL RECONSTRUCTION

https://www.sciencedaily.com/releases/2016/03/160302182438.htm

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4494482/

http://www.nesps.org/meeting/abstracts/2016/57.cgi

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4727683/

https://www.ncbi.nlm.nih.gov/pubmed/28027223

VITAMIN C HELPS WITH HEALING FROM SURGERY/and can kill bacteria such as Pseudomonas with high dose IV Vitamin C. If you can't get Intravenous Vitamin C, Liposomal Vitamin C can be a big help if you can't afford or find IV Vitamin C.

ALSO, WANT TO BRING UP ESSENTIAL OILS SUCH AS OREGANO/THYME and GOLDENSEAL have Synergistic Effects against bacteria, alone or in combination with antibiotics. I posted this info somewhere else, but copied it to here again.

Nutritional Support for Wound Healing - Alternative Medicine Review https://www.ncbi.nlm.nih.gov/pubmed/14653765

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4915787/

Pharmacokinetics of oral vitamin C

Abstract

Purpose. To test whether plasma vitamin C levels, following oral doses in supplemented volunteers, are tightly controlled and subject to a maximum in the region of 220 µm L−1, as suggested by previous researchers for depleted subjects. To determine plasma levels following single, variable‐sized doses of standard and liposomal formulations of vitamin C and compare the effects of the different formulations. To determine whether plasma levels above ∼280 µm L−1, which have selectively killed cancer, bacteria or viruses (in laboratory experiments), can be achieved using oral doses of vitamin C.

Design. This was a single blind study, measuring plasma levels in two subjects, in samples taken half‐hourly or hourly for 6 hours, following ingestion of vitamin C. Data were compared with published results and with data from 10 years of laboratory plasma determinations.

Materials and methods. Standard 1 gram tablets of vitamin C; liposomal vitamin C. Plasma levels were analysed using the method of Butts and Mulvihill.

Results. Preliminary investigations of the effects of liposomal and standard formulation ascorbate showed that blood plasma levels in excess of the previously assumed maximum of 220 µm L−1 are possible. Large oral doses of liposomal ascorbate resulted in plasma levels above 400 µm L−1.

Conclusions. Since a single oral dose can produce plasma levels in excess of 400 µm L−1, pharmacokinetic theory suggests that repeated doses could sustain levels well above the formerly assumed maximum. These results have implications for the use of ascorbate, as a nutrient and as a drug. For example, a short in vitro treatment of human Burkitt's lymphoma cells with ascorbate, at 400 µm L−1, has been shown to result in ∼50% cancer cell death. Using frequent oral doses, an equivalent plasma level could be sustained indefinitely. Thus, oral vitamin C has potential for use as a non‐toxic, sustainable, therapeutic agent. Further research into the experimental and therapeutic aspects of high, frequent, oral doses of ascorbic acid either alone or (for cancer therapy) in combination with synergistic substances, such as alpha‐lipoic acid, copper or vitamin K3, is needed urgently.

Essential Oils and Their Components as Modulators of Antibiotic Activity against Gram-Negative Bacteria ..

http://www.mdpi.com/2305-6320/3/3/19

Essential Oils and Future Antibiotics: New Weapons against Emerging ' Superbugs ' ?

Nicholas A Boire1, Stefan Riedel2 and Nicole M Parrish2*

1The Johns Hopkins University, Bloomberg School of Public Health, Baltimore, Maryland, USA

2 Department of Pathology, Division of Microbiology, The Johns Hopkins University, School of Medicine, Baltimore, Maryland, USA

https://www.researchgate.net/publication/253567306_Essential_Oils_and_Future_Antibiotics_New_Weapons_against_Emerging'Superbugs'

PDF]Antimicrobial and synergistic effects of some essential oils to fight ... - The Battle Against Microbial Pathogens: Basic Science, Technological Advances and Educational Programs

www.microbiology5.org › book

by H Padalia - ‎2015 - ‎Cited by 2 - ‎Related articlesEssential oils can be individually effective or they may be combined with antibiotics or plant extracts. Traditional healers often use combinations of plants to treat or cure diseases and found that synergy was most

