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Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY —

Please respect that this forum is for members with stage IV/metastatic breast cancer only. There is a separate forum for caregivers and friends: Caring for Someone with Stage 4 or Mets.

Posted on: Jun 22, 2012 01:09AM - edited Oct 31, 2012 12:07AM by Jac53

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

This is an easily readable Bone Mets Q&As from the Bone & Cancer Foundation:  http://www.boneandcancerfoundation.org/pdfs/Breast_Cancer_Q+A.pdf

Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Apr 19, 2021 03:23AM sunnidays wrote:

My issue started sometime last year, my doctor said its bursitis sent me for an x-ray which showed nothing then take an anti-inflammatory get some therapy for it all of which I did but in reality, I should have phoned the cancer center and they would have sent me straight for a bone scan which is what they did when I phone them eventually as it was not getting better.

I had a bone scan and a CT scan my oncologist wanted me to get an MRI but I am highly acrophobic so she said I could skip it. I don't suppose a few months make any difference as she said I have indolent disease which I think means it's slow-growing.

I now think it's better to bypass the local doctor and always go back to the cancer team.

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Apr 19, 2021 06:41AM dlittkemann wrote:

Looking for info. I have bone Mets. TNBC. Tumour markers were in 500s. Now 138. No scan but due soon. Will be 6 mos come May. Is that much of a drop a good thing? Hoping so. Praying yes. Thanks in advance for any info :-

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Apr 19, 2021 06:43AM JoynerL wrote:

I would surely think so!!

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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Apr 19, 2021 07:37AM dlittkemann wrote:

Thank you so much for your reply!! I would think so too, I would think that much of a drop has to be some type of positive. Praying hard that this is my remission drug. So need a break from chemo 🙏🙏🙏

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Apr 19, 2021 11:20AM Sadiesservant wrote:

Sounds pretty positive to me! Hooray!

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)
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Apr 19, 2021 12:51PM dlittkemann wrote:

Hope so! Thank you so much. My MO doesn’t get too excited but I will take it!! Seemed like a decent drop to me. Fingers crossed.

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Apr 19, 2021 12:52PM emac877 wrote:

Thank you KBL and Sadiesservant. I will mention it to my MO when I see her at the end of the month. It's been about 5 months since I've had any imaging so maybe I'm due? I saw my primary doc this morning and the ear infection is cleared but some swelling remains so I'm on an eardrop with steroids for that. She also thought there was a possibility of TMJ so I was ordered some PT and a referral to acupuncture. I have never done acupuncture so I will say at this point I'm cautiously curious. Not sure what I think of that. She agreed with you that it sounds like an ear infection but that so much of this could be compounded it's hard to know. I got a shot of Toradol and that with the Tylenol has helped tremendously. Today and I feel almost normal so I'm counting my blessings where I find them.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/12/2019 Radiation Therapy 12/23/2019 External: Bone Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 11/11/2020 Aromasin (exemestane) Hormonal Therapy Faslodex (fulvestrant)
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Apr 20, 2021 07:07AM GerdaM wrote:

Hello all, I am new to these boards and decided to join because my last scan wasn't what Inwas hoping for. I had a brain met in 2017 which has been successfully resected and radiated and a liver met. A brain recurrence was blasted successful by Cyberknife which males me NED in the brain since 2 yrs. I am on Herceptin and Perjeta IV and switched to Phesgo recently.

Have been NED below the neck until on my last scan a suspect tiny 13mm lesion was seen on my 3rd lvb. It's sitting in the last third of the left vertebral arch on the inside of the vertebral canal.

I am not ready to leave my NED train already, even started to work full time but currently I need some hope. No other lesions in the monitored area around. Compaires to the last scan 3 months ago it has already been there an measured 10mm and showed up diffuse. I don't get the growth from zero to 10mm in 3 months bit then only a likely growth of 3mm in another 3 months. No pain and tumor markers in the normal range

My doctors suggest to monitor it and add xgeva into my mix.

Is there a chance the lesion could be benign like a cyst or similar?

All my good thoughts to you Heart

Gerda

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Apr 21, 2021 08:24AM ChathamLady wrote:

mine went down by 30 after 1 month on Verzenio and 2 on lettrizol and I’m doing the happy dance. I think you should too!!!

