Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jun 13, 2022 08:19PM sadiesservant wrote:

Divine, I had to chuckle at your suggestion of water aerobics. I was heavy until about six months before my original BC diagnosis. Since then (more than 20 years) I have been pretty slim but still, the thoughts of a swim suit make me shudder. It’s completely ridiculous as, since my MBC diagnosis, I have more trouble keeping weight on and am about 6 pounds less than my lowest weight pre-MBC. And yet, there is still a chunky person in my brain who wouldn’t be caught dead in a bathing suit. 🙄 Some neurosis runs deep….

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/29/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/21/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/19/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/10/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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Jun 13, 2022 09:39PM - edited Jun 13, 2022 09:43PM by rosie24

KBL, I second the idea of a water exercise class if you can find one. It feels good to move in the water. And it's nice to just follow along with the instructor and maybe chat with the other ladies (sometimes we do have a couple men) if you feel like it.

Dx 1/23/2019, DCIS/IDC, Left, 3cm, Stage IV, metastasized to liver, Grade 2, ER+/PR-, HER2- Hormonal Therapy 1/24/2019 Femara (letrozole) Targeted Therapy 1/24/2019 Ibrance (palbociclib) Surgery 12/4/2019 Lumpectomy; Lumpectomy (Left) Surgery 12/4/2019 Lymph node removal Radiation Therapy 3/18/2020 Whole breast Dx IDC/DCIS, ER-/PR-, HER2-
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Jun 14, 2022 06:56AM kbl wrote:

Thank you, Rosie24. I will definitely look into it.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Missed diagnosis from 2013 to 2019 Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/1/2019 Ibrance (palbociclib) Hormonal Therapy 5/1/2019 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole)
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Jun 14, 2022 11:20AM emac877 wrote:

I totally agree with water exercise. I try to stay active because it keeps me in my job. After my MBC diagnosis everything was such a whirlwind with my big hip surgery and the rod placement I wasn't active for several months other than learning to walk and heal after the surgery. I started with the pool at my gym (once Covid closures started lifting again) because it was the safest thing I could do as I learned balance and strength in that leg again.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 3/22/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/11/2019 Radiation Therapy 12/23/2019 External Local Metastases 12/23/2019 Radiation therapy: Bone Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 6/22/2021 Faslodex (fulvestrant)
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Jun 16, 2022 12:47PM sunnidays wrote:

Has this happened to anyone else?, I have had more pain in my hip, and the oncologist got me a referral for radiology, as soon as I got the referral the pain stopped, and by the time I went to see the radiologist I hadn't taken a pain killer for 3 weeks, he has a look at my scans and he recommended coming back when the pain is worse and as the pain comes and goes and is controlled by over the counter medication its best to leave it for now but come back whenever I want or feel I need it. The consultation seems very informal, he showed me my scans and had a bit of chat with me and that was it.

Dx 2/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR+, HER2-
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Jun 16, 2022 01:00PM kbl wrote:

I’ve been offered radiation on my hips, as both of them are a mess. Up to now, the pain has come and gone, but it’s been constant for a while. I am going to avoid radiation as much as I can there because I’m petrified they’ll mess up and hit something that will cause side effects that I’ll feel are worse. But I have never had radiation, so I might be more afraid of it than I need to be. If it gets even worse, I’ll have to reconsider.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Missed diagnosis from 2013 to 2019 Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/1/2019 Ibrance (palbociclib) Hormonal Therapy 5/1/2019 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole)
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Jun 16, 2022 03:58PM el_tigre wrote:

I have had hip pain and it was before my mets spread there (since Nov 21). I go in for an MRI today and have been signed up for PT by my primary. I hope that some of the pain is not cancer related and can be solved but we shall see.

Mine does remain annoying constant with worse days mixed in. I take OTC pain pills and use a heating pad or soak weekly in epsom salts.

Dx 6/12/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 9/24/2015 AC + T (Taxol) Radiation Therapy 1/27/2016 Whole breast: Lymph nodes Hormonal Therapy 3/8/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 4/15/2016 Herceptin (trastuzumab) Targeted Therapy 12/9/2021 Kisqali Targeted Therapy 3/12/2022 Verzenio Targeted Therapy 6/1/2022 Piqray (alpelisib) Dx IDC, Other, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-
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Jun 17, 2022 11:16AM kbl wrote:

el_tigre, I hope the MRI went well. I do know I have mets in my hips, but they say I have bursitis too, so who knows which is causing the pain. It can get frustrating when all we want is relief.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Missed diagnosis from 2013 to 2019 Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/1/2019 Ibrance (palbociclib) Hormonal Therapy 5/1/2019 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole)
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Jun 17, 2022 01:29PM dodgersgirl wrote:

KBL— have you had cortisone shots for the bursitis before? I have had 2 in my right knee and both did wonders for arthritis pains. My last one was 2019 and knee is still good.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/11/2017 Mastectomy; Mastectomy (Right) Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jun 17, 2022 08:57PM - edited Jun 17, 2022 09:01PM by kbl

DodgersGirl, I wouldn't have known what to do without cortisone shots in my calcific tendinitis right shoulder. They were a godsend. I think I said I had steroid shots in my hips, but I'm pretty sure it was cortisone. I'll go back and look at my report. I was supposed to go to physical therapy after but I didn't. The shots did help for a few weeks but after the cortisone in my shoulder, I was good for ten years the first time, and I had another one ten years ago, and I'm still good with that shoulder.

Sorry it takes me so long to respond. My days have gotten so busy. Lol

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Missed diagnosis from 2013 to 2019 Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/1/2019 Ibrance (palbociclib) Hormonal Therapy 5/1/2019 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole)

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