Log in to post a reply
Jan 31, 2022 03:50PM
Was the 9% for local recurrence in the muscle?
I was diagnosed with pleomorphic ILC growing into my pec when I was 38. I was misdiagnosed as Stage 2–we now know I had a solitary bone met to my sternum, making me de novo Stage 4.
That was back in 2007. I now have mets to my brain, eye muscle, cranial nerves, skin and additional bone mets. However, I’m still here. Even though PILC is considered more aggressive than classic ILC, it is still relatively slow growing in many cases.
Stage IV Pleomorphic ILC, initially diagnosed at age 38. Mets to brain, cranial nerves, bone and breast
6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2-
7/19/2007 Lumpectomy; Lumpectomy (Left); Lymph node removal
12/27/2007 Whole breast: Breast, Chest wall
3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (Left): Latissimus dorsi flap
2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+
2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel)
6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+
7/1/2018 Ibrance (palbociclib)
7/1/2018 Faslodex (fulvestrant), Zoladex (goserelin)
ILC, Other, Stage IV