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Jan 30, 2018 06:55AM
I've been on X for more than 5 months. And will start my first "real" cycle on Monday.
By that, I mean 2 weeks on/1 week off vs. the unusual 5 days on/2 days off my Former oncologist had me on. My dose also will be increased to where the study data would put it.
My new MO told me that while my previous dose and cycle didn't follow protocol, the benefits should be the same or similar. But without those things having been studied, it's hard to say for certain. I'm glad I get one study-based cycle. I'm also glad I questioned the old MO twice about this so I can't beat myself up about not saying anything.
You can't undo what wasn't done.
Reviews of the old onc's work show things not done or done very differently from protocol. I lost faith in her months ago, but had no clue what to do. Maybe this will help someone else:
- Trust your gut.
- If your doctor doesn't answer your questions or explain things to you, find someone who will.
- You can get a second opinion at any point in the process. www.cancer.gov has a chat box where a rep can give you info on places to get a 2nd opinion within driving distance of your zip code. They also can tell you what the standard treatment protocol is, send links to publications as well as to free databases where you can do your own research.
- IMO: If you feel like your job as a patient is to show up, shut-up and do what you're told - proceed to the nearest exit and run like hell.
2/2017, IDC, Left, 6cm+, Stage IIIB, Grade 3, 1/3 nodes, ER-/PR-, HER2- (IHC)
3/3/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
7/27/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
8/27/2017 Xeloda (capecitabine)