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Topic: Blue Stain on Toilet Seat: The Mystery

Forum: Hormonal Therapy - Before, During, and After —

Risks and benefits, side effects, and costs of anti-estrogen medications. Note: Please remember that there are good experiences and bad with ALL treatments and this is a safe place to share YOUR experience, not to be influenced or influence others.

Posted on: May 3, 2018 12:24AM

sbelizabeth wrote:

OK, friends, this is NOT a photo of my own toilet seat, but one I borrowed from google, and a good illustration of what I'm talking about.

A couple of days ago my hubs said, what's with the blue stain on the terlit?

it's a light indigo, almost a shadow effect, but(t) the exact shape of my own patootie when I park it there. I googled like crazy, of course, and found it's A THING. Generally mentioned by pregnant women, but occasionally someone, usually a woman, who is not. Internet questions are answered with wild guesses of transferred clothing dye, cleaning fluids, or chemical reactions to skin sweat or oil. Nothing definitive, anywhere.

I've had no exposure to new clothes, soaps, detergents, foods, meds, vitamins, supplements, nothing. I've been taking my letrozole faithfully for almost six years; nothing new there.

Any guesses? Anyone else have this weird Smurf Butt experience? SB

Image result for mystery stain toilet seat

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 3, 2018 05:23AM gb2115 wrote:

have not experienced this, but I bet it's some chemical reaction with either your sweat or skin oils!!

Maybe replace the seat and see if it happens again with brand new plastic?

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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May 3, 2018 07:53AM Egads007 wrote:

LOL@smurf butt! This has got to be a reaction between skin oil and the seat. How old is the seat? Perhaps the seats initially top ‘skin’ has broken down allowing skin oils to discolour it? I just inspected my bathroom because if your post...time for a scouring lol

"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/19/2013 Doxil (doxorubicin), Taxol (paclitaxel) Surgery 8/23/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 10/31/2013 Whole-breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 3, 2018 10:24AM sbelizabeth wrote:

The seat is painted wood, not plastic, and it's at least a year old. Many patooties have been there, but the stain is clearly the shape of my own. It showed up suddenly, so it's not like there was a gradual buildup of oil/sweat/dye/bad juju. We've tried every cleaning method known to man or woman. Alcohol, bleach solution, magic eraser, ammonia. Scrubbing hard with alcohol lightens it just a bit, but not by much. I scrubbed the skin of my backside with an alcohol wipe too and nothing blue appeared on the wipe.

The women who post similar experiences on the internet sometimes say their sheets have indigo stains too.

And here I thought I'd heard of everything!

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 3, 2018 11:10AM - edited May 3, 2018 11:20AM by Egads007

That is so weird...too bad it didn't come out in a tye dye pattern, at least it would be kinda funky!

Edited to ask: anyone in the house taking meds for gastro issues

"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/19/2013 Doxil (doxorubicin), Taxol (paclitaxel) Surgery 8/23/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 10/31/2013 Whole-breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 3, 2018 11:25AM Lula73 wrote:

have you worn new jeans lately? I have a spot on my leather seat in the car...

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/13/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/2/2018 Femara (letrozole)
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May 3, 2018 11:48AM Lula73 wrote:

I might have the answer... Corynebacterium. It is commonly found on the skin of humans and animals, in the water and soil. All strains of this bacteria require biotin (Vitamin B7) to grow. (And aren’t many of us taking a supplement with biotin in it especially for hair, nails and skin SEs from the BC meds?) some strains also require thiamin (Vitamin B1) and PABA (an amino acid most commonly found in supplements/vitamins containing folic acid). This family of bacteria can cause your sweat/body oils to have a blue/grayish tint that can transfer. It can also interact with materials containing silver which is oftentimes used in coatings for things like ... toilet seats. Moral of the story-Vitamins are good for our body, not so much for toilet seats.

*once you get beyond looking at the seat, if you notice your urine is a bright neon looking yellow, it’s likely caused by riboflavin (Vitamin B2) that’s in many of the supplements us bc warriors take. Now if only we could find the one that gives us super powers...🙂

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/13/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/2/2018 Femara (letrozole)
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May 3, 2018 01:41PM sbelizabeth wrote:

Egads007, I take omeprazole and my hubs takes ranitidine. But we've been on them for quite a long time.

Lula73, no new jeans. But you might be on to something with the corynebacterium. I found "pseudochromhydrosis" on google yesterday, and there are a few similarities. The case I read about described someone whose skin had uneven patches of blue, that transferred blue stains. No blue skin here.

And yes, the multi-vitamin I take turns my urine neon-ish for a short period of time, so maybe...? (When I was breastfeeding and pumping/freezing extra stores, the vitamins turned my breast milk a neon shade too!)

Thanks for your input. SB (sbelizabeth, AKA smurfbutt)

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 3, 2018 02:05PM Egads007 wrote:

Lula - Good find! I saw something that mentions B12, but not as detailed as what you found. I'm looking for the one that will make me rich....right along with the super powers :))))

Selizabeth (Smuf Butt lol!) - The kind of meds I was seeing were for ulcerative colitis and crohns, I saw a form where people were commenting on getting smurf butt after taking their meds. Some got it, some didn't.. Your breastfeeding comment made me wonder how long ago you were pregnant as it looks like its common in expectant mothers.

I have to say, this is the most unusual thread I've seen on these boards so far. I bet dollars to donuts there are a bunch of folks googling the subject. It made for some pretty funny reading...lots of blogs on it. Thanks for posting it!

"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/19/2013 Doxil (doxorubicin), Taxol (paclitaxel) Surgery 8/23/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 10/31/2013 Whole-breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 3, 2018 02:43PM sbelizabeth wrote:

Egads, my twins are 37-years-old, so my breastfeeding experience was a long time ago!

Yeah, I was laughing my socks off at the blogs I found yesterday. This is weird, but hilarious.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Aug 30, 2019 10:28PM Pry72 wrote:

ok... mines more of a pinkish purple lol based on googling I’m thinking it’s the B Complex I’m taking, but as a BC survivor seeing it here made me think maybe it was more common with us but instead I see only 2 of us 😂😂 I don’t take any estrogen blockers bc my side effects were greater than the benefits, but I do take a DIM supplement with B complex... wondering if you take the same combination? I’m only taking the DIM during my period so maybe it’s all the perfect storm and causing purple toilet seat. I checked my butt and it’s not purple. Lol the skin is normal... but the seat is purple lol I’ve been laughing about this all night. Glad I’m not alone

Michele Dx 5/24/2017, LCIS/ILC, Right, <1cm, Stage IA, 0/1 nodes, ER+/PR+, HER2- Surgery 6/28/2017 Lumpectomy: Right Radiation Therapy 7/31/2017 Whole-breast: Breast

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