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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

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Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Jun 24, 2022 11:31AM sunshine99 wrote:

Damn, el_tigre! That really sucks! I hope PT helps and I hope they find a med that you can stay on for longer than six weeks!

(((hugs)))

Carol

my-sunny-side-up.com Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External Local Metastases 5/5/2020 Radiation therapy: Bone Radiation Therapy 5/12/2020 External Local Metastases 5/12/2020 Radiation therapy: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Jun 24, 2022 06:02PM ddil wrote:

Kris,

Well the good news is it’s not Mets! But changing how you do things. As women We are guilty of just doing and not thinking of ourselves or the consequences. My husband does help clean. I do a lot of the detail cleaning, like blinds .. stuff that gets overlooked. I also try to do the most I can I feel better moving around and sweating some.

Getting older means arthritis on top of the Mets. I hope PT helps you

DeNovo Lobular ER/PR+ Her - CHEK2 mutation. Right lymph and small 1.6cm tumor, Mets to bone. Ibrance, Letrozole and Xcheva Hormonal Therapy 1/17/2022 Femara (letrozole) Targeted Therapy 1/17/2022 Ibrance (palbociclib) Dx ILC, Right, 1cm, Stage IV, Grade 2, ER+/PR+, HER2- Dx Right Local Metastases Bone
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Jun 24, 2022 09:37PM kbl wrote:

Thank you, DDIL. I’ll keep you posted. My appointment with the neurosurgeon is July 13, but they may be able to get me in next week. If it’s not Monday or Tuesday, I’ll have to wait.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Jun 25, 2022 11:51AM daughterof wrote:

Hello all,

I usually post on the liver mets thread as that's what was first discovered for my mum and put her in stage IV, but she also has 2 spine mets (th6 and th11). She's currently on Ibrance/Letrazole and doing okay. Her spine mets are stable and the radiologist said "encapsulated" so he feels this med combo is great for her.. however, 3 days ago she developed pain in lumbar spine. It's sharp and only present when she's trying to stand up/sit down and bend forward. When walking, sitting, lying down there's no pain... I'm very afraid this might be a spinal met that went undetected.

She did have an abdominal MRI a month ago, but i don't know if those show lumbar spine? Any advice? What did bone mets feel like for you?

Thankful in advance,

A daughter of a wonderful woman

Dx 11/2012, IDC, Left, 5cm, Stage IIIC, 4/6 nodes, ER+/PR+, HER2- Dx 6/2021, IDC, Stage IV, metastasized to liver, ER-/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast Chemotherapy AC + T (Taxol) Chemotherapy FAC Surgery Mastectomy; Mastectomy (Left) Local Metastases Stereostatic body radiation: Liver
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Jun 25, 2022 01:54PM emac877 wrote:

I'm so sorry to hear that el_tigre! How frustrating! Hoping the PT gives you some relief and that they can find the combination your body needs.

Daughterof - it kind of depends how far down they went on the abdominal MRI. An abdominal MRI would most likely show T-spine and maybe a few of the lumbar vertebrae but it may miss the lower lumbar spine that would be included in the abdominal/pelvis region. I think it makes a difference if they use contrast also. The MRI's I have had done specifically looking for spinal mets are usually with and without contrast. Look at the report if you can get a copy of it. They should mention any bony area that looks abnormal and may list which vertebrae are in view.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 3/22/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/11/2019 Radiation Therapy 12/23/2019 External Local Metastases 12/23/2019 Radiation therapy: Bone Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 6/22/2021 Faslodex (fulvestrant)
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Jun 27, 2022 10:39AM el_tigre wrote:

thank you emac877. They gave me some slight movements that i think will help more mentally then physically. I have a rads consult today for the pelvis.

Dx 6/12/2015, IDC, Left, 4cm, Stage IIIA, Grade 2, 4/22 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 9/24/2015 AC + T (Taxol) Radiation Therapy 1/27/2016 Whole breast: Lymph nodes Hormonal Therapy 3/8/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 4/15/2016 Herceptin (trastuzumab) Targeted Therapy 12/9/2021 Kisqali Targeted Therapy 3/12/2022 Verzenio Targeted Therapy 6/1/2022 Piqray (alpelisib) Dx IDC, Other, 2cm, Stage IV, Grade 2, ER+/PR+, HER2-
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Jun 27, 2022 10:46AM moth wrote:

daughterof, is it possible her pain is more muscle than the deep bone pain? I started using Voltaren cream again recently and it's made a huge diff because the pain is stiff muscle whacked up by other issue. I also am gently starting some stretch/strength but man, the voltaren is working so well.....

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

 Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Jun 27, 2022 02:33PM daughterof wrote:

Emac877, thanks for replying. I contacted her radiologist and he said lumbar spine wasn't recorded but he seriously doubts it's a new met since the two she has showed great response to medications.

Moth, it does seem to be muscular.. she feels a lot better since I gave her a massage, she can bend almost normally and getting up/sitting down doesn't seem to hurt anymore. Glad Voltaren is helping you, I might buy it for mom as well once we return home from Spain.

Thanks for replying and hope you're feeling better ❤️

Dx 11/2012, IDC, Left, 5cm, Stage IIIC, 4/6 nodes, ER+/PR+, HER2- Dx 6/2021, IDC, Stage IV, metastasized to liver, ER-/PR+, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast: Breast Chemotherapy AC + T (Taxol) Chemotherapy FAC Surgery Mastectomy; Mastectomy (Left) Local Metastases Stereostatic body radiation: Liver
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Jul 5, 2022 09:29PM parakeetsrule wrote:

I had my second scan last week and there seems to be some confusion! It sounds like all/most of the mets in my chest are either gone or stable but they are reporting a bunch of "tiny osseus metastases" in a bunch of new places but the way it's worded sounds like they were there before, or maybe that's just how it's described? It says "worsening" but they were never mentioned before.

And my oncologist said she is confused too because the CT/PET reports contradict or something, and she's sending them out to be reviewed by Someone Else. Not sure who that is. Ha. But okay.

The report also says all the bone junk is "non-FDG avid" which I thought was good, but maybe not if the spots weren't there before? Could they have popped up after my last scan and then gotten taken out by the treatment? It also calls them all "sclerotic lesions".

So I don't know if this is good or "yikes" news. But I'm glad my pleural effusion has stayed gone!!
Stage 2 at 37, Stage 4 at 41. Cancer is dumb. Cookies are good. Dx 3/21/2017, IDC, Left, Grade 2, ER+/PR-, HER2- Chemotherapy 5/15/2017 AC + T (Taxol) Hormonal Therapy 12/8/2021 Faslodex (fulvestrant) Targeted Therapy 12/13/2021 Piqray (alpelisib) Dx IDC, Other, Stage IV, ER+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal (Left); Mastectomy (Left) Radiation Therapy Whole breast: Lymph nodes, Chest wall
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Jul 6, 2022 11:28AM sunshine99 wrote:

parakeetsrule, what a confusing report! I hope the "Someone "Else" can make sense of it!

Carol

my-sunny-side-up.com Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External Local Metastases 5/5/2020 Radiation therapy: Bone Radiation Therapy 5/12/2020 External Local Metastases 5/12/2020 Radiation therapy: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)

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