Topic: Bone Mets Thread

Forum: Stage IV/Metastatic Breast Cancer ONLY — Please respect that this forum is for members with stage IV/metastatic breast cancer ONLY. There is a separate forum for caregivers and friends: Caring for Someone with Stage IV or Mets.

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Posted on: Jun 22, 2012 04:09AM - edited Oct 28, 2021 03:22PM by moderators

Jac53 wrote:

I've started this thread after suggestions that it would be useful.

Mod Note: We have removed the original link as it is no longer viable. At one of our member's' recommendation we are offering this link as a resource for you.

https://youtu.be/YpFfLrITfEI


Jeannie. "You only live once, but if you do it right, once is enough." Dx 6/19/1995, 10/15 nodes Dx 2/18/2011, Stage IV, mets, ER+/PR+, HER2- Dx 7/2/2012, Stage IV, mets, ER+/PR+, HER2-
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Sep 21, 2015 04:54PM dlb823 wrote:

No wonder you're feeling totally overwhelmed, keetsmom. Please let us know if there's anything we can do to help you in addition to praying for you and your family. (((Hugs))) and prayers that a move to a one story house will go quickly and smoothly. Deanna

Deanna "The soul would have no rainbow if the eyes had no tears" Native American proverb Dx 2/1/2008, 1cm, Stage IIA, Grade 3, 1/16 nodes, ER+/PR+, HER2- Dx 1/3/2014, Stage IV
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Sep 21, 2015 05:26PM Xavo wrote:

keedmom, do you know American Cancer Society has a lodging program providing cancer patients and their caregivers with free over night stay at co-op hotels for doctor visits and treatments? This is the link http//www.cancer.org/treatment/supportprogramsservices/p...

I am very sorry for what you are facing. Hope you have successful treatment and are able to manage your daughter's treatment. You are in my thoughts. Let us know how we can help.

Dx 12/2002, IDC, Left, 4cm, Stage IIB, Grade 3, 5/12 nodes, ER-/PR-, HER2- Surgery 1/2/2003 Mastectomy: Left Dx 2/27/2015, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Chemotherapy AC Radiation Therapy Chest wall
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Sep 21, 2015 05:33PM AmyQ wrote:

Rachel1

I've had pain there as well for the last few months. Since I don't wear a bra any longer but I do wear a compression garment for LE, I pull my straps down at night so I don't get the pulling sensation on the top of my shoulder. I ought to have the results of my next scan by Friday so hopefully the pain is nothing but just pain and not cancer.

Keetmom, I am so sorry to hear of your dd and her tumors. As a parent I just know you'd rather trade places with her. I believe in the power of prayer so will be praying for her and you.

Amy

Dx 2/7/2013, IDC, 1cm, Stage IV, Grade 2, 2/3 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 7/19/2013 Femara (letrozole) Radiation Therapy 11/25/2015 External: Bone Hormonal Therapy 1/10/2016 Faslodex (fulvestrant)
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Sep 21, 2015 06:34PM Lynnwood1960 wrote:

Keetmom, I am so very sorry that you are going through so much right now! My prayers will be with you and your family, especially your daughter. We are supporti you here in spirit.

Dx 4/6/2015, ILC, Right, 3cm, Stage IV, Grade 2, 0/12 nodes, ER+/PR+, HER2- Targeted Therapy Ibrance (palbociclib)
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Sep 21, 2015 06:35PM annieoakley wrote:

Hello to all,

Linda, my feeling better was short lived. Struggling with same issues so put a call into the cancer centre today. The nurse called back and my MO said to double up on the stomach meds to see if it helps, looking like the Celebrex may be taking a toll on my stomach. I stopped it yesterday and haven't taken any today to see if I notice an improvement. So far today not too bad but I was still pretty sick this morning. I'm worried I might have an ulcer, we shall see.

rnsparki, so glad you decided to stop lurking. Wishing you the best with your clinical trial. Being a nurse practicioner I'm sure you are very knowledgeable and would be an asset to many of us here.

keetmom, I'm so sorry you are going through so much, bad enough you have your own health issues but worrying and dealing with a child's illness is overwhelming. If there is anyway we can help, please let us know. Sending prayers and healing hugs your way. 

To all the beautiful women here who I can't personally address right now know I'm thinking of you all!

Hugs to all, Annie

Surgery 5/8/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/23/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/28/2012 Surgery 2/1/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/12/2013 Prophylactic ovary removal Surgery 9/4/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/4/2014 Femara (letrozole) Radiation Therapy 12/1/2014 Bone
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Sep 21, 2015 06:39PM Lindalou wrote:

Keetmom, I'm sure you have been given this cancer connect link from UW, but just in case here it is. I was able to get a reduced hotel rate at the Best Western (remodeled last year) right down the street, on Highland Ave. from the hospital. Also, cancer connect will help with driving you or your family to the center for treatments. I wish I lived a little closer to help you with the drives. My family also had very good help from UW Health American Family Children's Hospital.