According to a report published in The Review on Antimicrobial Resistance, the government of the United Kingdom estimates that by the year 2050, more than 10 million deaths and 100 trillion dollars in global health care costs will have resulted from drug-resistant microbes.

https://www.ncbi.nlm.nih.gov/pubmed/27872555

https://www.ncbi.nlm.nih.gov/pubmed/28224112

https://www.ncbi.nlm.nih.gov/pubmed/27895802

https://www.ncbi.nlm.nih.gov/pubmed/26256994

https://www.ncbi.nlm.nih.gov/pubmed/25185110

https://www.ncbi.nlm.nih.gov/pubmed/16085104

https://www.ncbi.nlm.nih.gov/pubmed/12643856

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May 12, 2017 11:00PM macb04 wrote:

Hi Raven4mi, I am so sorry the ID guy was an a**hole. Not really surprising that he is backward, hidebound and rather dense. I am glad they are starting to try and cover for MRSA if the antibiotics you were on isn’t having any effect. Still, if things weren't getting worse, I think it is both tactless and PREMATURE IN THE EXTREME to start telling you nothing will work, and you are going to loose your implant. Is he GOD, and the rest of the world hasn’t noticed??? I had remarkable improvement when I had a reddened area and a seroma with the IV VITAMIN C. You should take photos to document the improvements, just so you can show your docs. I would recommend taking high oral doses of Liposomal Vitamin C between IV Vitamin C infusions. Liposomal Vitamin C has much better absorption than regular Ascorbic Acid, and you can get to a much high dose before bowel tolerance causes loose stools. I know Oil of Oregano is strong tasting. I also took Goldenseal and Pau d'Arco, which even without the antibiotics are known to kill Staph and other types of bacteria. In combination with the IV Vitamin C and the antibiotics, the tinctures should be synergistic in their ability to kill bacteria. Try the other thing I sent you the PM about too. We are all pulling for you. Let us know how you are doing.

Dcdrogers, nice to hear you are recovering well. I added your PS to the list.

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May 13, 2017 04:17AM JessieJake wrote:

Raven, just wanted to let you know you are in my thoughts and prayers, too.

Sorry you had to deal with TDG

(Typical dumb guy)

Sounds like the ID is socially inept.

I'm impressed with your determination to take control of this with and without the doctor's help. I'm also rooting for the vitamin c and/or oil of oregano to work so you tell him, "I told you so!"

Best wishes for asuccessful resolution fast!

Mom of teens, preventative mastectomy
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May 13, 2017 05:05PM candles1 wrote:

NotVeryBrave, I didn't really have any pain after my skin/nipple sparing direct-to-implant/over the muscle BMX - but I did have the tight feeling you describe. It had largely gone away by about 6 weeks, and today (9 weeks or so later) I don't even think about it. I feel completely like it's all "me."
Dx 11/8/2016, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+
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May 13, 2017 11:04PM Alli wrote:

Raven- thinking about you and hoping things are improving. Sorry you are having to deal with so many complications and arrogant physicians. Glad you are proactive in pursuing alternative treatment options. Please keep up posted on your progress.

Alli

Dx 11/2/2006, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 11/29/2006 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/28/2007 Whole-breast: Breast Dx 11/8/2016, DCIS, Left, Stage 0, Grade 3, ER+/PR+, HER2- Surgery 1/5/2017 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 14, 2017 07:29PM trinigirl50 wrote:

Raven. When I had my expanders in during chemo, I had a strange allergic reaction which none of my Drs could figure out. My PS thought it was some kind of chemo allergic reaction, my oncologist thought it was cellulitis. My breasts went purple and red, they were not painful to touch but were clearly inflamed. They looked very scary. My PS put me on Augmentin (antibiotic) for about 3 weeks and monitored me daily (via photos I sent to him on cellphone). They eventually calmed down and returned to normal. No one is sure what it was exactly. Here is hoping that yours will resolve as well without having to lose the implant.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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May 14, 2017 08:50PM Sitti wrote:

Raven, I'm sorry you are having to deal with another complication.(and the dr.) Thinking of you and praying that they are able to accurately and quickly resolve the problem.