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Apr 21, 2021 08:53AM dlittkemann wrote:

So good to hear. Happy for your numbers too and thank you for your reply :-)

Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Dx 4/2018, DCIS/IDC, Right, 6cm+, Stage IIIB, ER-/PR-, HER2- Chemotherapy 6/25/2018 Radiation Therapy 1/20/2019 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right
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Apr 21, 2021 09:23PM ALovingDaughter wrote:

hello. I am not the patient, but my mother. Her scans showed spinal metastasis. Can anyone share stories about them with spinal metastasis that lived for more than 10 years

Dx 8/22/2018, IDC, Right, 6cm+, Stage IIIB, Grade 3, 22/22 nodes, ER-/PR-, HER2+ (FISH) Chemotherapy Xeloda (capecitabine) Targeted Therapy Tykerb (lapatinib) Radiation Therapy 3DCRT: Breast Chemotherapy TAC Surgery Mastectomy: Right
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Apr 21, 2021 11:33PM - edited Apr 21, 2021 11:33PM by Cure-ious

Loving, You should check out a Her2-positive thread, ten years is very do-able for her cancer subtype..

Dx 10/2003, IDC, Stage IIB, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Apr 23, 2021 10:50PM GerdaM wrote:

My post maybe disappeared between the recent posts. Has anyone an idea? My oncs want to radiate it now with curative intent as I am in the oligo fraction but I am so much afraid of a likely receptor change and that lesion will keep popping up if it's not benign :( I am so desperate.

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Apr 23, 2021 11:22PM - edited Apr 23, 2021 11:24PM by Cure-ious

Gerda, I don't quite get why you would not want to just radiate that spot and be sure its gone? Whatever the receptor status of it might be, if it is cancer, you have the chance right now to get rid of it.. And of course, XGEVA, it stabilizes bones but also coats them and can help prevent bone met spread

Dx 10/2003, IDC, Stage IIB, ER+/PR+, HER2- Dx 7/2015, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Apr 23, 2021 11:58PM GerdaM wrote:

Sure I want it to be radiated. Sorry if this hasn't been clear. Anyway I am afraid the tumor changed and the Her2-meds stop working. Would Xgeva be the same as Zometa?

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Apr 24, 2021 03:20AM JoynerL wrote:

Gerda, I personally didn't reply because I don't have any sort of educated answer for you. I lean on Curious, as her guidance and knowledge base are typically educated and spot on. The best of luck to you...and to us all.

--Lynn Dx 12/1990, IDC, Left, <1cm, Stage IIA, ER+ Surgery 1/2/1991 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Nipple reconstruction, Saline implant Chemotherapy 1/15/1991 CMF Hormonal Therapy 6/30/1991 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 10/31/2002 Evista (raloxifene) Dx 2/9/2017, IDC, Left, 1cm, Stage IV, metastasized to bone, ER+/PR-, HER2- Hormonal Therapy 3/5/2017 Faslodex (fulvestrant) Targeted Therapy 3/5/2017 Ibrance (palbociclib) Radiation Therapy 1/9/2019 External: Bone Chemotherapy 1/17/2019 Xeloda (capecitabine) Radiation Therapy 10/27/2020 External: Lymph nodes
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Apr 24, 2021 03:56AM NicoleRod wrote:

Hi ladies I do not see a thread for Faslodex? So i am going to post here and bone mets thread.

About 4 days ago my neck and back were hurting thought I either slept wrong or that it was my mets in C7 and T3 acting up but usually that feels like just burning in the spine. Then I got my first faslodex shots Thrusday and last night my spine (where my mets are) and my whole upper back and neck started hurting so bad like not just the spine the musles too is this from the Faslodex?

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 Cryoblation on 2 of 4 tumors in liver. Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Apr 24, 2021 07:08AM - edited Apr 24, 2021 07:27AM by Meja

Hi NicoleRod,

Here's the thread for Faslodex: https://community.breastcancer.org/forum/8/topics/816419?page=114#idx_3393

This thread is fairly active; it's not unusual to experience muscle pain/spasms after Faslodex shots,

- I hope it eases up soon.

Meja

Dx 12/10/2015, IDC, Right, 3cm, Stage IIB, Grade 1, 2/15 nodes, ER+, HER2+ Dx 1/11/2016, Paget's, Right, <1cm, Stage IIB, Grade 1, 2/15 nodes, ER-, HER2+ Surgery 1/11/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 4/6/2018, Stage IV, metastasized to bone, ER+, HER2+ Targeted Therapy 10/30/2018 Kadcyla (T-DM1, ado-trastuzumab) Targeted Therapy 8/7/2019 Herceptin (trastuzumab) Chemotherapy 9/19/2019 Xeloda (capecitabine) Hormonal Therapy 5/27/2020 Faslodex (fulvestrant) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Navelbine (vinorelbine) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole-breast: Lymph nodes, Chest wall Chemotherapy Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxol (paclitaxel)
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Apr 24, 2021 07:31AM illimae wrote:

Gerda, I’m oligo too with a single met to my hip bone at diagnosis. After nearly 4 years stable, the spot woke up and became active again. My team does not believe the pathology changed or that Herceptin stopped working but I did get into a trial (EXTEND) to see if radiation with systemic therapy is better than systemic alone. It was radiated last July and has now completely headed. My treatment has changed to address my brain mets but Herceptin is still a big part of it.

