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Nov 7, 2021 12:00PM
Mamacure - I'm glad I started the thread as I felt clueless and really needed insight, not to mention support from others going through the same thing.The members of the Stage IV thread were very nice, but someone made did make sure to point out that it was, indeed, a Stage IV group and so I stopped asking. I get it.
So many that I've spoken to here and from what I've read in the past on the Xeloda thread for Stage IV, it's very been very tolerable and others go on and adjust very well. My MO was very surprised by my SE's
When I was on X last year and experienced the SE's that I did; bone pain was the worst, I could barely walk, but again, that was me. I had just finished my ACT & carbo about two months prior. I'm praying that the extreme SE's I experienced were due to residual SE's from that.
I did not experience hand and foot, but began using Aquaphor every night a week before starting X (doing it now too.) I tried to walk, but was very weak, again had a lot of pain in my feet, but no skin reactions other than a little redness on my palms. from the SE's.
I struggle with constipation too and X did not change that for me.
I was nauseous, but nothing that Compazine or Ondansetron couldn't help with. I did lose my appetite, but I made sure to force myself to eat.
I start on Tuesday or Wednesday, depending on if MO will allow me to do just one dose on Tuesday. I hoping that this time around it is different. I will keep you all posted.
3/31/2020 AC + T (Taxol)
9/16/2020 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander
11/2/2020 Xeloda (capecitabine)
7/9/2021 Reconstruction (Left); Reconstruction (Right)
Whole breast: Breast, Lymph nodes, Chest wall