Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jun 22, 2012 09:48AM Godschild2 wrote:

Thanks for the info. It has some good info.

Dx 1/30/2012, Stage IV, ER-/PR- Hormonal Therapy 3/6/2012 Femara (letrozole)
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Jun 22, 2012 11:42AM anne16 wrote:

This is interesting b/c it says that bone mets causes too much calcium in blood.  When I saw my onc recently he said something about too much Vit D causes calcium in blood.  So they tell us to raise our Vit. D levels.  If we raise them too much then does this create an environment for cancer?  My Vit D is on the high end now after being so low when I was first diagnosed...so should I now try to lower my Vit D?!

Stage 4; 2/16 nodes; ER+/PR+; Her2-; 12 years NED
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Jun 22, 2012 11:52AM Jac53 wrote:

I'd only lower Vit D with my onc's agreement.  Vit D's an important little fella in the chemical mix.

Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jun 22, 2012 12:03PM - edited Jun 22, 2012 12:09PM by exbrnxgrl

Thanks for the link. I have a single bone met which is necrotic after rads. I am on Arimidex and have been on Aredia for 6 months. My original mo wanted me on Aredia or 22 months. Current mo says only 12 months because of possible onj and lack of conclusive evidence that it prevents spread of bone mets. If I'm still doing well at the 12 month point, I'll revisit the issue with her. Caryn

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Jun 22, 2012 04:49PM cookie97 wrote:

Thanks for the link. I have mulitple bone mets yet I've only had symptoms twice which were/was (?) before dx. and nothing since then. Guess the Zometa helped with that.

Keep in touch,

Edie

Dx 5/6/2010, IDC, Stage IV, Grade 3, mets, ER+/PR+, HER2-
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Jun 23, 2012 11:06AM GoldenEyes wrote:

OK  I had x ray done this morning on my h ips/pelvis area.  How does bc mets show on an x ray?  white spots, black spots?  its so hard to tell.  Hoping I find out before I go on vacation next week.  It could be DDD spreading all over, is that possible? I never had pain that bad tht spread down to my leg, where I had trouble walking.  Have a great weekend ladies

Donna

Dx 9/20/2007, IDC, 1cm, Stage IV, Grade 3, 1/1 nodes, mets, ER-/PR-, HER2+
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Jun 25, 2012 03:22AM - edited Jun 28, 2012 04:26AM by myangels

Hi Donna,

  I'm not completely sure, but I think anything abnormal on xray would show up as shadowing or density. Unless of course it's a fracture, then you would be able to see the fracture or break. A definitive dx not usually made till the follow-up with CTscan, Bone scan, or MRI. I have extensive bone mets and my bone mets showed up as increased uptake activity. The uptake is the dye thats administered for the bone scan. It will usually "light up" at the bones that have cancer. 

 You should consult with your onc after you get your xray results back and determine if you need any followup.

I hope your pain is better and you're able to walk more comfortably. Good luck!

Rose

Dx 2/1/2010, IDC, 3cm, Stage IV, Grade 3, mets, ER+/PR+, HER2- Surgery 7/13/2010 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Jun 25, 2012 09:56AM anne16 wrote:

Golden eyes, I am leary of xrays.  When having pain I went to an orthopedic b/c I thought it was from an injury..not cancer...and the xray didn't show cancer.  After 4 weeks of PT and things weren't better, they did an MRI and that is where it showed up.  I would have a back up scan if you can just to be sure!  Could it also be something to do with your sciatic nerve?  That usually has symptoms of going down the back of your leg!  Wishing you good luck!

Stage 4; 2/16 nodes; ER+/PR+; Her2-; 12 years NED
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Jun 25, 2012 11:55AM exbrnxgrl wrote:

Donna,
I had PET and MRI which suggested a bone met and a biopsy confirmed it. My mo does not use standard x-rays for possible mets. Caryn

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Jun 25, 2012 12:12PM susanr wrote:

I had a very large met in my hip and an XRay showed nothing.  I couldn't walk from the pain down the front of my leg.  I wasn't thinking mets at the time and just rested my bones until I couldn't take it any longer and a few months later an MRI showed severe mets in the hip.  For me, I think XRays are a waste of time and money.  SusanR

IDC 2002 Stage II Grade 3 4/29 nodes ER/PR+ Her2- Stage IV Dec 2008 Bone ER+/PR-/Her2- Bone Progression Oct.2011 to Spine,Skull and Rib Dx 11/22/2002, IDC, Stage IIIC, Grade 3, 4/29 nodes, mets, ER+/PR+, HER2- Surgery 11/25/2002 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 1/7/2003 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 1/7/2003 Adriamycin (doxorubicin) Chemotherapy 1/7/2003 Cytoxan (cyclophosphamide) Radiation Therapy 7/5/2003 Breast Hormonal Therapy 10/11/2003 Hormonal Therapy 10/8/2008 Femara (letrozole) Radiation Therapy 1/20/2009 Local Metastases 1/20/2009 Radiation therapy: Bone Hormonal Therapy 10/10/2011 Faslodex (fulvestrant) Targeted Therapy 12/1/2016 Ibrance (palbociclib) Hormonal Therapy 12/6/2016 Femara (letrozole)

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