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Topic: Cold Caps Users Past and Present, to Save Hair

Forum: Managing Side Effects of Breast Cancer and Its Treatment — Give and get tips on managing side effects of all breast cancer treatments, from fatigue, to hair loss, to brain fog and more. No topic is taboo -- we're all here for you!

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Posted on: Jun 14, 2009 07:04PM

Posted on: Jun 14, 2009 07:04PM

Can-D wrote:

Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair.  I am on FEC100 X3 followed by Taxotere X3.  My dosage unfortunately is not a guaranteed success.  I am 40 days out from my first treatment and will have my third June 17.  So far I have thinned but have not required a wig.  I have no bald spots; however, around my right ear is the thinnest..I think because the cap wasn't tight there.  All in all, I am pleased to still have a good covering.  If you are using or have used the Cold Caps, I would love to hear your experience.  Take care, Candy

FEC100 X3 followed by Taxotere X3, Bilateral Mx w/ immediate reconstruction..Wake Me Up When September Ends!!! Dx 3/19/2009, IDC, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
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Jul 29, 2012 10:24PM mdg wrote:

My scalp got itchy  but I kept my hair.  Sometimes my scalp kind of hurt too....it felt like I was wearing a ponytail too tight or something....but I still kept my hair.  Hang in there!!!

Maria Visit my BC Blog at breastcancerwontdefineme.blogs... Dx 12/13/2010, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/23/2010 Lumpectomy: Right Surgery 1/27/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 3/3/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 5/19/2011 Surgery 6/22/2011 Reconstruction (left); Reconstruction (right) Surgery 12/10/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Jul 29, 2012 11:47PM Hortense wrote:

My scalp fely itchy too at times. I didn't dare rub or scratch it and, like you, I wondered if the sensation meant I would lose my hair after all, but I didn't.

Cold Cap user - kept my hair Dx 1/24/2012, IDC, 1cm, Stage II, Grade 2, 2/2 nodes, ER+/PR+, HER2- Surgery 2/29/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 5/8/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/24/2012 Breast Hormonal Therapy 10/16/2012 Arimidex (anastrozole)
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Jul 30, 2012 07:50AM Laura5 wrote:

Soltantio, ditto on the scalp itch for me, and the too tight ponytail feeling as well.

Dx 6/3/2011, IDC, 2cm, Stage I, Grade 3, ER-/PR-, HER2+ Chemotherapy 8/25/2011 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jul 30, 2012 09:01AM - edited Jul 30, 2012 09:05AM by SelenaWolf

My friend tried using a cold cap; she started losing hair after her first round and, by her second, it was all gone.  I never tried one - didn`t know about them - and I, finally, shaved off all my hair after my third round because my scalp was so sore.  Up until that point, I hadn`t lost much.  Shaving it off was such a relief!!

It`s now 10 months since I started chemotherapy, and it`s all back and then some.  My hairdresser says that it`s much thicker than before and - joyful! - it`s in beautiful condition `cause all the damaged hair was shaved off.  This stuff is VIRGIN hair: healthy, strong, no frizzies, no split ends, no breakage, no damage.  Cha-ching!

I`ve come to the conclusion - for me - that losing my hair was the easy part.  It was everything else that was hard!

"... good girls never made history ..."
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Jul 30, 2012 10:09AM tc9876 wrote:

Selena: I'm happy to hear that you were pleased with your choice. It's like you rebooted your hair. :^)

I used the cold cap machine, kept about 50% of my hair (lost more than I expected) but I do not regret using them one bit.

Cold caps may not be for everybody but it's great to have the choice.

Dx 9/2011, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2+
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Jul 30, 2012 10:15AM SelenaWolf wrote:

I felt like `GI Jane`.  It was kinda cool.

I don`t know much about cold caps.  They don`t seem to be used widely in Canada.  Do they, also, help keep your scalp from getting so sore as well as reduce hair loss...
"... good girls never made history ..."
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Jul 30, 2012 10:41AM tc9876 wrote:

I've read where others complained of itchiness with cold caps and maybe some soreness from the extreme cold.

I personally did not feel either of those things but I don't know if that was due to the caps.

Dx 9/2011, IDC, <1cm, Stage I, Grade 2, 0/5 nodes, ER+/PR+, HER2+
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Jul 30, 2012 01:38PM reneerDSM wrote:

Can anyone tell my how you have worn your hair back right after Chemo was over.  My hair has gotten pretty thin after 6 treatments. 

Thank you!!

Dx 5/2010, IDC, 2cm, Stage IIB, Grade 1, 0/2 nodes, ER+/PR+, HER2- Chemotherapy 5/7/2012 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide) Hormonal Therapy 9/15/2012 Arimidex (anastrozole) Radiation Therapy 9/20/2012 Breast, Lymph nodes
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Jul 30, 2012 02:30PM dancetrancer wrote:

I lightly twist mine together in the back, then make a turn with it (like a bun), but just once around - then let the ends stick up over the crown of my head a bit.  I pin it with a gentle clip.  This is similar to the kind of clip I use:

www.walgreens.com/store/c/cona... 

My hair is so hard to style without using a blowdryer.  Can you say lifeless?  Well, at least I have hair!   

Cold caps work! coldcapphotos.shutterfly.com/p... TCH: 4/10 - 6/13/12; 33 rads; BMX w/fat grafting; DX: 7/29/11 @ age 43: Stage 1A on L (3 mm IDC w/ 6 cm DCIS, Gr 2 ER/PR+, HER2+) 0/3 nodes; Stage 0 on R (2 mm DCIS); see bio.
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Jul 30, 2012 02:59PM reneerDSM wrote:

I can't see the link.  Can you describe it?

Dx 5/2010, IDC, 2cm, Stage IIB, Grade 1, 0/2 nodes, ER+/PR+, HER2- Chemotherapy 5/7/2012 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide) Hormonal Therapy 9/15/2012 Arimidex (anastrozole) Radiation Therapy 9/20/2012 Breast, Lymph nodes

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