Log in to post a reply
Aug 13, 2018 09:27AM
RE: size caps, fitting
I am using Paxman. I have size Medium for the inner blue cap, and it fits quite snugly, with the provided head band which I put around my hairline so it stays snug. The outer, neoprene cap, is a size Small. It cinches down much better than the medium did. I spend a lot of time making sure that my whole scalp feels tightly covered each time. The size Small blue cap didn't cover all my hair line. I get a snug fit with these two different sizes. I have Infusion #3 today.
I look like I have a normal head of hair. In fact, it has thinned, but not horribly. If I had to guess, I suppose I have 85-90% of my hair. I have washed my hair almost never--rinsed out the conditioner on infusion day, washed hair on Day 3 because (Penguin protocols say this) it's a day when lots of the poisons are coming out of the pores and cleaning hair that day can help scalp not react.
I do have ice on my hair when I take off the blue cap. I always bring a beanie or a snood or a kerchief to wear out the door after infusion, since I have that conditioner on, and a freezing cold head, even when it's 95 degrees outside, and my hair looks awful after being in the cap.
Just now fluffed and styled my hair for daughter's wedding--looked good! Didn't need the Plan B emergency wig---had plenty of hair to look normal in all those photos, and this was 4 weeks after 2nd infusion---I got one week off between TC #2 and #3 for wedding, so I could feel good that 4th vacation week. So, I'm halfway through infusions, and hair is hanging on well enough, at least for now, to look pretty normal.
3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2-
6/10/2003 3DCRT: Breast
8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
11/7/2018 Arimidex (anastrozole)
1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant