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Topic: iRestore Hair helmet - treats hair thinning

Forum: Managing Side Effects of Breast Cancer and Its Treatment —

This is a place to discuss concerns, tips and strategies for all types of side effects from all types of medications and treatments, (chemo/rads/hormonal/targeted/pain meds/etc.

Posted on: Apr 20, 2019 09:50AM

Lisey wrote:

HI Everyone, I started this thread because a ton of us are having great results on the iRestore helmet and it's all buried in the post called 'thinning hair'.   The company is giving us cancer survivors a discount and I wanted everyone to know how successful it's been for me.  I'm hoping others who are having similar luck will jump on here and post their results too.  

Here is my initial post back in October: 

HI All, I've been posting in a different thread my journey, but I did find a solution and tested it too to verify it was the solution.  In March, I bought an irestore Laser Helmet.  I used it every other day per the directions and by August, my hair was 90% back to where it was a year ago and all the itching stopped too.  I then wondered if maybe my body was just recovering from all the surgeries and getting back to normal, so I returned the irestore helmet for a full refund and continued on with my life.  In September, the itching came back and my hair starting falling out again in clumps.  It took about 4 weeks of stopping the irestore for it to happen.  I just purchased another irestore and plan on using it the rest of my life - the results were amazing and now I attribute it to the helmet, not my body recovering.

I highly suggest people try the irestore for the full 6 months - if you aren't happy with the results, they give you a full refund and even pay for shipping back to them.  (I got the full check within 2 weeks of return).  It couldn't hurt you and like me, may save the day. 


Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 21, 2019 12:17AM - edited Apr 21, 2019 12:21AM by Chemokaze

Thanks Lisey for starting this thread

From my last post on “thinning hair" thread yesterday:

Wow Inna! Great results! I just sat through FIRST irestore session. Fingers crossed! My hair grew back just fine after chemo, but my time first on Anastrazole, and now Faslodex and Verzenio are the hair robbers now. I used to have really thick hair. Question: for any of you with some hair loss in the very front hairline, did the irestore help with that? I did not realize that irestore did not "study" that - per the instructions that came in the box.


10/2018: NEAD; 7/2018: Onward to Verzenio, Zometa, Faslodex, & CyberKnife to single met to L4 spine. Dx 9/1996, IDC, Left, Stage IB, Grade 3, 0/21 nodes, ER+/PR+ Dx 5/2016, IDC, Right, Stage IIIC, Grade 2, 14/21 nodes, ER+/PR+, HER2- Dx 6/2018, Stage IV, metastasized to bone
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Apr 22, 2019 02:14PM CaliKelly wrote:

These are my before and after pictures, after using the iRestore laser helmet. I waited almost 2 years for more hair, until I got the iRestore, nothing worked! Still not where it was pre chemo, but got a lot more coverage!

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 22, 2019 02:15PM CaliKelly wrote:

These are my before and after pictures, after using the iRestore laser helmet. I waited almost 2 years for more hair, until I got the iRestore, nothing worked! Still not where it was pre chemo, but got a lot more coverage!

Dx 6/17/2015, IDC, Left, 6cm+, Stage IIIC, Grade 2, 8/20 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 8/11/2015 TAC Surgery 1/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Hormonal Therapy 1/30/2016 Arimidex (anastrozole) Surgery 6/29/2016 Reconstruction (left): Silicone implant Chemotherapy 11/3/2016 Xeloda (capecitabine) Surgery 10/7/2017 Reconstruction (left): Latissimus dorsi flap Surgery 1/30/2019 Reconstruction (left): Fat grafting Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 22, 2019 03:52PM anotherNYCGirl wrote:

Kelly, - your hair is beautiful! How much time between your before and after photos?

