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Mar 1, 2019 12:39PM
Batyadid - I switched clinics because the one I started with would NOT let me do cold capping and I was not very comfortable with the oncologist (language/cultural barrier? unsympathetic to my concern of hairloss, SEs of chemo....). Both the surgeon and oncologist at the clinic I switched to were very supportive, but said they could not help me with it. They said I would be their first patient to do cold capping. I really liked both the oncologist and surgeon there. I used ChemoColdCaps ( they are the ones who started the FDA approved DIGNICAP). While I was disappointed with how much hair I lost, both the surgeon on oncologist were impressed with how much I still had, and how quicky it came back. I think they even started to advocate that the clinic provide DIGNICAP or other brand at the clinic. I think the problem I had was my large head and that the caps did not fit well. When I sent a picture to Chemo Cold Caps, they agreed. The caps were hand made and only one size(with some variation), but they sorted through their stock and sent the largest ones they had, before treatment started. You should check around for the pricing and availability of dry ice. I think I found a 50 cent/pound difference where I am, it really adds up at 70-80 pounds per treatment. Also, there was no pellet dry ice available, so I had to smash the dry ice ( you fill the caps with this). CHemoColdCap has/had some sort of agreement with AirGas for reduced pricing of dry ice, but it turned out not to be available where I lived. I wich I could remember the name of the woman I talked to at Airgas, she knew all about its use with cold capping, and gave me some tips about breaking it up for pellets etc. It was a lot of work, but I'm glad I did it and had a lot of friends to help me. Keep track of all your receipts. I had so much medical that year, I had enough to deduct from taxes, including the cold-capping. Good luck. Many people have posted very impressive pictures of the results of cold capping.
Supplements: GAIA turmeric-joint; glucosamine-chondroitin; magnesium glycinate; biotin; potassium-iodine; low dose calcium; C; B-complex ; D; Fish oil. For a year or so after bi-lateral used Juven Nutritional therapy for wound healing with 7g arginine, 7g glutamine. Often add turmeric to meals. Ran out of fish oil supplement that I liked, other brand caused fish burps, so have not taken for a while
2009 ER+ left breast. 52 yrs. Lumpectomy, Sentinal node removal, negative. – 1. Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right. Acupuncture offered at facility as part of integrative medicine. It really helped with anxiety/stress during radiation treatment.
2016 ER+ left breast. Probably a new cancer, but unknown. 4 rounds TC Aug-Oct 2016, Bi-lateral (my choice) Nov 2016, no reconstruction. 2 sentinal nodes remove, negative. Cold Capping using Chemo Cold Caps (DIGNICAP not available). Anastrozole 1 mg starting May 2017. Joint issues noticed immediately. Stopped Anastrozole after 3-4 months do to joint stiffness in. After several months of no AIs, fingers were feeling better. Started tamoxifen March 2018
10/2018 noticed stiffness and some trigger finger again. Was eating meat a lot more (daily) than normal. Usually 1-2 /wk. Have cut way back on the meat, seems to help, but one finger still very prone to trigger finger. 2/2019, trigger finger and stiffness much better.