Dx 12/5/2016, DCIS, Right, 4cm, Stage 0, Grade 3, ER-/PR- Surgery 1/12/2017 Lumpectomy Surgery 3/21/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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May 15, 2017 11:45AM Andraxo wrote:

Oh Raven - so sorry you're going through this. It sucks all around - the breast issue itself, the emotional stress, and dealing with the attitude of the surgeon. Keeping you in my thoughts and hope it resolves even if you never truly know what it was. Weird stuff happens, but you can still recover well. - xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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May 15, 2017 11:55AM Andraxo wrote:

My left anatomic implant keeps rotating. *sigh* If you recall is was exchanged out from a 310cc to a 250cc 8 weeks after the TE>implant exchange - a significant drop for that size range (wouldn't be as significant if was dropping 60ml in the 400-600 range for size). It was part of the risk, but I just couldn't stay that large. The 250s are just right. They are anatomic shaped, so the fullest part of the implant keeps rotating to be at my sternum, the most tapered part at my axilla likely because that area is tighter from scar tissue (and it is my radiated side). The opposite side was exchanged out from 285cc to 250cc and does not move, but it was also changed 10 days after the TE>implant exchange. I can coax it back with some manual skill, but it doesn't stay. I really don't want any more surgery (I've had enough!) so I don't know if there is any long term solution for this. See my surgeon again on the 22nd. Going to try some PT taping techniques - glad we have a lot of tape in my clinic to try. You can't tell that it's rotated when I'm wearing clothes, only when I'm naked.

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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May 15, 2017 12:18PM raven4mi wrote:

Thanks to all of you for your kind words of support.

macb04, I'm having a 150 cc/75 g does of IV Vitamin C as I write this. I am already taking liposomal vit c and will be starting essential oils of oregano and cinnamon when they arrive in two days. I have started documenting with pictures, for sure.

trinigirl50, your post was just the dose of "hope" I needed. Thank you so much for sharing that information.

Andraxo, I'm so sorry that your new implant is rotating. It must be extremely frustrating. Hope the PS has a non-surgical solution (but when do they ever, really?)

I had a wonderful, relaxing Mother's Day week-end camping with my husband and sons. It was lovely and my attitude is a bit better today - more determined than ever to knock this thing out.

Dx 2008, DCIS, Right, 1cm, Stage 0, Grade 1, ER-/PR- Dx 1/2016, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR- Surgery 4/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Radiation Therapy
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May 15, 2017 12:21PM JessieJake wrote:

Shoot Andraxo! That's truly a bummer about the rotating. Our body sometimes does what it wants to do despite what the surgeon does. In my case the implant on my right sits lower despite her efforts to keep it up. Certainly not as big of a deal as a rotating anatomical.

I'm so curious, though, about the use of alloderm (or other material). My PS said my implants are completely covered in that. I *assumed* that as I healed that the alloderm sealed my implants into place. I could so completely be wrong about that. I just had this vision of scar tissue forming and the implants being trapped in there. I know your surgery was very recent so it would be too early for that to have happened (again assuming!). I know I've read on here of others having rotation of anatomicals but I never paid too close attention at the time. I do yoga and I often wonder if this far out (8 months now) if I could be causing any movement of my implants. I can certainly feeling a more tight stretching across my chest for certain poses and I don't always fully extend my arms for over the head things. I should probably just ask...

I'll be curious to see what your PS says. Maybe the taping will be the trick to allow it to heal in the right place. It kind of sounds like when my PS told me to wear an underwire to help my implant from slipping down while healing.

Good luck!

Mom of teens, preventative mastectomy
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May 15, 2017 12:54PM Andraxo wrote:

I thought so too Jessie. Even littleblueflowers/Jen had commented on another thread that because of the alloderm sling it is not expected that these implants move. I think my pocket is simply too large now. The pocket/envelope, and I imagine the alloderm too, were stretched by the expander and the larger implant that I had for 8 weeks. He didn't want to exchange it sooner because the breast looked beat up and is slow to heal on the radiated side. Maybe I'm rotating the alloderm with the expander but I thought the alloderm meshes with your skin/soft tissue over time.

I'm sure it doesn't help that I run, lift weights a few x/week, and do heavier yard work.

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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May 15, 2017 06:53PM 2FUN wrote:

my PS said most implants do rotate. I got back into a yoga class, and my TE has rotated. The port was at the top, now it's at the bottom, and it is irritating, not painful. I'm still having a lot of pain at my drain site. I feel like my ribs dont move when I bend, and I get sharp pain. I've been doing mobilizations, just wonder if anyone else has had that experience. I guess I'm just 10 weeks post surgery.

Dx DCIS Hormonal Therapy Surgery
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May 15, 2017 07:27PM Andraxo wrote:

2FUN - I used to get sharp pinches in spots that had adhesions - which included the drain hole sites. Did manual therapy on the soft tissue as best I could myself one handed but had another PT really free it up (this was at the same time I had cording). Hoping yours stops bothering you soon!!

Yeah...I knew I was high risk for rotation on the L, but hoped for the best (the right seems to be staying put). It just rotates to the same spot and then stays there until I move it back.

I'm surprised your expander rotated much. Mine were anchored down with tabs sutured in place - I could feel the tabs. Even then though, they seemed to expand me unevenly - much more medially. My implant rotates the fullest part to the place that was expanded the most...makes perfect sense. My sternum is sore from me trying to move the implant. I have it taped now with leukotape!

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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May 15, 2017 11:19PM raven4mi wrote:

I just can't catch a break. Pretty sure I'm having an allergic reaction to the bactrim - severe muscle pain in my left calf muscle. Came on rather suddenly today. Skipped tonight's dose and will call ID first thing in the morning.

~sigh~

Dx 2008, DCIS, Right, 1cm, Stage 0, Grade 1, ER-/PR- Dx 1/2016, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR- Surgery 4/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Radiation Therapy
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May 15, 2017 11:38PM macb04 wrote:

Raven4mi, do you think the redness has decreased any? Sounds really good about the IV Vitamin C and it is a great idea about starting the Oregano and Cinnamon Essential Oil. I am crossing my fingers that this all resolves for you really soon.

This a great article -

Essential Oils Might Be the New Antibiotics

https://www.theatlantic.com/health/archive/2015/01/the-new-antibiotics-might-be-essential-oils/384247/

That is a shame to have a problem with your Anatomic Implant moving around. I really hope the taping helps stabilize things so more healing occurs. Would going back to 24/7 supper supportive bra in addition, be any help to keep the implant from shifting?

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May 16, 2017 08:20AM raven4mi wrote:

Very interesting article, Macb.

Here's one a friend sent me yesterday on Vitamin C: Virginia Doctor’s Cure for Top Killer Raises Eyebrows in Medical Community

Dx 2008, DCIS, Right, 1cm, Stage 0, Grade 1, ER-/PR- Dx 1/2016, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR- Surgery 4/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Radiation Therapy
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May 16, 2017 07:41PM JessieJake wrote:

Hi 2fun and Andraxo, on the topic of rotation :) Huh, I'm surprised about the comment from your PS that most implants rotate. With anatomicals, if that's true, it seems they wouldn't be a very good option. As Andraxo mentioned, my TEs were tacked into place and never budged. Eventually those "basting" stitches dissolved or whatever and I assume scar tissue or something took over. With my implants, I had my window of time for restriction I assume to allow the alloderm to be integrated, but gosh, I hope, that is the "glue" holding these guys in place.

I didn't start yoga until maybe 6 months out from exchange. I still feel pulling and don't have full ROM, but it's minor. I need to call my PS's office to ask about that. I've had some aches after yoga where I've really pressed the stretches across my chest. I simply don't know if it's ok or not. Alloderm is supposed to be so integrated into your system after so much time, but the pull I feel is not what I had before all this. It's just interesting, isn't it?

Again I'm echoing Andraxo, but the weird pains I've experienced during this process are mind boggling. At this point, 100% of them have turned out to be no problem so hopefully the same for you. I even got hot flashes across just a portion of my right breast area for some time. Nothing, my PS said she'd heard of it form those with sub-pec implants so she was surprised to hear me talk of it.

What a ride...


