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Topic: Mirena IUD/breast cancer

Forum: Clinical Trials, Research News, Podcasts, Study Results —

Share your research articles, interpretations and experiences here. Let us know how these studies affect you and your decisions.

Posted on: Mar 16, 2010 10:35AM

Tabb2000 wrote:

I wanted to reach out and see if anyone else had Mirena when diagnosed with breast cancer?  I was only 30 years old when diagnosed and had Mirena put in about 1 year prior to me discovering a lump.  I really think there may be a connection.  I may be interested in getting together a class action suit, if there are enough of us.  Please respond if you have a similar story or know someone who does.

Dx 12/31/2008, IDC, 2cm, Stage IIB, Grade 3, 2/16 nodes, ER+/PR+, HER2-
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Oct 20, 2015 11:36AM sas-schatzi wrote:

Many here have donated . Thank you !........Wandering around and cheerleading again :)


Donate today, make a difference directly in all our lives. By supporting BCO, we support each other. Thanks and Hugs :)

https://community.breastcancer.org/forum/110/topic/834331?page=1

Link to the mainboard donation page

https://secure3.convio.net/bco/site/Donation2?df_i...

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 4, 2015 04:49AM alnuss wrote:

I have had a Mirena for about 7 years now and was diagnosed with breast cancer in July. I have no family history of breast cancer. I strongly believe that there has to be some link to the iud and my cancer honestly how could there not be when your dealing with these same hormones that caused the cancer in the first place...what's the next step?

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Nov 8, 2015 12:52PM Moderators wrote:

Hi Ainuss,

We're bumping your topic to hopefully get some responses to your question.

The Moderators.

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Nov 27, 2015 06:10PM LHolla925 wrote:

I have had the Mirena IUD for about 7 years and was diagnosed with breast cancer about two months ago (September 2015). HER2 Recept=Positive. My oncologist advised that I immediately remove the Mirena IUD prior to my Chemo due to the fact that it releases the same hormones in which the cancer was caused from. I have to start chemo In December for 18 weeks in 3 week increments and surgery later. I was diagnosed with stage 1 and the size of my lump is 1.8 centimeters. My BRCA test was negative which advised that I was negative as a cancer trait carrier and I also have no family history of Breast Cancer. I am the first one in my family to receive the Breast Cancer diagnosis. I am so angry and fill deceived because I honestly believe that the manufacturer of the Mirena IUD knew of this outcome and failed to properly and honestly advise it's clients! Who's willing to help the victims of this terrible thing called the deceptive Mirena IUD?

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Nov 28, 2015 01:08PM Moderators wrote:

Hi LHolla and welcome to Breastcancer.org!

We don't have any answers for you about the IUD, but hopefully someone else with a similar experience will be by shortly to weigh in.

In the meantime, you may want to browse the November 2015 Chemo thread for some advice from others going through chemo this month about what to expect. There will soon be a December 2015 Chemo thread that you can join, too, so that you can post along with others as you all navigate treatment together.

We hope this helps. Thanks for joining this incredible Community. We look forward to hearing more from you!

--The Mods

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Jul 8, 2016 01:15PM Kimmer33 wrote:

hi!

I too had an iud for 3 years prior to my breast cancer diagnosis - curious if anyone has found anything out re: lawsuits, etc

Dx 7/31/2015, IDC, Left, 2cm, Stage IIB, Grade 1, 1/17 nodes, ER+/PR+, HER2- Surgery 8/30/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Chemotherapy 10/9/2015 AC + T (Taxol) Hormonal Therapy 2/2/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/15/2016 Whole-breast: Breast, Lymph nodes Surgery 6/8/2016 Prophylactic mastectomy: Right
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Oct 14, 2016 10:45AM Angtee15 wrote:

I know this is an old thread but the Mirena website does say women with breast cancer (or who have had it) should not use Mirena. I had mine put in December 2013 and was diagnosed with breast cancer in November 2015.

I just got mine removed today. I waited because my BC was hormone negative and honestly was sick of doctors and medical appointments...but regardless I am relieved to have it gone.

Dx 11/9/2015, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER-/PR-, HER2- Chemotherapy 12/5/2015 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 5/11/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Oct 17, 2016 06:09PM Nanka wrote:

Yup, I had an IUD put in January 2010. In January 2011, I told my GP to take it out because of this nagging feeling that I had a foreign object in my body going against nature. I remember her taking it out and showing it to me to prove that it wasn't dangerous and that it was this harmless minuscule "T" shaped object. I was then diagnosed with BC in February 2012. If it is the IUD that caused all of this, then it is now gone and beast will never come back...Case closed.

Dx 2/16/2012, ILC, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/13/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 6/26/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 19, 2016 04:43PM Meggan wrote:

I had an iud inserted June 6,2016. I'm 31 and today I was at my doc for abreast lump I found. After reading all of this I am completely freaked out!! They are waiting a month to reassess my lump. no family history and I'm healthy. I'm not sure what to think now. However I'm thinking I should have this iud removed.

My thoughts and prayers to all of you!

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Nov 9, 2016 10:37AM ishippy wrote:

Was there a link found or a suit filed? I have had my Mirena for about 3 yrs and now I have found lumps.

