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Bone Mets Thread
I've started this thread after suggestions that it would be useful. Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you. https://youtu.be/YpFfLrITfEI
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Slipped Disc or something else?
I haven’t posted here in a while but, I do check in to read the posts from time to time to gain knowledge and peace. I’m very thankful for the ladies here, though I wish none of us were here. So, if I could get some of you to offer advice, prayers, or experiences I would appreciate it. So, in early October I started to…
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FES PET/CT scan insurance coverage
Has anyone with traditional Medicare had a FES PET/CT scan? I can’t get a definitive answer on payment for the procedure from either the hospital or CMS. Both say that an FDG PET/CT is covered so the answer is “probably.” Given the cost (more than FDG) I’m worried about having it done without knowing for sure. After two…
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Bone lesion with no lymph node involvement
Hi everyone, I was diagnosed with invasive lobular breast cancer (ER+/PR+/HER2-) in January 2024. My oncologist says it’s closer to luminal A than B, with a Ki-67 ranging from 10% to 40%. I went through chemo, which reduced my tumor by about 80%, and had a quadrantectomy with clear surgical margins and negative lymph…
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Exercises For People Living With Bone Metastases
Studies show that exercise is safe for people with bone metastases. Research also shows that exercise can improve sexual health and offer many other benefits for women diagnosed with metastatic breast cancer. In this video, Sami Mansfield, a certified cancer trainer and founder of Cancer Wellness for Life, demonstrates a…
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Exercises to Relieve Side Effects
Nearly all breast cancer treatments cause side effects, including joint pain, fatigue, and anxiety. Exercise may seem like the last thing you want to do when you’re having serious side effects, but research shows that it can help ease all these side effects and more. It can also reduce the risk of recurrence, give you more…
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Bone Mets diagnosis 18 mos, lesions on liver on CT last week
Hello, my wife was diagnosed with stage IV breast cancer with bone met about 18 mos ago. She is currently on kisqali (400 mg), and Letrozole with monthly Zolodex shots and Zometa every 4 months. On her most recent CT (last week) the report said she has 3 lesions on the liver, 14 mm, 14 mm, and 15 mm. Still awaiting report…
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2017 BC Diagnosis…how are you doing?
Hello Friends:💐 It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing. I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support. I look forward…
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Accuracy of markers in Bone Mets
Hi All Just wondering if anyone knew accuracy of CA153 and CEA in detecting bone mets I am very anxiously awaiting results Initial blood test showed ALP was above 200 however CA153 and CEA were well within normal ranges etc Were your markers elevated when bone mets discovered?? and any other symptoms?? Many thanks Love to…
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Psychological reactions to aromatase inhibitors.
I'm sure this has been discussed on other pages but I want to start a thread specifically for this discussion. For the second time, I have had a severe neurological response to Aromatase inhibitors. The first time I was told there is nothing that would help so I quit taking the meds That was 6.5 years ago. I recently had a…
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Which Type of Radiation Is Best for Painful Spots of Cancer in Spine?
Which Type of Radiation Is Best for Painful Spots of Cancer in Spine? Jul 11, 2024 Stereotactic body radiation seems best for easing pain caused by spots of metastatic cancer in the spine. Read more…
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Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our Zoom Meetups for MBC! Anyone with MBC, register here: Mondays 2 pm ET Tuesdays 8:30 pm ET Wednesdays 4 pm ET Younger With MBC, register here: Thursdays, bi-weekly at 1:00 PM ET Great tips,…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
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Stage 4 with bone mets to mandible & T4 spine
Hello, I was diagnosed in December 2022 with what they thought was stage 2. After Pet scan it’s now stage 4. Mets to T4 spine and mandible. I’ve had one round of TCHP chemo and feeling pretty good. My oncologist hasn’t said what his plan for the bone Mets are other than adding Zometa. I’m wondering if the chemo will help…
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Trodelvy vs Eribulin SDX 7320
Hi, I'm Vita.My mom is Stage 4 Triple Negative breast cancer, now metastasis to liver. We have to choose this week which chemo... does anyone have any experience with these 2 listed above? Any info will be appreciated...