Mom of teens, preventative mastectomy
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May 16, 2017 08:49PM littleblueflowers wrote:

Hi ladies! Apparently my body reacts to supposedly disolving stitches by creating tiny abscess. I had to go in and get each one stitched with permanent stitches today. 5 in all. PS said by the book would be to excise the scar and. Start over, so im really hoping these extra stitches do the trick. Anyone experience similar?

If it stops the nightmares, it probably won't kill me Surgery 3/8/2015 Mastectomy: Left, Right Dx 3/9/2015, IDC, Left, 1cm, Stage IB, Grade 3, 2/16 nodes, ER-/PR-, HER2- Radiation Therapy Lymph nodes Chemotherapy AC + T (Taxol)
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May 17, 2017 02:05AM macb04 wrote:

Hi littleblueflowers, I discovered that one particular type of suture that was supposed to dissolve, never did well with me and had to have them taken out. Finally, the PS started to only use the one that worked. He also used this special glue/tape combination instead of regular sutures. That healed the best of all.

Hey raven4mi, I had actually seen the research articles on that before. It is pretty damn amazing. It is almost enough to make the NaySayers start to pay attention.

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May 17, 2017 10:09AM Andraxo wrote:

me too Jen - my body hates dissolvable sutures...found that out when I had a fibroadenoma removed from my left breast in 2007. For my cancer related surgeries in the past 1-2 years (all 6 of them) they used dermabond and tape/steri-strips, no sutures at all. The last surgery he even used a new kind of tape and it was great! - didn't start to get itchy like steri-strips do when then they are starting to peel off.

I remove a lot of sutures for patient post-op in my clinic, and I always ask the surgeon to use regular sutures instead of dissolvable (except for pediatric cases)because in addition to them creating little abscesses for people, I also find the knots don't dissolve well and end up having to be removed anyway.

- xo

Andra :) Dx at age 45. Super active in outdoor adventures in the southwest/4 corners area. Dx 7/2015, IDC, Left, <1cm, Stage IIA, 3/5 nodes, ER+/PR+, HER2- Surgery 9/4/2015 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 10/5/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/29/2016
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May 18, 2017 05:27PM raven4mi wrote:

Appt. with my PS again today. First of all, I love him because when I told him that the ID said "I feel you'll have a failed outcome so it doesn't matter what you do", the PS said that the ID was being completely insensitive. He's willing to take the wait-and-see approach too because he agrees that we're kind of throwing darts at what we're actually treating. He said for all we know the redness could just be a by-product of the radiation. I think that's a bit optimistic as I did run a fever briefly and was very sick over that first week-end, but I appreciated the effort nonetheless. He did explain that the reason that the ID wants the TE out is because typically, with an infection, the bacteria "clings" and forms a thin layer on the "foreign object" and so never really goes away. He even had a medical term for it but I can't remember what he said it was, so if any of you med-types know it I think I would recognize it if I saw it again. Regardless, I've only been on the new abx for two days so, obviously, there's a long way to go before making a decision. And even then, if they tell me it has to come out, I may consider seeking second opinions. As I explained to both doctors I obviously won't take any chances with my health – if I get a fever again or otherwise feel my health is being compromised I'll agree to have it out. But I feel great right now.

After my adverse reaction to the high dose bactrim the ID switched me to both Omnicef (which is in the same family as Keflex which I've had in the past without problems) and doxycyclene hyclate, which I've also had in the past. My new doTERRA essential oils arrived yesterday so I've started those, and I'm going to be having Vitamin C IV infusions every Monday and Thursday for now until this is resolved one way or the other. I'm not giving up!

Thanks for hanging in there with me, ladies.

Dx 2008, DCIS, Right, 1cm, Stage 0, Grade 1, ER-/PR- Dx 1/2016, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR- Surgery 4/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Radiation Therapy
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May 18, 2017 07:00PM 2FUN wrote:

raven. Glad to hear you have a viable plan, and a PS who is in your corner. Are you seeing any improvement with time? I've been thinking a lot about you! Did your PS call it a "biofilm" ? That's the only thing I can think of

Dx DCIS Hormonal Therapy Surgery
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May 18, 2017 08:14PM raven4mi wrote:

Yes! Biofilm. Thank you, 2FUN. But there was another piece of terminology he used to describe the nature of a biofilm, too. I'll ask him next week when I see him again!