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (left); Reconstruction (right) Surgery 1/13/2015 Reconstruction (right): Tissue expander placement Surgery 5/27/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 26, 2019 03:43PM vt_lee wrote:

Thanks to all who shared their iRestore helmet experience, and to Kelly for securing the discount for us! I just ordered mine a few minutes ago. I told her I'd share about my AI-related hair loss (and iRestore results) on this thread:

I started Arimidex in December 2018 and my hair has been shedding *wayyyyyyy* too much for the past couple of months. I was on Tamoxifen before that, and while that caused some thinning and extremely slow growth, it was nothing like it is now. I had a 6 week break between Tamoxifen and Arimidex and my hair growth for a couple of months was AMAZING... I'm currently scheduled to continue Arimidex through March of 2024 (at least) and I just feel so discouraged about the hair. It's alarming the amount that comes out in my fingers and into the drain every time I take a shower. But I know I'm preaching to the choir...

If the helmet stops the hair loss, that will be amazing. If it encourages more, healthier growth, that would be icing.

Thank you again!

IDC with mucinous properties Dx 5/2/2013, IDC, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2+ Targeted Therapy 5/21/2013 Herceptin (trastuzumab) Chemotherapy 5/21/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 10/2/2013 Lumpectomy: Left Surgery 10/16/2013 Mastectomy: Left Radiation Therapy 12/2/2013 Whole-breast Hormonal Therapy 3/27/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/15/2018 Prophylactic ovary removal Hormonal Therapy 12/11/2018 Arimidex (anastrozole)
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Apr 26, 2019 05:49PM Faith-840 wrote:

I’m sorry I don’t have any good before and after pictures but after using the helmet for five months, I believe it’s definitely working.. my hair seems thicker all over. Even my hairdresser agrees that it’s better. My biggest problem was two areas in the back of my head that were thin even before the return of MBC and they are still thin but maybe getting better. It also seems like the new hair is wavy like it came in the first time I lost all my hair to chemo in 1991.

The small downside is my head feels itchy and the hair seems very dry even with lots of quality conditioner. I’m also getting tired of using it every other day but it’s a small price to pay for having hair that looks so much better than it did.

Bottom line, it’s worth a try especially with a money back guarantee.

Good luck,

Faith

P.S. thanks Callikelly for starting to talk about it.

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/5/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/23/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 27, 2019 08:59AM Lisey wrote:

For me, the helmet, worn every other day for 25 minutes, is so much easier than the messy oily rogaine I was trying... and all the other serums.  My hair is naturally dry and I have had to get deep conditioning treatments at the salon every quarter because it's really dry.  Faith, I bet the lasers do dry it out.. which is a good thing for me because I think the Tamoxifen sweat was making my scalp itch on fire and the helmet makes the itching go away.

My hair is still thinner than it was before Tamoxifen, but the hair fall has stopped using the helmet and the itching as well.  I'll take that.  

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 18, 2019 01:31AM Chemokaze wrote:

Update....I started iRestore 3 months ago. I was shedding a lot before starting treatment and it seemed to worsen....and I think that is slowing down now. I am beginning to see a few sprouts at hairline at top of my forehead. I need a mirror with stronger magnification! ...and of course I cannot really see what is going on at the top of my head, so my husband will check with magnifying glass and bright light soon.....maybe if he sees the sprouts, he will use the helmet for himself!

10/2018: NEAD; 7/2018: Onward to Verzenio, Zometa, Faslodex, & CyberKnife to single met to L4 spine. Dx 9/1996, IDC, Left, Stage IB, Grade 3, 0/21 nodes, ER+/PR+ Dx 5/2016, IDC, Right, Stage IIIC, Grade 2, 14/21 nodes, ER+/PR+, HER2- Dx 6/2018, Stage IV, metastasized to bone
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Oct 2, 2019 01:24PM miranda2060 wrote:

Hi ladies,

Just checking in with my fellow iRestore helmet users. I am still using mine, though not as frequently. I do believe it has helped! Part not as wide, hair generally feeling thicker. I also stopped coloring my hair, and am transitioning to salt-and-pepper, not without some reservations about it, but glad to be free of the dye.

How is everyone else doing?


Dx 12/20/2017, LCIS/DCIS, Right, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Surgery 1/22/2018 Lymph node removal; Mastectomy; Reconstruction (right): Silicone implant Radiation Therapy 2/18/2018 External: Chest wall Hormonal Therapy 5/9/2018 Arimidex (anastrozole), Femara (letrozole) Hormonal Therapy 5/10/2018
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Oct 2, 2019 02:00PM Lisey wrote:

I'm still using the irestore. Itching has gone down to nearly nothing. My hair is thinner than it was before Breast Cancer 3 years ago, but most shedding has completely stopped. It was the easiest best solution I've made.


Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 2, 2019 04:43PM miranda2060 wrote:

Lisey, great to hear this! I'm glad you have had good results. Smile

Dx 12/20/2017, LCIS/DCIS, Right, 2cm, Stage IIA, Grade 1, ER+/PR+, HER2- Surgery 1/22/2018 Lymph node removal; Mastectomy; Reconstruction (right): Silicone implant Radiation Therapy 2/18/2018 External: Chest wall Hormonal Therapy 5/9/2018 Arimidex (anastrozole), Femara (letrozole) Hormonal Therapy 5/10/2018
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Oct 2, 2019 05:11PM SerenitySTAT wrote:

I still use it 3 times a week except for twice when I was away a week. I noticed more hair loss by the end of the week. Guess my scalp is addicted. My hair is not as thick as it was before chemo, but it's better than before the helmet.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Oct 2, 2019 10:37PM Faith-840 wrote:

I’m still using my IRestore for about 10 months now. My hair is definitely thicker than it was, however, I have two areas in the back of my head which were thin even before I started the Letrozole and they are still fairly thin. I’m still coloring my hair and that seems to plump it up and not look so thin. I’d love to stop the color but I have ugly black and gray hair. If it was a nice silver, I would quit the color but it’s not.

Also, there are times when I only use it 3 times a week so that may explain the thinness I still have but I do get a little tired of getting it out of the closet all the time. And, I do forget on occasion. Thank you Letrozole for one more side effect. All in all, I’m happy with the results I’ve had.

Faith (in the future).

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/5/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/23/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 3, 2019 10:14AM anotherNYCGirl wrote:

After 10 months, I'm still using mine, too, but hair still thin, especially on top. It may be slightly better than before, but I still wear my top piece most of the time. I've thought about stopping use of the helmet, but I'm afraid my hair will get even thinner!

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (left); Reconstruction (right) Surgery 1/13/2015 Reconstruction (right): Tissue expander placement Surgery 5/27/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Nov 17, 2019 09:37PM Babasmom wrote:

Hi. I just celebrated 2yrs cancer free! I am of course extremely grateful however as more time goes by I am more and more frustrated and depressed about everything that breast cancer has taken from me. My age and stage in my life has a lot to do with that. So in addition to breasts, fertility, ovaries, youthful skin, and causing hair growth on face, I am now losing hair at an alarming rate. If it continues I won’t be able to hide the thin/bald spots much longer. I used to have thick curly hair. I’m left w using hair powders to cover up spots and hair falling out so much that my toddler son picks it up and puts it back on my head to be kind.

I've been using 10% minoxidil from derm and aside from a few spots close to hairline it has not been successful.

I am very encouraged by hearing some positive results with the helmet. If nothing else I need to at least keep what I have. Any new growth wound be too wonderful to describe.

Can anyone provide info on the discount and/or best place to buy a helmet?


Thank you so much


Dx 5/11/2017, IDC, Right, ER+, HER2+ Targeted Therapy 7/13/2017 Herceptin (trastuzumab) Chemotherapy 7/13/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/13/2017 Perjeta (pertuzumab) Surgery 11/7/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 17, 2019 10:34PM Lisey wrote:

HI Babasmom, CaliKelly was pming people the details, but she hasn't been on the site since July. Perhaps send her a PM? Or contact the company directly and let them know you are a with the group from breast cancer.org and would like the discount. :) Best of luck to you.

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 24, 2019 07:49AM Babasmom wrote:

Thanks so much! I’ll do that

Dx 5/11/2017, IDC, Right, ER+, HER2+ Targeted Therapy 7/13/2017 Herceptin (trastuzumab) Chemotherapy 7/13/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/13/2017 Perjeta (pertuzumab) Surgery 11/7/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 24, 2019 07:50AM Babasmom wrote:

thanks so much Lisey

Dx 5/11/2017, IDC, Right, ER+, HER2+ Targeted Therapy 7/13/2017 Herceptin (trastuzumab) Chemotherapy 7/13/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/13/2017 Perjeta (pertuzumab) Surgery 11/7/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 28, 2020 08:52PM anotherNYCGirl wrote:

HI,

I hope all here are well and avoiding this nasty virus that the world is dealing with!