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Bone Mets and Told I Need Hip Replacement
I am in the ER and being told I need a hip replacement due to the bone mets. The ER is at my local hospital not the cancer center in Pittsburgh I go to. I came here due to hip and leg pain. The ER doc has a call into my oncologist in Pittsburgh. I want to hear what she says. I am very shocked and surprised by this turn of…
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NEW TO STAGE IV……WHAT ABOUT THESE TREATMENT DRUGS?
BONE METS AFTER 13 YEARS NED SUDDENLY IN TREATMENT AGAIN So in January 2023 My Oncologist sent me for scans following a high CANCER ANTIGEN 27.29 blood test, which I’ve gotten every 6 months with followups with him. Since 2009 until recently my CA 27.29 blood test was always Low ranging from 22 to 26, 27. It’s been like…
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I am so mad
I hate being here but here I am. Diagnosed stage IV to liver (20+ lesions), lung, spine, pelvis, skull (so I am not long for this world). I have no symptoms. It was caught during a routine MRI for my ongoing bulging disk issues. I have had other radiology over the past 7 months and there was nothing in these places. I had…
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Weight gain on treatment
I am currently on letrozole, zoladex, and verzinio with stage 4 bone mets with a hip replacement, kyphoplasty and spinal injury. It is hard to be active because of pain but I try to work out 3 days a week...I have gained 20 lbs in 6 months and am only eating 1500 calories a day. Looking for advice- I am 5"2 and never been…
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Awaiting MRI for Bone Mets
Hi! Probably a common situation… finished BC treatment a year ago this week. Two months ago hip started aching on and off. Now a little more consistent especially at night. Went to GP thinking he would send me with referral to PT. Instead X-ray ordered and result is “patchy areas of sclerosis with two largest 3.1 cm on…
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Bone Mets/PAIN
I apologize if there's already a thread on this topic, but I'm still having a difficult time navigating this new format. I've tried the search fields, but it's not directing me to a common thread. Anyway, I'm having a BAD pain day. Bone mets basically everywhere in my chest cavity. RIBS especially, sacrum, etc. I'm on…
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Newly Diagnosed liver/bones LOOKING FOR LONG TERM SURVIVORS/HOPE!
Hello there, After 10 years of stage 2 breast cancer, 3 months ago I discovered it has returned stage4 to my bones/liver. I thought it was all behind me… I am finding it so hard to cope & terrified of my future, especially being a mother of a young child. I am hormone positive, Her2- I would love to hear from others with…
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New to The Group/Help
Hello everyone. I'm not sure if I posted here on this profile as I was locked out for while. After over 11 years of NED, I now have met to the bones, and ?????? Not sure where else yet. The pain began several months ago in a rib on my right side. X rayed, nothing. Pain went away. About a week after that pain subsided, I…
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Hello Im new here.
Hi my name is Pam. Good morning. I'm just looking for support and advise or knowledge concerning my treatment. I was diagnosed in May of 2021 with metastatic breast cancer. I had breast cancer in2014 and had a right mastectomy and 12 rounds of chemo 5 years of anastrozole. Then this diagnosis. My oncologist started me on…
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Triple Negative Bone Mets, and ???
Hello everyone, I posted not long ago when it was discovered after 12 years of NED of have mets in the bones. I'm having a really hard time navigating this new forum, so I apologize in advance if I'm not posting in the right place. Never had issues "before." I'm sure I'll figure it out eventually lol. So of course I don't…
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Just diagnosed with metastatic breast cancer (MBC), Stage IV? Start here.
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our Zoom Meetups for MBC! Anyone with MBC, register here: Mondays 2-3:30 pm ET Tuesdays 8:30 pm ET Wednesdays 4-5:30 pm ET Younger With MBC, register here: Thursdays, bi-weekly at 1:00 PM ET…