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Jan 23, 2021 03:52PM
Thank you for voicing what many of us feel. While I am fortunate that my cancer is slow growing, it’s not exactly a walk in the park. At four years into this I hurt, am fatigued and constantly deal with the fallout of medications. I’ve had multiple rounds of radiation to beat back the symptoms of bone mets run amok.And while I certainly want to keep going as long as I can, I have to admit to feel tired of the constant poking and prodding, bloodwork, scans, etc. Not to mention the weird symptoms that seem to defy explanation - scans stable thankfully (waiting on CT results currently) but weird pain persists that gets into my head...
Quite frankly nobody should have to deal with this but I also find it challenging to get others to understand what it’s like when you are facing death at a relatively early age (I’m 58). Even my mother doesn’t get it. And, as someone who is single, I too wonder how I will manage when the wheels start to fall off the bus. As she is just shy of 90, it’s likely I will outlive my mother but if not, should she really be saddled with being my caregiver at that age?
So no, it doesn’t feel chronic to me. At least here, in Canada, we have passed death with dignity laws. They need tweaking to remove some of the onerous rules around informed consent which becomes much more problematic once disease progresses but were are still in a relatively good place.
4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+
5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary
12/17/2001 Whole-breast: Breast
12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/2/2007 Femara (letrozole)
10/22/2007 Arimidex (anastrozole)
1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2-
1/27/2017 Taxol (paclitaxel)
3/29/2017 Arimidex (anastrozole)
4/20/2017 Ibrance (palbociclib)
10/12/2017, IDC, Right, Stage IV, metastasized to other
10/21/2017 Xeloda (capecitabine)
11/15/2017 External: Bone
1/19/2018 Faslodex (fulvestrant)
8/2/2018 External: Bone
11/5/2018 External: Bone
11/3/2020 External: Bone
1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2-
2/4/2021 Xeloda (capecitabine)