Aug 1, 2012 10:00PM sebm9 wrote:

soltantio: I hear you! My favorite -- and most overall effective -- form of exercising is swimming. At the end of my treatment, it was definitely work. Though clinically my red cells were fine on my labwork, I could feel the difference: going up stairs, carrying anything, walking uphill, swimming -- all were much more work. But I am as stubborn and focussed as they come, and I made myself swim every day. In fact, by the end of the swim I felt better than when I started. It usually takes me 45 minutes to swim 1.25 miles, but it took me over an hour to do that distance.

Btw, Frank never told me not to swim 2.5 years ago -- in fact he helped me figure out how to do it safely. So I'm surprised that they tell people not to swim, it clearly worked very well for me. (Frank also figured that having my head in cold water for an hour each day was an additional benefit. This was before he recommended that people wear caps between infusion treatments for added support.)

Susan 

Aug 2, 2012 05:51PM sebm9 wrote:

soltantio: I had 4TC@3. I found that at about the 2 mark I no longer had to shave, and anything pluckable didn't return for months. Everything down south went pretty much on the Day 14-15 mark, but I used that as an excuse to get some silky things :-) It was an astonishing measure of the success of the caps, to have a totally hair-free body (save brows and eyelashes, which hung on til the end) and a 90% full head of hair. I loved having a shave-free summer!

Aug 3, 2012 07:54AM stayinhappy wrote:

I have had some strange itching and almost tingling in my scalp this week.  Did you other CC users experience this? Should I be alarmed?

Aug 3, 2012 05:15PM howard wrote:

Theladygrey: how did your hair cut and highlighting turn out? I waited 6 months pfc, too, and it was a huge day to be a blond again! Tears came to my eyes when I arrived at the hairdressers as I imagined where I'd be if I had not done PCCs. My DH brought me flowers knowing how long I waited for that day!
Now I'm one year and 3 months pfc and do anything I want with my long hair and have no restrictions.
I highly recommend Penguin Cold Caps!

Aug 3, 2012 08:07PM mdg wrote:

Yes - I had a sore scalp at times through chemo but kept most of my hair.  It felt like I had worn a ponytail too tight all day or something.  I started shedding hair "south of the border" around 15-17 days after my first TC infusion.  I started shedding some hair from my head around day 21.  Hang in there girls!  The caps work!!!!