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Nov 9, 2016 12:21PM Kruise wrote:

Hi, I had a Mirena and know it contributed to my bc or helped accelerate it. My tumour was PR+ only, a rarity. Funny that the Mirena releases low doses of progesterone only into the uterus. I do believe everyone reacts differently to hormones etc in the body. Just as some people are allergic to peanuts, or shellfish, or certain products and creams, maybe my body was allergic to artificial hormones!! Once I felt my lump I just had a very very strong gut instinct my Mirena had to come out. I couldn't get it removed straight away because of holidays but went away for a couple of days and it fell out on its own!!! I am quite a spiritual person so I believe it absolutely had to come out and the Angels intervened!! You should have seen the huge clots and blood that kept passing after that. Hideous.

We don't have medical lawsuits etc in our country but I'd certainly advise anyone thinking of a Mirena not too. Especially if there is family hx. As with anything though, others will have one and be fine with it. It depends on an individual but the problem is how do we know if we are reacting?

Age at dx 44yrs. Had Annual mammograms past 9 yrs as Mum dx 45yrs but felt lump myself. Micromets 2mm in the two sentinel nodes. Treated as TNBC but weakly PR+. Medullary type. BRCA1 & 2 negative. Dx 1/7/2013, IDC, Left, 1cm, Stage IIA, Grade 3, 2/8 nodes, ER-/PR+, HER2- Surgery 2/4/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 2/20/2013 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/27/2013 AC + T (Taxol) Radiation Therapy 9/30/2013 Breast Hormonal Therapy 12/30/2013
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Feb 6, 2017 11:40AM Curly17 wrote:

I'm 30, have had the Mirena IUD for almost three years, and last fall I discovered a lump in my right breast that seemed to be about the size of a small grape. That was two years and five months after my Mierna insertion. I had an ultrasound last week, and the doctor says it seems like it is a benign cyst. I have the option of getting it aspirated or not, and she recommends performing another ultrasound in six months. I had no intention of aspirating a painless cyst, but after reading some of the experiences on here and seeing this may be related to Mirena, I am leaning towards aspirating.

My question is, have any of you been originally told your cancer is a cyst only to later be DX'd with BC? Of course, I hope this is not the case...

I'm so sorry for what so many of you have gone through. Thank you in advance for your response.

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Feb 6, 2017 03:32PM Nanka wrote:

I had a cyst in 2009 aspirated, then BC in that same area in 2012. My surgeon told me that the cyst and the cancer being in the same area was totally coincidental. But who knows, right? When they aspirated, had it tested, all was good. There may be no correlation at all.

Michelle

Dx 2/16/2012, ILC, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/13/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 6/26/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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May 14, 2017 05:55PM giarraffa3 wrote:

Hello I wanted to know if anyone was able to start up a law suit. I will help in anyway you need. I had an IUD for a few years and when I was 36 they found cancer in my breasts. My doctor said I needed to have the IUD removed asap. When I called my OB doctor they had me come in that same day. I had a double mastectomy. Im also the only person in my whole family to have any type of cancer. please contact me if anyone was able to find out if the IUD is the cause. tinaandmy3boys@aol.com

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Jun 1, 2017 05:58AM Chooktober wrote:

I cannot post links here but please go to pubmed website and search

Cancer risk in women using the levonorgestrel-releasing intrauterine system in Finland.
Also Search this. Levonorgestrel-releasing intrauterine system and the risk of breast cancer: A nationwide cohort study.

I had a Mirena inserted 2012 and 2014 breast cancer. These studies point to a increased risk


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Jun 1, 2017 09:25AM Moderators wrote:

Hi Chooktober, You should be able to post a link by clicking on the link symbol in the box where you type ThumbsUp

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Jul 16, 2017 05:25PM kimred wrote:

I started my mirena 6/2015 for extremely heavy bleeding with periods. I have a DCIS diagnosis - both estrogen and progesterone negative as of 6/2017. I had an abnormal mammogram with negative (clear) biopsy in 2016. I believe all hormone-based birth control options list BC as possible side effect. There could be many factors correlating mirena use with BC, but not necessarily cause/effect.

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Jul 30, 2017 04:56PM Lumpie wrote:

Taking hormones, whether as birth control or HRT, will "feed" hormone receptor positive breast cancer. Many, many women take these hormones in the form of pills, patches, injections, implants or via IUD's. Most birth control used by women in the U.S. is hormone based. Non-hormone forms of reversible birth control include condoms, spermicidal gels and sponges, copper IUD's, diaphragms and cervical caps. It's disappointing that, after all these years, there are not more options since many women cannot tolerate hormone based contraceptives for a variety of reasons.

Some women on this form said that they have been prescribed hormonal birth control after having breast cancer. If anyone with a Hx of BC has been prescribed a contraceptive with estrogen or progesterone, I would question the provider very carefully about the rationale. That is not a risk model I would be comfortable with.

"Buy the ticket, take the ride." Dx 2015, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/14/2016 Herceptin (trastuzumab) Chemotherapy 1/14/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 2017, IDC, Stage IV, metastasized to liver, ER-/PR-, HER2+ Radiation Therapy Whole-breast: Breast Surgery Lumpectomy: Right Surgery Lumpectomy: Right
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Sep 17, 2017 08:48AM - edited Sep 18, 2017 03:09AM by Moderators

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Sep 17, 2017 10:57AM - edited Sep 18, 2017 03:09AM by Moderators

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