I’m also on Xgeva (a shot every 6 weeks), from what I’ve read zometa is similar but Xgeva has better results reported and a higher cost.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 24, 2021 08:13AM Snow-drop wrote:

Bev, I wish you speedy recovery, please do check in if you can.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
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Apr 24, 2021 11:41AM NicoleRod wrote:

Thanks Maja

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 Cryoblation on 2 of 4 tumors in liver. Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Apr 24, 2021 12:02PM Olma61 wrote:

Gerda, my experience with bone mets and HER2 meds is similar to illimae. Was NED after initial treatment with Taxol, H&P, had one spine met become active in early 2019. Had that one radiated 5/19 and have been NED again ever since with no change in HER2 meds.


10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Apr 24, 2021 10:34PM GerdaM wrote:

It's good to hear you are still NED without a treatment change. My doctors now assume it could be hemangioma / bone island as they mimic metastasis but anyway it will be radiated. If it's benign the bone gets stabilized. If it's met we'll hopefully get rid of it. Glad there is a plan.

I am still hoping for people chiming in who had benign lesions docs assumed they were mets.

Have a good weekend

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Apr 25, 2021 11:50AM NicoleRod wrote:

How do I know if I need to go to the hospital if I am not sure if my spine got fractured? I have been in pain in my neck and back spine where my mets are C7 and T3 really bad since friday night also my sacrum is really bad pain too (also have mets there) I cannot tilt my head down I just dont know if should go to hopstial or just wait and talk to doctor tomorrow??

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 Cryoblation on 2 of 4 tumors in liver. Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Apr 25, 2021 12:37PM - edited Apr 25, 2021 02:38PM by JACK5IE

Nicole...I have been having terrible headaches that seem to come from my neck area and goes up the back of my skull around my eye and ear on the left side. I would always get these same headaches on occasion but it's been daily since 4/14. It all happened a few days after I received my Covid vaccine. I was thinking it was my body reacting to the Covid vaccine and causing inflammation but now my doctor wants to send me for an MRI to rule out a brain tumor. I wrote my own details in the Ibrance thread. But, I was just wondering if you had the Covid vaccine? If so maybe it's causing inflammation? I'm sorry you are still in so much pain. I know how much it sucks.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 8/1/2009 TAC Hormonal Therapy 1/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/1/2010 Lumpectomy: Left Radiation Therapy 5/1/2010 Whole-breast: Breast, Lymph nodes Surgery 7/1/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 8/1/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
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Apr 25, 2021 12:56PM NicoleRod wrote:

Jackie.. No ...no covid vaccine...I don't have headaches either just terrible pain..I originally wondered if it was from the Faslodex shot on Thursday...but this in the spine and muscles and ONLY where I have mets....and plus I use to get Faslodex shots 2 years ago and never felt any of this..(I didn't have spine mets then)....

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 Cryoblation on 2 of 4 tumors in liver. Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Apr 25, 2021 07:20PM GerdaM wrote:

Nicole, when was your last scan? It's not very likely all your met's sites start hurting at the same time - especially after a systemic event

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Apr 25, 2021 09:32PM emac877 wrote:

Nicole - I hesitate to chime in on whether you should go to the hospital or not. I feel like the best person to decide that is you. I will say that in your shoes, if there was any question at all about a fracture, particularly in the cervical region I would probably go. I say that only because I am one who put things off historically and I regret that. When I first saw the dimpling on my breast I think my gut feeling was that something was wrong but I talked myself into believing that I had cellulite for about 6 months before I actually asked about a mammogram. I was 40 and didn't think I was a high risk. By the time I had it checked out I was stage 2. When I first started worrying about mets I convinced myself I'd torn a groin muscle and hobbled on that hip for two months before I talked to my oncologist who ordered an MRI. I'm learning now that if I have a legitimate fear with any rationale at all, I check it out. Even if I end up feeling like a hypochondriac. That's just me.

