Jan 13, 2020 06:18AM - edited Jan 13, 2020 06:32AM by sylviaexmouthuk
I do agree that chemotherapy is a wild card and radiotherapy is the same. We do not really know what this treatment has done to our bodies and we do not know what is going to turn up over the years. We just have to live the day. It is useful if long term survivors pop in to tell us of any problems in their bodies that they attribute to their treatment. As I have said, I have peripheral neuropathy in the feet and my oncologist told me it was due to the taxane drugs, in my case docetaxel (Taxotere) and I was told there is no cure. I live with it and do ot expect it to go away. I do remember reading, I think in the book Let's Talk Lymphoedema, that the taxanes can also cause lymphoedema. As I have said before, I can manage the lymphoedema, which is very mild and I do not wear a compression sleeve and just moisturise my right arm very carefully, do some exercises and make sure I do not overdo anything with that arm. I do not have any chemo brain problems and never did. I do think the melanoma mole that I had removed back in 2017 was attributable to radiotherapy.
As you say, you are only ten months away from your final treatment so that is not a very long time to be back to normal.
We shall have to wait and see when we exit on January 31st at 11 pm, but I am not expecting anything from the present government. Did you see Boris Johnson with the new President of the EU, Ursula von der Leyen? He was about to tell lies about how they were at school together! He just cannot stop himself!
I agree with you about all this nonsense and the royal family. It is such a lot of nonsense that it takes centre stage when there is all this trouble with Iran and the US, the bush fires in Australia and the general mayhem in the world. We need a republic and elected representatives, not all these hangers on. It is beyond belief that the BBC can announce that the queen is queen of fifteen countries that the monarchy is respected world wide and cannot be compared to the more modern and discrete monarchies of northern Europe.
It is beyond belief that two young people are getting more coverage than the election of a new Labour leader. It is so important to have strong opposition to what is a Tory dictatorship based on 43% of the electorate.
It is true that there is a lot of information and a lot of experiences on this thread. I did actually go back and read the first ten pages and remembered some of the strong posters at that time, such as Karen3, Gillyone, josephine, MariaMalta, Chritina1961, Bak94, Mcrimmon, and so on. They were a mixture of Brits and Americans. I would love to know what has happened to them.
Let us hope that the newly diagnosed with TNBC will come and join us. That way we can keep up with new experiences, any new tips and new ways of dealing with things.
Here in Exmouth Monday morning is beginning wet and windy and very little sun. It makes you want to stay home.
I do hope you and Michael have a good week. Like you, Raymond and I have been busy all the time since retirement and our days seem to be a mixture of dealing with the apartment complex, doing the thread and personal chores etc.