So besides washing my hands a hundred times a day, and trrrrrrying to wipe down everything that comes into the house, I have been wondering if you are all still using the helmet and what your results have been.

I do have some improvement on top, but not too terrific. I know that I Restore has come out with a new, stronger helmet, but I am not rushing to purchase it. Have any of you used the original model more often than every other day? If a stronger helmet is safe, I am thinking to try using my old one every day. Opinions?

Thanks!

STAY WELL!

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (left); Reconstruction (right) Surgery 1/13/2015 Reconstruction (right): Tissue expander placement Surgery 5/27/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 28, 2020 09:18PM Lisey wrote:

I use it regularly. It keeps my itching at bay... I haven't had the hair loss I had a year ago and things have settled down into just a new normal for me. My hair is coming back to being curly, which I'm stoked about. I figure so long as I'm not shedding, it's a total win... I haven't heard about the new one, that is really interesting. :)

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 28, 2020 10:51PM anotherNYCGirl wrote:

Lisey, I'm glad it's helping! You use it every other day?

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (left); Reconstruction (right) Surgery 1/13/2015 Reconstruction (right): Tissue expander placement Surgery 5/27/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 28, 2020 11:09PM - edited Apr 28, 2020 11:09PM by Lisey

It's probably more like 2 or 3 times a week that I use it. I do like that it resolves the itching, and hey.. if it helps me keep that curl, it makes it worth it for me. I've also started using the 'curlygirl' styling protocol, which involves ONLY combing my hair under cold water after showering with a very wide comb, then using product and letting air dry. That has helped me reduce the shedding too. I don't brush my hair dry anymore, and really only lightly twice a week when I shower. (I'm a red head and have very dry skin so showering twice a week is enough for me.) lol. I promise I'm not an ogre.

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 29, 2020 11:00PM Faith-840 wrote:

I’ve seen that there is a new stronger helmet but it’s really expensive. I never thought about using the helmet more often. I would think your scalp would need a break from the lights but who knows. I think my hair is still better than it was when I started using the helmet but the two areas in the back of my head are still very thin almost bald. I think I’m going to get a hair piece to cover them if I can ever get out of the house to shop for one in this stupid pandemic.

Faith (in the future).

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/5/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/23/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 30, 2020 04:41PM anotherNYCGirl wrote:

I may try adding an extra day here and there. I figure if a stronger helmet can be used, it may be ok to use the weaker one more frequently?

Although my hair has a LITTLE more on top since using it, I am very self conscious of how thin it is. I do have a couple of top pieces that I wear when I go out, unless I have a baseball cap on!

Lisey, - Thank you for sharing your routine! I will look into the curly products! I always had curly hair, and used to have it straightened. Since chemo, it is straight on top and still curly on sides and back.

Faith, - I dont know if it would match your hair, but I like Raquel Welch toppers, - I have Sonata and Lyric and both are good! I ordered them online from wigs.com (https://www.wigs.com/products/sonata-top-piece-raq...) They are having a 30% off sale for a couple more days if you are interested!

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (left); Reconstruction (right) Surgery 1/13/2015 Reconstruction (right): Tissue expander placement Surgery 5/27/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 30, 2020 11:51PM Faith-840 wrote:

anotherNYCgirl, thanks for the topper recommendation. I’ll check them out.

Faith

Faith Dx 1/1991, Left, Stage IIIB, 8/26 nodes, ER+/PR+, HER2- Surgery 1/5/1991 Lumpectomy: Left Surgery 2/4/1991 Mastectomy: Left Dx 1/2016, ILC, Left, 6cm+, Stage IV, metastasized to lungs, ER+/PR+, HER2- (FISH) Hormonal Therapy 1/23/2016 Femara (letrozole) Targeted Therapy 1/23/2016 Ibrance (palbociclib) Surgery Reconstruction (left): Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement Chemotherapy CAF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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