GerdaM - Not sure we have the same situation at all but I do have a non-metastatic bone cyst. I had several bone mets when my progression was discovered. This past year a spot showed up on my left shin that is about 6 inches long. There was some question that it was a met and what should we do if that was the case. It was looked at finally by an orthopedic oncologist who decided it was a benign cyst. I never had any biopsy on it. I am relying on his expertise in reading the films to determine that. In any case, the treatment right now is to watch it and wait. It lights up like a light bulb on a bone scan but also shows up on an x-ray, something my other mets don't do. So, I don't know if that helps you. My treatment remains the same and I remain stable with my other mets without progression.

Dx 2/8/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/22/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Chemotherapy 6/8/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/26/2018 Whole-breast: Breast, Chest wall Dx 12/4/2019, IDC, Stage IV, metastasized to bone Surgery 12/12/2019 Radiation Therapy 12/23/2019 External: Bone Targeted Therapy 1/7/2020 Verzenio Hormonal Therapy 11/11/2020 Aromasin (exemestane) Hormonal Therapy Faslodex (fulvestrant)
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Apr 26, 2021 05:45AM NicoleRod wrote:

Thanks ladies. I decided last night to take a few motrin and xanex and wait it out. Oddly enough when I get up from sleeping (and this happened Sunday morning and today) my pain is much better...I am thinking maybe that is bc there is not pressure on the spine. My pain is worst when sitting. Also I notice my pain is worst on the left side of my neck and back...and again oddly enough I have had to sleep on the left side since december from liver pain from the Y90 on my right side...coiencidence? Maybe...I just don't know I do want to see if my MO mentions anything thing about the faslodex since I got the shots Thursday (first ones) and pain started Friday... we also upped my Afinitor dose Thursday to 5mg....

GerdaM...I had. PET scan done about 4 weeks ago there was progression in C7 and T3....I have an MRI with sedation scheduled for June 16th....1. they couldn't fit me in with anesthsia any sooner than that and the RO told my MO he wanted to wait anyway till then to see if the Afinitor would do anything.....

Right now this morning I feel a bet better I will let you know what my MO says.

Thank you again for the responses.Its really great not to feel so alone when in these situations.

Dx 12/14 Stage 0, Grade 3, ER+/PR, HER2- (FISH),Dx 04/19, Stage IV mets to bone/liver, Hormonal Therapy 04/19 - 10/19 Ibrance/let/faslodex 10/19 Cryoblation on 2 of 4 tumors in liver. Dec 2019-May 2020 Xeloda Failed May-July 2020 - Doxil Failed Dx 12/19/2014, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- (FISH) Dx 2/5/2019, IDC, Right, Stage IIA, Grade 3, ER+/PR-, HER2- Dx 3/2019, Stage IV, metastasized to bone/liver, Grade 3, ER+/PR-, HER2- Hormonal Therapy 4/28/2019 Surgery Chemotherapy Doxil (doxorubicin) Chemotherapy Xeloda (capecitabine) Radiation Therapy Surgery Mastectomy: Left, Right
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Apr 26, 2021 06:22AM S3K5 wrote:

Nicole, glad your pain has subsided. Cervical mets (for me) hurts more than any other spots on my spine and yes, sitting for longer periods of time doesn't help. It seems like you had multiple things going on which could have resulted in increased pain - faslodex shots, increase in Afinitor and progression. I take Celebrex (anti-inflammation med) along with long acting Tramadol (for pain) and Dexilant (for stomach issues). This combo seems to help keep my pain under control. It is good that Motrin helped you with pain relief but you may want to ensure you take something along with it to minimize your stomach issues (Motrin gives me stomach burn).

Faslodex can cause pain, depending on how the shot was given. My nurses always warmed up the syringe to room temperature and was very slow while injecting. She asked me keep moving after the shot to distribute the medicine and also to gently massage the area so it doesn't harden up. I guess each onco nurse does things differently but this was the advice from my nurses and I think it definitely helped.

S3K5 Dx 3/24/2008, IDC, Right, 3cm, Stage IIIA, Grade 2, 5/10 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 4/14/2008 AC + T (Taxol) Targeted Therapy 5/29/2013 Ibrance (palbociclib) Chemotherapy 1/31/2019 Xeloda (capecitabine) Chemotherapy 4/4/2019 Taxol (paclitaxel) Chemotherapy 10/29/2019 CMF Targeted Therapy 7/6/2020 Piqray (alpelisib) Dx 10/19/2020, IDC, Right, Stage IV, metastasized to bone/liver, ER-/PR-, HER2- (IHC) Chemotherapy 12/9/2020 Doxil (doxorubicin) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Gemzar (gemcitabine)

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