Topic: Pectoral Muscle —pleomorphic ILC

Forum: ILC (Invasive Lobular Carcinoma) — Just diagnosed, in treatment, or finished treatment for ILC.

Posted on: Jan 12, 2022 05:41PM

Posted on: Jan 12, 2022 05:41PM

Duketex wrote:

My mother (82) has had surgery to remove 4cm tumor that was embedded in pectoral muscle. Stage 2. The margins were positive. No second surgery. She went through 23 days of radiation. 8 days for pectoral muscle

Has anyone had this diagnosis?? If so, could you share your experience

I asking for percentage of reoccurrence, doctor said 9%

Any information appreciated!! nice to see long term survivors

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Jan 31, 2022 03:50PM nash wrote:

Was the 9% for local recurrence in the muscle?

I was diagnosed with pleomorphic ILC growing into my pec when I was 38. I was misdiagnosed as Stage 2–we now know I had a solitary bone met to my sternum, making me de novo Stage 4.

That was back in 2007. I now have mets to my brain, eye muscle, cranial nerves, skin and additional bone mets. However, I’m still here. Even though PILC is considered more aggressive than classic ILC, it is still relatively slow growing in many cases.

Stage IV Pleomorphic ILC, initially diagnosed at age 38. Mets to brain, cranial nerves, bone and breast Dx 6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 7/19/2007 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 8/1/2007 CAF Radiation Therapy 12/27/2007 Whole breast: Breast, Chest wall Hormonal Therapy 3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+ Surgery 5/15/2015 Mastectomy; Reconstruction (Left): Latissimus dorsi flap Dx 2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+ Chemotherapy 2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Dx 6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+ Targeted Therapy 7/1/2018 Ibrance (palbociclib) Hormonal Therapy 7/1/2018 Faslodex (fulvestrant), Zoladex (goserelin) Radiation Therapy 7/3/2018 External Local Metastases 7/3/2018 Brain Radiation Therapy 7/27/2020 External Local Metastases 7/27/2020 Brain Radiation Therapy 2/23/2021 External Local Metastases 2/23/2021 Brain Chemotherapy 3/1/2022 Other Dx ILC, Other, Stage IV Radiation Therapy Other part
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Jan 31, 2022 05:37PM Duketex wrote:

Nash, thanks for this. This is good news. I am assuming so, but am unsure. They didn’t have her do chemo, she wouldn’t have done it anyway. We go back to radiologist Wednesday and surgeon in a few weeks. I will see if I can get an answer to this then.

Thank you agai

Following up. I posted in a couple of Facebook groups No response. I am guessing pectoral muscle involvement is rare and you add on PILC scary

thanks you

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May 7, 2022 12:25AM - edited May 7, 2022 12:25AM by hlya

Hi, Nash,

You are still here. Heart

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