Topic: Cold Caps Users Past and Present, to Save Hair

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

Posted on: Jun 14, 2009 07:04PM

Posted on: Jun 14, 2009 07:04PM

Can-D wrote:

Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair.  I am on FEC100 X3 followed by Taxotere X3.  My dosage unfortunately is not a guaranteed success.  I am 40 days out from my first treatment and will have my third June 17.  So far I have thinned but have not required a wig.  I have no bald spots; however, around my right ear is the thinnest..I think because the cap wasn't tight there.  All in all, I am pleased to still have a good covering.  If you are using or have used the Cold Caps, I would love to hear your experience.  Take care, Candy

FEC100 X3 followed by Taxotere X3, Bilateral Mx w/ immediate reconstruction..Wake Me Up When September Ends!!! Dx 3/19/2009, IDC, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
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Nov 25, 2012 08:59PM schoolmom wrote:

Well ladies....tomorrow morning is # 2 for me.  One of my helpers has to go out of town for work so it is just me and my girlfriend.  I am sure it will be fine.  We did the last 4 hours at home and last hour of chemo by ourselves last time so I am confident!  Will check in later.  So far so good.  Shedding started on day 18 and has been minimal so far.....happy with everything so far.  Everyone have a good evening .  Hugs

saved my hair with cold caps with oncotype 21 Dx 9/12/2012, IDC, Left, 1cm, Stage IB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Lumpectomy: Left Surgery 9/28/2012 Lymph node removal: Left, Sentinel Chemotherapy 11/5/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2013 3DCRT: Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole) Dx 11/6/2017, IDC, Left, Stage IV, metastasized to bone/liver Targeted Therapy 12/1/2017 Ibrance (palbociclib) Targeted Therapy 12/1/2017 Hormonal Therapy Arimidex (anastrozole), Femara (letrozole)
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Nov 25, 2012 09:42PM 301724 wrote:

Good luck tomorrow, Schoolmom!!!

‘The greatest use of a life is to spend it on something that will outlast it.’ William James
Cold cap user
Dx 6/22/2012, IDC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 8/16/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 10/4/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/31/2013 Aromasin (exemestane)
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Nov 26, 2012 08:02AM - edited Nov 26, 2012 08:02AM by 301724

OK, so I know this is normal but I'm having my first big shed and it's driving me nuts! I'm 12 days post treatment #3. Combined with the bald spot on top from frostbite, I'm feeling very vulnerable.

‘The greatest use of a life is to spend it on something that will outlast it.’ William James
Cold cap user
Dx 6/22/2012, IDC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 8/16/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 10/4/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/31/2013 Aromasin (exemestane)
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Nov 26, 2012 12:22PM Hortense wrote:

301724 - Poor you! I am sending you a virtual hug ()  I felt the same way, very vulnerable, when I was at your stage this past summer and watched my hair falling out and had frostbite spots. Try to keep your spirits up, you will keep your hair.

The frostbite spot hair comes back very fast and very thick. I was surprised. Check it and you will probably will feel, or soon will feel, lots of little prickly things which are the new hairs sprouting. I actually thought the spikey things I was feeling with my fingers were just more flakes of frostbitten skin until I looked closely and spotted all the new hairs regrowing there. I was so excited! 

They were almost transparent at first, but once those tiny new hairs got to be about half an inch long and had some color the bald spots vanished as the new hair started blending in with the old when I combed across it.

Do you have one more treatment or three? I had four infusions. By the fourth my shedding had slowed and steadied. It hadn't stopped but it had slowed to the point that I could reasonably tell myself that it wasn't so bad. I lost proably 30% of my hair volume which meant I had lost all of my oldest hairs. I still had hair all over my head and was not bald. It was just not as thick as it had been. I knew I could live with that.

Cold Cap user - kept my hair Dx 1/24/2012, IDC, 1cm, Stage II, Grade 2, 2/2 nodes, ER+/PR+, HER2- Surgery 2/29/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 5/8/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/24/2012 Breast Hormonal Therapy 10/16/2012 Arimidex (anastrozole)
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Nov 26, 2012 01:22PM lilster wrote:

Hi all, hope yous are all doing well. I haven't posted in a while so taught I'd share that at 18wks pfc I finaly got some highlights and all is good. hair starting to thicken up all over. with the colour you can't really see how thin its got, only me. shedding seems to be completley stopped, doh can't remember what pre chemo shedding was. pcc realy work so follow instructions and keep faith.

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Nov 26, 2012 01:49PM - edited Nov 26, 2012 05:09PM by lilster

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Nov 26, 2012 02:55PM - edited Nov 26, 2012 08:08PM by 301724

Thanks, Hortense! That helps:-) I have one more treatment - next week (12/5). Looking forward to new growth!

I've read elsewhere on this thread about folks who used Joan Rivers Fill in Hair Powder to cover scalp areas where hair was thin/non-existent. Is it OK to do this while still getting chemo treatments? Would appreciate hearing others' experiences.

‘The greatest use of a life is to spend it on something that will outlast it.’ William James
Cold cap user
Dx 6/22/2012, IDC, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 8/16/2012 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 10/4/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/31/2013 Aromasin (exemestane)
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Nov 26, 2012 09:24PM schoolmom wrote:

Finished # 2 today.  Lots of shedding during the day but I guess expected considering all the off and on with 14 caps.  5-6 hairs at a time on my shirt, pants...probably lost 75 or so during the day.  Half way through.  Need to go drink some liquid.  Check in later.  Luckily I have very thick hair so perhaps it wont be as noticeable.  Night :)

saved my hair with cold caps with oncotype 21 Dx 9/12/2012, IDC, Left, 1cm, Stage IB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Lumpectomy: Left Surgery 9/28/2012 Lymph node removal: Left, Sentinel Chemotherapy 11/5/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2013 3DCRT: Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole) Dx 11/6/2017, IDC, Left, Stage IV, metastasized to bone/liver Targeted Therapy 12/1/2017 Ibrance (palbociclib) Targeted Therapy 12/1/2017 Hormonal Therapy Arimidex (anastrozole), Femara (letrozole)
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Nov 26, 2012 09:30PM Hortense wrote:

schoolmom - that many hairs were normal for me each day. Having 5 or 6 hairs trailing down my clothes any time I looked for them all day long during shedding periods was usual. It is upsetting to see so many come out, that's why I encourage people to remember that they have over 100,000 hairs on their head so that they can put losing a bunch each day into context.

Cold Cap user - kept my hair Dx 1/24/2012, IDC, 1cm, Stage II, Grade 2, 2/2 nodes, ER+/PR+, HER2- Surgery 2/29/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 5/8/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/24/2012 Breast Hormonal Therapy 10/16/2012 Arimidex (anastrozole)
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Nov 26, 2012 09:59PM schoolmom wrote:

Hortense, Thanks for the encouragement.  I tried to attach some pics but the system is not very user friendly or I am not very techo....

saved my hair with cold caps with oncotype 21 Dx 9/12/2012, IDC, Left, 1cm, Stage IB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Surgery 9/28/2012 Lumpectomy: Left Surgery 9/28/2012 Lymph node removal: Left, Sentinel Chemotherapy 11/5/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2013 3DCRT: Breast Hormonal Therapy 3/21/2013 Arimidex (anastrozole) Dx 11/6/2017, IDC, Left, Stage IV, metastasized to bone/liver Targeted Therapy 12/1/2017 Ibrance (palbociclib) Targeted Therapy 12/1/2017 Hormonal Therapy Arimidex (anastrozole), Femara (letrozole)

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