There are also psychologists right at the Carbone center if you feel like you could use someone to talk to, and who also know the ropes at UW.

Dr. Toby Campbell is chief of Palliative care and is a wonderfully compassionate man who also can help guide you. He can be reached at 608-821-4819. He has a medical degree in oncology and palliative care. I can't say enough about him. Sorry if all of this has already been given to you. If not, perhaps some of this information will help you and your family. We are all here for you.

cancerconnect@uwcarbone.wisc.edu

Linda Dx 11/1/2007, ILC, Left, Stage IIB, Grade 3, ER+/PR+, HER2- Dx 8/2009, Stage IV, metastasized to bone Dx 5/13/2014 Targeted Therapy 4/21/2017 Ibrance (palbociclib) Chemotherapy 10/2/2017 Carboplatin (Paraplatin), Gemzar (gemcitabine) Chemotherapy 10/23/2017 Xeloda (capecitabine) Radiation Therapy External: Bone Radiation Therapy External: Bone Surgery Mastectomy: Left, Right Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Radiation Therapy External: Bone Radiation Therapy Bone
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Sep 21, 2015 08:01PM - edited Sep 21, 2015 08:02PM by keetmom

Thank you all for your kind words, She has 9 total brain tumors, most are stable this one is growing quickly. .hopefully most of her chemo this time is oral, and we can do labs close to home. She has done 5 other protocols, never thought we would still have her at this point.. (she also is a below the knee amputee due to the genetic disorder that has caused all of the brain tumors)

Linda when down there for Emma we can stay at Ronald McDonald House...10 a night and they feed us!

I just need all of us started on treatment and be settled in a new place, family is working on planning fundraising to get us moved, which also is tough because we have been fighting her brain tumors 8 years and it is really hard to accept that we can't do this on our own. I have control issues so letting others take care of things is hard.


Amie


Dx 10/2012, DCIS, 1cm, Grade 2, ER+/PR+, HER2- Surgery 11/9/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 11/16/2012, IDC, 1cm, Grade 2, ER+/PR+, HER2- Dx 11/16/2012, IDC, 1cm, Grade 2, ER+/PR+, HER2- Chemotherapy 11/26/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/26/2013 Reconstruction (left); Reconstruction (right) Surgery 4/26/2013 Prophylactic ovary removal Hormonal Therapy 5/22/2013 Arimidex (anastrozole) Dx 9/2015, Stage IV Chemotherapy 6/15/2017 Taxol (paclitaxel) Dx 3/2018, Stage IV, metastasized to brain Radiation Therapy 3/5/2018 Chemotherapy 3/22/2018 Carboplatin (Paraplatin), Gemzar (gemcitabine) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Afinitor (everolimus) Chemotherapy Xeloda (capecitabine) Chemotherapy Chemotherapy Taxol (paclitaxel) Radiation Therapy External: Brain
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Sep 21, 2015 10:29PM 513mgv wrote:

I'm anxious about MRI tomorrow of lumbar area due to increased pain in low back and left hip. I also have a lot of muscle spasms and sharp burning pain in left hip. Just tired of being doped up all the time to get thru the day. Marilyn

Dx 12/13/2011, IDC, Stage IV, mets, ER+/PR-, HER2- Hormonal Therapy 12/22/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 21, 2015 10:40PM annieoakley wrote:

Marilyn, praying your MRI comes back clear. Sometimes the meds we take to keep the cancer at bay cause us pain. Have you been on Aromasin only since your diagnosis of mets? I am on letrozole and it has caused me pain in areas I never had before. I take Celebrex to try and counteract the arthritis letrozole is causing and now it is giving me stomach problems. I can totally understand you being tired of being doped up. Sending positive thoughts and healing energy your way. Please let us know how you make out. 

Surgery 5/8/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 8/23/2012 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 9/28/2012 Surgery 2/1/2013 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/12/2013 Prophylactic ovary removal Surgery 9/4/2013 Reconstruction (left); Reconstruction (right) Dx 9/3/2014, IDC, 1cm, Stage IV, Grade 1, 0/0 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 9/4/2014 Femara (letrozole) Radiation Therapy 12/1/2014 Bone
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Sep 21, 2015 11:34PM kjones13 wrote:

Keetmom--wow...speechless. Praying that you find peace in letting others help. I'm overwhelmed just trying to wrap my head around your family's situation. Lots of prayers and hugs

James 1:2-4 Dx 9/14/2012, IDC, 6cm+, Stage IV, Grade 3, 11/11 nodes, mets, ER+/PR-, HER2- Surgery 10/9/2012 Lymph node removal; Lymph node removal (Right): Sentinel Targeted Therapy 10/17/2012 Herceptin (trastuzumab) Targeted Therapy 10/17/2012 Perjeta (pertuzumab) Chemotherapy 10/17/2012 Taxol (paclitaxel) Hormonal Therapy 3/1/2013 Surgery 10/24/2013 Mastectomy; Mastectomy (Right)

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