I was seeing improvement initially on the bactrim but had to stop it. It's gotten just a teensy darker since I've switched abx again but I'm hoping I see incremental improvements from now on.

Dx 2008, DCIS, Right, 1cm, Stage 0, Grade 1, ER-/PR- Dx 1/2016, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR- Surgery 4/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Radiation Therapy
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May 18, 2017 08:46PM 2FUN wrote:

I'm curious what he has to say about biofilms. My DD has lyme and 2 co-infections that have been harboring in her gor a decade. She is seeing an integrated medicine doctor to try and get her immune system to fight the viruses.

Dx DCIS Hormonal Therapy Surgery
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May 18, 2017 10:22PM Honeybadger wrote:

Raven, forgive me if you've already checked the possibility, (I didn't look back into older posts to double check) but hace you or your Drs. considered Red Breast Syndrome? If it is, then corticosteroids may be the answer. I hope this helps. Best of luck & good health to you, and everyone here.

Dx 3/2012, DCIS, Stage 0, ER+/PR+ Surgery 5/9/2012 Lumpectomy: Left Radiation Therapy 6/13/2012 Breast Dx 2/2013, DCIS, Stage 0, 0/0 nodes, HER2- Surgery 4/9/2013 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/23/2013 Reconstruction (right)
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May 19, 2017 12:07AM littleblueflowers wrote:

Well, here I am in the hospital. They think its cellulitis. Planning to operate tomorrow and keep me until Monday. I am so bummed. I don't think I can do this.

If it stops the nightmares, it probably won't kill me Surgery 3/8/2015 Mastectomy: Left, Right Dx 3/9/2015, IDC, Left, 1cm, Stage IB, Grade 3, 2/16 nodes, ER-/PR-, HER2- Radiation Therapy Lymph nodes Chemotherapy AC + T (Taxol)
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May 19, 2017 06:06AM 2FUN wrote:

((((((little blue flowers)))))))

I'm so sorry. What are they going to.do? It may seem like you can't handle this. But you are stong, and you will get thru this! My friend gave me a mantra that might help for you to say " I have everything I need inside of me to be healthy". You are stonger than those cellulitis cells! You have made it through the cancer surgeries, don't let this one bring you down!

Keep posting while u r in hospital.Healing and peaceful thoughts to you.

Dx DCIS Hormonal Therapy Surgery
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May 19, 2017 02:25PM raven4mi wrote:

Honeybadger, yes, RBS was considered and then discarded. Pretty sure it was an infection, plus the redness is all over the entire breast and into the surrounding area. From what I've learned about RBS that doesn't seem to happen.

littleblueflowers, I'm so sorry! What are they doing during the procedure tomorrow? I know how disappointed and discouraged you are, but hang in there. You have it in you - you can do anything!

Dx 2008, DCIS, Right, 1cm, Stage 0, Grade 1, ER-/PR- Dx 1/2016, DCIS, Right, 2cm, Stage 0, Grade 3, ER-/PR- Surgery 4/15/2016 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Radiation Therapy
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May 19, 2017 08:06PM Honeybadger wrote:

Raven, for better or worse, it sounds like you are correct. My redness was only on the southern poll where the dermal matrix was. However I didn't have an RBS diagnosis. I think it was less well known and my PS was mistaking it for cellulitis. We'll never know for sure. As for you, Little blue flowers and everyone here I sincerely hope that your issues are resolved, that you heal beautifully and that you can move on from this difficult chapter in your lives.

Dx 3/2012, DCIS, Stage 0, ER+/PR+ Surgery 5/9/2012 Lumpectomy: Left Radiation Therapy 6/13/2012 Breast Dx 2/2013, DCIS, Stage 0, 0/0 nodes, HER2- Surgery 4/9/2013 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/23/2013 Reconstruction (right)
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May 19, 2017 10:39PM JessieJake wrote:

little blue - I'm with u!!!! All weekend

U got this!

Mom of teens, preventative mastectomy

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