Bone Mets Thread

Thanks for the info. It has some good info.

Thanks for the link. I have mulitple bone mets yet I've only had symptoms twice which were/was (?) before dx. and nothing since then. Guess the Zometa helped with that.

Keep in touch,

Edie

Hi Donna,

  I'm not completely sure, but I think anything abnormal on xray would show up as shadowing or density. Unless of course it's a fracture, then you would be able to see the fracture or break. A definitive dx not usually made till the follow-up with CTscan, Bone scan, or MRI. I have extensive bone mets and my bone mets showed up as increased uptake activity. The uptake is the dye thats administered for the bone scan. It will usually "light up" at the bones that have cancer. 

 You should consult with your onc after you get your xray results back and determine if you need any followup.

I hope your pain is better and you're able to walk more comfortably. Good luck!

Rose

Donna,

I had PET and MRI which suggested a bone met and a biopsy confirmed it. My mo does not use standard x-rays for possible mets. Caryn

Thanks for the thread!

Does anyone know what it means when my tumor markers go down, but the LDH goes up??

I have widespread and extensive bone mets.  I had no symptoms, no pain.  My calcium level, alk.phos., etc., showed all was ok. Nothing was elevated .  I was ready to leave when I just happened to mention having some shortness of breath and a cough with exertion and the cough was worse at night when I lay down.  Chest xray led to a CT with contrast of my chest - not in my lungs but showed in my bones.  My oncologist kept saying "we don't understand why you weren't having pain" over and over to me.   My bone mets advanced on Faslodex.  Am no on Araxane, we'll see.  After my mets diagnosis my PCP ran some blood test and he checked my Vitamin D level and told me I had basically no Vitamin D.  I did have plenty at an early check - so now have to take the Vitamin D. 

Anyone having problems with low calcium, potassium and sodium levels?  Now I have many areas that are painful and am having trouble with the pain meds being enough and have only been on Oxycontin and Oxycodene for about a month - looks like we will have to increase the dosage. 

jac53,

Was that a blood test that showed high calcium?  My recent Vit D was really high so doctor told me that wasn't good and to stop taking it because it caused high calcium levels.  But he doesn't have a calcium number for me. 

Naniam,

Does your doctor test your calcium, potassium and sodium levels with blood test?  I know my oncologist wouldn't do this. I could probably have my ND to it.  Is there a connnection with low calcium, potassium, sodium and cancer? Is that what causes bone pain? 

This reminds me of the question on a Gerson thread...why do they eat potatoes b/c I thought they were "white" and starchy.  But I think potatoes have a lot of potassium and sodium so I wonder if that is why Gerson has that as part of their cancer treatment? 

I have extensive bone mets for 6 years and my sodium level has been consistently low or borderline.  I've had minimal to tolerable bone pain for the last 6 yrs. until the last month or so.  This new, terrible pain is in my left shin area.  Can't figure why other than new mets or bone pain due to Aromasin which I started 5 months ago.  Had clear ultra sound and xray.  I see Onc.  tomorrow and am due for my 6 month Pet/Ct but will request whole body scan rather than usual scan which ends at mid thigh. Hoping it's se's rather than more mets!!       Bev

Thanks Chrissy, I heard that too.  Here's hoping!!       Bev

Jac53, thanks for asking. Saw Onc. yesterday.  She is ordering a ct scan with contrast of leg. She feels leg pain is probably a se of Aromasin. If scan is negative (hopefully), then will consider going off aromasin and back to femara, which worked in past, but stopped due to horrible side effects.   Hoping for clear scan, then I have choice of being in pain from aromasin or sick from femara. I've been doing this almost 6 yrs. now and since it's still confined to bones want to save other treatments (i.e.faslodex or chemo) till I have to.     Bev

I just found this site.  This month will mark 5 years since I had my mastecomy.  But, I do have bc that spread to the bone.  I also had surgery for a spinal tumor in Dec. 2006. I also had 3 Cyberknife treatments in Jan. of 2007for my back.   I was on Femera and was getting monthly infusions of Zometa.  Had to stop the ZOmeta because of jaw bone deterioration, which is a se of the ZOmeta.    It seems all of those kinds of drugs have this se.  I had been getting MRI's, CAT scans, PET scan regularly as they were watching a place in my spine.  After a PET scan in Dec. there was a slight change in this area.  My oncologist took me off of the Femara and put me on Aromisin.  I had had no problems with the Femara, but have had some slight se,  which I am attributing to the Aromisin.  Trouble with my legs and tireness.  After blood work last Friday,  the cancer center nurse called and said there was a raise in my calcium level.  I am going tomorrow for a one-time infusion of the Zometa.  I also had PET scan last Friday, also, and have an appt. with the oncologist next Tues.  I am wondering what has caused the calcium level to rise.  I have not had any problems for the past 5 years, except have to use a walker from the problems I had with my spine. But, I have felt great this whole time and able to lead a pretty normal life.  I am 78. I don't have any pains at all.  I am trying not to worry but am wondering if anyone has had this problem and what. All of the postings I have read above are very encouraging.   Thanks. 

Thanks, Chrissy.  I get regular blood tests,  but would that be a separate one from just the routine ones.   I will mention it tomorrow when I go for the infusion.  The blood work I had done in May was the best it has ever been.   So, this really has me puzzled.  Unless, which is what I am thinking,  the place in my spine is what is causing it and the new med, Aromisin, isn't helping.  The orthopedic oncologist did tell me that I could have more of the Cyberknife treatments.   The blood work for the tumor markers was better than it has ever been.   When I was first diagnosed back in 2006,   those numbers were very high up in the 100's.  It is down to 41 now, and the normal is 38.   In February,  when I saw the orthopedic dr, he was the one who mentioned about this place they have been keeping an eye on in my spine.  And, he preceded to tell me not to worry about it and the medical oncologist had told me not to lose any sleep over it.  That I was more worried about it than they were.  Easy for them to say. So, that is another reason why I am puzzled now after everything being pretty good in May. 

 I see where you are a long-time survivor..... nearly 9 years.  That is wonderful and hope that you feel good.  And continue to do well.  Thanks again for your encouraging needs.

   Hugs back to you,  too.     Joy

Joy, it's good to see your markers dropping so well.  At 41 you are almost back to normal and if the pain in your leg was due to mets they would be rising so I'm pretty sure you are looking at either arthritis or perhaps a bit of nerve damage from the mets in your spine.

I have very bad arthritis and had a total knee replacement done 12 weeks ago so the other leg has been taking all the work to keep me getting around.  That knee also needs to be replaced and I have been having shin pain  as well but I'm sure that is  transfered from the knee. 

 Apart from fatigue I am doing very well and am only on Femara and have been for 21 months but it seems to be doing its job and keeping me stable.  Here's hoping the Aromasin does it for you.

Love n hugs.  Chrissy